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Of-Presidents-Policies-and-Patients
One year ago the administration signed an EO on Advancing American Kidney Health. This letter from two key members of AAKP was in my mail today and I thought I'd share it with everyone in the community. July 10, 2020 Paul T. Conway and Edward V. Hickey III As two kidney patients who have lived at
One year ago the administration signed an EO on Advancing American Kidney Health. This letter from two key members of AAKP was in my mail today and I thought I'd share it with everyone in the community. July 10, 2020 Paul T. Conway and Edward V. Hickey III As two kidney patients who have lived at
Hidden
in
Kidney Disease
4 years ago
Hows every doing šŖšš
Me Hello my fellow warriors šmy name is Dave i first joined this group i guess about 2 years ago whenw i was blessed with a kidney transplantšIvecome a long way since my health now is better than when i first became sick 10 years ago my last laB results put me at a gfr of 74% i had to have a double
Me Hello my fellow warriors šmy name is Dave i first joined this group i guess about 2 years ago whenw i was blessed with a kidney transplantšIvecome a long way since my health now is better than when i first became sick 10 years ago my last laB results put me at a gfr of 74% i had to have a double
Gotthecall_123
in
Kidney Transplant
4 years ago
Some feedback would help Pelvic / Fibroids
Hi all, New to this Site ,, thank you for this link, Right donāt know really where to start...so here goes,...Iām 50 end of August ... Firstly currently on haemodialysis for almost 30 years , this November .. Had two failed transplants, one came out other still in situ left side , Had severe periods
Hi all, New to this Site ,, thank you for this link, Right donāt know really where to start...so here goes,...Iām 50 end of August ... Firstly currently on haemodialysis for almost 30 years , this November .. Had two failed transplants, one came out other still in situ left side , Had severe periods
WarriorprincessJen
in
Pelvic Pain Support Network
4 years ago
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Help and advice appreciated
Hi everyone my first post on this forum. I have been told by my renal surgeon that my eGFR has been deteriorating over the last few months and am now at stage 4 of CKD with eGFR =19. He has informed me that due to this I need to prepare myself for possible dialysis in the near future. Does anyone have
Hi everyone my first post on this forum. I have been told by my renal surgeon that my eGFR has been deteriorating over the last few months and am now at stage 4 of CKD with eGFR =19. He has informed me that due to this I need to prepare myself for possible dialysis in the near future. Does anyone have
Raj363
in
Early CKD Support
4 years ago
First time experience of Loved one in ICU
My dad had a fall during the night a week ago, must of been lay on his back for a very long time before I found him on the floor. He was in a pickle couldnāt move and complaining of bad pain in his neck and weezing on his chest, his speech wasnāt right but he was still very alert. He was ambulanced
My dad had a fall during the night a week ago, must of been lay on his back for a very long time before I found him on the floor. He was in a pickle couldnāt move and complaining of bad pain in his neck and weezing on his chest, his speech wasnāt right but he was still very alert. He was ambulanced
Rach2312
in
ICUsteps
4 years ago
COVID 19, More than a month In ventilator with unconscious
My Father had high fever n it leads to pneumonia. On June 5th Covid has confirmed n hospitalised. The next day he had cardiac arrest n shifted to ventilator. Still treatment going on ; They tested CT&MRI scan and by God grace there was nothing to worry in the reports. But he had high creatinine level
My Father had high fever n it leads to pneumonia. On June 5th Covid has confirmed n hospitalised. The next day he had cardiac arrest n shifted to ventilator. Still treatment going on ; They tested CT&MRI scan and by God grace there was nothing to worry in the reports. But he had high creatinine level
Itzmehere
in
ICUsteps
4 years ago
93 days in hospital with covid - 19 and finally home!
Hi guys I've posted a few times with regards to my father in law being seriously ill with covid. Just an update that he finally came home on 30th June, very weak but very determined to get back to himself. So his story so far, it is quite a long one. He went into hospital 30th March, which was a
Hi guys I've posted a few times with regards to my father in law being seriously ill with covid. Just an update that he finally came home on 30th June, very weak but very determined to get back to himself. So his story so far, it is quite a long one. He went into hospital 30th March, which was a
Lf91
in
ICUsteps
4 years ago
KT/V ORDERED BY MEDICARE?
I recently received a call from my Fresenius Kidney Care PD Home Therapy Clinic indicating that Medicare has requested ALL PD patients to submit to a Kt/V test this month. I have had so many kt/vs since January that I have started to complain. Kt/V tests are usually required only every 3 months from
I recently received a call from my Fresenius Kidney Care PD Home Therapy Clinic indicating that Medicare has requested ALL PD patients to submit to a Kt/V test this month. I have had so many kt/vs since January that I have started to complain. Kt/V tests are usually required only every 3 months from
TaffyTwoshoes27
in
Kidney Disease
4 years ago
COVID, Internal Bleeding/ multi organ failure and coma
Hi all, I am here out of desperation and looking for hope like everyone else. Mom was admitted to the ICU due to severe Covid infection and sever pneumonia. Her oxygen level was 90%. They put her on a ventilator with sedation. Her kidneys and liver werenāt functioning. Within a few days she was recovering
Hi all, I am here out of desperation and looking for hope like everyone else. Mom was admitted to the ICU due to severe Covid infection and sever pneumonia. Her oxygen level was 90%. They put her on a ventilator with sedation. Her kidneys and liver werenāt functioning. Within a few days she was recovering
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ICUsteps
4 years ago
Hi Got diagnosed with FND need advice.
Hi Got diagnosed with FND in May when i colapled i spent 60 days in hospital were they released i had compression of the spine, i was taken to my renal hospital as i am on dialysis after a failed kidney transplant in 2018. I have now lost the ability to walk and struggle to remember even such things
Hi Got diagnosed with FND in May when i colapled i spent 60 days in hospital were they released i had compression of the spine, i was taken to my renal hospital as i am on dialysis after a failed kidney transplant in 2018. I have now lost the ability to walk and struggle to remember even such things
Plasticpaddy
in
FND Action
4 years ago
Feeling Sad
My beloved partner has been through the mill these past 5 weeks and I need some reassurance. He went in for elective surgery in a brain aneurysm, suffered a stroke during surgery, had two further surgeries for bleeds and clots and will be, tomorrow, two weeks out if an induced coma. He is my soul mate
My beloved partner has been through the mill these past 5 weeks and I need some reassurance. He went in for elective surgery in a brain aneurysm, suffered a stroke during surgery, had two further surgeries for bleeds and clots and will be, tomorrow, two weeks out if an induced coma. He is my soul mate
123Bereft
in
Headway
4 years ago
Masks for Sleep Apnea
Good Morning everyone Need some advice. My husband was diagnosed 4 years ago with sleep apnea, along with PF. He was given a CPAP machine for night time along with an oxygen machine. Up until a few months ago all worked well, but for some unknown reason he appears to have become allergic to the mask
Good Morning everyone Need some advice. My husband was diagnosed 4 years ago with sleep apnea, along with PF. He was given a CPAP machine for night time along with an oxygen machine. Up until a few months ago all worked well, but for some unknown reason he appears to have become allergic to the mask
Johnsel
in
Lung Conditions Community Forum
4 years ago
What do you eat when you donāt feel like eating?
I am very close to needing dialysis. On June 1 it was like someone through a switch, Iām exhausted all the time, I have nausea, indigestion, and no appetite. I find that some food goes down better than others. If this has happened do you, what do you find to eat?
I am very close to needing dialysis. On June 1 it was like someone through a switch, Iām exhausted all the time, I have nausea, indigestion, and no appetite. I find that some food goes down better than others. If this has happened do you, what do you find to eat?
LavenderRabbit
in
Kidney Disease
4 years ago
Avoiding dialysis with natural approaches
Hi everyone! Iām new to this community. I was hoping to find people who have reversed end stage renal disease and/or diabetes naturally. My momās latest GFR was 17 and sheās between a rock and a hard place. Her doctor keeps increasing her lasix, knowing it can cause kidney damage. When she tries to get
Hi everyone! Iām new to this community. I was hoping to find people who have reversed end stage renal disease and/or diabetes naturally. My momās latest GFR was 17 and sheās between a rock and a hard place. Her doctor keeps increasing her lasix, knowing it can cause kidney damage. When she tries to get
Hidden
in
Kidney Disease
4 years ago
Living on a narrowboat
I am likely to start on dialysis some time this year and was going to opt for peritoneal dialysis. Does anyone have any idea if this is viable on a narrowboat? I would be considering the overnight dialysis, not continual. Many thanks for any thoughts.
I am likely to start on dialysis some time this year and was going to opt for peritoneal dialysis. Does anyone have any idea if this is viable on a narrowboat? I would be considering the overnight dialysis, not continual. Many thanks for any thoughts.
JulietV
in
PKD Charity for Autosomal Dominant PKD
4 years ago
Intradialytic Hypertension?
Has anyone else been diagnosed with Intradialytic Hypertension? If so, what did you do to manage it or mitigate it? I'm aware that peritoneal dialysis doesn't have this complication. Thanks. https://www.ajkd.org/article/S0272-6386(09)01145-7/pdf Intradialytic Hypertension: A Less-Recognized Cardiovascular
Has anyone else been diagnosed with Intradialytic Hypertension? If so, what did you do to manage it or mitigate it? I'm aware that peritoneal dialysis doesn't have this complication. Thanks. https://www.ajkd.org/article/S0272-6386(09)01145-7/pdf Intradialytic Hypertension: A Less-Recognized Cardiovascular
steve680
in
Kidney Disease
4 years ago
GFR info
Can your gfr increase from 8-20 gfr on dialysis
Can your gfr increase from 8-20 gfr on dialysis
Mojo89
in
Kidney Disease
4 years ago
My brother needs a kidney and advice
My dad died around the holidays from kidney failure. The day of the funeral we found out my brother had to go on a transplant list because he was born with only 1 kidney and no one knew. Now that one is failing and him needing dialysis is happening faster than we thought. He keeps referring to a transplant
My dad died around the holidays from kidney failure. The day of the funeral we found out my brother had to go on a transplant list because he was born with only 1 kidney and no one knew. Now that one is failing and him needing dialysis is happening faster than we thought. He keeps referring to a transplant
Elle1126
in
Kidney Transplant
4 years ago
Can dialysis reduce creatinine which in turn increase GFR.
Can dialysis reduce creatinine level in the blood? Please reply Thanks
Can dialysis reduce creatinine level in the blood? Please reply Thanks
htpi1543
in
Kidney Dialysis
4 years ago
mom has been in the ICU for 6 weeks...doctors are discouraging.
Hello, my mom, who is 51, was admitted to the hospital on May 8 for severe edema and joint pains. After several blood tests and a kidney biopsy, she was diagnosed with Class 4 Lupus Nephritis. The lupus was causing her kidneys to fail (hence the edema). About a week after being at the hospital, my family
Hello, my mom, who is 51, was admitted to the hospital on May 8 for severe edema and joint pains. After several blood tests and a kidney biopsy, she was diagnosed with Class 4 Lupus Nephritis. The lupus was causing her kidneys to fail (hence the edema). About a week after being at the hospital, my family
ChrissyJames
in
ICUsteps
4 years ago
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