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Continuous Ambulatory Peritoneal Dialysis
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Worried
Hi everyone, I hope everyone is well. I am a 37 year old female who has kidney disease. I was discovered to have kidney disease 6 years ago whole I was pregnant with my last child. I had a healthy pregnancy despite spilling a lot of protein in my urine. After I had my child I saw a neph who did a boat
Hi everyone, I hope everyone is well. I am a 37 year old female who has kidney disease. I was discovered to have kidney disease 6 years ago whole I was pregnant with my last child. I had a healthy pregnancy despite spilling a lot of protein in my urine. After I had my child I saw a neph who did a boat
Mandy0414
in
Kidney Disease
5 years ago
How long does swelling last
How long does the sorness go away after the graph is put in the arm my arm is sore swollen a lot rather was in the hospital im ok start dialysis tomorrow im not scared cause ive experience it first hand in the hospital it took a lil while for it to go down but its went down some
How long does the sorness go away after the graph is put in the arm my arm is sore swollen a lot rather was in the hospital im ok start dialysis tomorrow im not scared cause ive experience it first hand in the hospital it took a lil while for it to go down but its went down some
Cookiienanaari32
in
Kidney Disease
5 years ago
Enough of being obese!!
Hi all, I am 40, a nurse and need to lose weight as I have Obstructive Sleep Apnoea and use a CPAP machine each time I sleep since January 2018. I did slimming world before and loss over 69lbs 9 years ago. But I am now almost 18 stones compared to 27 stones plus I was then. Still unhealthy for a 5ft
Hi all, I am 40, a nurse and need to lose weight as I have Obstructive Sleep Apnoea and use a CPAP machine each time I sleep since January 2018. I did slimming world before and loss over 69lbs 9 years ago. But I am now almost 18 stones compared to 27 stones plus I was then. Still unhealthy for a 5ft
Hope2479
Restart May 2020
in
Weight Loss Support
5 years ago
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PD Diet
I get confused about certain foods on a PD diet. My nephrologist said I could eat cottage cheese without any restriction. Today, I read in a NKF article that cottage cheese is not a good choice (i always questioned my doctor b/c regular cottage cheese is a bit high in sodium, and is dairy, so I told
I get confused about certain foods on a PD diet. My nephrologist said I could eat cottage cheese without any restriction. Today, I read in a NKF article that cottage cheese is not a good choice (i always questioned my doctor b/c regular cottage cheese is a bit high in sodium, and is dairy, so I told
TaffyTwoshoes27
in
Kidney Disease
5 years ago
Great Transplant Hosp Video
This Living Donor video was brought to my attention at my recent two-year evaluation (second one) at Piedmont Hospital in Atlanta, GA. It is very informative and is designed to share with family, friends, etc., to learn about kidney disease, dialysis and live donation. I shared it on my Facebook page
This Living Donor video was brought to my attention at my recent two-year evaluation (second one) at Piedmont Hospital in Atlanta, GA. It is very informative and is designed to share with family, friends, etc., to learn about kidney disease, dialysis and live donation. I shared it on my Facebook page
TaffyTwoshoes27
in
Kidney Disease
5 years ago
Pacemaker Update
It’s 6 weeks since the LV lead review/revision and it took a lot more out of me than I had anticipated or planned for. I had the pacemaker check yesterday and YEAH! everything is working and no twitches. Everything feels so much comfortable in my arm and shoulder and I haven’t experienced the tightness
It’s 6 weeks since the LV lead review/revision and it took a lot more out of me than I had anticipated or planned for. I had the pacemaker check yesterday and YEAH! everything is working and no twitches. Everything feels so much comfortable in my arm and shoulder and I haven’t experienced the tightness
CDreamer
in
Atrial Fibrillation Support
5 years ago
Books and information
Does anyone have recommendations for kid friendly materials on dialysis and renal diet. I cant seem find a lot material
Does anyone have recommendations for kid friendly materials on dialysis and renal diet. I cant seem find a lot material
LindsayLou
in
Parents of Children with Kidney Disease
5 years ago
New here
New to the group I'm 32 almost 33 any advice on how to cope with upcoming dialysis and transplant would be much appreciated . feeling so lost in dealimg with this since my main support who was also transplant recipient aka my husband decided to leave me after omly 2 years marriage. My parents are a help
New to the group I'm 32 almost 33 any advice on how to cope with upcoming dialysis and transplant would be much appreciated . feeling so lost in dealimg with this since my main support who was also transplant recipient aka my husband decided to leave me after omly 2 years marriage. My parents are a help
Sprintcarfanatic86
in
Kidney Disease
5 years ago
Golf while under dialysis?
Is it possible to play golf with a fistula?
Is it possible to play golf with a fistula?
golfbuddy
in
Early CKD Support
5 years ago
low BP on dialysis
I've been on dialysis 9 years, my BP WAS FINE all these years, even little bit of on the high side, until this couple years that my BP ALL OF SUDDEN WENT TO THE low side, like 100 over 55 all the time, some times it interfered with my dialysis, I mean I couldn't pull as much as I suppose to. I have
I've been on dialysis 9 years, my BP WAS FINE all these years, even little bit of on the high side, until this couple years that my BP ALL OF SUDDEN WENT TO THE low side, like 100 over 55 all the time, some times it interfered with my dialysis, I mean I couldn't pull as much as I suppose to. I have
mingmiley
in
Kidney Dialysis
5 years ago
Preparing for dialysis, scared and confused
Hi, 49 y.o. female. To give a little background on me, I was working in 2008 when I was found to have protein in my urine. Scared and stupid I didn't go back to the nephrologist. Stopped working in 2010, complicated reasons. From 2010 to 2018 health was declining, I kept putting off going to the doctor
Hi, 49 y.o. female. To give a little background on me, I was working in 2008 when I was found to have protein in my urine. Scared and stupid I didn't go back to the nephrologist. Stopped working in 2010, complicated reasons. From 2010 to 2018 health was declining, I kept putting off going to the doctor
Kmpopsicle
in
Kidney Disease
5 years ago
Ckd 3 and tool slim feeling ashamed in group.
Hi, although I was not a heavy person before diagnosed ckd in 2012 but after that I constantly loosing my health. Im not on dialysis, creatnine is 1.8,Age 29 height 5'6.but weight is only 48 kg. I feel very ashamed among people or friends because they taunts me about my weight and make joke about it
Hi, although I was not a heavy person before diagnosed ckd in 2012 but after that I constantly loosing my health. Im not on dialysis, creatnine is 1.8,Age 29 height 5'6.but weight is only 48 kg. I feel very ashamed among people or friends because they taunts me about my weight and make joke about it
Teacher20
in
Kidney Disease
5 years ago
Surviving Dialysis
Don't mean to scare anyone. But I saw this statistics on a website and wonder what are some reasons that people die from dialysis and more importantly, how to prevent those cases? "After one year of treatment, those on dialysis have a
20-25%
mortality rate, with a 5-year survival rate of 35%.
Don't mean to scare anyone. But I saw this statistics on a website and wonder what are some reasons that people die from dialysis and more importantly, how to prevent those cases? "After one year of treatment, those on dialysis have a
20-25%
mortality rate, with a 5-year survival rate of 35%.
curiousmind2019
in
Kidney Disease
5 years ago
Stage 5 CKD
Hi Everyone, Note: I also posted this in the Stage 4 section as the site doesn't seem to have a section dedicated to Stage 5. I am currently in stage 5 of CKD. (FSGS) I am trying to find others in a similar situation to get an idea of what I should be feeling / experiencing. I realize not everyone will
Hi Everyone, Note: I also posted this in the Stage 4 section as the site doesn't seem to have a section dedicated to Stage 5. I am currently in stage 5 of CKD. (FSGS) I am trying to find others in a similar situation to get an idea of what I should be feeling / experiencing. I realize not everyone will
Jsea
in
Kidney Disease
5 years ago
Assistance required - CKD (FSGS)
Hi Everyone, I am currently in stage 5 of CKD. (FSGS) I am trying to find others in a similar situation to get an idea of what I should be feeling / experiencing. I realize not everyone will be the same but there should still be some common similarities. I feel like this will help me relate and potentially
Hi Everyone, I am currently in stage 5 of CKD. (FSGS) I am trying to find others in a similar situation to get an idea of what I should be feeling / experiencing. I realize not everyone will be the same but there should still be some common similarities. I feel like this will help me relate and potentially
Jsea
in
Kidney Disease
5 years ago
Gfr improvement.
I am 55( male) and ckd stage 4 paitent last month my Creatinine was 3.57 and gfr 19. Doctor told me that I would need dialysis very soon. I was terrified and nervous and started more restrictions on diet. I do not some or drink alcohol and vegan. This month my test results have improved creatinine
I am 55( male) and ckd stage 4 paitent last month my Creatinine was 3.57 and gfr 19. Doctor told me that I would need dialysis very soon. I was terrified and nervous and started more restrictions on diet. I do not some or drink alcohol and vegan. This month my test results have improved creatinine
Amit7279
in
Kidney Disease
5 years ago
Alagille Syndrome/TOF with Pulmonary Atresia
Hi everyone, my son was diagnosed with alagille syndrome when he was one month old. At first they thought it was only tetralogy of fallot (TOF). At one month old he was having tet spell and had to have open heart surgery. They put a cardiac central shunt to allow better blood flow to his lung. That procedure
Hi everyone, my son was diagnosed with alagille syndrome when he was one month old. At first they thought it was only tetralogy of fallot (TOF). At one month old he was having tet spell and had to have open heart surgery. They put a cardiac central shunt to allow better blood flow to his lung. That procedure
Youyou
in
Children's Liver Disease Foundation
5 years ago
New beginnings
Hello everyone. After my post 2 months ago, my husband was admitted again pneumonia. This time, he was advised to undergo weekly dialysis as his creatinine level increased to11.2.Since then, we have been travelling twice weekly for his dialysis sessions in the city as we live in an island.Life is a struggle
Hello everyone. After my post 2 months ago, my husband was admitted again pneumonia. This time, he was advised to undergo weekly dialysis as his creatinine level increased to11.2.Since then, we have been travelling twice weekly for his dialysis sessions in the city as we live in an island.Life is a struggle
Lalay40
in
Kidney Disease
5 years ago
Dialysis is no fun
I hate going to Dialysis also. Yesterday my blood pressure went down my blood sugar I felt like throwing up I’ve been on dialysis for years and my blood pressure and my blood sugar or low so one of the techs gave me an apple 🍎 and some candy and water . God bless u Arleen I pray that I get another kidney
I hate going to Dialysis also. Yesterday my blood pressure went down my blood sugar I felt like throwing up I’ve been on dialysis for years and my blood pressure and my blood sugar or low so one of the techs gave me an apple 🍎 and some candy and water . God bless u Arleen I pray that I get another kidney
Arleendodson
in
Kidney Dialysis
5 years ago
Never been more determined
I was recently diagnosed with Type 2 diabetes. This has given me a wake up call to lose weight sensibly to attempt to put my diabetes into remission. I’ve just seen a helpful dietician who has put me on a two day restrictive diet of 500 Cala. Today is my first restrictive day - I’ve chosen Sunday’
I was recently diagnosed with Type 2 diabetes. This has given me a wake up call to lose weight sensibly to attempt to put my diabetes into remission. I’ve just seen a helpful dietician who has put me on a two day restrictive diet of 500 Cala. Today is my first restrictive day - I’ve chosen Sunday’
Kenthopvine
in
Lung Conditions Community Forum
5 years ago
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