Here we go again!: At my last hospital... - CLL Support

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Here we go again!

Jetliz profile image
11 Replies

At my last hospital appointment in February I asked the consultant about his thoughts on masking still and he suggested that as we are having to live with it and the current variants are not serious for most people maybe relaxing with caution or words to that effect. I was happy with that and have enjoyed the whole year feeling safe. Always on my guard hand gel etc. But for me personally mentally I felt like I'd really moved forward from the worst of the pandemic for the moment so I embraced it. Fast track to the present and just hearing more and more covid cases my daughter has it also has a blood cancer. My Grandson has covid and high school insisting he attends unless he has a temperature! I've booked a weekend in London to see my eldest Grandson who's at university there and just feel so anxious. I had a kidney removed in January found on a PET Scan I'm in a high risk category as it was an aggressive sarcinoma and the size dictated how I was monitored moving forward. At present its CT Scans every 6 months but found tiny nodules in July scan so 4 month scan in November to see if they are good or bad basically. I've spent the year enjoying life and trying hard not to worry but Covid in the mix is just sending me into an anxious place again. Not letting it get out of hand but just feel like I've jumped back on the merry-go-round of Covid fear again!

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Jetliz profile image
Jetliz
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11 Replies
CoachVera55 profile image
CoachVera55

Covid is here to stay & yes we must maintain proper protocols for our immunocompromised selves. The degree to which you do is totally individualized 🤷🏽‍♀️. I had Covid in April 2021 & almost died Cytokine Storm poster child here 🙋🏽‍♀️, 103.8 fever that would not break with antibiotics or tylenol & massive congestion that my ribs & diaphragm were barely accommodating it all. It was bad, got steroids & Monoclonal Antibodies plus Natural Remedies to finally break the fever & decrease the fluid. I felt like I was being drowned while on fire. A Real Come To JESUS moment🙌🏾

However I live alone & do most of my work or social interactions on line. I double mask when I go to MD appts, Grocery Shopping & In Person Stuff. My family & friends mask up in my home or car. I actually dispense Covid Mask & Test Kits. I do not take vaccines anymore🤷🏽‍♀️ I’d say be cautious but enjoy your family🙏🏾

Jetliz profile image
Jetliz in reply to CoachVera55

Yes I think it's time to tighten up again for me. I feel less anxious than this morning getting a balance on it. Just sometimes it takes one problem to overload yourself. Thanks for your advice.

Jetliz profile image
Jetliz

There's truth in what you say the trouble is I'm not always assertive enough. A friend called a few days ago coughing as I answered the door said how rough he felt after a flight home from Spain! I asked him if he'd tested for Covid "what's the point" he said nobody bothers anymore. He knows about me and it just amazes me how inconsiderate people are. I think because we don't have a bandage on our heads we look ok is how they see it!!

RogerPinner profile image
RogerPinner

Jetliz, I feel very much like you. With my family including the grandchildren I behave fairly normally, although not so many hugs, and more open windows and doors tan pre covid, because I'm sure they wouldn't come near me if they were unwell. Close friends, only 2 at a time so we can socially distance. Groups no. Shops only when unavoidable and only then at quiet times. Hospitals masked.

I carry an atomiser full of an alcohol sanitiser at all times, and of course am scrupulous about hand washing. You can do all this and still enjoy live. PS I recognise that I'm lucky to be retired, and don't have to use public transport.

Roger

Jetliz profile image
Jetliz in reply to RogerPinner

I agree with you regarding family they're on the ball but my husband was discharged from hospital yesterday and said he'd had a conversation with a nurse about covid and the nurses don't have any real restrictions in place which seems crazy to us! I feel I should definitely return to being extra cautious again though there's so many new cases arising and our daughter has been quite unwell with covid. Take care

Scotrn profile image
Scotrn

Hi jetliz, I am sorry you are facing several worries on different fronts. I am lying in bed feeling pretty miserable (sore head, nasal congestion, cough) having tested positive for covid yesterday. I am fully vaccinated so don't expect symptoms to get worse. Never had it before. Like you I was pretty careful except just flew back to California from the Midwest and didn't mask. I let my guard down. Hope you can continue to enjoy life and try not to let the worry overwhelm you. Easier said than done. Covid is with us for the long term. I'm on watch and wait.

😀

Jetliz profile image
Jetliz in reply to Scotrn

Thank you Scotrn you sound pretty rough but as you say hopefully won't get any worse. I'm already reflecting on why I got so anxious and think summarising it I put CLL on the back burner and tried to concentrate on not worrying about the second CT scan in November as well as the first. I think posting it on this amazing forum just let it all out. Feeling better for sure! Take care and speedy recovery.

Scotrn profile image
Scotrn in reply to Jetliz

Thanks. Saying don't worry is futile. Getting support, especially from this forum is important. Hoping you get good news in November.

Skyshark profile image
Skyshark

To compound it all the screens at supermarket and store checkouts are being removed.

AussieNeil profile image
AussieNeilAdministrator in reply to Skyshark

The screens only protect you from direct spray from the operator on the other side of the screen, so they don't do much, particuarly if you are wearing a mask. SARS-CoV-2 is airborne; what's needed is better ventilation.

Jetliz profile image
Jetliz in reply to AussieNeil

Yes I only thought recently unlike small shops supermarkets have few if any open windows or doors can't imagine the amount of germs circulating but maybe air conditioning comes into play but all the same masks are back again for me!

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