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Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Ryshta
in
NRAS
9 months ago
Breathing test at hospital
Hj all Happy New year Last week I had a battery of breathing test atl respiratory department in my local hospital. This was dine 4/5 weeks after being released from hospital after having pneumonia. I Has anyone else done this and would explain them to me. I have follow up appointment on Wednesday
Hj all Happy New year Last week I had a battery of breathing test atl respiratory department in my local hospital. This was dine 4/5 weeks after being released from hospital after having pneumonia. I Has anyone else done this and would explain them to me. I have follow up appointment on Wednesday
elanaoali
in
Asthma Community Forum
6 months ago
mucus plugs (plastic bronchitis)
Hi, sorry for gross question but... A long story short: I was in hospital for a severe asthma flare up in September for 12 days (when I was first diagnosed). I was on oxygen and not improving. They gave me a lot of saline and salbutamol nebs. What eventually worked for me was that I coughed up a lot
Hi, sorry for gross question but... A long story short: I was in hospital for a severe asthma flare up in September for 12 days (when I was first diagnosed). I was on oxygen and not improving. They gave me a lot of saline and salbutamol nebs. What eventually worked for me was that I coughed up a lot
Particle32
in
Lung Conditions Community Forum
6 months ago
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Advice Required
Sorry this is long So I've had a rough summer. Initially really tired in evenings, rang the GP...was told at 46 I'm probably menopausal and what do I expect. A week later my leg swole. I went in said I thought cellulitis, different GP thought more likely clot so scans and anti clot stuff and a basic
Sorry this is long So I've had a rough summer. Initially really tired in evenings, rang the GP...was told at 46 I'm probably menopausal and what do I expect. A week later my leg swole. I went in said I thought cellulitis, different GP thought more likely clot so scans and anti clot stuff and a basic
wilbertjellyfish
in
NRAS
10 months ago
Drew Weissman, Katalin Karikó win Nobel in medicine for enabling mRNA COVID vaccines
[i]
A screen at the Karolinska Institute shows this year's laureates Katalin Kariko of Hungary (L) and Drew Weissman of the US during the announcement of the winners of the 2023 Nobel Prize in Physiology or Medicine at the Karolinska Institute in Stockholm on October 2, 2023.(Jonathan Nackstrand/AFP
[i]
A screen at the Karolinska Institute shows this year's laureates Katalin Kariko of Hungary (L) and Drew Weissman of the US during the announcement of the winners of the 2023 Nobel Prize in Physiology or Medicine at the Karolinska Institute in Stockholm on October 2, 2023.(Jonathan Nackstrand/AFP
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
Seem to be stuck at 7.5mg
Hello my friends , I have been stuck at this dose for approaching 3 years . Sometimes going a little higher on sick days and throughout extremely stressful times. I’ve lost my Mum this year after years of caring , grief is a dreadful experience, the price we pay for love eh ! I only have to drop
Hello my friends , I have been stuck at this dose for approaching 3 years . Sometimes going a little higher on sick days and throughout extremely stressful times. I’ve lost my Mum this year after years of caring , grief is a dreadful experience, the price we pay for love eh ! I only have to drop
Greensleeves
in
PMRGCAuk
9 months ago
NSR with supraventricular ectopy!
I just woke for a wee and my heart felt weird with odd pulse so used my Kardia and got this. I’ve had a nasty cold and cough for about a week - might that be what’s causing it. Last time it happened I’d taken something that contained caffeine so haven’t had it again and did have some cough medicine yesterday
I just woke for a wee and my heart felt weird with odd pulse so used my Kardia and got this. I’ve had a nasty cold and cough for about a week - might that be what’s causing it. Last time it happened I’d taken something that contained caffeine so haven’t had it again and did have some cough medicine yesterday
Vonnegut
in
Atrial Fibrillation Support
6 months ago
Post Covid
Morning all ,hoping for advice plz. I had covid 6 weeks ago,it was very unpleasant. Worse still is now ive been left with vertigo. Im actually struggling more with this than the covid. My RA nurse also stopped my meds due to how poorly i was. So far no flare. Please has anyone else had vertigo and how
Morning all ,hoping for advice plz. I had covid 6 weeks ago,it was very unpleasant. Worse still is now ive been left with vertigo. Im actually struggling more with this than the covid. My RA nurse also stopped my meds due to how poorly i was. So far no flare. Please has anyone else had vertigo and how
Ninnin67
in
NRAS
9 months ago
Cold showers
Interesting article about the benefits of cold water therapy on inflammation and the immune system. Anyone any experience? MtS https://www.wimhofmethod.com/benefits-of-cold-showers?utm_source=newsletter&utm_medium=email&utm_id=Newsletter+January+2024&utm_content=benefits-text&
Interesting article about the benefits of cold water therapy on inflammation and the immune system. Anyone any experience? MtS https://www.wimhofmethod.com/benefits-of-cold-showers?utm_source=newsletter&utm_medium=email&utm_id=Newsletter+January+2024&utm_content=benefits-text&
Mervetheswerve
in
PMRGCAuk
6 months ago
itch and bilirubin, long covid
1) since startin* urso I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage. Enzymes starting to come down but the gi doc says nothing gets added or changed until we see how I do after being on it for a
1) since startin* urso I continue to have an itchy abdomen and scalp. My family dr does not think itch is related to PBC because my bilirubin is fine… I think I’m early stage. Enzymes starting to come down but the gi doc says nothing gets added or changed until we see how I do after being on it for a
Artsy123
in
PBCers Organization
9 months ago
Has anyone succeeded using bluetooth microphone to amplify patients voice so it can be heard on bluetooth hearing aids?
Hi, My wife (78) was diagnosed with PSP about 30 months ago and is in slow decline. Her voice is getting weaker and I am finding it difficult to hear what she says, much of it is mumbled. My hearing aids are bluetooth enabled, so I wondered if anyone had managed to amplify a patient's voice using
Hi, My wife (78) was diagnosed with PSP about 30 months ago and is in slow decline. Her voice is getting weaker and I am finding it difficult to hear what she says, much of it is mumbled. My hearing aids are bluetooth enabled, so I wondered if anyone had managed to amplify a patient's voice using
Legobuilder
in
PSP Association
3 months ago
Slight Cold and Actemra
I caught a slight cold over the holidays which I’ve had for about a week and a half. It’s been nothing more than a runny nose and congestion. Very mild. I decided to skip my 6th Actemra dose last Friday until it clears up. It’s almost gone but has settled in my sinuses. Tomorrow is Friday and that’s
I caught a slight cold over the holidays which I’ve had for about a week and a half. It’s been nothing more than a runny nose and congestion. Very mild. I decided to skip my 6th Actemra dose last Friday until it clears up. It’s almost gone but has settled in my sinuses. Tomorrow is Friday and that’s
Lenore58
in
PMRGCAuk
6 months ago
Tetanus booster while on prednisone?
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Spartans1
in
PMRGCAuk
9 months ago
Covid prior to FET with a positive outcome
Hope everyone is doing ok! I just wondered if anyone tested positive for covid the month before their FET and then had a positive result? I know it’s different for everyone but just making sure it has actually happened and if I go ahead with my FET next month I’m not starting on the back foot! (Well
Hope everyone is doing ok! I just wondered if anyone tested positive for covid the month before their FET and then had a positive result? I know it’s different for everyone but just making sure it has actually happened and if I go ahead with my FET next month I’m not starting on the back foot! (Well
Booda21
in
Fertility Network UK
9 months ago
immunosuppressants and Covid vaccine
I was told by my nephrologist that I should wait 3 months to get the current Covid vaccine until my immunosuppressive medication (rituximab) wears off because I won’t mount a good response if I get it now. Has anyone been told similar advice?
I was told by my nephrologist that I should wait 3 months to get the current Covid vaccine until my immunosuppressive medication (rituximab) wears off because I won’t mount a good response if I get it now. Has anyone been told similar advice?
MsAmyM
in
Kidney Disease
9 months ago
Scared newbie
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung
Rubyjean28
in
Lung Conditions Community Forum
6 months ago
Scared Newbie
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung
Rubyjean28
in
The Roy Castle Lung Cancer Foundation
6 months ago
covid vaccination
Thankyou to everyone who replied to my previous post . Most people seem to be having the covid booster . It isn’t the initial jab that bothers me but what it’s doing long term . I had my last one in November and since then I’ve developed polymyalgia rheumatica, another auto immune disease . Who knows
Thankyou to everyone who replied to my previous post . Most people seem to be having the covid booster . It isn’t the initial jab that bothers me but what it’s doing long term . I had my last one in November and since then I’ve developed polymyalgia rheumatica, another auto immune disease . Who knows
Juliet46
in
MPN Voice
9 months ago
Cold feet & change in toenail
Hi I am two years after chemo and since the I have been taking Niraparib highest dose everyday. I sometime have had cold feet but they seem to be cold a lot more recently than they have been before. I also have a reddish colour under both my big toe nails and they are a little brittle. I have tried
Hi I am two years after chemo and since the I have been taking Niraparib highest dose everyday. I sometime have had cold feet but they seem to be cold a lot more recently than they have been before. I also have a reddish colour under both my big toe nails and they are a little brittle. I have tried
Jingles6
in
My Ovacome
6 months ago
Dentist and antibiotics?
Hi - I have a question regarding dentist/hygienist and the need to take antibiotics afterwards (newly diagnosed with ET/JAK2 and still bringing down platelets with Hydroxy). My haematology team recommend antibiotics after any major work, and for the dentist/hygienist not to use too much pressure. The
Hi - I have a question regarding dentist/hygienist and the need to take antibiotics afterwards (newly diagnosed with ET/JAK2 and still bringing down platelets with Hydroxy). My haematology team recommend antibiotics after any major work, and for the dentist/hygienist not to use too much pressure. The
Bouillabaisse
in
MPN Voice
10 months ago
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