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Update B12 appointment . help needed
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Welshtoffee
in
Pernicious Anaemia Society
6 months ago
Trying to purchase B12 1 ml Ampules from German Pharmacy can anyone advise
B12 German stockist needed
B12 German stockist needed
Benherlol
in
Crohn's and Colitis Support
6 months ago
B12 storage?
I have just realised that my fridge has gone haywire. Temperature up to 2 degrees.Turned it off!In the bottom were 8 pkts of B12 wrapped up in their packing plastic. They are still liquid ,but would this low temperature have destroyed their efficacy? I don't know how long fridge has been cooling.
I have just realised that my fridge has gone haywire. Temperature up to 2 degrees.Turned it off!In the bottom were 8 pkts of B12 wrapped up in their packing plastic. They are still liquid ,but would this low temperature have destroyed their efficacy? I don't know how long fridge has been cooling.
jaybirdxNHM
in
Pernicious Anaemia Society
6 months ago
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B12 Jabs treatment changed again
on my last appt with the GP nurse for my B12 jab, my patient notes were changed back from 8 weekly jabs to 12 weekly. My question is can a nurse change my treatment plan on my notes without my permission. I only noticed this when accessing part of my medical notes on my healthcare app. I am unwilling
on my last appt with the GP nurse for my B12 jab, my patient notes were changed back from 8 weekly jabs to 12 weekly. My question is can a nurse change my treatment plan on my notes without my permission. I only noticed this when accessing part of my medical notes on my healthcare app. I am unwilling
Meggymoo63
in
Pernicious Anaemia Society
6 months ago
First time posting here with questions
Hello, I was wondering how to tell if you need b12 injections when you take oral b12 and your serum b12 always comes out looking great? I haven't had it tested recently but past tests always come out way over the range. Anyway, I saw a post by @Marz in which she said that she takes b12 due to having
Hello, I was wondering how to tell if you need b12 injections when you take oral b12 and your serum b12 always comes out looking great? I haven't had it tested recently but past tests always come out way over the range. Anyway, I saw a post by @Marz in which she said that she takes b12 due to having
shirlzoni
in
Thyroid UK
6 months ago
Confused
So I had an active b12 test done in August and it showed borderline normal at the low end. I was told to do am MMA blood test and supplement. The MMA blood test came back normal so assumed I was OK and that the supplement would raise my levels. I was taking cyanocobalamin. I took this for 4 months and
So I had an active b12 test done in August and it showed borderline normal at the low end. I was told to do am MMA blood test and supplement. The MMA blood test came back normal so assumed I was OK and that the supplement would raise my levels. I was taking cyanocobalamin. I took this for 4 months and
Popcorn12345
in
Pernicious Anaemia Society
6 months ago
Chat with GP. Disappointed.
So recent post my TSH is still high I feel at around 4 but just in range but I know and told him about the facts and figures for it and still having symptoms and declined an increase. I feel I should do it myself. .. I can’t afford to see an endo or such so pls don’t suggest. I don’t know what to do?
So recent post my TSH is still high I feel at around 4 but just in range but I know and told him about the facts and figures for it and still having symptoms and declined an increase. I feel I should do it myself. .. I can’t afford to see an endo or such so pls don’t suggest. I don’t know what to do?
Dshadzz07
in
Thyroid UK
6 months ago
New results from GP blood test
So the saga continues. Previously battles with GP over meds, even though I am open and honest about self treating T3 and SI B12, trying my best to impart some knowledge or even a little common sense. Reluctantly reduced Levo a bit, from 150mcg to 125mcg daily. Last bloods 15/12/23, TSH 0.01
So the saga continues. Previously battles with GP over meds, even though I am open and honest about self treating T3 and SI B12, trying my best to impart some knowledge or even a little common sense. Reluctantly reduced Levo a bit, from 150mcg to 125mcg daily. Last bloods 15/12/23, TSH 0.01
Polo22
in
Thyroid UK
6 months ago
B12 injections and low dose naltrexone (LDN)
I have recently started using LDN (.25mg) w/ positive effects, however it recently seems like I need to increase my B12 injections. I have only been using LDN for a month. Maybe it is just a coincidence but would like others to share their experience/knowledge about this combination.
I have recently started using LDN (.25mg) w/ positive effects, however it recently seems like I need to increase my B12 injections. I have only been using LDN for a month. Maybe it is just a coincidence but would like others to share their experience/knowledge about this combination.
boisland
in
Pernicious Anaemia Society
6 months ago
Blood Test Advice
I have a blood test booked for 8.40 next Monday. The form says: FBC, Ferritin, Liver function, Thyroid function, Vitamin D. At the moment I supplement with Vitamins B12, B complex, C, D, K2 and Turmeric, Selenium and Magnesium. I have stopped B complex but is there anything else I should stop before
I have a blood test booked for 8.40 next Monday. The form says: FBC, Ferritin, Liver function, Thyroid function, Vitamin D. At the moment I supplement with Vitamins B12, B complex, C, D, K2 and Turmeric, Selenium and Magnesium. I have stopped B complex but is there anything else I should stop before
carnation
in
Thyroid UK
6 months ago
Healing slowed due to lack of sun energy.
I am still healing but it is slower and I need more sleep to heal. It became definitive when there was stronger February sun and there happened to be fewer clouds. I got "good sun" and needed a lot of sleep. The sun is doing its part it is the peskey clouds fault. 🙂 I do take 1000 IU of D3, 3 IU of
I am still healing but it is slower and I need more sleep to heal. It became definitive when there was stronger February sun and there happened to be fewer clouds. I got "good sun" and needed a lot of sleep. The sun is doing its part it is the peskey clouds fault. 🙂 I do take 1000 IU of D3, 3 IU of
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Vitamin d
Currently trying to sort out my health after realising my stomach is not absorbing b12 (am SI). I’ve been on a low dose of d3 (500 ug) for years after being told by doctors it was low. The last d3 test I had my results came back at 68. However, I had taken the supplement that day. Are the test results
Currently trying to sort out my health after realising my stomach is not absorbing b12 (am SI). I’ve been on a low dose of d3 (500 ug) for years after being told by doctors it was low. The last d3 test I had my results came back at 68. However, I had taken the supplement that day. Are the test results
Pepperpots302
in
Pernicious Anaemia Society
6 months ago
Help with my brother results
My brother has been in poor health for a good couple of years.. finally he has had some blood tests done TSH. 20 (0.3-5.5) T4. 8.3 (10-22) Requested T3 and antibodies but were not done! another blood test Wednesday morning at 9 am he has requested them again with ESR and CRP B12. 271. (197-771)
My brother has been in poor health for a good couple of years.. finally he has had some blood tests done TSH. 20 (0.3-5.5) T4. 8.3 (10-22) Requested T3 and antibodies but were not done! another blood test Wednesday morning at 9 am he has requested them again with ESR and CRP B12. 271. (197-771)
Bean101
in
Thyroid UK
6 months ago
Advice re testing
Good morning everyone, I would really love some thoughts before seeing my GP please! I have had some great advice from Thyroid UK and seems like firstly I need to get my vitamins under control! Main symptoms; -painful neck and shoulder muscle - feel so exhausted I could cry - constant sore throats
Good morning everyone, I would really love some thoughts before seeing my GP please! I have had some great advice from Thyroid UK and seems like firstly I need to get my vitamins under control! Main symptoms; -painful neck and shoulder muscle - feel so exhausted I could cry - constant sore throats
KRex
in
Pernicious Anaemia Society
6 months ago
vit b12 Hashis
Hello, I’m still quite new to the group. History of hypothyroid 9 years. Less well controlled symptoms last 18+months. If I’m honest I’ve never felt the same since going through huge stress 5 years ago when my husband was having treatment for a serious illness right after I’d just had our second
Hello, I’m still quite new to the group. History of hypothyroid 9 years. Less well controlled symptoms last 18+months. If I’m honest I’ve never felt the same since going through huge stress 5 years ago when my husband was having treatment for a serious illness right after I’d just had our second
Vizslaaddict
in
Thyroid UK
6 months ago
Neuropathy in feet, stopping Cymbalta - try more natural?
I'd like to get your opinion if you have been on something like Cymbalta (Duloxetine) and came off to do more natural methods. I'd like to stop the Cymbalta that I've been using for years to help with the neuropathy in my feet and look at other way to see if I can control it vs using an SNRI. I've
I'd like to get your opinion if you have been on something like Cymbalta (Duloxetine) and came off to do more natural methods. I'd like to stop the Cymbalta that I've been using for years to help with the neuropathy in my feet and look at other way to see if I can control it vs using an SNRI. I've
Shomacco
in
Neuropathy Support
6 months ago
Medicheck Dr's notes suppressed TSH with low T4
MEDICHECK -
(7.45 am, pre-breakfast and no meds 24hr) CRP HS 1.430 mg/L (Range: < 3) Ferritin 168.00 ug/L (Range: 30 - 264) Folate - Serum 21.6 nmol/L (Range: > 7) Vitamin B12 - Active 124.0 pmol/L (Range: 37.5 - 188) Vitamin D 60.9 nmol/L (Range: 50 - 250) TSH X 0.050 mIU/L (Range
MEDICHECK -
(7.45 am, pre-breakfast and no meds 24hr) CRP HS 1.430 mg/L (Range: < 3) Ferritin 168.00 ug/L (Range: 30 - 264) Folate - Serum 21.6 nmol/L (Range: > 7) Vitamin B12 - Active 124.0 pmol/L (Range: 37.5 - 188) Vitamin D 60.9 nmol/L (Range: 50 - 250) TSH X 0.050 mIU/L (Range
66olives
in
Thyroid UK
7 months ago
results
tsh 0.005. (0.27-4.2) These were done 31 January T4 17.1. (12-22) T3 4.5 (3.1-6.8) Vit d 89 (50-250) Vit b12 76 (37.5-188) Folate 30.2 (7-35) Ferritin 247 (30-640) Crp 86 (3) That’s medichecks Nhs done 7 December Vit b12 937 (197-771) Ferritin 124 no range Folate 20. (3-26) Vit d
tsh 0.005. (0.27-4.2) These were done 31 January T4 17.1. (12-22) T3 4.5 (3.1-6.8) Vit d 89 (50-250) Vit b12 76 (37.5-188) Folate 30.2 (7-35) Ferritin 247 (30-640) Crp 86 (3) That’s medichecks Nhs done 7 December Vit b12 937 (197-771) Ferritin 124 no range Folate 20. (3-26) Vit d
Kowbie
in
Thyroid UK
7 months ago
update
hello everyone hope you’re all keeping as well as possible, this is an update test done 31 January at 8/15 taking 150 thyroxine and 25 t3 thyroxine taken 24 hours before test t3 split in 3 last taken about 10 hours before,also taking vit d vit b12 folate ,not been feeling great , had a bad infection
hello everyone hope you’re all keeping as well as possible, this is an update test done 31 January at 8/15 taking 150 thyroxine and 25 t3 thyroxine taken 24 hours before test t3 split in 3 last taken about 10 hours before,also taking vit d vit b12 folate ,not been feeling great , had a bad infection
Kowbie
in
Thyroid UK
7 months ago
Needles for B12 self injection
Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order B12 from but they do not supply the needles. Does anybody have a good supplier in Europe? I can't order from the UK as I now in France and there
Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order B12 from but they do not supply the needles. Does anybody have a good supplier in Europe? I can't order from the UK as I now in France and there
Mariemcdo
in
Pernicious Anaemia Society
7 months ago
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