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Trapped nerve/ shoulder pain
last July I was diagnosed with low b12, I started on a series of 6 injections before starting on a three monthly top up regime. In that time I also received my annual flu vaccination and most recent covid jab. in December 2023 I started having numbness in three fingers, index, middle and ring and
last July I was diagnosed with low b12, I started on a series of 6 injections before starting on a three monthly top up regime. In that time I also received my annual flu vaccination and most recent covid jab. in December 2023 I started having numbness in three fingers, index, middle and ring and
J200george
in
Pernicious Anaemia Society
7 months ago
T4 low TSH normal
Evening, I've had more blood tests done and I'm fed up of feeling so badly every day. I've done medichecks TSH tests and cortisol. Only test low is my T4 which tbh never changed since 2016 TSH fluctuates. I had telephone appointment before my test results came back. Due to my chronic fatigue. Weight
Evening, I've had more blood tests done and I'm fed up of feeling so badly every day. I've done medichecks TSH tests and cortisol. Only test low is my T4 which tbh never changed since 2016 TSH fluctuates. I had telephone appointment before my test results came back. Due to my chronic fatigue. Weight
Lillygirl66
in
Thyroid UK
7 months ago
Anyone else have severe daily heartburn?
Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also PA. Currently SI B12 (cyanobalamin ) EOD. Does anyone else with this get severe heartburn? I’ve cut out acidic and spicy. It seems to happen mostly on an empty stomach right before lunch. Sometimes Pepsid Complete works and
Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also PA. Currently SI B12 (cyanobalamin ) EOD. Does anyone else with this get severe heartburn? I’ve cut out acidic and spicy. It seems to happen mostly on an empty stomach right before lunch. Sometimes Pepsid Complete works and
ReallyWondering
in
Pernicious Anaemia Society
7 months ago
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Can anyone recommend a good haematologist or Neurologist for pernicious anaemia
Hi can anyone recommend a haematologist or neurologist who has a good understanding of pernicious anaemia anywhere in England? (Needs to be NHS as GP said they won't act on any recommendation from a private doctor). Many of my neurological symptoms, although much improved, never went away completely
Hi can anyone recommend a haematologist or neurologist who has a good understanding of pernicious anaemia anywhere in England? (Needs to be NHS as GP said they won't act on any recommendation from a private doctor). Many of my neurological symptoms, although much improved, never went away completely
Rett713
in
Pernicious Anaemia Society
7 months ago
Tingling and pricking
Hi friends Two weeks ago I started with tingling and pricking in my feet, legs, arms and hands. When I lie down at night it is also in most of my torso and a bit in my face. Occasionally I get little stabs in my feet. It comes and goes every few days and lasts a couple of days. Massage helps. It does
Hi friends Two weeks ago I started with tingling and pricking in my feet, legs, arms and hands. When I lie down at night it is also in most of my torso and a bit in my face. Occasionally I get little stabs in my feet. It comes and goes every few days and lasts a couple of days. Massage helps. It does
Viveka
in
PMRGCAuk
7 months ago
Recent blood results, help interpreting
Hi everyone, I haven't posted in a while, but would like my latest blood results checked with the knowledgable people on here. I've been on a treatment of 125mcg of Levothyroxine and alternating days of 5mcg and 7mcg of liothyronine. I have been feeling better on this dose, and was slightly too highly
Hi everyone, I haven't posted in a while, but would like my latest blood results checked with the knowledgable people on here. I've been on a treatment of 125mcg of Levothyroxine and alternating days of 5mcg and 7mcg of liothyronine. I have been feeling better on this dose, and was slightly too highly
thyroidqueen12
in
Thyroid UK
7 months ago
Help with results - what would you do?
Hello I finally got a private endo to agree to up my meds from 75mcg levothyroxine to 100 or112.5 if I felt it necessary in July 2023 allowing my TSH to fall below range, and that I understood and was willing to take the risks. My 3 pm slump was dangerous as I was fighting to stay awake on the way
Hello I finally got a private endo to agree to up my meds from 75mcg levothyroxine to 100 or112.5 if I felt it necessary in July 2023 allowing my TSH to fall below range, and that I understood and was willing to take the risks. My 3 pm slump was dangerous as I was fighting to stay awake on the way
66olives
in
Thyroid UK
7 months ago
Please may I get your thoughts on 2nd round of thyroid tests?
Hello 😊 Please could I have some help with interpreting my 2nd lot of thyroid results? They are 8 weeks after the first as kindly advised on here. Please can I also get some advice on possible next steps? Apologies this is so long but wanted to share as much detail as possible to save anyone having
Hello 😊 Please could I have some help with interpreting my 2nd lot of thyroid results? They are 8 weeks after the first as kindly advised on here. Please can I also get some advice on possible next steps? Apologies this is so long but wanted to share as much detail as possible to save anyone having
Bertiepuss
in
Thyroid UK
7 months ago
So apparently I'm normal...but I'm definitely perplexed!
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Myoldcat
in
Pernicious Anaemia Society
7 months ago
live blood analysis …migraines
Around 7 years ago following blood tests for TATT and various other ailments, it was found that I had a low B12 (156) and GP agreed to prescribe the usual injections… loading dose and then 3 monthly. After lots of research on this site and through trial and error I finally settled on SE every 2 weeks
Around 7 years ago following blood tests for TATT and various other ailments, it was found that I had a low B12 (156) and GP agreed to prescribe the usual injections… loading dose and then 3 monthly. After lots of research on this site and through trial and error I finally settled on SE every 2 weeks
Countrylou
in
Pernicious Anaemia Society
7 months ago
Is this classed as low folate?
I'm a little confused about my blood test results. I'm not sure if I am posting in the right group! MCH and MCHC were slightly high which can indicate macrolytic anaemia. GP said I don't have that because my B12 and folate levels are fine (which are the usual causes). However, I posted the results
I'm a little confused about my blood test results. I'm not sure if I am posting in the right group! MCH and MCHC were slightly high which can indicate macrolytic anaemia. GP said I don't have that because my B12 and folate levels are fine (which are the usual causes). However, I posted the results
tnefeh
in
Pernicious Anaemia Society
7 months ago
Over heating
I have been suffering from overheating since I had covid in 2022, thought it was my HRT tablets but wasn't (doctor has since taken me off them, another story) and has gotten worse over the period from then until now. I start sweating no matter what the weather or temperature is day and night, I can
I have been suffering from overheating since I had covid in 2022, thought it was my HRT tablets but wasn't (doctor has since taken me off them, another story) and has gotten worse over the period from then until now. I start sweating no matter what the weather or temperature is day and night, I can
pramela
in
Pernicious Anaemia Society
7 months ago
Just diagnosed with autoimmune atrophic gastritis with intestinal metaplasia
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
ReallyWondering
in
Pernicious Anaemia Society
7 months ago
I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
7 months ago
Freezing Temperatures
Does anyone know if below freezing temperatures negatively affect ampules of B12? My latest order from Canada was left in the mailbox overnight and it was a very cold night.
Does anyone know if below freezing temperatures negatively affect ampules of B12? My latest order from Canada was left in the mailbox overnight and it was a very cold night.
MoKayD
in
Pernicious Anaemia Society
7 months ago
Blood Test results - help please
Hi Everyone I was diagnosed with myxoedema hypothyroidism in 1989 and have taken 150 mcg Levo ever since. I am also coeliac. My new GP has recently queried my TSH and says I have been over medicated for a long time - since 2014 my TSH has been around 0.05 and my T4 in the upper range around 18. My
Hi Everyone I was diagnosed with myxoedema hypothyroidism in 1989 and have taken 150 mcg Levo ever since. I am also coeliac. My new GP has recently queried my TSH and says I have been over medicated for a long time - since 2014 my TSH has been around 0.05 and my T4 in the upper range around 18. My
Finlandia22
in
Thyroid UK
7 months ago
question about vitamin levels
I’m Sorry if this is a stupid question, but I was wondering When our vitamin levels are at a good level , does that in turn make our thyroid levels mainly our TSH T3 T4 levels to rise when TSH is under range. It just got me thinking as I’m been prescribed folate for 3 months by the doctors & will
I’m Sorry if this is a stupid question, but I was wondering When our vitamin levels are at a good level , does that in turn make our thyroid levels mainly our TSH T3 T4 levels to rise when TSH is under range. It just got me thinking as I’m been prescribed folate for 3 months by the doctors & will
Bookworm90
in
Thyroid UK
7 months ago
Endo blood test codes
Hi after my recent post about rising TSH I asked my nhs endo to do the reccommend thyroid blood tests. I have received the blood test form today but am not sure what some of the codes mean. I know he said he couldn’t do all of them so I wanted to work out which to pay for privately. I recognise
Hi after my recent post about rising TSH I asked my nhs endo to do the reccommend thyroid blood tests. I have received the blood test form today but am not sure what some of the codes mean. I know he said he couldn’t do all of them so I wanted to work out which to pay for privately. I recognise
sulamaye
in
Thyroid UK
7 months ago
Antibiotics and Increasing B12
Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) for an ear infection (caused by covid). I've noticed since I began ceftin (8 days ago) that I'm experiencing fingers and toes tingling. Do you know if antibiotics can cause b12 depletion? I take daily 3000 mgs sublingually
Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) for an ear infection (caused by covid). I've noticed since I began ceftin (8 days ago) that I'm experiencing fingers and toes tingling. Do you know if antibiotics can cause b12 depletion? I take daily 3000 mgs sublingually
LynetteinUSA
in
Pernicious Anaemia Society
7 months ago
Thyroid results - advice please
[u]
Inflammation
[/u] CRP HS 2.930 mg/L (Range: < 3) [u]
Iron Status
[/u] Ferritin 73.40 ug/L (Range: 30 - 180) [u]
Vitamins
[/u] Folate - Serum >45.4 nmol/L (Range: > 7) Vitamin B12 - Active 71.2 pmol/L (Range: 37.5 - 188) Vitamin D 88.1 nmol/L (Range: 50 - 250) [u]
Thyroid
[u]
Inflammation
[/u] CRP HS 2.930 mg/L (Range: < 3) [u]
Iron Status
[/u] Ferritin 73.40 ug/L (Range: 30 - 180) [u]
Vitamins
[/u] Folate - Serum >45.4 nmol/L (Range: > 7) Vitamin B12 - Active 71.2 pmol/L (Range: 37.5 - 188) Vitamin D 88.1 nmol/L (Range: 50 - 250) [u]
Thyroid
Molly161018
in
Thyroid UK
7 months ago
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