Search
Search
About
Log in
Join
Experiences with
Cutaneous T cell lymphoma (CTCL)
Posts
Communities
1,643 public posts
Filter results
ATTENTION LYMPHOMA PATIENTS, CAREGIVERS, AND HEALTHCARE PROFESSIONALS - NATIONAL LYMPHOMA PATIENT CONFERENCE
Lymphoma Canada is pleased to be hosting its 3rd Annual National Conference for patients, caregivers, family members, friends and healthcare professionals. Saturday, September 21, 2019 Hilton Toronto 145 Richmond St. West, Toronto, ON M5H 2L2 Patient and Caregiver Rate: $35 Breakfast, lunch and
Lymphoma Canada is pleased to be hosting its 3rd Annual National Conference for patients, caregivers, family members, friends and healthcare professionals. Saturday, September 21, 2019 Hilton Toronto 145 Richmond St. West, Toronto, ON M5H 2L2 Patient and Caregiver Rate: $35 Breakfast, lunch and
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
5 years ago
My search for the perfect anti lymphoma diet
About one year ago I discovered this wonderful site. I had been diagnosed with Mantle cell lymphoma in July 2015 and had R Chop and a stem cell transplant. One year ago I had just started a gluten free and dairy free diet and I felt great. I suggested that anyone who had lymphoma and an autoimmune
About one year ago I discovered this wonderful site. I had been diagnosed with Mantle cell lymphoma in July 2015 and had R Chop and a stem cell transplant. One year ago I had just started a gluten free and dairy free diet and I felt great. I suggested that anyone who had lymphoma and an autoimmune
Maltipoo
in
Non Hodgkin's Lymphoma Friends
5 years ago
Please watch Video (Giant Cell and PMR and Tocilizumab)
Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to Optimal Management". In this webcast, Dr. John Stone discusses best practices for integrating the latest clinical evidence surrounding new and emerging
Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to Optimal Management". In this webcast, Dr. John Stone discusses best practices for integrating the latest clinical evidence surrounding new and emerging
lemarie1
in
PMRGCAuk
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
18 month Follow up results with Ibrutinib/Venetoclax clinical trial
I have been for 18 months in the clinical trial for fixed duration of the phase 2 study of the combination of Ibrutinib plus Venetoclax for treatment naive patients. I became MRD negative after 8 months on the drugs and just got the results of my 3rd bone marrow biopsy: I am still MRD negative!!!
I have been for 18 months in the clinical trial for fixed duration of the phase 2 study of the combination of Ibrutinib plus Venetoclax for treatment naive patients. I became MRD negative after 8 months on the drugs and just got the results of my 3rd bone marrow biopsy: I am still MRD negative!!!
lamboman
in
CLL Support
5 years ago
CT Scan too close to BR Chemo date
So my Oncologist's office dropped the ball where I was to have a CT scan before my 4th BR chemo treatment. 3 weeks after the last treatment and just before the next BR treatment. So as it is the CT is scheduled for 3 days after the BR treatments. My question is whether the contrast material will be affected
So my Oncologist's office dropped the ball where I was to have a CT scan before my 4th BR chemo treatment. 3 weeks after the last treatment and just before the next BR treatment. So as it is the CT is scheduled for 3 days after the BR treatments. My question is whether the contrast material will be affected
DDay2012
in
Non Hodgkin's Lymphoma Friends
5 years ago
Relapsed after 40 months in remission
Several days ago a CT/PET detected lymphoma progression wife (72) who was in remission since her CAR-T infusion in March 2016. Monday she will get a lymph node biopsy to see whether her follicular lymphoma has transformed into something else. Any thoughts on the next treatment?
Several days ago a CT/PET detected lymphoma progression wife (72) who was in remission since her CAR-T infusion in March 2016. Monday she will get a lymph node biopsy to see whether her follicular lymphoma has transformed into something else. Any thoughts on the next treatment?
wmay13241
in
CLL Support
5 years ago
Colonoscopy Whilst on Steroids
Hello Again! I am wondering if you could let me have your opinions before I speak to the endoscopy unit. I am having a colonoscopy later this month. I know how to live! đ My question is, on the day prior to the procedure, I am allowed a light breakfast - which is when I would normally take my 3mg
Hello Again! I am wondering if you could let me have your opinions before I speak to the endoscopy unit. I am having a colonoscopy later this month. I know how to live! đ My question is, on the day prior to the procedure, I am allowed a light breakfast - which is when I would normally take my 3mg
Songbird69
in
PMRGCAuk
5 years ago
Cord blood for leukemia/ lymphoma?
Not sure yet what my b lymphoma diagnosis is. But a timely question has arisen in my family. Both of my daughters are pregnant and due late November. One asked if I wanted her to harvest and store her cord blood for possible use for my illness. Apparently she needs to decide by early October. Does anyone
Not sure yet what my b lymphoma diagnosis is. But a timely question has arisen in my family. Both of my daughters are pregnant and due late November. One asked if I wanted her to harvest and store her cord blood for possible use for my illness. Apparently she needs to decide by early October. Does anyone
Sunfishjoy
in
CLL Support
5 years ago
Thank you all!!!
Hello, a short summary.. After FCR in 2015 and BR in 2017, our doctor suggested my husband to start Ibrutinib since his lymph nodes in abdomen are almost 7-8cm, wbc above 25, platelets under 100 and he has lost 5-6kg in the last month. I want to thank you all because I've read so many posts about Ibrutinib
Hello, a short summary.. After FCR in 2015 and BR in 2017, our doctor suggested my husband to start Ibrutinib since his lymph nodes in abdomen are almost 7-8cm, wbc above 25, platelets under 100 and he has lost 5-6kg in the last month. I want to thank you all because I've read so many posts about Ibrutinib
aylinozel
in
CLL Support
5 years ago
What is CAR-T therapy? An expert explains in simple terms
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Jm954
Administrator
in
CLL Support
5 years ago
Reducing tocilizumab injections
I was told to try to take my tocilizumab injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks twice. Does anyone have any experience of reducing the injections. I am feeling increasingly ill, sweating, extreme tiredness - signs the GCA is back
I was told to try to take my tocilizumab injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks twice. Does anyone have any experience of reducing the injections. I am feeling increasingly ill, sweating, extreme tiredness - signs the GCA is back
christine2715
in
PMRGCAuk
5 years ago
cll/sll or MZL? & Rituxan
I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or some other type of small b cell lymphoma is hypothesized. Yesterday I saw a lymphoma specialist who recommended rituxan now even though I don't
I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or some other type of small b cell lymphoma is hypothesized. Yesterday I saw a lymphoma specialist who recommended rituxan now even though I don't
Sunfishjoy
in
CLL Support
5 years ago
Stem cell webinar by MJF and 1 unanswered question
Just finished listening to the MJF stem cell seminar. It was not particularly educational neither it gave any reason for optimism. Well, judge for yourself: slides are available on MJF site. I asked the panel a question but didn't get an answer. The question was: " It was reported that people who
Just finished listening to the MJF stem cell seminar. It was not particularly educational neither it gave any reason for optimism. Well, judge for yourself: slides are available on MJF site. I asked the panel a question but didn't get an answer. The question was: " It was reported that people who
felixned
in
Cure Parkinson's
5 years ago
Stem Cell Transplant That didnât put cancer in remission
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
seaturtle2
in
Myeloma America Support
5 years ago
Living Beyond Lymphoma: Mindfulness Teleconference Wednesday, July 31, 2019 1:30 PM -- 2:30 PM ET
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
lankisterguy
Volunteer
in
CLL Support
5 years ago
Webinar: The Path to Personalized Medicine in Lymphoma and CLL Thursday, June 27, 2019 4:00 PM - 5:00 PM EDT by Lymphoma Canada
Webinar: The Path to Personalized Medicine in Lymphoma and CLL https://mailchi.mp/lymphoma/cll-webinar-national-guidelines-for-front-line-treatment-of-cll-in-canada-2556069?e=7b399e8498 REGISTER TODAY https://register.gotowebinar.com/register/592054424846575116 DATE: Thursday, June 27, 2019 TIME:
Webinar: The Path to Personalized Medicine in Lymphoma and CLL https://mailchi.mp/lymphoma/cll-webinar-national-guidelines-for-front-line-treatment-of-cll-in-canada-2556069?e=7b399e8498 REGISTER TODAY https://register.gotowebinar.com/register/592054424846575116 DATE: Thursday, June 27, 2019 TIME:
lankisterguy
Volunteer
in
CLL Support
5 years ago
Mantle Cell Lymphoma
I have been cancer free for 12 years now. Taking Thalomide every day.
I have been cancer free for 12 years now. Taking Thalomide every day.
Mariguez
in
Non Hodgkin's Lymphoma Friends
5 years ago
Any Hope of Resolving DH Symptoms?
5 years since diagnosed with dermatitis herpetiformis, and have been on Dapsone and various topical ointments without my improvement in the blistering and itching at major joints and my butt. Have been careful about avoiding gluten in all food items. Has anyone had a similar situation where you have
5 years since diagnosed with dermatitis herpetiformis, and have been on Dapsone and various topical ointments without my improvement in the blistering and itching at major joints and my butt. Have been careful about avoiding gluten in all food items. Has anyone had a similar situation where you have
dwaage1
in
Gluten Free Guerrillas
5 years ago
CLL, Bone Marrow Transplant and Hodgkinâs Lymphoma
Canât really answer this as I havenât had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL âcareerâ ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
Canât really answer this as I havenât had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL âcareerâ ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
leopardo
in
CLL Support
5 years ago
Bendamustine and Rituximab and Low Lymphocyte Count
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
profrich
in
CLL Support
5 years ago
1
...
32
33
34
...
83
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
CLL Support
545 results
PMRGCAuk
202 results
MPN Voice
130 results
View top 10 communities
Sort by
Most Relevant
Newest