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hEDS and B12 comorbidity?
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
MindfulSquirrel
in
Pernicious Anaemia Society
7 months ago
Folate when SI?
Hi everyone, How much folate is recommended when injecting B12? The folate tablets I have are 400µg. Also, can anyone kindly comment on my sudden lip problems? I awoke 4 mornings ago to blistered lips, they were slightly worse the next morning. The blistering seems to have stopped but my lips are
Hi everyone, How much folate is recommended when injecting B12? The folate tablets I have are 400µg. Also, can anyone kindly comment on my sudden lip problems? I awoke 4 mornings ago to blistered lips, they were slightly worse the next morning. The blistering seems to have stopped but my lips are
J972
in
Pernicious Anaemia Society
7 months ago
Early signs of PA
I've been giving some thought to how long I've had PA. I was diagnosed about 2 years ago. BUT, when i look back at old photos of myself, my skin colour changed to be quite yellowy (my mum says my dad and his mum both had the yellowy skin tone). This yellowy colour has faded out and I'm much more "white
I've been giving some thought to how long I've had PA. I was diagnosed about 2 years ago. BUT, when i look back at old photos of myself, my skin colour changed to be quite yellowy (my mum says my dad and his mum both had the yellowy skin tone). This yellowy colour has faded out and I'm much more "white
Sailinglady
in
Pernicious Anaemia Society
7 months ago
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B12 Vitamin
hi Could someone be so kind as to interpret the vitamin B12, do I need to supplement this and if so what is recommended and best supplement. Thank you in advance
hi Could someone be so kind as to interpret the vitamin B12, do I need to supplement this and if so what is recommended and best supplement. Thank you in advance
Thesun
in
Thyroid UK
7 months ago
Interesting article on more sustainable B12 production
[i]"Research at the Quadram Institute has developed sustainable manufacturing processes for B12, helping address a growing global need for the synthesised vitamin."[/i] The article addresses the issues with high production costs and environmental damage from B12 production, and also mentions CluB-12.
[i]"Research at the Quadram Institute has developed sustainable manufacturing processes for B12, helping address a growing global need for the synthesised vitamin."[/i] The article addresses the issues with high production costs and environmental damage from B12 production, and also mentions CluB-12.
Technoid
in
Pernicious Anaemia Society
7 months ago
Sylvia Plath and B12?
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
bookish
in
Pernicious Anaemia Society
7 months ago
Update and latest results
Hello again lovely people. I thought I’d come back and update having been on Levo 50mcg since diagnosis 3 months ago. In early January the GP asked me to retest and only TSH was done (big let down but not unexpected)! I was amazed that after only 2 months on Levo 50mcg that my TSH had dropped to 0.44
Hello again lovely people. I thought I’d come back and update having been on Levo 50mcg since diagnosis 3 months ago. In early January the GP asked me to retest and only TSH was done (big let down but not unexpected)! I was amazed that after only 2 months on Levo 50mcg that my TSH had dropped to 0.44
Gardeningaddict
in
Thyroid UK
7 months ago
Ducks in a row
I was first diagnosed with Pernicious anaemia 3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round the place and had difficulty walking and getting up from a fallen or seated position. I now am aware of how serious it is, I've stopped drinking
I was first diagnosed with Pernicious anaemia 3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round the place and had difficulty walking and getting up from a fallen or seated position. I now am aware of how serious it is, I've stopped drinking
Whiteways4711
in
Pernicious Anaemia Society
7 months ago
Do I just learn to live with thinning hair?
I was diagnosed with Hashimotos in 1997 & was on thyroxine for 17 years.Then on T3-only for about 4 years,after testing positive for the D102 variant from both parents. I have been on NDT for a few years now-THIROID at first until its supply issues.I got on very well with TR MANN & was very disappointed
I was diagnosed with Hashimotos in 1997 & was on thyroxine for 17 years.Then on T3-only for about 4 years,after testing positive for the D102 variant from both parents. I have been on NDT for a few years now-THIROID at first until its supply issues.I got on very well with TR MANN & was very disappointed
Naomi8
in
Thyroid UK
7 months ago
Test results.. Confused..
Hi. Peeps... Confused about recent blood tests.... My last thyroid test approx 5 months ago i forgot to take my t3 within 12 hrs of test, ( last dose was 4 pm day before am test) so theoretical it may have been lower than it should have been.. Since then i increased my T 3 slightly from 17.5 mcg
Hi. Peeps... Confused about recent blood tests.... My last thyroid test approx 5 months ago i forgot to take my t3 within 12 hrs of test, ( last dose was 4 pm day before am test) so theoretical it may have been lower than it should have been.. Since then i increased my T 3 slightly from 17.5 mcg
MrsClanger
in
Thyroid UK
7 months ago
Help with latest bloods please!
hi everyone I’m on 50mcg of Levothyroxine for Hashimotos and my original test results are in my profile. I’ve just had some bloods done with the GP and they’ve said no further action is required. I’m conscious that there is a difference between being within range and optimal, so I thought I’d come on
hi everyone I’m on 50mcg of Levothyroxine for Hashimotos and my original test results are in my profile. I’ve just had some bloods done with the GP and they’ve said no further action is required. I’m conscious that there is a difference between being within range and optimal, so I thought I’d come on
Smartypants1
in
Thyroid UK
7 months ago
So new results.
So been a while and just want the lasts posts forgot about and just treat this as now and what to do next. So I’ve been taking 100mcg Levo for two months and got my bloods done only available slot was around 11am so it is what it is. I hadn’t been taking supplements in this period to see how my levels
So been a while and just want the lasts posts forgot about and just treat this as now and what to do next. So I’ve been taking 100mcg Levo for two months and got my bloods done only available slot was around 11am so it is what it is. I hadn’t been taking supplements in this period to see how my levels
Dshadzz07
in
Thyroid UK
7 months ago
Updated results
Morning all, I posted some results a while ago and followed the very wise advice I was given but as I still felt rubbish I got into my GP who was very helpful and ordered lots of tests for me. When I posted towards the end of last year I was struggling and my B12 was low, ferritin dire at 16 and some
Morning all, I posted some results a while ago and followed the very wise advice I was given but as I still felt rubbish I got into my GP who was very helpful and ordered lots of tests for me. When I posted towards the end of last year I was struggling and my B12 was low, ferritin dire at 16 and some
Peril1504
in
Thyroid UK
7 months ago
Advice on new bloods please
Hi, Can anyone give me their insight to my new bloods, correctly taken. I have an endo appointment tomorrow and have been on levothyroxine first 3 months Teva and now a month of Accord all at 50 micrograms. Vitamin D 49 (50-200) insufficient Magnesium 1.07 (0.66-0.99) high CRP 1.71 (<5.0)
Hi, Can anyone give me their insight to my new bloods, correctly taken. I have an endo appointment tomorrow and have been on levothyroxine first 3 months Teva and now a month of Accord all at 50 micrograms. Vitamin D 49 (50-200) insufficient Magnesium 1.07 (0.66-0.99) high CRP 1.71 (<5.0)
Purple450
in
Thyroid UK
7 months ago
B12 very high with normal blood results?.
hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my last one was in early August. They actually made me feel better, but had to stop because of cost. Then in October I started getting severe deficient
hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my last one was in early August. They actually made me feel better, but had to stop because of cost. Then in October I started getting severe deficient
Jodie782
in
Pernicious Anaemia Society
7 months ago
Glaucoma B12 relationship?
Has anyone already commented on this or can anyone make any sense from it? Especially the discussion para which just makes no sense to me at all https://www.frontiersin.org/articles/10.3389/fnut.2023.1130032/full Thanks for any thoughts
Has anyone already commented on this or can anyone make any sense from it? Especially the discussion para which just makes no sense to me at all https://www.frontiersin.org/articles/10.3389/fnut.2023.1130032/full Thanks for any thoughts
bookish
in
Pernicious Anaemia Society
7 months ago
Fatigue, anaemia and chest pain
Hi everyone ☺️ I got diagnosed with stage 2 endo after a lap last November. We're trying to conceive so haven't been prescribed any meds to manage the endo. Just waiting for an IVF appointment. I've stopped eating gluten, not having caffeine or alcohol. Taking supplements. Eating well, sleeping well,
Hi everyone ☺️ I got diagnosed with stage 2 endo after a lap last November. We're trying to conceive so haven't been prescribed any meds to manage the endo. Just waiting for an IVF appointment. I've stopped eating gluten, not having caffeine or alcohol. Taking supplements. Eating well, sleeping well,
Bluebells86
in
Endometriosis UK
7 months ago
Point me in the right direction please :)
Can anyone help me purchasing b12 ampules from bodfeld please.. The packaging and wording has changed since my last lot and don't want to order the wrong thing. Tia x
Can anyone help me purchasing b12 ampules from bodfeld please.. The packaging and wording has changed since my last lot and don't want to order the wrong thing. Tia x
Lj1115
in
Pernicious Anaemia Society
7 months ago
Ferritin and folate.
My nhs blood test results are coming in dribs and drabs - vit D is missing, T3 and free T4 missing. Hoping call from GP tomorrow will clarify but so far, would anyone mind commenting on my folate and ferritin readings please? Ferritin - 200ug/L (30.0 - 260.0) Folate - 5.9 ug/L (> 3.9). B12 is 328
My nhs blood test results are coming in dribs and drabs - vit D is missing, T3 and free T4 missing. Hoping call from GP tomorrow will clarify but so far, would anyone mind commenting on my folate and ferritin readings please? Ferritin - 200ug/L (30.0 - 260.0) Folate - 5.9 ug/L (> 3.9). B12 is 328
Calceolaria
in
Thyroid UK
7 months ago
Possible IBD?
Hi Everyone, I hope you’re all doing okay. Sorry to be a pain but I’d love some thoughts and advice from you if possible, please. I’m a 46 male with real worries about the possibility of Crohn’s disease and don’t seem to be able to move past it. It started with a perianal abscess 10 months ago which
Hi Everyone, I hope you’re all doing okay. Sorry to be a pain but I’d love some thoughts and advice from you if possible, please. I’m a 46 male with real worries about the possibility of Crohn’s disease and don’t seem to be able to move past it. It started with a perianal abscess 10 months ago which
farranccc
in
Crohn's and Colitis Support
7 months ago
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