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HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
Dawnm10
in
Hughes Syndrome APS Forum
28 days ago
Shingles Jab
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
Stewart64
in
LUPUS UK
28 days ago
Anyone used Dr Dani Gordon @The London Resilience Clinic
hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has
hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has
Field007
in
Fibromyalgia Action UK
29 days ago
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C-Reactive Protein Test
Good day everyone. Has anyone has their levels checked? Does high levels correlate with PA and Autoimmune Gastritis? Thank you
Good day everyone. Has anyone has their levels checked? Does high levels correlate with PA and Autoimmune Gastritis? Thank you
Canadian77
in
Pernicious Anaemia Society
30 days ago
Docataxel now
I am a 80 year old cheerleader for Docataxel. First treatment was Jan. 27, 2021. 16th treatment was yesterday, November 14, 2023…….I feel GREAT…….they started adding Dexamethasone on infusion and it is a game changer. …a12-18 hour window of no pain from the DEXA….Normal sequence is 21 days apart for
I am a 80 year old cheerleader for Docataxel. First treatment was Jan. 27, 2021. 16th treatment was yesterday, November 14, 2023…….I feel GREAT…….they started adding Dexamethasone on infusion and it is a game changer. …a12-18 hour window of no pain from the DEXA….Normal sequence is 21 days apart for
Leader4077
in
Advanced Prostate Cancer
8 months ago
Awful chronic nausea
I have had PMR for over 11years and still on 11mgs. I have never been pain free. This morning I had a gastroscopy because I have been suffering worsening nausea over the last 18 months or so. At first I didn’t realise it was all connected because it came and went. Now it is daily and has been making
I have had PMR for over 11years and still on 11mgs. I have never been pain free. This morning I had a gastroscopy because I have been suffering worsening nausea over the last 18 months or so. At first I didn’t realise it was all connected because it came and went. Now it is daily and has been making
suzy1959
in
PMRGCAuk
8 months ago
Understanding TSH Levels
HAD MY BLOOD TESTED IN JANUARY AND TSH Was .06 Gp said normal but no adjustment in meds as he said it was too high. Currently on 100mcg Thyroxine but feeling tired and usual symptoms of Underactive thyroid. Any advice appreciated. Thank you.
HAD MY BLOOD TESTED IN JANUARY AND TSH Was .06 Gp said normal but no adjustment in meds as he said it was too high. Currently on 100mcg Thyroxine but feeling tired and usual symptoms of Underactive thyroid. Any advice appreciated. Thank you.
JMF1
in
Thyroid UK
1 month ago
Does this look like lupus rash?
Hi everyone. I started with a flat purple rash last Tuesday. It’s spread across my stomach and down the front of my thighs. Then a more sporadic raised rash started on shoulders, back, and then my hands and arms on Friday evening. The first marks on upper body looked like I’d scratched the skin. Yesterday
Hi everyone. I started with a flat purple rash last Tuesday. It’s spread across my stomach and down the front of my thighs. Then a more sporadic raised rash started on shoulders, back, and then my hands and arms on Friday evening. The first marks on upper body looked like I’d scratched the skin. Yesterday
Hidden
in
LUPUS UK
1 month ago
Metaxalone.
I was diagnosed with PMR September 2023 but I'm unable to have steroids. Due to a heart condition I'm also unable to have Immuno suppresants. My Rheumy has now prescribed Metaxalone for pain relief. Reading the side effects I'm not sure I'm happy to take them as they can affect your kidneys and liver
I was diagnosed with PMR September 2023 but I'm unable to have steroids. Due to a heart condition I'm also unable to have Immuno suppresants. My Rheumy has now prescribed Metaxalone for pain relief. Reading the side effects I'm not sure I'm happy to take them as they can affect your kidneys and liver
Joann63
in
PMRGCAuk
4 months ago
Don't know what's real anymore...
Some know my story so far, but briefly, rheumatologist diagnosed sjogren's after several years of UCTD and has now referred but to a sjogren's specialist. I saw him about a month ago and he's not convinced it's sjogren's and is running more tests and told me to stop taking Amitryptiline as tris can
Some know my story so far, but briefly, rheumatologist diagnosed sjogren's after several years of UCTD and has now referred but to a sjogren's specialist. I saw him about a month ago and he's not convinced it's sjogren's and is running more tests and told me to stop taking Amitryptiline as tris can
Mctd
in
LUPUS UK
1 month ago
Biomarkers to Assess Multiple Sclerosis
Some review and maybe something new.
Recent research on fluid biomarkers in multiple sclerosis (MS) frames an emerging picture of two aspects of the disease: inflammatory activity measured with
neurofilament light chain
(NfL), and disease progression independent of relapses, with promising
Some review and maybe something new.
Recent research on fluid biomarkers in multiple sclerosis (MS) frames an emerging picture of two aspects of the disease: inflammatory activity measured with
neurofilament light chain
(NfL), and disease progression independent of relapses, with promising
BettysMom
in
My MSAA Community
1 month ago
Levothyroxine side effects
I have been on 150mcg levothyroxine constant since January 1st this year. Around the 20th February I started with shortness of breath and irregular heart beats which have continued daily and my t4 and tsh have gradually got better to where last weeks blood test show they are now within range. I am adamant
I have been on 150mcg levothyroxine constant since January 1st this year. Around the 20th February I started with shortness of breath and irregular heart beats which have continued daily and my t4 and tsh have gradually got better to where last weeks blood test show they are now within range. I am adamant
Andrew36
in
Thyroid UK
1 month ago
itchy skin
hi have any of you ladies out there had itchy skin with underactive thyroid. Mine is mainly on my back. I have used most creams to get rid of it but it comes and goes and it’s back again driving me mad at the moment. Could anyone recommend any remedies to help? Thanks
hi have any of you ladies out there had itchy skin with underactive thyroid. Mine is mainly on my back. I have used most creams to get rid of it but it comes and goes and it’s back again driving me mad at the moment. Could anyone recommend any remedies to help? Thanks
Purpleprincess1963
in
Thyroid UK
1 month ago
Autoimmune Chronic Gastiritis
Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/
Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/
Karenedawson
in
Pernicious Anaemia Society
1 month ago
Lastest results
Hi all, Feeling somewhat relived that my latest medichecks test shows my TSH has increased since Jan (same dose - 75mcg) from 0.9 - 3.38. T3 and T4 remained fairly constant (see attached) For the first time I also got TGA tested and they are high, my TPO antibodies have always been negative. So at least
Hi all, Feeling somewhat relived that my latest medichecks test shows my TSH has increased since Jan (same dose - 75mcg) from 0.9 - 3.38. T3 and T4 remained fairly constant (see attached) For the first time I also got TGA tested and they are high, my TPO antibodies have always been negative. So at least
Dahliasanddaisies
in
Thyroid UK
1 month ago
Women’s Health in RA survey
A Rheumatology Registrar with an interest in women's health has developed a survey as part of their PhD which explores what RA patients want from future research on rheumatoid arthritis in relation to women's health issues such as pregnancy, periods and the menopause. They would love to hear more about
A Rheumatology Registrar with an interest in women's health has developed a survey as part of their PhD which explores what RA patients want from future research on rheumatoid arthritis in relation to women's health issues such as pregnancy, periods and the menopause. They would love to hear more about
SarahW-NRAS
NRAS
in
NRAS
1 month ago
seeing neurologist, advice on b12 injections welcomed…
hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now. My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day
hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now. My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day
Damacian
in
Pernicious Anaemia Society
1 month ago
Wednesday's 'Word'
[u][i]
autoimmune -
[/i][/u] This word refers to a disease in which the body's immune (protection or resistance) system attacks healthy cells. Other autoimmune diseases include lupus, rheumatoid arthritis, celiac, sjogrens syndrome, multiple sclerosis, polymyalgia rheumatica, Type 1 diabetes
[u][i]
autoimmune -
[/i][/u] This word refers to a disease in which the body's immune (protection or resistance) system attacks healthy cells. Other autoimmune diseases include lupus, rheumatoid arthritis, celiac, sjogrens syndrome, multiple sclerosis, polymyalgia rheumatica, Type 1 diabetes
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
ATA Virtual Patient Forum: International Thyroid Awareness Week - Wednesday, May 29, 2024, 8pm - 9:15pm EDT
In case anyone is interested, registration appears to be open - both in they are accepting registrations AND it is open to the public. It would be interesting to find out about how useful it is. The time makes it somewhat awkward for many in the UK. I think it works out to be 01:00 in the morning
In case anyone is interested, registration appears to be open - both in they are accepting registrations AND it is open to the public. It would be interesting to find out about how useful it is. The time makes it somewhat awkward for many in the UK. I think it works out to be 01:00 in the morning
helvella
Thyroid UK
in
Thyroid UK
1 month ago
Intrinsic Factor result
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
Chickens44
in
Pernicious Anaemia Society
1 month ago
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