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Autoimmune diseases and mental health
Attempting to attach article which strikes a chord with me atm. https://www.msn.com/en-gb/health/medical/study-reveals-hidden-mental-health-symptoms-in-people-with-autoimmune-diseases/ar-AA1e1S9k
Attempting to attach article which strikes a chord with me atm. https://www.msn.com/en-gb/health/medical/study-reveals-hidden-mental-health-symptoms-in-people-with-autoimmune-diseases/ar-AA1e1S9k
random901
in
PMRGCAuk
4 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
4 months ago
10 year PMR anniversary! A new drug for me called Etanercept being advised.
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
MC60
in
PMRGCAuk
4 months ago
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Lupus and Fibromyalgia with Sjogren syndrome
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
Denise1219
in
LUpus Patients Understanding and Support
4 months ago
Lupus participants needed for a study with The University of Edinburgh!
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
michaellasmith
Administrator
in
LUPUS UK
4 months ago
Hi everyone
Hi, it’s been a while but I’m still getting on with it , just out of hospital yet again with pericarditis again! I’m now on anti inflammatory medication and another 2 weeks of antibiotics for a kleibsom infection they haven’t cleared since December, I can’t remember the spelling but it’s a nasty bug.
Hi, it’s been a while but I’m still getting on with it , just out of hospital yet again with pericarditis again! I’m now on anti inflammatory medication and another 2 weeks of antibiotics for a kleibsom infection they haven’t cleared since December, I can’t remember the spelling but it’s a nasty bug.
Numptybrain
in
Lung Conditions Community Forum
4 months ago
Morning all!
woke this morning achey and bit shake.. not great night sleep lolmy question is please on Saturday I reduce from 9 pred down to 6...still no rheumatoid apps. how will I know if 6 is enough...Will the headaches return and if so..how long b4 they come back ? feel like opthalmology did good job but have
woke this morning achey and bit shake.. not great night sleep lolmy question is please on Saturday I reduce from 9 pred down to 6...still no rheumatoid apps. how will I know if 6 is enough...Will the headaches return and if so..how long b4 they come back ? feel like opthalmology did good job but have
Alliekat65
in
PMRGCAuk
4 months ago
psoriatic arthritis
Has anyone with psoriatic arthritis had pain in their calves and swelling in both ankles above the heels???
Has anyone with psoriatic arthritis had pain in their calves and swelling in both ankles above the heels???
Beata0102
in
NRAS
4 months ago
Is this a lupus rash?
this is a rash on my leg it is appearing everywhere!
this is a rash on my leg it is appearing everywhere!
Jolevans
in
LUPUS UK
4 months ago
HRT anyone?
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
NewLupusdiag
in
LUPUS UK
4 months ago
B12 result after 6 months…
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Nikkim236
in
Pernicious Anaemia Society
4 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
4 months ago
overlap RA, medication?
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
CeeCee101
in
PBC Foundation
4 months ago
Help me understand
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
Crazycatlady_101
in
NRAS
4 months ago
Stress and thyroid disease
I have an treated underactive thyroid and i’m on levothyroxine. I’ve had hypothyroidism for 35 years, I’m now 61.. I’m finding that any stressful situation makes me feel very odd, all over the place, and feeling lime Ive drunk 30 cups of coffee. Awful.. Can that happen with thyroid disease. Any advice
I have an treated underactive thyroid and i’m on levothyroxine. I’ve had hypothyroidism for 35 years, I’m now 61.. I’m finding that any stressful situation makes me feel very odd, all over the place, and feeling lime Ive drunk 30 cups of coffee. Awful.. Can that happen with thyroid disease. Any advice
Atma123
in
Thyroid UK
4 months ago
Macrophages, type of immune cell, tied to lupus nephritis in children
M1 macrophages may cause more severe kidney disease in young patients Inflammatory macrophages, a type of immune cell tasked with clearing the body of harmful invaders and dead cells, may be linked to more severe lupus nephritis in children with systemic lupus erythematosus, a small study suggests.
M1 macrophages may cause more severe kidney disease in young patients Inflammatory macrophages, a type of immune cell tasked with clearing the body of harmful invaders and dead cells, may be linked to more severe lupus nephritis in children with systemic lupus erythematosus, a small study suggests.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
pernicious anaemia
Hi I had the results of my intrinsic test and I have pernicious anaemia I start loading doses on Monday ,Do you think it is likely to affect my INR and if so up or down Thanks
Hi I had the results of my intrinsic test and I have pernicious anaemia I start loading doses on Monday ,Do you think it is likely to affect my INR and if so up or down Thanks
mully
in
Hughes Syndrome APS Forum
4 months ago
Statins with an under active thyroid.
Hi everyone. I've recently found out that my thyroid is under active. Because my LDL is elevated, the doctor decided I needed to see a specialist. They won't give me an appointment and have said I need to take a statin while they get to me. The NHS website says you don't give statins to people with an
Hi everyone. I've recently found out that my thyroid is under active. Because my LDL is elevated, the doctor decided I needed to see a specialist. They won't give me an appointment and have said I need to take a statin while they get to me. The NHS website says you don't give statins to people with an
MauveMouse
in
Thyroid UK
4 months ago
Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Wispymisty
in
NRAS
4 months ago
Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Wispymisty
in
LUPUS UK
4 months ago
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