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Experiences with
Cutaneous T cell lymphoma (CTCL)
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Major breakthrough in the treatment of leukemia
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
socrates_8
in
MPN Voice
5 years ago
Stem Cells!
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
christiev
in
MPN Voice
5 years ago
Skin lesion on face. Should he irradiate it
I have friend with skin lesion on his face who has a follicular B-cell lymphoma. On skin histology it is dense infiltrate of small lymphocytes. a mixed population of half T cells and half B cells. On FISH bcl6 is negative and IGH/bcl2 is negative . They want to irradiate the lesion. The lesion is the
I have friend with skin lesion on his face who has a follicular B-cell lymphoma. On skin histology it is dense infiltrate of small lymphocytes. a mixed population of half T cells and half B cells. On FISH bcl6 is negative and IGH/bcl2 is negative . They want to irradiate the lesion. The lesion is the
LovecuresCLL
in
CLL Support
5 years ago
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We eat what we are – let’s detoxify the word ‘chemical’
The only thing chemical free is a perfect vacuum. [i]"Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are simple, such as water or salt. Some are complex, such as the proteins in steak. But they’re all chemicals. There is no part of food that is not chemical
The only thing chemical free is a perfect vacuum. [i]"Food is a bunch of chemicals, nothing more, nothing less. When we eat, we eat chemicals. Some are simple, such as water or salt. Some are complex, such as the proteins in steak. But they’re all chemicals. There is no part of food that is not chemical
AussieNeil
Partner
in
CLL Support
5 years ago
UK CLL Clinical Trial Portfolio updated May 2019
The Portfolio of clinical trials available in the UK has been updated and is available on the main site. Thanks to Garry for helping to prepare this for us https://www.cllsupport.org.uk/article/uk-cll-clinical-trials-portfolio-may-2019
The Portfolio of clinical trials available in the UK has been updated and is available on the main site. Thanks to Garry for helping to prepare this for us https://www.cllsupport.org.uk/article/uk-cll-clinical-trials-portfolio-may-2019
Myrddin
in
CLL Support
5 years ago
Dominant-negative PD1-armored CART cells induce remission in refractory diffuse large B-cell lymphoma (DLBCL) patients
Background: The chimeric antigen receptor (CAR) T cell treatment has been demonstrated as an effective therapy to relapse/refractory B cell malignancy. However, tumor microenvironment influences and affects CAR T treatment. For example, programmed death ligand 1/2 (PDL1/2) may inhibit the CAR T cells
Background: The chimeric antigen receptor (CAR) T cell treatment has been demonstrated as an effective therapy to relapse/refractory B cell malignancy. However, tumor microenvironment influences and affects CAR T treatment. For example, programmed death ligand 1/2 (PDL1/2) may inhibit the CAR T cells
wmay13241
in
CLL Support
5 years ago
Creatinine goes up after bendamustine and rituximab infusion
I had B and R Thursday. Beforehand I had a cocktail of drugs including tylenol. prednisone, and benadryl. My creatinine went from 0.96 on Thursday to 1.11 before drug infusion on Friday. I wonder if the drugs raised my levels. Has anyone else experienced something like this?
I had B and R Thursday. Beforehand I had a cocktail of drugs including tylenol. prednisone, and benadryl. My creatinine went from 0.96 on Thursday to 1.11 before drug infusion on Friday. I wonder if the drugs raised my levels. Has anyone else experienced something like this?
profrich
in
CLL Support
5 years ago
Starting Chemo tomorrow
I have held off for 9 years now and tomorrow is the DDAY for me. NHL CD-20. Had a scan yesterday after the last one 18 months ago. The nodes in the neck have enlarged and my throat is extremely contradicted. I am going the BR and chemo route. Along with issues with my voice I have constant nasal congestion
I have held off for 9 years now and tomorrow is the DDAY for me. NHL CD-20. Had a scan yesterday after the last one 18 months ago. The nodes in the neck have enlarged and my throat is extremely contradicted. I am going the BR and chemo route. Along with issues with my voice I have constant nasal congestion
DDay2012
in
CLL Support
5 years ago
Treatment in 10 days
Howdy I am looking forward to soaking the up information available here from all. They found my CLL on routine check up 8 years ago-have been doing wait and watch until now Hemo 11.1 WBC 310 will begin Ibrutinib in about 10 days as well as Allopurinol daily to flush out kidneys. I am an electrical
Howdy I am looking forward to soaking the up information available here from all. They found my CLL on routine check up 8 years ago-have been doing wait and watch until now Hemo 11.1 WBC 310 will begin Ibrutinib in about 10 days as well as Allopurinol daily to flush out kidneys. I am an electrical
wilhoitaz
in
CLL Support
5 years ago
Now Hodgkin Lymphoma
Been on a ibrutinib now for almost 4 1/2 years because of the CLL. Has done wonders to keep my blood scores in check. Almost normal. About 10 days ago I was diagnosed however with Hodgekin Lymphoma. Stage 3, with lymph node/tumours now on both sides of diaphragm. What is surprise! Stage 3. Doctor says
Been on a ibrutinib now for almost 4 1/2 years because of the CLL. Has done wonders to keep my blood scores in check. Almost normal. About 10 days ago I was diagnosed however with Hodgekin Lymphoma. Stage 3, with lymph node/tumours now on both sides of diaphragm. What is surprise! Stage 3. Doctor says
leopardo
in
CLL Support
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
Solamin - extract for sickle cell anaemia
Clinical Evaluation of SOLAMIN, was headed by Prof. H.A.B Coker, at Natural Medicine and Molecular Pharmaco-Biotechnology Laboratories – College of Medicine, University of Lagos, Nigeria, at the instance of former Minister of Health, Prof. Eyitayo Lambo, and released at Nigerian Institute of Medical
Clinical Evaluation of SOLAMIN, was headed by Prof. H.A.B Coker, at Natural Medicine and Molecular Pharmaco-Biotechnology Laboratories – College of Medicine, University of Lagos, Nigeria, at the instance of former Minister of Health, Prof. Eyitayo Lambo, and released at Nigerian Institute of Medical
Bman1
in
Sickle Cell Society
5 years ago
Newbie ...
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
SomersetJo
in
British Heart Foundation
5 years ago
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve.
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
Integrating Novel Targets and Precision Medicine Into Prostate Cancer Care—Part 1: The Non-Androgen–Targetable Pathways in Castration-Resist
Good article that provides an update - LOTS going on!! Integrating Novel Targets and Precision Medicine Into Prostate Cancer Care—Part 1: The Non-Androgen–Targetable Pathways in Castration-Resistant Prostate Cancer Bryden Considine, DODaniel P. Petrylak, MD March 13, 2019 Volume: 33Issue: 3 Prostate
Good article that provides an update - LOTS going on!! Integrating Novel Targets and Precision Medicine Into Prostate Cancer Care—Part 1: The Non-Androgen–Targetable Pathways in Castration-Resistant Prostate Cancer Bryden Considine, DODaniel P. Petrylak, MD March 13, 2019 Volume: 33Issue: 3 Prostate
JLS1
in
Advanced Prostate Cancer
5 years ago
Spots that are turning nasty! Dapsone
Hi everybody, tried Cotrimoxazole but could not tolerate. My haematologist has put me one Dapsone which is bringing me out in nasty sores, they take a long time to clear. Apparently this drug helps with the very bad cough that I have all the time along with heavy mucus. Has anyone out there had a problem
Hi everybody, tried Cotrimoxazole but could not tolerate. My haematologist has put me one Dapsone which is bringing me out in nasty sores, they take a long time to clear. Apparently this drug helps with the very bad cough that I have all the time along with heavy mucus. Has anyone out there had a problem
Broadbent
in
CLL Support
5 years ago
I have TP53
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
Doremefasol
in
CLL Support
5 years ago
10 months post Stem Cell Transplant
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
KAS8
in
CLL Support
5 years ago
IF, H pylori, parietal cell antibody, vitamin b12 deficiency
Hi All, I am new to this group. I am miss diagnosed of not having any issues with various blood tests. I have PA diagnosed my self and cyanocobalamin and hydroxobalamin doesn’t work. Lot of neurological symptoms body shaking and what not. Only methycobalamin works and that too only from particular brand
Hi All, I am new to this group. I am miss diagnosed of not having any issues with various blood tests. I have PA diagnosed my self and cyanocobalamin and hydroxobalamin doesn’t work. Lot of neurological symptoms body shaking and what not. Only methycobalamin works and that too only from particular brand
Thulasi1
in
Pernicious Anaemia Society
5 years ago
ED after Leukaemia (CML)
New to this. Anyone part of this group had Leukaemia and bone marrow transplant and suffered ED?
New to this. Anyone part of this group had Leukaemia and bone marrow transplant and suffered ED?
Cryptogamia
in
Erectile Dysfunction Support
5 years ago
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