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Cutaneous T cell lymphoma (CTCL)
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CAR-T! Laurie Adami tells the riveting tale of her diagnosis at the age of 46 ...
CAR-T! Laurie Adami tells the riveting tale of her diagnosis at the age of 46 with stage IV follicular non-Hodgkin lymphoma, an incurable blood cancer, after years of consulting doctors who were either baffled by, or just plain off-base in their assessment of her presenting symptoms. In March 2018, after
CAR-T! Laurie Adami tells the riveting tale of her diagnosis at the age of 46 with stage IV follicular non-Hodgkin lymphoma, an incurable blood cancer, after years of consulting doctors who were either baffled by, or just plain off-base in their assessment of her presenting symptoms. In March 2018, after
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Mrs Cropley’s Christmas Creation: Ginger and Honey Latte!
Hello everyone - here’s a winter warmer to spread some cheer at this very tricky time. Not really an original recipe but I was inspired to make it after receiving a lovely Christmas gift of pantry goodies that included crystallised ginger and raw honeycomb! (Naughty me couldn’t wait until Christmas Day
Hello everyone - here’s a winter warmer to spread some cheer at this very tricky time. Not really an original recipe but I was inspired to make it after receiving a lovely Christmas gift of pantry goodies that included crystallised ginger and raw honeycomb! (Naughty me couldn’t wait until Christmas Day
Horsewhisper
in
LUPUS UK
4 years ago
WARWICK's ASCT Journey Begins Today...
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
socrates_8
in
MPN Voice
3 years ago
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Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
3 years ago
Help with Non Hodkin’s Lymphoma
Hello I’m new here. I have just started a new regimen of treatment for Follicular Lymphoma. The first regimen R-CHOP got rid of the lump in my groin but unfortunately the lumps in my chest and neck resisted the treatment. My consultant told me this is not a good sign and he is concerned. They are communicating
Hello I’m new here. I have just started a new regimen of treatment for Follicular Lymphoma. The first regimen R-CHOP got rid of the lump in my groin but unfortunately the lumps in my chest and neck resisted the treatment. My consultant told me this is not a good sign and he is concerned. They are communicating
Charlie120920
in
Non Hodgkin's Lymphoma Friends
4 years ago
Short Update on Ibrutinib + Idelalisib + Venetoclax "N of 1" trial after lower dose.
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
UniversallyPersonal
in
CLL Support
3 years ago
Quick Question to anyone previously shielding, over 70 and in Scotland
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Froggie70
in
LUPUS UK
3 years ago
Richter's in Remission - 11 months post transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
SarasotaPaul
in
CLL Support
3 years ago
Living in the USA with CLL and want to know where to sign up for your COVID-19 Vaccination? A State-by-State List
From MedPage Today: [i]Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination web page.[/i] https://www.medpagetoday.com/infectiousdisease/covid19/90791 CLL Society's Official Statement:
Should I get the vaccine? Which
From MedPage Today: [i]Every state has posted information on its plan; many (though not all) list ways to sign up. Here are links to each state's vaccination web page.[/i] https://www.medpagetoday.com/infectiousdisease/covid19/90791 CLL Society's Official Statement:
Should I get the vaccine? Which
AussieNeil
Partner
in
CLL Support
3 years ago
Mrs Cropley’s Copy Coffee Creations! Gingerbread Latte!
Evening peeps! Here’s what’s on the menu today if you fancy a quick cyber drive-thru? It’s pretty fiery - ideal for chilly winter evenings, by all means adjust the ginger to taste along with the amount of sugar and coffee that you normally like. So I simmered 2 mugs of whole farm milk with one heaped
Evening peeps! Here’s what’s on the menu today if you fancy a quick cyber drive-thru? It’s pretty fiery - ideal for chilly winter evenings, by all means adjust the ginger to taste along with the amount of sugar and coffee that you normally like. So I simmered 2 mugs of whole farm milk with one heaped
Horsewhisper
in
LUPUS UK
4 years ago
Resetting the Bar of Castration Resistance - Understanding Androgen Dynamics in Therapy Resistance and Treatment Choice in PCa
New paper below [1]. I have watched plenty of videos where Neal Shore, Alicia Morgans & Charles Ryan get together at a conference to discuss the presentations that interested them. Here they are in a paper - can a video be far behind? I think that the paper addresses some issues that have often been
New paper below [1]. I have watched plenty of videos where Neal Shore, Alicia Morgans & Charles Ryan get together at a conference to discuss the presentations that interested them. Here they are in a paper - can a video be far behind? I think that the paper addresses some issues that have often been
pjoshea13
in
Advanced Prostate Cancer
4 years ago
LDH Results
I have been on impruvica since April 13 and after 4 or 5 months it was helping my blood counts . This past November 12 I needed mohs surgery to remove basil carcinoma cancer cells on the tip of my eyelid . That surgery was successful . However I needed reconstruction surgery on November 16 for my eyelid
I have been on impruvica since April 13 and after 4 or 5 months it was helping my blood counts . This past November 12 I needed mohs surgery to remove basil carcinoma cancer cells on the tip of my eyelid . That surgery was successful . However I needed reconstruction surgery on November 16 for my eyelid
Kmegood
in
CLL Support
4 years ago
Increasing LDH
Hi everyone! I’m a longtime reader, first time poster. I was diagnosed with CLL at 45, waited and watched for one year, then started treatment due to splenomegally and super high wbc. Joined a trial of obinituzimab, ibrutinib, and venetoclax. I’m on cycle 13 and numbers in general have been doing well
Hi everyone! I’m a longtime reader, first time poster. I was diagnosed with CLL at 45, waited and watched for one year, then started treatment due to splenomegally and super high wbc. Joined a trial of obinituzimab, ibrutinib, and venetoclax. I’m on cycle 13 and numbers in general have been doing well
RSSpoke
in
CLL Support
4 years ago
Help for after Meningitis
Hello friends! I wish all of you a healthy 2021! My name is Fredy, I was born in Peru, but for problems in my country I moved to the USA, now I live in New York. In 2012 I got meningitis, 2 weeks in comma, when I woke up from coma, my brain was gone, after that took me like 4 years to understand something
Hello friends! I wish all of you a healthy 2021! My name is Fredy, I was born in Peru, but for problems in my country I moved to the USA, now I live in New York. In 2012 I got meningitis, 2 weeks in comma, when I woke up from coma, my brain was gone, after that took me like 4 years to understand something
menin
in
Meningitis Now
3 years ago
Stem Cell Transplantation at Mass General
I have posted about this particular stem cell transplantation at least twice before. I understand that it was a "pay for play" situation. I understand that it is an "N of 1" situation. I understand that "placebo effect" could be a factor. I understand that much broader studies may be necessary. With
I have posted about this particular stem cell transplantation at least twice before. I understand that it was a "pay for play" situation. I understand that it is an "N of 1" situation. I understand that "placebo effect" could be a factor. I understand that much broader studies may be necessary. With
jimcaster
in
Cure Parkinson's
3 years ago
Tocilizumab patients and the COVID Vaccine
My Rheumatologist has let me know that it is fine for me to have the COVID Vaccine and to continue having my Tocilizumab injections. I am also on 10 mgs of Prednisalone. I have Giant Cell Arteritis/Large Vessel Vasculitis.
My Rheumatologist has let me know that it is fine for me to have the COVID Vaccine and to continue having my Tocilizumab injections. I am also on 10 mgs of Prednisalone. I have Giant Cell Arteritis/Large Vessel Vasculitis.
SheffieldJane
in
PMRGCAuk
4 years ago
Sipuleucel-T boosts survival versus abiraterone or enzalutamide alone in real-world mCRPC analysis
The immunotherapy was also associated with fewer emergency department visits than either of the androgen pathway receptor inhibitors. Real-world data showed that use of the immunotherapy sipuleucel-T (Provenge) during any line of treatment in men with metastatic castration-resistant prostate cancer
The immunotherapy was also associated with fewer emergency department visits than either of the androgen pathway receptor inhibitors. Real-world data showed that use of the immunotherapy sipuleucel-T (Provenge) during any line of treatment in men with metastatic castration-resistant prostate cancer
George71
in
Advanced Prostate Cancer
4 years ago
Would love some advice
Hi. Firstly, I just want to say how grateful I am to have found this forum. It is invaluable and has answered some of my questions before I have even asked them - ie. blurry eyes etc. I would love some advice though if you can still put up with me. My consultant reduced my 40mg dose of prednisolone
Hi. Firstly, I just want to say how grateful I am to have found this forum. It is invaluable and has answered some of my questions before I have even asked them - ie. blurry eyes etc. I would love some advice though if you can still put up with me. My consultant reduced my 40mg dose of prednisolone
Sophiestree
in
PMRGCAuk
4 years ago
Angioimmunoblastic T-Cell Lymphoma
I was diagnosed with stage 3 ATCL, originally the Dr prescriber steroids but later said that due to my age (55) and physical condition we should go straight to chemotherapy. He will be discussing treatment today, what drugs and regiment should I expect to hear? Thx for your comments.
I was diagnosed with stage 3 ATCL, originally the Dr prescriber steroids but later said that due to my age (55) and physical condition we should go straight to chemotherapy. He will be discussing treatment today, what drugs and regiment should I expect to hear? Thx for your comments.
Lovewpb
in
Lymphoma Canada
4 years ago
CLL Aussie voices study - last call to add your voice to the PEEK study
This is a final call for Australians with CLL, their carers and family members to add their voice and register for the CLL PEEK study, conducted by the Centre for Community Driven Research ( CC-DR).
To register, email administration@cc-dr.org or go to www.cc-dr.org/peek/register/2020aucll
Catherine
This is a final call for Australians with CLL, their carers and family members to add their voice and register for the CLL PEEK study, conducted by the Centre for Community Driven Research ( CC-DR).
To register, email administration@cc-dr.org or go to www.cc-dr.org/peek/register/2020aucll
Catherine
AussieNeil
Partner
in
CLL Support
4 years ago
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