Chat with GP. Disappointed.: So recent post my... - Thyroid UK

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Chat with GP. Disappointed.

Dshadzz07 profile image
4 Replies

So recent post my TSH is still high I feel at around 4 but just in range but I know and told him about the facts and figures for it and still having symptoms and declined an increase. I feel I should do it myself. .. I can’t afford to see an endo or such so pls don’t suggest. I don’t know what to do?

Regarding my low folate, B12 and D. They’ve prescribed a loading dose (high vitamin D) for a while. Folic acid despite me feeling like that’s useless unless I’m thinking wrong. B12 I’ll just add my supplement in.

It’s just so difficult.

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Dshadzz07
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SlowDragon profile image
SlowDragonAdministrator

Previous post with results

healthunlocked.com/thyroidu....

Ok so play their game

Take LOADING vitamin D prescription (at least 4 hours away from levothyroxine)

Add a separate magnesium supplement in afternoon or evening (at least 4 hours away from levothyroxine)

And then look at starting a separate B12 too

Request thyroid levels retested again in another 6-8 weeks as well as vitamin D levels retested

Ensure you test thyroid early morning, ideally before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

Dshadzz07 profile image
Dshadzz07 in reply to SlowDragon

Like what about getting my K2? Like I want take a higher Levo dose at 112.5mcg like I think that will bring my level down. I can cut pills.

Stressed about it

SlowDragon profile image
SlowDragonAdministrator in reply to Dshadzz07

yes well obviously you need dose increase in Levo

Insist on new thyroid test once you have vitamin levels improved

You are likely to see TSH even higher

alternatively

See a different GP and push for trial increase in Levo to 112.5mcg and retest again in 6-8 weeks

On Levo TSH should always be below 2

gponline.com/endocrinology-...

Graph showing median TSH in healthy population is 1-1.5

web.archive.org/web/2004060...

Comprehensive list of references for needing LOW TSH on levothyroxine

healthunlocked.com/thyroidu....

onlinelibrary.wiley.com/doi...

If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).

Starling87 profile image
Starling87

I'm assuming they've done the classic NHS move and prescribed folic acid without any plans of retesting you when you've run out?

If so, insist on a new test after you're out of folic acid. If folate levels are still low, try a methylfolate supplement. Game changer for my energy levels and my folate levels finally reached normal stats.

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