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Hello, am new here. Have had asthma/bronchitesis for over 73 years and am still going, but was told over the years on different occasions that I would not make it and my daughter was called in to the hospital, but proved them all wrong. Also have degenerative lumbar spondylosis and stenois,osteoarthritis
Hello, am new here. Have had asthma/bronchitesis for over 73 years and am still going, but was told over the years on different occasions that I would not make it and my daughter was called in to the hospital, but proved them all wrong. Also have degenerative lumbar spondylosis and stenois,osteoarthritis
Didgeydo
in
Lung Conditions Community Forum
4 years ago
Can I use CPAP without sleep apnea?
Hey guys, So I have been a snorer since I can remember, sometimes quite loud. I often wake up very tired and have trouble waking up all night. I wanted to take the test, but I have a very high deductible, and I don't really want to spend money out of my pocket. However, I recorded myself sleeping
Hey guys, So I have been a snorer since I can remember, sometimes quite loud. I often wake up very tired and have trouble waking up all night. I wanted to take the test, but I have a very high deductible, and I don't really want to spend money out of my pocket. However, I recorded myself sleeping
JohnHanks5
in
Sleep Matters
4 years ago
COVID: doesn't wake up from induced coma
My mom is 55y and has covid. She was put on ventilator since 31th of March. They turned off her sedation on 15th of April and she still didn't wake up. She has her eyes open but that's all. They said her lungs are better, she make dialysis every other day because her kidneys are not working properly
My mom is 55y and has covid. She was put on ventilator since 31th of March. They turned off her sedation on 15th of April and she still didn't wake up. She has her eyes open but that's all. They said her lungs are better, she make dialysis every other day because her kidneys are not working properly
Marcita
in
ICUsteps
4 years ago
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What is the best CPAP machine to buy?
Hey everyone, I have always snored; for 30 years. My wife suggested doing a check-up, but I don't care about it. The last six months, all of a sudden, I was exhausted during the day, and I don't understand the reason for the sudden change. Finally, I did a sleep test, and the results show that I have
Hey everyone, I have always snored; for 30 years. My wife suggested doing a check-up, but I don't care about it. The last six months, all of a sudden, I was exhausted during the day, and I don't understand the reason for the sudden change. Finally, I did a sleep test, and the results show that I have
JohnRPrado
in
Sleep Matters
4 years ago
Not waking from Sedation
Hi, I’ve posted a few times about my dad who is in ICU with Covid-19. This is day 14. His oxygen requirement has went back up to 60%. He is now completely off sedation - at the weekend he was scrunching his face up and moving his arms in response to touch etc but now he is doing nothing. They are
Hi, I’ve posted a few times about my dad who is in ICU with Covid-19. This is day 14. His oxygen requirement has went back up to 60%. He is now completely off sedation - at the weekend he was scrunching his face up and moving his arms in response to touch etc but now he is doing nothing. They are
Heartgal151
in
ICUsteps
4 years ago
When on Dialysis will your Creatine continue to go up ?
When I started Dialysis a year ago my Creatine was 4.4 and months later it was 2.4 and recently it is 5.66 is this Normal or should I be concerned ?
When I started Dialysis a year ago my Creatine was 4.4 and months later it was 2.4 and recently it is 5.66 is this Normal or should I be concerned ?
Cyndimae
in
Kidney Disease
4 years ago
Dialysis
In other countries, far fewer patients end up on dialysis. I don't know if Americans have more of the underlying or related problems or what. My nephrologist and I have agreed that if I ever get to that point, it's my choice. I am borderline Stage 2/3 as I'm radical about following the renal diet.
In other countries, far fewer patients end up on dialysis. I don't know if Americans have more of the underlying or related problems or what. My nephrologist and I have agreed that if I ever get to that point, it's my choice. I am borderline Stage 2/3 as I'm radical about following the renal diet.
Dangermom13
in
Kidney Disease
4 years ago
TODAY'S WEBINAR ON COVID-19 AND CKD
The information provided in the form of questions submitted by patients was about 30 minutes in length. Questions about high-risk patients, those on dialysis and those with transplants were given good information. If you are following the stay-at-home expectations you probably know the do's and don'ts
The information provided in the form of questions submitted by patients was about 30 minutes in length. Questions about high-risk patients, those on dialysis and those with transplants were given good information. If you are following the stay-at-home expectations you probably know the do's and don'ts
Hidden
in
Kidney Disease
4 years ago
Should I be isolating my self for 12 weeks
Hi I have Asthma and was born with only one working kidney I had treatment when I was younger dialysis but haven’t had to do anything since I was around 10 just life style changes and checkups I ve been isolating for two weeks but wondering if I should stay off work for the 12 weeks and if so how do
Hi I have Asthma and was born with only one working kidney I had treatment when I was younger dialysis but haven’t had to do anything since I was around 10 just life style changes and checkups I ve been isolating for two weeks but wondering if I should stay off work for the 12 weeks and if so how do
Akey85
in
Early CKD Support
4 years ago
Ozone is curing COVID-19 IN 1-2 DAYS
Direct quote from yahoo news:".....Currently there are 17 hospitals using SIOOT oxygen ozone therapy to treat people affected by COVID-19. From preliminary reports from autopsies of those who died from COVID-19, it appears that the virus immediately attacks the microcirculation system causing widespread
Direct quote from yahoo news:".....Currently there are 17 hospitals using SIOOT oxygen ozone therapy to treat people affected by COVID-19. From preliminary reports from autopsies of those who died from COVID-19, it appears that the virus immediately attacks the microcirculation system causing widespread
bepo
in
Cure Parkinson's
4 years ago
Anoushica shares her journey of lupus to kidney failure
Hi All, Here I chat to a fellow kidney person - it was filmed over 2 years ago so there is of course an ongoing story for Anoushica's next chapter and indeed mine! (hint: it's all good!). Especially for younger people going through this journey, I hope it inspires you and you feel comforted to know we
Hi All, Here I chat to a fellow kidney person - it was filmed over 2 years ago so there is of course an ongoing story for Anoushica's next chapter and indeed mine! (hint: it's all good!). Especially for younger people going through this journey, I hope it inspires you and you feel comforted to know we
WhollyAligned
in
Dialysis Support
4 years ago
Thank you for information
Wow thank you everyone for so much information. I have many scares Beinging on Dialysis with GFR still 10 to 12. I have a stint change coming up next week that has to happen at every 3 months or I get a bad yeast or bacteria infection. But with this virus so bad and going into Boston scares me. They
Wow thank you everyone for so much information. I have many scares Beinging on Dialysis with GFR still 10 to 12. I have a stint change coming up next week that has to happen at every 3 months or I get a bad yeast or bacteria infection. But with this virus so bad and going into Boston scares me. They
Cyndimae
in
Kidney Dialysis
4 years ago
How long does it take to decide if it’s ICU delirium or brain damage, after coming off the ventilator?
My mum spent 17 days ventilated for covid and pneumonia and potentially a secondary bacterial infection. She was on CPAP for 2 weeks before and managed at home for 2 weeks before that. She suffered some kidney damage (no dialysis) had brain swelling (PRES) and some seizures. They extubated her on Thursday
My mum spent 17 days ventilated for covid and pneumonia and potentially a secondary bacterial infection. She was on CPAP for 2 weeks before and managed at home for 2 weeks before that. She suffered some kidney damage (no dialysis) had brain swelling (PRES) and some seizures. They extubated her on Thursday
Bexx029
in
ICUsteps
4 years ago
INTENSIVE CARE - Covid-19
Hi all, My Dad is very sadly in intensive care on a ventilator with Covid-19. Very difficult as obviously can’t visit and reading the news and stats his prognosis is not good. I thought I’d read on here about other conditions with similar presentation in terms of what’s going on in ICU. He currently
Hi all, My Dad is very sadly in intensive care on a ventilator with Covid-19. Very difficult as obviously can’t visit and reading the news and stats his prognosis is not good. I thought I’d read on here about other conditions with similar presentation in terms of what’s going on in ICU. He currently
Heartgal151
in
ICUsteps
4 years ago
Dad is very agitated when lowering on sedation
My dad is intubated almost 3 weeks now. Doctor try to wean him from sedation and off the ventilator but was very agitated everytime they try to lower the sedation. I'm very worried that he won't be able to wean off ventilator if he continue. they try him on CPAP while sedated and did great, but he's
My dad is intubated almost 3 weeks now. Doctor try to wean him from sedation and off the ventilator but was very agitated everytime they try to lower the sedation. I'm very worried that he won't be able to wean off ventilator if he continue. they try him on CPAP while sedated and did great, but he's
Tangmft
in
ICUsteps
4 years ago
Struggling today
I'm really struggling this morning, can't seem to stop crying and I have to go to work in 15 minutes. Dad is stable and oxygen requirement 50% but I'm finding it difficult that after a really good week last week where he was on cpap mode and waking up, he is now fully sedated, with paralysing agents
I'm really struggling this morning, can't seem to stop crying and I have to go to work in 15 minutes. Dad is stable and oxygen requirement 50% but I'm finding it difficult that after a really good week last week where he was on cpap mode and waking up, he is now fully sedated, with paralysing agents
HopefulA
in
ICUsteps
4 years ago
Your help is needed
We are looking for people from the UK who have ANCA Vasculitis and have personal experience of plasma exchange and/or dialysis. This is to help an international research study led by researchers in Canada. If you think you maybe able to put yourself forward as a possible candidate please can you write
We are looking for people from the UK who have ANCA Vasculitis and have personal experience of plasma exchange and/or dialysis. This is to help an international research study led by researchers in Canada. If you think you maybe able to put yourself forward as a possible candidate please can you write
John_Mills
Vasculitis UK
in
Vasculitis UK
4 years ago
Pacemaker and cpap
Hi, does anyone that has a pacemaker also use a cpap machine?
Hi, does anyone that has a pacemaker also use a cpap machine?
rubyduck60
in
British Heart Foundation
4 years ago
Any PD Patients Reluctant to Visit Clinic?
Is anyone else having a problem trying to convince their dialysis clinic -- with State and County shelter-in-place orders -- that coming into the clinic, with hemodialysis patients present (some of which have been diagnosed with covid-19) is something you would like to put off for at least a month of
Is anyone else having a problem trying to convince their dialysis clinic -- with State and County shelter-in-place orders -- that coming into the clinic, with hemodialysis patients present (some of which have been diagnosed with covid-19) is something you would like to put off for at least a month of
TaffyTwoshoes27
in
Kidney Dialysis
4 years ago
I Need Suggestions
I am at end Stage kidney Disease. With PKD on Dialysis at Clinic 3 Days a week. On the Transplant list since March 2018. And on Dialysis since April 2019. Besides this Group is there support groups or Groups that help you with ideas of finding a living Donor. I have had 6 perfect matches but they were
I am at end Stage kidney Disease. With PKD on Dialysis at Clinic 3 Days a week. On the Transplant list since March 2018. And on Dialysis since April 2019. Besides this Group is there support groups or Groups that help you with ideas of finding a living Donor. I have had 6 perfect matches but they were
Cyndimae
in
Kidney Disease
4 years ago
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