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No Antibody response first dose for Autoimmune R A patients
Very anxious now regarding the vaccine they gave said there is no evidence that Ra patients will have some or any antibody response to the vaccine , had Pfizer 7 wks ago and my instincts told me to be worried about leaving the second for 12 weeks for CEV people immunsurpressed auto immune kidney transplant
Very anxious now regarding the vaccine they gave said there is no evidence that Ra patients will have some or any antibody response to the vaccine , had Pfizer 7 wks ago and my instincts told me to be worried about leaving the second for 12 weeks for CEV people immunsurpressed auto immune kidney transplant
trace58
in
NRAS
3 years ago
A fascinating podcast on the history and current state of stem cell regeneration.
Did you know humans make around 2 1/2 million red blood cells a second? Did you know the only the stem cell transplant that can currently be done is a bone marrow one? Did you know, at a guess, there have been something like 2 million bone marrow transplants to date. I came across this episode in the
Did you know humans make around 2 1/2 million red blood cells a second? Did you know the only the stem cell transplant that can currently be done is a bone marrow one? Did you know, at a guess, there have been something like 2 million bone marrow transplants to date. I came across this episode in the
Magentas
in
MPN Voice
3 years ago
Bubbles or foam in urine.
Hi, I hope everyone is doing well. I had my kidney transplant about 5 months ago. My urine has always foam or bubbles (I'm not sure) in there. There is also no protein in my urine. My doctor's told me the only way there will be foam in my urine is when there is protein in it. They too find it unusually
Hi, I hope everyone is doing well. I had my kidney transplant about 5 months ago. My urine has always foam or bubbles (I'm not sure) in there. There is also no protein in my urine. My doctor's told me the only way there will be foam in my urine is when there is protein in it. They too find it unusually
K___B
in
Kidney Disease
3 years ago
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TRAVELLING ABROAD, POST LIVER TRANSPLANT.
Hello there everyone. I was wondering if anyone has had any experience with health insurance while travelling to America and other places where insurance is extremely expensive and sometimes extortionately so. I received a list of recommended providers from the administrators on here but I seemed to
Hello there everyone. I was wondering if anyone has had any experience with health insurance while travelling to America and other places where insurance is extremely expensive and sometimes extortionately so. I received a list of recommended providers from the administrators on here but I seemed to
Hidden
in
British Liver Trust
3 years ago
After 2nd Vaccine Antibodies
As a kidney transplant In the USA, whose responsibility is it to test me to find out if my body has made antibodies after the second covid vaccine? Also, how long do I have to wait to be tested for antibodies?
As a kidney transplant In the USA, whose responsibility is it to test me to find out if my body has made antibodies after the second covid vaccine? Also, how long do I have to wait to be tested for antibodies?
Hidden
in
Kidney Transplant
3 years ago
Stem cell transplant saved me
I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had stem cell transplant have been in remission for 7 years do it!
I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had stem cell transplant have been in remission for 7 years do it!
patricih
in
Non Hodgkin's Lymphoma Friends
3 years ago
Spinal Fusion-break Identified while being on the Lung Transplant List.
Good evening all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed right at the start of my evaluation that I had the start of osteoporosis which they put down to years of taking prednisolone. Even though I had this they were still happy to list me. I have recently
Good evening all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed right at the start of my evaluation that I had the start of osteoporosis which they put down to years of taking prednisolone. Even though I had this they were still happy to list me. I have recently
Joseph260268
in
Lung Conditions Community Forum
3 years ago
coping with anxiety and depression due to a child needing a kidney transplant
Anyone have a child awaiting kidney transplant? How do you deal or cope with all the emotions, not to mention anxiety and depression? Our 12 year old needs a kidney and my husband is not a match. I am a blood type match however, I have scar tissue on my kidneys from many many infections and I am over
Anyone have a child awaiting kidney transplant? How do you deal or cope with all the emotions, not to mention anxiety and depression? Our 12 year old needs a kidney and my husband is not a match. I am a blood type match however, I have scar tissue on my kidneys from many many infections and I am over
Crissylately
in
Parents of Children with Kidney Disease
3 years ago
Thriving with Congestive Heart Failure and a Left Ventricular Assist Device as I await a Heart Transplant.
Hi all- I am a retired dental surgeon with Congestive Heart Failure. I currently have a Left Ventricular Assist Device and am hoping for a call for a heart transplant in the next few weeks. I will be glad to share my experiences over the past twenty years with any of you. I have had 2 aortic valve replacement
Hi all- I am a retired dental surgeon with Congestive Heart Failure. I currently have a Left Ventricular Assist Device and am hoping for a call for a heart transplant in the next few weeks. I will be glad to share my experiences over the past twenty years with any of you. I have had 2 aortic valve replacement
Hidden
in
British Heart Foundation
3 years ago
Ongoing liver assessment stress
Over the last few weeks my husband has been assessed on an outpatient basis to see whether he's suitable for a liver transplant. His last test was this week on Wednesday when he had to do a treadmill test to see how fit his heart is. Just by chance we were looking at his medical record on line and
Over the last few weeks my husband has been assessed on an outpatient basis to see whether he's suitable for a liver transplant. His last test was this week on Wednesday when he had to do a treadmill test to see how fit his heart is. Just by chance we were looking at his medical record on line and
Corrine1
in
British Liver Trust
3 years ago
Help make a drug to treat GvHD available to patients
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
CLL_Canada_Group
in
CLL Support
3 years ago
METAVIVE experience and why I stopped. (a long post sorry!!) Please read and tell me what you think...
I posted a few times about Metavive here first: https://healthunlocked.com/thyroiduk/posts/145085653/metavive-experience and there later: https://healthunlocked.com/thyroiduk/posts/145251376/metavive-experience-feedback My decision to try Metavive (porcine l and ll) was to try to find a product I could
I posted a few times about Metavive here first: https://healthunlocked.com/thyroiduk/posts/145085653/metavive-experience and there later: https://healthunlocked.com/thyroiduk/posts/145251376/metavive-experience-feedback My decision to try Metavive (porcine l and ll) was to try to find a product I could
Starsw
in
Thyroid UK
3 years ago
Auto Stem Cell transplant?
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
skinkade
in
Non Hodgkin's Lymphoma Friends
3 years ago
Kidney failure stage 4 and am worried?
My mother had a kidney failure she's on stage 4, her GFR was 17% on December 2020, now its increased to 25% (UP & DOWN) she was prepared for kidney transplant (I am the donor) , but now the doctor postponed transplant until it goes down (below 20%), does she really need to do the transplant now or she
My mother had a kidney failure she's on stage 4, her GFR was 17% on December 2020, now its increased to 25% (UP & DOWN) she was prepared for kidney transplant (I am the donor) , but now the doctor postponed transplant until it goes down (below 20%), does she really need to do the transplant now or she
MAK88
in
Kidney Disease
3 years ago
COVID vaccines and the immune system
This is for information only. There are many people out there who may have a weakened or lowered immune system due to several reasons including a liver transplant and who might be struggling with concerns over whether a covid vaccine is safe to have or not. There is a presentation being given on the
This is for information only. There are many people out there who may have a weakened or lowered immune system due to several reasons including a liver transplant and who might be struggling with concerns over whether a covid vaccine is safe to have or not. There is a presentation being given on the
Richard-Allen
in
British Liver Trust
3 years ago
Lupus life insurance is it possible!
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Wolf_1
in
LUPUS UK
3 years ago
Anyone tried Thorne or Seeking Health Adrenal Cortex Extracts
I had an online consult with a thyroid doctor a couple of days ago. He advised me to take adrenal cortex extract and recommended I take either Thorne ACE or Seeking Health ACE. I have never used anything like this before and am a bit nervous about it. I am wondering if anyone has tried these and can
I had an online consult with a thyroid doctor a couple of days ago. He advised me to take adrenal cortex extract and recommended I take either Thorne ACE or Seeking Health ACE. I have never used anything like this before and am a bit nervous about it. I am wondering if anyone has tried these and can
Redlester
in
Thyroid UK
3 years ago
Peripheral Neuropathy in feet
Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?
Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?
Weimarador
in
Kidney Transplant Patient Support
3 years ago
New here!
I was referred here from a fb group. I was diagnosed with hypothyroidism last year, I also have low adrenals. I assume those work together? I am wondering which doctor to choose next or just go it alone? I have had insomnia for about 12 years now. It gets especially bad around my monthly menses. I
I was referred here from a fb group. I was diagnosed with hypothyroidism last year, I also have low adrenals. I assume those work together? I am wondering which doctor to choose next or just go it alone? I have had insomnia for about 12 years now. It gets especially bad around my monthly menses. I
Hidden
in
Thyroid UK
3 years ago
Hospital Service Experience for Bilirary Atresia, Leed, Uk
Our daughter will have another operation to attempt to try and clear her Jaundice next week. She had a Kasia on Dec' 14th (born 14/10/20). They will give her a DISDA scan tomorrow (17/02/20) and hopefully try and establish the location of the problem that is still preventing her Jaundice from clearing
Our daughter will have another operation to attempt to try and clear her Jaundice next week. She had a Kasia on Dec' 14th (born 14/10/20). They will give her a DISDA scan tomorrow (17/02/20) and hopefully try and establish the location of the problem that is still preventing her Jaundice from clearing
Dominic1975
in
Children's Liver Disease Foundation
3 years ago
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