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Cutaneous T cell lymphoma (CTCL)
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CMV Risk in Donor Stem Cell Transplant
Antiviral drug helped prevent cytomegalovirus in patients with donor bone marrow stem cell transplantation: https://tinyurl.com/yc79ehsg
Antiviral drug helped prevent cytomegalovirus in patients with donor bone marrow stem cell transplantation: https://tinyurl.com/yc79ehsg
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Inflammatory Breast Cancer with Her2+ and ErPr -
My wife diagnosed with the above carcinoma and has been administered TCH two cycles.Clinically the response seems to be good.She has been advised six cycles of TCH if response is good then followed by surgery. Need to bounce it off from this community regarding the prognosis of such carcinoma with the
My wife diagnosed with the above carcinoma and has been administered TCH two cycles.Clinically the response seems to be good.She has been advised six cycles of TCH if response is good then followed by surgery. Need to bounce it off from this community regarding the prognosis of such carcinoma with the
vikrantparhi
in
Breast Cancer India
7 years ago
Rejection of claim for daycare rituximab cancer treatment by United India Insurance Co
I had stage IV mantle cell Non hodgkins lymphoma. Got chemotherapy treatment at mumbai . Now under full remission but i am taking rituximab inj in day care every 2 months.All my earlier chemo costs were paid by United India Insurance under their gold policy. I am 61 yrs old male. I have coverage of 6.5
I had stage IV mantle cell Non hodgkins lymphoma. Got chemotherapy treatment at mumbai . Now under full remission but i am taking rituximab inj in day care every 2 months.All my earlier chemo costs were paid by United India Insurance under their gold policy. I am 61 yrs old male. I have coverage of 6.5
munjalbom8
in
Breast Cancer India
7 years ago
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2017 sees several new drugs for rheumatic illnesses - including GCA
2017 has been a good year for new drugs for inflammatory rheumatoid conditions, and at last tocilizumab has been approved by the FDA in the US for Giant Cell Arteritis. Let's hope that before long it's approved by NICE for the UK too! http://bit.ly/2z94Pxi
2017 has been a good year for new drugs for inflammatory rheumatoid conditions, and at last tocilizumab has been approved by the FDA in the US for Giant Cell Arteritis. Let's hope that before long it's approved by NICE for the UK too! http://bit.ly/2z94Pxi
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
7 years ago
Lymphoma
Just got results from my pet scan, all my lymph nodes have got bigger, my biggest one is 7cm goi gang to see my Dr next week to talk about treatment, anyone know what treatment I’ll need???
Just got results from my pet scan, all my lymph nodes have got bigger, my biggest one is 7cm goi gang to see my Dr next week to talk about treatment, anyone know what treatment I’ll need???
Esther66
in
Non Hodgkin's Lymphoma Friends
7 years ago
Baby with sickle cell
My baby is currently 2 months and was diagnosed with scd ss. The doctor told me that she will still live a normal healthy life but would just require more medical attention. I want to know how early does pain episodes start and what are signs to look for? She is currently on antibiotics.
My baby is currently 2 months and was diagnosed with scd ss. The doctor told me that she will still live a normal healthy life but would just require more medical attention. I want to know how early does pain episodes start and what are signs to look for? She is currently on antibiotics.
Coucouvg3
in
Sickle Cell Society
7 years ago
Triple Negative came back in lymph nodes.
Hello, my wife was diagnosed with triple negative stage 1. She had chemo first A/C then Taxol was told nothing in the nodes. After chemo she had a full mass where then they told us 3 nodes showed signs the next 12 was clear. Then they said she would need radiation which she did. A few months later she
Hello, my wife was diagnosed with triple negative stage 1. She had chemo first A/C then Taxol was told nothing in the nodes. After chemo she had a full mass where then they told us 3 nodes showed signs the next 12 was clear. Then they said she would need radiation which she did. A few months later she
Chad-23
in
Breast Cancer India
7 years ago
Road to a BMT... oops just got there
Hello Health Unlocked community, Since this forum and community offered me a great amount of support and kindness during our last crisis I thought I would come back to it. Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. 2017 and he was going to start Venetoclax
Hello Health Unlocked community, Since this forum and community offered me a great amount of support and kindness during our last crisis I thought I would come back to it. Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. 2017 and he was going to start Venetoclax
NMMP
in
CLL Support
7 years ago
Lenolidamide
I had a relapse of CD20 positive large B Cell lymphoma in left forearm last October after being in remission for 8 years following R-CHOP. Recently finished 5 months of Bendamustine/Rituximab infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in
I had a relapse of CD20 positive large B Cell lymphoma in left forearm last October after being in remission for 8 years following R-CHOP. Recently finished 5 months of Bendamustine/Rituximab infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in
Howie40
in
Lymphoma Canada
7 years ago
Starting Allopurinol with Ibrutinib?
Hello, My Father was just diagnosed with stage 2 unmutated CLL. He has enlarged nodes on his neck, his spleen is enlarged, and his WBC has gone from 42,000 to 72,000 in less than a month and 91% are lymphocytes so they are rushing to start Ibrutinib. He asked his Dr. about protecting his kidneys and
Hello, My Father was just diagnosed with stage 2 unmutated CLL. He has enlarged nodes on his neck, his spleen is enlarged, and his WBC has gone from 42,000 to 72,000 in less than a month and 91% are lymphocytes so they are rushing to start Ibrutinib. He asked his Dr. about protecting his kidneys and
CLLdaughters
in
CLL Support
7 years ago
MANTEL CELL LYMPHOMA AND IBRUTINIB
Hello, I'm new to this group and wanted to find answers to concerned questions. My partner had been diagnosed with Mantel Cell Lymphoma three years ago. He underwent Chemo and stem cell treatment. Recently after a routine blood test, the doctors said his WBC was rising rapidly - it's doubled in the
Hello, I'm new to this group and wanted to find answers to concerned questions. My partner had been diagnosed with Mantel Cell Lymphoma three years ago. He underwent Chemo and stem cell treatment. Recently after a routine blood test, the doctors said his WBC was rising rapidly - it's doubled in the
pollyg2016
in
Non Hodgkin's Lymphoma Friends
7 years ago
Mantel Cell Lymphomia
My partner was diagnosed with MCL three years ago. He underwent chemo and then had stem cell transplant. Recently, a blood test has indicated that his white blood cells have risen and that his platelets are now getting low. My partner looks and feels great, without showing any of the symptoms he first
My partner was diagnosed with MCL three years ago. He underwent chemo and then had stem cell transplant. Recently, a blood test has indicated that his white blood cells have risen and that his platelets are now getting low. My partner looks and feels great, without showing any of the symptoms he first
pollyg2016
in
CLL Support
7 years ago
Clinical Trial Navigator to Navigate the Clinical Trial Site? .... Sounds Helpful.
On today's Patient Power mailing comes information that seems to be quite helpful for anyone, who like me, has ventured online to search out a clinical trial and found it to be fitful journey, feeling unfit to sift through the jargon, & leaving without anything that seemed to fit (perhaps even coming
On today's Patient Power mailing comes information that seems to be quite helpful for anyone, who like me, has ventured online to search out a clinical trial and found it to be fitful journey, feeling unfit to sift through the jargon, & leaving without anything that seemed to fit (perhaps even coming
gemit2000
in
CLL Support
7 years ago
Real stories: life after a stem cell transplant
Read other people's stories of life after a stem cell or bone marrow transplant here: https://www.anthonynolan.org/patients-and-families/real-stories
Read other people's stories of life after a stem cell or bone marrow transplant here: https://www.anthonynolan.org/patients-and-families/real-stories
LCNurse2
in
Leukaemia Support
7 years ago
AIHA and ITP
I just started treatment with Rituxan and Bendeka for my CLL. After the first treatment I had to have 4 blood transfusions and started on high dose steroids for my low RBC and Platelet count. My Oncologist/hematologist said I have developed AIHA and ITP. I am not stable enough for splenectomy but that
I just started treatment with Rituxan and Bendeka for my CLL. After the first treatment I had to have 4 blood transfusions and started on high dose steroids for my low RBC and Platelet count. My Oncologist/hematologist said I have developed AIHA and ITP. I am not stable enough for splenectomy but that
J-girl
in
CLL Support
7 years ago
Epo. London mpn day
I'll be going to the london mpn day on18 th. I'm feeling tired and fed up. I've had 4 weekly epo injections and not much response. The energy I had at first was due to the blood transfusion I had at the same time, I think, because that's now worn off. I feel as tho I can't handle life at all. Which
I'll be going to the london mpn day on18 th. I'm feeling tired and fed up. I've had 4 weekly epo injections and not much response. The energy I had at first was due to the blood transfusion I had at the same time, I think, because that's now worn off. I feel as tho I can't handle life at all. Which
Rachelthepotter
in
MPN Voice
7 years ago
RITUXIMAB
Hi there eveyone I am starting on Rituximab next week with my first infusion and I am a little nervous to say the least! Just wanting to know if anyone who is on it as any info on side effects etc. As we all know some Consultants/Specialist Nurses seem to gloss over the bad bits and only tell you
Hi there eveyone I am starting on Rituximab next week with my first infusion and I am a little nervous to say the least! Just wanting to know if anyone who is on it as any info on side effects etc. As we all know some Consultants/Specialist Nurses seem to gloss over the bad bits and only tell you
Bakbre
in
LUPUS UK
7 years ago
Low lipid HDL and lymphoma /SLL
I recently had my lipids checked with my family doctor and she found my HDL on the abnormally low side. Also my absolute lymphocytes increased, they have been fairly stable. I found several 'older' articles ex https://www.ncbi.nlm.nih.gov/pubmed/17522388 that show a relationship between low HDL and
I recently had my lipids checked with my family doctor and she found my HDL on the abnormally low side. Also my absolute lymphocytes increased, they have been fairly stable. I found several 'older' articles ex https://www.ncbi.nlm.nih.gov/pubmed/17522388 that show a relationship between low HDL and
Elle_V
in
Lymphoma Canada
7 years ago
GDP - Change of Chemo - Advice
Diffuse Large B Cell - Abdomen Was booked in for 6no R Chop, had a mid term scan, saw specialist, who has said i will now after 4 no R Chop, have 2no GDP, same 21 day cycle, then have another scan, then a bone marrow transplant, then 3 week intense Chemo blast (3week Hospital Stay) On a positive note
Diffuse Large B Cell - Abdomen Was booked in for 6no R Chop, had a mid term scan, saw specialist, who has said i will now after 4 no R Chop, have 2no GDP, same 21 day cycle, then have another scan, then a bone marrow transplant, then 3 week intense Chemo blast (3week Hospital Stay) On a positive note
Blueb
in
Non Hodgkin's Lymphoma Friends
7 years ago
Can Ibrutinib affect the vagus nerve and digestion?
So glad for you. Moms scan from September 27 shows no sign of recurrent or new mantle cell lymphoma. For past few weeks though has had nausea more loss of hearing and fatigue. Dr does not think imbruvica causing these, but I’m wondering if it can affect the vagus nerve and the ? Gastroparesis. The first
So glad for you. Moms scan from September 27 shows no sign of recurrent or new mantle cell lymphoma. For past few weeks though has had nausea more loss of hearing and fatigue. Dr does not think imbruvica causing these, but I’m wondering if it can affect the vagus nerve and the ? Gastroparesis. The first
9229Schaeffer
in
CLL Support
7 years ago
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