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Cutaneous T cell lymphoma (CTCL)
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Angioimmunoblastic T-Cell Lymphoma
I was diagnosed with stage 3 ATCL, originally the Dr prescriber steroids but later said that due to my age (55) and physical condition we should go straight to chemotherapy. He will be discussing treatment today, what drugs and regiment should I expect to hear? Thx for your comments.
I was diagnosed with stage 3 ATCL, originally the Dr prescriber steroids but later said that due to my age (55) and physical condition we should go straight to chemotherapy. He will be discussing treatment today, what drugs and regiment should I expect to hear? Thx for your comments.
Lovewpb
in
Lymphoma Canada
4 years ago
CLL Aussie voices study - last call to add your voice to the PEEK study
This is a final call for Australians with CLL, their carers and family members to add their voice and register for the CLL PEEK study, conducted by the Centre for Community Driven Research ( CC-DR).
To register, email administration@cc-dr.org or go to www.cc-dr.org/peek/register/2020aucll
Catherine
This is a final call for Australians with CLL, their carers and family members to add their voice and register for the CLL PEEK study, conducted by the Centre for Community Driven Research ( CC-DR).
To register, email administration@cc-dr.org or go to www.cc-dr.org/peek/register/2020aucll
Catherine
AussieNeil
Partner
in
CLL Support
4 years ago
weird test results
my first test came back positive for gastric parietal cell antibodies using the Elisa test. Second test tests 5 years later for parietal cell antibody titers, comes back negative. Ok is this something that comes and goes?
my first test came back positive for gastric parietal cell antibodies using the Elisa test. Second test tests 5 years later for parietal cell antibody titers, comes back negative. Ok is this something that comes and goes?
BumbleBeeBumble
in
Pernicious Anaemia Society
4 years ago
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New and first post might not be related.. please excuse me.
i had severe weight loss, and lot of symptoms in 2018, i went to specialist and got infections tests and all came back good.. but my CD8 cells are very less in the immunity test. after few months with continued symptoms i researched and found my symptoms are related to b12 deficiency and got tested and
i had severe weight loss, and lot of symptoms in 2018, i went to specialist and got infections tests and all came back good.. but my CD8 cells are very less in the immunity test. after few months with continued symptoms i researched and found my symptoms are related to b12 deficiency and got tested and
b12pas
in
Pernicious Anaemia Society
4 years ago
An interesting letter to the editor: Stem Cell Transplantation for Parkinson Disease: Déjà Vu All Over Again? ?
https://academic.oup.com/neurosurgery/advance-article/doi/10.1093/neuros/nyaa487/6027128
https://academic.oup.com/neurosurgery/advance-article/doi/10.1093/neuros/nyaa487/6027128
Farooqji
in
Cure Parkinson's
4 years ago
Rosemary - another anti-leukemia spice!
A 2014 test-tube study found that Ellagic Acid (e,g., anardana, pomegranates, rose hips, strawberries and blackberries), EGCG (e.g., green tea) and Rosmarinic Acid (e.g., Rosemary) can work together to stop leukemia cells from proliferating. Here's the link: https://www.sciencedirect.com/science/article
A 2014 test-tube study found that Ellagic Acid (e,g., anardana, pomegranates, rose hips, strawberries and blackberries), EGCG (e.g., green tea) and Rosmarinic Acid (e.g., Rosemary) can work together to stop leukemia cells from proliferating. Here's the link: https://www.sciencedirect.com/science/article
HowardR
in
CLL Support
4 years ago
The road ahead
My oncologist called me yesterday and said they had found a donor match for a stem cell transplant and did I want to proceed? So a little of my story, I have been on IBRUTINUB for two years and am currently feel great as my lymphocyte count is 16.5 and neutrophils at 3.8. He said because of my higher
My oncologist called me yesterday and said they had found a donor match for a stem cell transplant and did I want to proceed? So a little of my story, I have been on IBRUTINUB for two years and am currently feel great as my lymphocyte count is 16.5 and neutrophils at 3.8. He said because of my higher
steve_canada
in
CLL Support
4 years ago
Update from my Appointment
Hi All, I want to thank everyone for the kind words of support, good thoughts, and prayers for my appointment with a new specialist yesterday. I appreciate it so much. Here’s what I learned: 1.I liked the team a great deal. Everyone was very kind, really listened to me, and had excellent information
Hi All, I want to thank everyone for the kind words of support, good thoughts, and prayers for my appointment with a new specialist yesterday. I appreciate it so much. Here’s what I learned: 1.I liked the team a great deal. Everyone was very kind, really listened to me, and had excellent information
Moonmyst
in
CLL Support
4 years ago
Is there any information yet on the COVID-19 vaccines for post Bone Marrow Transplant patients?
I had my transplant in 2014 and have seen a few articles about the way the vaccines interact with the immune system.
I had my transplant in 2014 and have seen a few articles about the way the vaccines interact with the immune system.
colinparker1967
in
MPN Voice
4 years ago
CLL Australian Webinar 21 October 2020. Keynote speaker Prof Peter Hillmen, Leeds UK. Interview of Sharon Winton CEO Lymphoma Australia, Q&A
Join MC
Julie McCrossin
and keynote speaker - the world renowned clinician and researcher -
Prof. Peter Hillmen
from St James’s University Hospital Leeds, for a webinar that
promises
to be energetic and full of new information. People from all countries are welcome to join the webinar
Join MC
Julie McCrossin
and keynote speaker - the world renowned clinician and researcher -
Prof. Peter Hillmen
from St James’s University Hospital Leeds, for a webinar that
promises
to be energetic and full of new information. People from all countries are welcome to join the webinar
AussieNeil
Partner
in
CLL Support
4 years ago
TREATMENT OPTION FOR TRISOMY 12
Hi Dr. Aussie Neil! I am pleased to write to you once again about my test result. As i previously indicated, a year ago i was diagnosed with CLL Rai Stage II B and put on R-CVP chemoimmunoterapy and now 4 months since i took the last 6th infusion of 6 cycles recommended for my treatment. But still i
Hi Dr. Aussie Neil! I am pleased to write to you once again about my test result. As i previously indicated, a year ago i was diagnosed with CLL Rai Stage II B and put on R-CVP chemoimmunoterapy and now 4 months since i took the last 6th infusion of 6 cycles recommended for my treatment. But still i
amaagabg2020
in
CLL Support
4 years ago
Ultra V - Cycle 4
Hi, all, I wanted to give an update on my husbands progress in the Ultra V trial (3 drug combo:Ublituximab, Umbrilisib, & Venetoclax) . (For reference - ha - this is his first treatment, 13q, unmutated, Notch1) He is almost done with Cycle 4, which is the cycle where Venetoclax is added/ramping.
Hi, all, I wanted to give an update on my husbands progress in the Ultra V trial (3 drug combo:Ublituximab, Umbrilisib, & Venetoclax) . (For reference - ha - this is his first treatment, 13q, unmutated, Notch1) He is almost done with Cycle 4, which is the cycle where Venetoclax is added/ramping.
WDSmith
in
CLL Support
4 years ago
Gene SRSF2
I'm new here, but have private messaged Hunter who is an inspiration and interesting fact finder. I have MF progressed from PV last year but my recent visit to consultant showed a further 2 mutants. I'm Jak2 positive with SRSF2+1DH2. He has made a referral for Stem Cell Transplant. Is there anyone out
I'm new here, but have private messaged Hunter who is an inspiration and interesting fact finder. I have MF progressed from PV last year but my recent visit to consultant showed a further 2 mutants. I'm Jak2 positive with SRSF2+1DH2. He has made a referral for Stem Cell Transplant. Is there anyone out
ktaylor5563
in
MPN Voice
4 years ago
TPLL
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
Whatadayitwas
in
CLL Support
4 years ago
Mycosis Fungoides
It’s a
cutaneous
T
cell
lymphoma
. I’ve had a rash that was there two years ago and and it goes away and comes back in different areas. No scaling, itchiness or pain. Any advice would be helpful.
It’s a
cutaneous
T
cell
lymphoma
. I’ve had a rash that was there two years ago and and it goes away and comes back in different areas. No scaling, itchiness or pain. Any advice would be helpful.
Madison1995
in
CLL Support
4 years ago
anti parietal cell antibody test For b12
anti parietal cell antibody test For b12 is it worth ?
anti parietal cell antibody test For b12 is it worth ?
Ulrich-vi
in
Pernicious Anaemia Society
4 years ago
Some good news and hope
A very special day today. My wife Jan was diagnosed with an incurable blood cancer CLL this day 9 years ago age 39. We are in Ireland. After 3 very sick years we were fortunate that she was able to access a clinical trial in the UK and in 2014 started a drug Ibrutinib which targets the cancer. Her
A very special day today. My wife Jan was diagnosed with an incurable blood cancer CLL this day 9 years ago age 39. We are in Ireland. After 3 very sick years we were fortunate that she was able to access a clinical trial in the UK and in 2014 started a drug Ibrutinib which targets the cancer. Her
Irishcll
in
CLL Support
4 years ago
Be alert of Secondary MDS
My father is successfully fighting prostate cancer since 3.5 yrs. His cemo (by pills) for 6 months then 40 radiations went well after testical removal. But his hemoglobin started to be low like 9 from 12. We asked doctor couple of times he just asked us to focus on PSA which is 0.01. But now my father
My father is successfully fighting prostate cancer since 3.5 yrs. His cemo (by pills) for 6 months then 40 radiations went well after testical removal. But his hemoglobin started to be low like 9 from 12. We asked doctor couple of times he just asked us to focus on PSA which is 0.01. But now my father
Kshiprakapoor
in
Advanced Prostate Cancer
4 years ago
Life after transplant
I read a lot about people struggling after transplant to get back to normal life and it’s clear that for many “normal” is not what they had before diagnosis. I don’t know if I am in a minority or we only tend to speak out when things are bad but my life is amazing now. My bloods are all in normal ranges
I read a lot about people struggling after transplant to get back to normal life and it’s clear that for many “normal” is not what they had before diagnosis. I don’t know if I am in a minority or we only tend to speak out when things are bad but my life is amazing now. My bloods are all in normal ranges
KAS8
in
CLL Support
4 years ago
Newly diagnosed and hoping for a bit of advice
Hi, Thankyou to all those who have put so much into this site. Its been a huge help in the last few days since I started trying to find out more about SLL. I'm a 46 year old male in the UK who felt ill (exhausted, night sweats, generally weak and achy muscles) for around 2 years with the symptoms very
Hi, Thankyou to all those who have put so much into this site. Its been a huge help in the last few days since I started trying to find out more about SLL. I'm a 46 year old male in the UK who felt ill (exhausted, night sweats, generally weak and achy muscles) for around 2 years with the symptoms very
Pdaquinas
in
CLL Support
4 years ago
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