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Congenital rubella syndrome
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Burning Mouth Syndrome
I haven't been on here for a while so, apologies. I have had pneumonia twice in the past 8 weeks & have been left with a terrible burning pain in my mouth. Has anyone ever had this? If so how do you treat it. Dr say there is no cure for it, it is driving me insane. Jackie
I haven't been on here for a while so, apologies. I have had pneumonia twice in the past 8 weeks & have been left with a terrible burning pain in my mouth. Has anyone ever had this? If so how do you treat it. Dr say there is no cure for it, it is driving me insane. Jackie
JustJaxx
in
Fibromyalgia Action UK
2 years ago
treatment and relationship - couples therapy?
Hi everyone, my partner and I have been together for 6 years and we plan to have a cheeky small wedding in February ☺️ Generally our relationship is great and he’s so kind but after a difficult pregnancy in 2021 where I really suffered with my mental health, then miscarriage and a mental health breakdown
Hi everyone, my partner and I have been together for 6 years and we plan to have a cheeky small wedding in February ☺️ Generally our relationship is great and he’s so kind but after a difficult pregnancy in 2021 where I really suffered with my mental health, then miscarriage and a mental health breakdown
honeybeanbee
in
Fertility Network UK
2 years ago
RLS under anesthesia
Has anyone had RLS while under anesthesia ? I didn't know it would be possible but my Dr told my husband I was probably a secret opioid addict because my legs were twitching a lot during the procedure...... 1. I don't take opioids. Even when I tried them for RLS years ago it didn't really work and
Has anyone had RLS while under anesthesia ? I didn't know it would be possible but my Dr told my husband I was probably a secret opioid addict because my legs were twitching a lot during the procedure...... 1. I don't take opioids. Even when I tried them for RLS years ago it didn't really work and
SkyCop
in
Restless Legs Syndrome
2 years ago
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Ropinirole
I’ve been on 3.5 milligrams of Ropinirole for about 4 years now but my RLS is getting much worse- legs and arms. Even though I take it throughout the day and am very active I cannot sit down and take a rest without the RLS kicking in. I am fortunately getting some sleep. Should I switch to pregabalin
I’ve been on 3.5 milligrams of Ropinirole for about 4 years now but my RLS is getting much worse- legs and arms. Even though I take it throughout the day and am very active I cannot sit down and take a rest without the RLS kicking in. I am fortunately getting some sleep. Should I switch to pregabalin
milly-22
in
Restless Legs Syndrome
2 years ago
sickness and fibromyalgia taking betahistine dihydrochloride.
hi I have been sick again this morning and I only seem to get this in the morning. I am wretching a little bit after but trying to get better. I have been given betahistine dihydrochloride for the dizziness etc and I hope this is helpful. I am so sick of this stuff happening to me. I am sorry to moan
hi I have been sick again this morning and I only seem to get this in the morning. I am wretching a little bit after but trying to get better. I have been given betahistine dihydrochloride for the dizziness etc and I hope this is helpful. I am so sick of this stuff happening to me. I am sorry to moan
fibrogirl41
in
Fibromyalgia Action UK
2 years ago
shock - fight or flight response.
sometimes I wonder weather restless leg syndrome is induced by a traumatic experience in earlier life. The fight or flight response that is constantly on overdrive! Never being able to relax…. I’ve had the disorder for most of my life. Contrary to belief my symptoms stated at a very early age. Practitioners
sometimes I wonder weather restless leg syndrome is induced by a traumatic experience in earlier life. The fight or flight response that is constantly on overdrive! Never being able to relax…. I’ve had the disorder for most of my life. Contrary to belief my symptoms stated at a very early age. Practitioners
Dark71
in
Restless Legs Syndrome
2 years ago
Intralipid infussion
Good morning Lovely Girls, I am having my second transfer in Spain next Tuesday and yesterday I had my first intralipid infussion to treat for recurrent miscarriage. The Clinic told me that I would need to have the second one in 3 weeks time if I am pregnant. Please could you let me know if the
Good morning Lovely Girls, I am having my second transfer in Spain next Tuesday and yesterday I had my first intralipid infussion to treat for recurrent miscarriage. The Clinic told me that I would need to have the second one in 3 weeks time if I am pregnant. Please could you let me know if the
Strawberryice
in
Fertility Network UK
2 years ago
Statins & Steroids
I’ve been advised to take statins due to high cholesterol levels of 7.0, Serum triglycerides 2.3, HDL 2.5, HDL ratio 2.8, LDL 3.4, non HDL 4.5. I’m reluctant to take more meds but I’m unclear of the meaning of all the results and if I should take statins or not. I’ve read some articles stating that
I’ve been advised to take statins due to high cholesterol levels of 7.0, Serum triglycerides 2.3, HDL 2.5, HDL ratio 2.8, LDL 3.4, non HDL 4.5. I’m reluctant to take more meds but I’m unclear of the meaning of all the results and if I should take statins or not. I’ve read some articles stating that
Griggser
in
PMRGCAuk
2 years ago
Buprenorphine patch failure. Now very few med options left.
I have PLMD only. It wakes me 3 to 4 times a night and continues until I walk it off. As with many (most?) of you, my sleep architecture is wrecked. In my case I haven't had a continuous night's sleep for 13 years.So, after regimes of Clonazepam, Baclofen, Ropinirole, Gabapentin (twice) and Pregabalin
I have PLMD only. It wakes me 3 to 4 times a night and continues until I walk it off. As with many (most?) of you, my sleep architecture is wrecked. In my case I haven't had a continuous night's sleep for 13 years.So, after regimes of Clonazepam, Baclofen, Ropinirole, Gabapentin (twice) and Pregabalin
dickJones
in
Restless Legs Syndrome
2 years ago
Pregabalin/ropinirole
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
SilverEvie
in
Restless Legs Syndrome
2 years ago
Paying for Horizant
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
grassgree
in
Restless Legs Syndrome
2 years ago
Sore, dry mouth
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Keswick73
in
Fibromyalgia Action UK
2 years ago
Mother-in-law with EDS has very low Potassium readings
We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has
We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has
liverish
in
Ehlers-Danlos Support UK
2 years ago
Ropinirole and Pregablin
Hi first post I am so glad I have found this site it has helped me in a big way in my fight against RLS. My doctor has very limited knowledge of RLS At one time I was on 8 mg of Ropinirole extended release with no pregabalin, my doctor knew this was over the recommended dose of 6 mg but decided
Hi first post I am so glad I have found this site it has helped me in a big way in my fight against RLS. My doctor has very limited knowledge of RLS At one time I was on 8 mg of Ropinirole extended release with no pregabalin, my doctor knew this was over the recommended dose of 6 mg but decided
jmnw15359
in
Restless Legs Syndrome
2 years ago
Buprenorphine Naloxone dose
Hello again! I have had RLS for most of my life. I was taking 6mg Pramipexol per day until given better advice here on the site. I used 100 MG of Tramadol per day and in 18 months managed to cut down to .25mg Pramipexol. Then I got stuck and couldn't cut down any more. I found a Neurologist who prescribed
Hello again! I have had RLS for most of my life. I was taking 6mg Pramipexol per day until given better advice here on the site. I used 100 MG of Tramadol per day and in 18 months managed to cut down to .25mg Pramipexol. Then I got stuck and couldn't cut down any more. I found a Neurologist who prescribed
welschrispy
in
Restless Legs Syndrome
2 years ago
Carnivore diet and ketogenic diet is reportedly reversing many conditions. Can we heal our bodies with our diets.
I do not know if I actually have restless legs syn drome, but for years I have had involuntary leg movements every day, all day. I have jerking and muscle tension that is very uncomfortable and exhausting. I am not certain if it is the side effects of restoril, I take to sleep, or temazapam, that was
I do not know if I actually have restless legs syn drome, but for years I have had involuntary leg movements every day, all day. I have jerking and muscle tension that is very uncomfortable and exhausting. I am not certain if it is the side effects of restoril, I take to sleep, or temazapam, that was
Yecam1949
in
Restless Legs Syndrome
2 years ago
higher risk of Down’s syndrome
After going through three rounds of ivf with pgd for a genetic condition I have we got our risk for downs back after combined test Nt = 1.5 (normal) Papp-a = 0.86 mom ( normal) Free beta hcg = 6.9 mom (elevated) Risk = 1:51 Anyone also had normal measurements other than the hcg? And what was the
After going through three rounds of ivf with pgd for a genetic condition I have we got our risk for downs back after combined test Nt = 1.5 (normal) Papp-a = 0.86 mom ( normal) Free beta hcg = 6.9 mom (elevated) Risk = 1:51 Anyone also had normal measurements other than the hcg? And what was the
sj482
in
Pregnancy and Parenting Support
2 years ago
discomfort but only at night
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
brown1688
in
IBS Network
2 years ago
Perspective: The High-Folate–Low-Vitamin B-12 Interaction Is a Novel Cause of Vitamin B-12 Depletion with a Specific Etiology—A Hypothesis
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
helvella
Thyroid UK
in
Thyroid UK
2 years ago
COPD and RLS
I have emphysema and have tried many inhalers and every one of them aggravated the restless legs. I am on Ropinirole, but still and all it got impossible for me to take. Are there any inhalers for COPD that would not aggravate the legs. My doctor feels it necessary to use inhalers, but I refuse as
I have emphysema and have tried many inhalers and every one of them aggravated the restless legs. I am on Ropinirole, but still and all it got impossible for me to take. Are there any inhalers for COPD that would not aggravate the legs. My doctor feels it necessary to use inhalers, but I refuse as
hscarangella
in
Restless Legs Syndrome
2 years ago
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