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Advice please with cold and PMR
For the first time in nearly a year, I have a cold and where I before just go on with it, I am feeling terrible! My body aches so much from my shoulders to the groin and neck and wondering if is this normal when having an autoimmune disease. Should I increase my prednisone until this passes as not sure
For the first time in nearly a year, I have a cold and where I before just go on with it, I am feeling terrible! My body aches so much from my shoulders to the groin and neck and wondering if is this normal when having an autoimmune disease. Should I increase my prednisone until this passes as not sure
Markandevie
in
PMRGCAuk
6 months ago
Has anyone succeeded using bluetooth microphone to amplify patients voice so it can be heard on bluetooth hearing aids?
Hi, My wife (78) was diagnosed with PSP about 30 months ago and is in slow decline. Her voice is getting weaker and I am finding it difficult to hear what she says, much of it is mumbled. My hearing aids are bluetooth enabled, so I wondered if anyone had managed to amplify a patient's voice using
Hi, My wife (78) was diagnosed with PSP about 30 months ago and is in slow decline. Her voice is getting weaker and I am finding it difficult to hear what she says, much of it is mumbled. My hearing aids are bluetooth enabled, so I wondered if anyone had managed to amplify a patient's voice using
Legobuilder
in
PSP Association
3 months ago
Finally some progress
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Wolivere
in
British Liver Trust
10 months ago
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Does anyone here continue to have blood in their phlegm after recovering from pneumonia?
I finished taking my medication a week ago, and I haven't been getting much phlegm these days. But now I see blood spots in the phlegm, I have an x-ray tomorrow.I am very worried, my mind sometimes drifts to dark thoughts.
I finished taking my medication a week ago, and I haven't been getting much phlegm these days. But now I see blood spots in the phlegm, I have an x-ray tomorrow.I am very worried, my mind sometimes drifts to dark thoughts.
Vinaa
in
Lung Conditions Community Forum
6 months ago
covid
Have just had the Pfizer Covid jab will keep you informed as to what if any side effects I have. Fingers crossed for none🤞
Have just had the Pfizer Covid jab will keep you informed as to what if any side effects I have. Fingers crossed for none🤞
Givemestrength23
in
CLL Support
9 months ago
Tinnitus fades after noise exposure
Hello all, hope you’re doing ok! I’ve had low frequency tinnitus for 18 months or so, some days better than others. One thing I’ve noticed is that my tinnitus almost entirely disappears after I’ve been in loud environments. I was at a gig on Monday and I forgot my loop earplugs and for 3 days and nights
Hello all, hope you’re doing ok! I’ve had low frequency tinnitus for 18 months or so, some days better than others. One thing I’ve noticed is that my tinnitus almost entirely disappears after I’ve been in loud environments. I was at a gig on Monday and I forgot my loop earplugs and for 3 days and nights
Ponay
in
Tinnitus UK
9 months ago
Covid is lasting a long time this time round
Today I’m day 16 of testing strong positive. I caught covid visiting my hubby in hospital. I wore a mask when I visited and sanitised my hands but still caught it. My GP thinks I’ve had 2 strains as I’ve had 2 lots of symptoms. I visited the hospital on the Saturday afternoon, hubby was told that evening
Today I’m day 16 of testing strong positive. I caught covid visiting my hubby in hospital. I wore a mask when I visited and sanitised my hands but still caught it. My GP thinks I’ve had 2 strains as I’ve had 2 lots of symptoms. I visited the hospital on the Saturday afternoon, hubby was told that evening
bernese1225
in
NRAS
9 months ago
Leflunomide and tapering. Update on flare this Summer
I posted in late July about getting into a yo-yo situation trying to control a flare of PMR and got excellent advice from DL which sorted it out. I've been on 3.5mg ever since (I was at 2mg when the flare started). I've tried using DSNS taper. But the PMR isn't ready to cooperate yet!On Monday I had
I posted in late July about getting into a yo-yo situation trying to control a flare of PMR and got excellent advice from DL which sorted it out. I've been on 3.5mg ever since (I was at 2mg when the flare started). I've tried using DSNS taper. But the PMR isn't ready to cooperate yet!On Monday I had
PastelsinArt
in
PMRGCAuk
9 months ago
AF back 6 days after Covid vacc
I'd been in NSR for over 3 1/2 years following a cardioversion after 9 months of persistent AF, but I woke for the loo at 3.30am on Monday and found I was back in AF - which is so far persisting. Sigh! My first thought about the trigger was that I was dehydrated. We were staying with friends, and
I'd been in NSR for over 3 1/2 years following a cardioversion after 9 months of persistent AF, but I woke for the loo at 3.30am on Monday and found I was back in AF - which is so far persisting. Sigh! My first thought about the trigger was that I was dehydrated. We were staying with friends, and
Belle11
in
AF Association
9 months ago
It Had To Happen!! Covid-19 Strikes!
It has been 18 months since I completed my CLL Obinutuzumab plus Venclexta treatment protocol. I was in remission. I have had four Covid-19 vaccinations and two Evusheld vaccinations over that time. So, last week is the first time I ventured into the public transportation system in 2-1/2 years. I
It has been 18 months since I completed my CLL Obinutuzumab plus Venclexta treatment protocol. I was in remission. I have had four Covid-19 vaccinations and two Evusheld vaccinations over that time. So, last week is the first time I ventured into the public transportation system in 2-1/2 years. I
DanBro1
in
CLL Support
9 months ago
Lisinopril, A-Fib enlarged left atrium,
I was taking Diltiazem 60 mg 12HR ER Cap 2 times a day for A-fib and hypertension. I stopped it as doctor recommended when I had to take Paxlovid for Covid. I didn't get A-fib when I didn't go back to taking the Diltiazem and have been off of it for more than 2 months. I'm thinking of taking Lisinopril
I was taking Diltiazem 60 mg 12HR ER Cap 2 times a day for A-fib and hypertension. I stopped it as doctor recommended when I had to take Paxlovid for Covid. I didn't get A-fib when I didn't go back to taking the Diltiazem and have been off of it for more than 2 months. I'm thinking of taking Lisinopril
Jana_
in
AF Association
9 months ago
Lisinopril enlarged Atrium, afib
Jana_ in reply to BobD 7 days ago I was taking Diltiazem 60 mg 12HR ER Cap 2 times a day for A-fib and hypertension. I stopped it as doctor recommended when I had to take Paxlovid for Covid. I didn't get A-fib when I didn't go back to taking the Diltiazem and have been off of it for more than
Jana_ in reply to BobD 7 days ago I was taking Diltiazem 60 mg 12HR ER Cap 2 times a day for A-fib and hypertension. I stopped it as doctor recommended when I had to take Paxlovid for Covid. I didn't get A-fib when I didn't go back to taking the Diltiazem and have been off of it for more than
Jana_
in
AF Association
9 months ago
why s mch rising now asI am SI daily??
just another quick question! I'm on SI b12 daily and just received my blood test results back Can anyone explain why my MCH is rising? I know this is an indicator of low b12 but it was getting lower and is now rising even though I am on daily b12 It isn't a huge difference but I am interested in why
just another quick question! I'm on SI b12 daily and just received my blood test results back Can anyone explain why my MCH is rising? I know this is an indicator of low b12 but it was getting lower and is now rising even though I am on daily b12 It isn't a huge difference but I am interested in why
brenanddave
in
Pernicious Anaemia Society
9 months ago
Pfizer vaccination and AF
I had a Covid Vaccination on Monday which I think triggered the longest attack of AF I have had for ages. I am ok now but very washed out. Has the Covid vaccine caused palpitations fo anyone else? Not having a vaccine again!!
I had a Covid Vaccination on Monday which I think triggered the longest attack of AF I have had for ages. I am ok now but very washed out. Has the Covid vaccine caused palpitations fo anyone else? Not having a vaccine again!!
southkorea
in
AF Association
9 months ago
Haven't ran in over 18 months
Due to pantar fasciitis I haven't ran for over 18 months. Earlier this year I tried shockwave therapy which eased the pain by about 15% Almost two weeks ago I managed to get a steroid injection. The doctor who performed the injection said it should take about two weeks to see any difference. Well after
Due to pantar fasciitis I haven't ran for over 18 months. Earlier this year I tried shockwave therapy which eased the pain by about 15% Almost two weeks ago I managed to get a steroid injection. The doctor who performed the injection said it should take about two weeks to see any difference. Well after
Shaunie75
in
Couch to 5K
9 months ago
pain after injection
Hi just a bit of advice please. Having a flare at the moment had a steroid injection in my buttock. I’m still hurting 🤕 is it ok to still take Naproxen/ Diclofenac ? Would appreciate any help thanks!
Hi just a bit of advice please. Having a flare at the moment had a steroid injection in my buttock. I’m still hurting 🤕 is it ok to still take Naproxen/ Diclofenac ? Would appreciate any help thanks!
Swanfull
in
NRAS
9 months ago
Afib during Covid follow up
Two weeks ago, I came down with symptoms of Covid. It was not that bad, and I seem fully recovered. During the first week, I had two separate episodes of Afib. One seemed in response to a burst of coughing while sleeping and waking short of breath, but the other came on for no apparent reason. My cardiologist
Two weeks ago, I came down with symptoms of Covid. It was not that bad, and I seem fully recovered. During the first week, I had two separate episodes of Afib. One seemed in response to a burst of coughing while sleeping and waking short of breath, but the other came on for no apparent reason. My cardiologist
fibnum
in
AF Association
9 months ago
Telegraph: People injured or bereaved by Covid vaccines ‘speak in code online over censorship fears’
Admin will continue to remove any posts that are not deemed appropriate on the AF-Association Forum. Personal debate/opinions and links to Covid related vaccines etc are not permitted and will be deleted without warning if needed. These type of posts can cause undue anxiety to your fellow members
Admin will continue to remove any posts that are not deemed appropriate on the AF-Association Forum. Personal debate/opinions and links to Covid related vaccines etc are not permitted and will be deleted without warning if needed. These type of posts can cause undue anxiety to your fellow members
TonyB1972
in
AF Association
9 months ago
Rapid Onset of Symptoms
Hello, I was wondering if anyone can help me…. My dad has been diagnosed with PSP only a few months ago but has had symptoms for about 18months. His recent symptoms were textbook stage 2 but quite independent ….. this past Sunday morning he woke up feeling a bit off and then suddenly lost feeling in
Hello, I was wondering if anyone can help me…. My dad has been diagnosed with PSP only a few months ago but has had symptoms for about 18months. His recent symptoms were textbook stage 2 but quite independent ….. this past Sunday morning he woke up feeling a bit off and then suddenly lost feeling in
IPinkie
in
PSP Association
3 months ago
Here we go again!
At my last hospital appointment in February I asked the consultant about his thoughts on masking still and he suggested that as we are having to live with it and the current variants are not serious for most people maybe relaxing with caution or words to that effect. I was happy with that and have enjoyed
At my last hospital appointment in February I asked the consultant about his thoughts on masking still and he suggested that as we are having to live with it and the current variants are not serious for most people maybe relaxing with caution or words to that effect. I was happy with that and have enjoyed
Jetliz
in
CLL Support
9 months ago
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