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ALC doubling time
I was diagnosed with CLL/SLL Jan 2023.i completed O and V March 8 th of this year. My most recent labs show that my ALC went from 2.45 in March to 4.8 with yesterday's labs. Almost all of my numbers are down. (Rbc'sHgb, hct, platlets) Throughout treatment my labs were close to within range except for
I was diagnosed with CLL/SLL Jan 2023.i completed O and V March 8 th of this year. My most recent labs show that my ALC went from 2.45 in March to 4.8 with yesterday's labs. Almost all of my numbers are down. (Rbc'sHgb, hct, platlets) Throughout treatment my labs were close to within range except for
Shangonmom
in
CLL Support
2 months ago
FISH TESTING - ‘Admin Edit’ - please read sad update on this post before replying.
I apologize if I am incorrect with the name of the testing results below. My husbands first CLL Dr 5 years ago had him on watch and wait. When he received the following results Tumor/ Prognostic Markers: CD38+ ZAP70+ Trisomy 12. IgVH unmutated, I researched the results which were very concerning to
I apologize if I am incorrect with the name of the testing results below. My husbands first CLL Dr 5 years ago had him on watch and wait. When he received the following results Tumor/ Prognostic Markers: CD38+ ZAP70+ Trisomy 12. IgVH unmutated, I researched the results which were very concerning to
Debcap61
in
CLL Support
7 months ago
PAF well controlled till I got covid
hi, I’m new to this forum and hope you can give me some hope. I’ve had PAF for 13 years, well controlled on propranolol 80mg slow release - other beta blockers seem to affect my chest/throat and give me dreadful indigestion and can’t tolerate the newer ones. However in November whilst on holiday in
hi, I’m new to this forum and hope you can give me some hope. I’ve had PAF for 13 years, well controlled on propranolol 80mg slow release - other beta blockers seem to affect my chest/throat and give me dreadful indigestion and can’t tolerate the newer ones. However in November whilst on holiday in
Clifflove
in
Atrial Fibrillation Support
7 months ago
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Walsh's Folly?
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
VoxHope
in
Advanced Prostate Cancer
2 months ago
Peeing , what to do?
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
positive-thinking
in
Advanced Prostate Cancer
2 months ago
vaginal bleeding post bowel motion
Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made notes and realised it was happening about twice a month (between periods), but I’ve had an increase in this recently. Not starting a period, and
Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made notes and realised it was happening about twice a month (between periods), but I’ve had an increase in this recently. Not starting a period, and
PopcornPJ
in
Endometriosis UK
2 months ago
immunotherapy for OVCA
just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian
just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian
Leniko
in
My Ovacome
2 months ago
How to say it
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
Blueribbon63
in
Advanced Prostate Cancer
2 months ago
sct update so far
I just wanted let you all know how iam getting on I have been in since the 29 and have been having chemo daily I have had no side effects so far my doctor said I can take chemotherapy like water but don’t get to ahead of myself as this is the easy bit which I knew from countless hours of research but
I just wanted let you all know how iam getting on I have been in since the 29 and have been having chemo daily I have had no side effects so far my doctor said I can take chemotherapy like water but don’t get to ahead of myself as this is the easy bit which I knew from countless hours of research but
Leighcox85
in
MPN Voice
2 months ago
liver lesions
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.💔
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.💔
BluHydrangea
in
SHARE Metastatic Breast Cancer
2 months ago
On Venetoclax, lymph node appeared
Trying not to worry but a lymph node in my armpit swelled up. I feel fine, no colds, fevers or recent vaccinations. Even did a Covid test because I have had Covid totally asymptomatic but negative. Has anyone have this happen and it turned out to be nothing. Hoping this is just a fluke but it seems
Trying not to worry but a lymph node in my armpit swelled up. I feel fine, no colds, fevers or recent vaccinations. Even did a Covid test because I have had Covid totally asymptomatic but negative. Has anyone have this happen and it turned out to be nothing. Hoping this is just a fluke but it seems
Alex830
in
CLL Support
7 months ago
"Gasoline" Source
I have been trying to find the source for the observation? that "Testosterone to prostate cancer is like gasoline on a fire". I finally asked Bing Copilot and ChatGPT-- who came up with the answer. Me: What is the source of the "gasoline on a fire" theory in prostate cancer? ChatGPT: Dr. Patrick
I have been trying to find the source for the observation? that "Testosterone to prostate cancer is like gasoline on a fire". I finally asked Bing Copilot and ChatGPT-- who came up with the answer. Me: What is the source of the "gasoline on a fire" theory in prostate cancer? ChatGPT: Dr. Patrick
VoxHope
in
Advanced Prostate Cancer
2 months ago
My Father died
Its been 23 days since i asked here About CLL i got a lot of optimistic response and answers After my father had TP53 mutation with 17p Deletion i was told that my father wont respond to chemotherapy anymore i told my father that but his doctor insisted , a strong dose, it took 2 weeks my father
Its been 23 days since i asked here About CLL i got a lot of optimistic response and answers After my father had TP53 mutation with 17p Deletion i was told that my father wont respond to chemotherapy anymore i told my father that but his doctor insisted , a strong dose, it took 2 weeks my father
Ornate2001
in
CLL Support
2 months ago
ibrance
thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised after 19 years. I was put on femara and Zometa. Then 2018 switched to ibrance , fasladex and Zometa. Oncologist retired so I went too Sloan. I ended
thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised after 19 years. I was put on femara and Zometa. Then 2018 switched to ibrance , fasladex and Zometa. Oncologist retired so I went too Sloan. I ended
Jewelyn
in
SHARE Metastatic Breast Cancer
2 months ago
Avastin + Taxol + Carbo & eye problems
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Kazzh
in
My Ovacome
2 months ago
Covid 19 vaccine UK
Hi there, I’d welcome any information you have on eligibility for Covid 19 vaccination in the U.K. I’ve looked at the .gov.uk website and in one place it includes epilepsy under neurological conditions, in another place it doesn’t. I did have an in invitation from my GP for flu, but not for Covid.
Hi there, I’d welcome any information you have on eligibility for Covid 19 vaccination in the U.K. I’ve looked at the .gov.uk website and in one place it includes epilepsy under neurological conditions, in another place it doesn’t. I did have an in invitation from my GP for flu, but not for Covid.
GillyA
in
Epilepsy Action
7 months ago
Am I crazy
Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver lesions undetectable and bone is stable I have been stable with no progression for 4 years on Herceptin /Prejeta. and Zometa I am in the process of booking a trip to Europe one year away. I have to book this early if I
Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver lesions undetectable and bone is stable I have been stable with no progression for 4 years on Herceptin /Prejeta. and Zometa I am in the process of booking a trip to Europe one year away. I have to book this early if I
Onedayatatime60
in
SHARE Metastatic Breast Cancer
2 months ago
Update after3years
I was in a covid coma 3years ago and posted in here to soon after I got home my brain was so hyper for a bout a month I felt so.guilty that I survived when ppl were loosing husband's wives children mum's dad's etc when I still do but I did survive I went to therapist who helped a lot and helped me
I was in a covid coma 3years ago and posted in here to soon after I got home my brain was so hyper for a bout a month I felt so.guilty that I survived when ppl were loosing husband's wives children mum's dad's etc when I still do but I did survive I went to therapist who helped a lot and helped me
Drewc
in
ICUsteps
7 months ago
ibrance
I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance because of hospitalization (3) for infections that I needed my immune system to fight. Probably 6 months. In that time I developed nodules (small) in bowel, pelvis and cervical 2. I was taken off both ibrance and faslodex
I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance because of hospitalization (3) for infections that I needed my immune system to fight. Probably 6 months. In that time I developed nodules (small) in bowel, pelvis and cervical 2. I was taken off both ibrance and faslodex
Jewelyn
in
SHARE Metastatic Breast Cancer
2 months ago
Secondary breast cancer
Has anyone had secondary breast cancer in the bones? I need some help and advice. I had breast cancer stage 3, 7 years ago. I’ve been having a pain in my bottom for a while. First I thought it was internal haemorrhoids but now it seems to be the whole left buttock and I am wondering if the cancer has
Has anyone had secondary breast cancer in the bones? I need some help and advice. I had breast cancer stage 3, 7 years ago. I’ve been having a pain in my bottom for a while. First I thought it was internal haemorrhoids but now it seems to be the whole left buttock and I am wondering if the cancer has
maddie50
in
My Breast Cancer Community
2 months ago
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