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Continuous Ambulatory Peritoneal Dialysis
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Dialysis Nurses Trying to give unsolicited medical advice
At my dialysis center I currently use a permacath due to my graft that I've had for 6 years stopped working. Tried having it declotted. But, they don't last forever. The Charge Nurse keeps hounding me about a new access. I've had 2 PD pumps before both after the graph. The first one placed on the left
At my dialysis center I currently use a permacath due to my graft that I've had for 6 years stopped working. Tried having it declotted. But, they don't last forever. The Charge Nurse keeps hounding me about a new access. I've had 2 PD pumps before both after the graph. The first one placed on the left
ReedNovember
in
Kidney Dialysis
5 years ago
Looking for ways to find a kidney donor
I have polycystic kidney disease myself, but I’m actually writing in regards to my uncle. His daughter was approved as a match for a kidney and the transplant was to happen in June, but she has backed out because her new boyfriend told her if she wanted to have another baby she would need both of her
I have polycystic kidney disease myself, but I’m actually writing in regards to my uncle. His daughter was approved as a match for a kidney and the transplant was to happen in June, but she has backed out because her new boyfriend told her if she wanted to have another baby she would need both of her
Pkdwarrior1969
in
Kidney Donation
5 years ago
Update! (Cancer, dialysis & bypass)
75 year old male turning 76 in early July. Started HD dialysis January 2019. Left kidney renal cell carcinoma (3.5 cm) removed by cryogenic ablation in Mid-March. I am now cancer free!! Successful Quadruple bypass on April 17; now I think I am ready for my July 11th kidney transplant evaluation! 2019
75 year old male turning 76 in early July. Started HD dialysis January 2019. Left kidney renal cell carcinoma (3.5 cm) removed by cryogenic ablation in Mid-March. I am now cancer free!! Successful Quadruple bypass on April 17; now I think I am ready for my July 11th kidney transplant evaluation! 2019
MPK0706
in
Kidney Dialysis
5 years ago
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Diagnosed with Focal Segmental Gloreruloesclerosis (FSGS)
My 35 year old son was diagnosed five years ago with Focal Segmental Glomerulosclerosis (FSGS). He is presently on peritoneal dialysis (PD).
My 35 year old son was diagnosed five years ago with Focal Segmental Glomerulosclerosis (FSGS). He is presently on peritoneal dialysis (PD).
maximina
in
Kidney Transplant
5 years ago
INFO POST DIALYSIS
MY FATEHER 75YR OLD IS DIABETIC AND RECEIVING DIALYSIS 3X PER WEEK. HAVING SEVERE NECK PAIN AND WEAKNESS...WHAT CAN I DO
MY FATEHER 75YR OLD IS DIABETIC AND RECEIVING DIALYSIS 3X PER WEEK. HAVING SEVERE NECK PAIN AND WEAKNESS...WHAT CAN I DO
SMITTY1969
in
Early CKD Support
5 years ago
John Oliver on Dialysis
"Oliver recounted the history of how the country's for-profit dialysis industry came to be — the result, he said, of good intentions mixed with “bad incentives, poor oversight and profiteering.” " https://www.washingtonpost.com/news/to-your-health/wp/2017/05/15/john-oliver-on-kidney-dialysis-taco-bell-and-death
"Oliver recounted the history of how the country's for-profit dialysis industry came to be — the result, he said, of good intentions mixed with “bad incentives, poor oversight and profiteering.” " https://www.washingtonpost.com/news/to-your-health/wp/2017/05/15/john-oliver-on-kidney-dialysis-taco-bell-and-death
curiousmind2019
in
Kidney Disease
5 years ago
Docetaxel and breathing problems?
After first Docetaxel/Cabazitaxel infusion - 10 days later, I couldn't breath and was admitted to the hospital with pneumonia. Was there for 4 days .... I had my second infusion 14 days ago and am still having a hard time catching my breath. I can't walk to far without stopping and straining to breath
After first Docetaxel/Cabazitaxel infusion - 10 days later, I couldn't breath and was admitted to the hospital with pneumonia. Was there for 4 days .... I had my second infusion 14 days ago and am still having a hard time catching my breath. I can't walk to far without stopping and straining to breath
Alvin735
in
Advanced Prostate Cancer
5 years ago
Experience with Prolia injections for osteoarthritis, osteopenia, etcetera
Just wanted to know how many of you have experienced with the Prolia injection that last 6 months in your body. No matter what happens if you have an adverse affect you either have to be in the hospital all the time to fix whatever it does to you or sometimes it can be deadly. I say this because my husband
Just wanted to know how many of you have experienced with the Prolia injection that last 6 months in your body. No matter what happens if you have an adverse affect you either have to be in the hospital all the time to fix whatever it does to you or sometimes it can be deadly. I say this because my husband
rockinr_56
in
Bone Health and Osteoporosis UK
5 years ago
Forever Grateful!!!
My husband had the flu in January 2018. He was so sick, went to the Dr.'s was given medicine and took a couple days off. He woke one morning with a feeling of a fever (although he didn't have one) he began vomiting profusely. The Dr. also did blood work on him and told him on January 30th 2018 to get
My husband had the flu in January 2018. He was so sick, went to the Dr.'s was given medicine and took a couple days off. He woke one morning with a feeling of a fever (although he didn't have one) he began vomiting profusely. The Dr. also did blood work on him and told him on January 30th 2018 to get
gbaby63
in
Kidney Transplant
5 years ago
Kidney Donor & Blood Pressure
Hi, I’m in the process of trying to become a kidney donor for my mom. She’s been on dialysis for a couple of months now. I’m a match and I’ve passed all the other tests; however, I was told that I need to get my blood pressure down first before I can get the final approval. I workout regularly but
Hi, I’m in the process of trying to become a kidney donor for my mom. She’s been on dialysis for a couple of months now. I’m a match and I’ve passed all the other tests; however, I was told that I need to get my blood pressure down first before I can get the final approval. I workout regularly but
rcc703
in
Kidney Dialysis
5 years ago
New to pd
Hi there, new to this group. I started pd dialysis in January this year and still feeling bad. I’m wondering how long it takes for someone to start feeling better. I’m always tired and my weight keeps going up from my target weight. Has anyone has any idea what I should do. I really feel bad and guilty
Hi there, new to this group. I started pd dialysis in January this year and still feeling bad. I’m wondering how long it takes for someone to start feeling better. I’m always tired and my weight keeps going up from my target weight. Has anyone has any idea what I should do. I really feel bad and guilty
3lmr
in
Dialysis Support
5 years ago
Trying to sort out the facts behind protein intake and CKD
I am in Stage 5 CKD (GFR of 15). For about one year, I have been on the edge of malnutrition (ALB <= 3.4). As a result my nephrologist has been pushing proteitn (1 g/kg body weight per day). In addition, I was told during my dialysis orientation (not on dialysis yet() that when I start peritoneal
I am in Stage 5 CKD (GFR of 15). For about one year, I have been on the edge of malnutrition (ALB <= 3.4). As a result my nephrologist has been pushing proteitn (1 g/kg body weight per day). In addition, I was told during my dialysis orientation (not on dialysis yet() that when I start peritoneal
ILMA54
in
Kidney Disease
5 years ago
I got a kidney!!!! Thank God
I was told today I have kidney waiting and my surgery date is the 12th of June barring and problems. I am so happy I am getting my life back. I want to jump out of my skin I'm so happy. I pray it works out cause dialysis was wearing me down. I hate going there.
I was told today I have kidney waiting and my surgery date is the 12th of June barring and problems. I am so happy I am getting my life back. I want to jump out of my skin I'm so happy. I pray it works out cause dialysis was wearing me down. I hate going there.
nh1966
in
Kidney Dialysis
5 years ago
TIA's
Has anyone experienced any TIA's while being on dialysis?
Has anyone experienced any TIA's while being on dialysis?
Hdslimand62
in
Kidney Dialysis
5 years ago
GFR of 8 but Ultrasound states no abnormalities
Hi everyone, I'm new on here and writing for my mom. She is 59 years old and just recently diagnosed with CKD. Her labs came back on 5/13/2019 with a GFR of 8 and Creatinine of 5.17. Her Neuphrologist referred her for more labs and a Renal Ultrasound. I just got back the Renal Ultrasound results and
Hi everyone, I'm new on here and writing for my mom. She is 59 years old and just recently diagnosed with CKD. Her labs came back on 5/13/2019 with a GFR of 8 and Creatinine of 5.17. Her Neuphrologist referred her for more labs and a Renal Ultrasound. I just got back the Renal Ultrasound results and
Christie3899
in
Early CKD Support
5 years ago
Sleep apnoea and RLS
My hematologist has recommended I go back to the respiratory and sleep physician for a review of my sleep apnoea. About 5 years ago he dismissed me after losing 30 kilos and didn't need the CPAP machine any longer as it had improved so much. He wonders if Sleep apnoea has a bearing on my RL. Any comments
My hematologist has recommended I go back to the respiratory and sleep physician for a review of my sleep apnoea. About 5 years ago he dismissed me after losing 30 kilos and didn't need the CPAP machine any longer as it had improved so much. He wonders if Sleep apnoea has a bearing on my RL. Any comments
restlessstoz
in
Restless Legs Syndrome
5 years ago
New Doctors
Good morning everyone! I haven't Post in a while I've been kind of reading the comments but I remember when I first posted on this site, I was a stage 4 kidney failure. Now I'm at stage 5 my GFR is 9% I am monitored weekly by my neuphrologist I have not started dialysis yet. I did switch my PCP doctor
Good morning everyone! I haven't Post in a while I've been kind of reading the comments but I remember when I first posted on this site, I was a stage 4 kidney failure. Now I'm at stage 5 my GFR is 9% I am monitored weekly by my neuphrologist I have not started dialysis yet. I did switch my PCP doctor
Rene70
in
Kidney Disease
5 years ago
How do you feel
Hello im new to this dialysis how are you suppose to feel .... sometimes i feel sad other days i feel over whelmed im scared i have 3 girls and a husband its a lot im going through but i gotta stay strong
Hello im new to this dialysis how are you suppose to feel .... sometimes i feel sad other days i feel over whelmed im scared i have 3 girls and a husband its a lot im going through but i gotta stay strong
Cookiienanaari32
in
Kidney Disease
5 years ago
Hi guys
Hi I just wanted to introduce myself, I'm a mum of 3 and my 2 boys now age 16 and 15 have both had double transplants . The younger one had liver and kidney aged 25 months and the older one had 2 liver transplants 9 months later aged 4.5 years. This is due to primary hyperoxaluria type one and oxalosis
Hi I just wanted to introduce myself, I'm a mum of 3 and my 2 boys now age 16 and 15 have both had double transplants . The younger one had liver and kidney aged 25 months and the older one had 2 liver transplants 9 months later aged 4.5 years. This is due to primary hyperoxaluria type one and oxalosis
Sparklyjo
in
Kidney Transplant
5 years ago
New to post any am worried also I have CKD Stage 3 but doctor says I am fine for now. Don't understand that
Good Morning, I am a 64 year old female that was born with only my left kidney - didn't find out until my mid-40's by then I had been a chronic alcoholic until 30 but not my gfr is 59 and everything else is basically okay. Slender, don't exercise, eat processed mac n cheese with broccoli and have never
Good Morning, I am a 64 year old female that was born with only my left kidney - didn't find out until my mid-40's by then I had been a chronic alcoholic until 30 but not my gfr is 59 and everything else is basically okay. Slender, don't exercise, eat processed mac n cheese with broccoli and have never
Biggybaby19
in
Kidney Disease
5 years ago
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