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I think I have Lupus but not diagnosed yet
hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue for a few years and put this down to IBS and getting older (late 30’s) but despite my IBS being well controlled now, recently my symptoms have
hello everyone. I have always been a really active person. I consider myself athletic and constantly keep myself busy. But have been struggling with fatigue for a few years and put this down to IBS and getting older (late 30’s) but despite my IBS being well controlled now, recently my symptoms have
Zephyrspurple
in
LUPUS UK
1 month ago
PSORIATIC ARTHRITIS
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
Cheylann
in
NRAS
1 month ago
post cholecystectomy issues
I had my gallbladder out (gallstones) 10 years ago and for the first 5 or so years I had no problems whatsoever, life returned to normal. Then I started getting these weird night time vomiting events. Always seemed to be woken between 2 and 3am with a heavy pressure in my stomach/gut, not feeling nauseas
I had my gallbladder out (gallstones) 10 years ago and for the first 5 or so years I had no problems whatsoever, life returned to normal. Then I started getting these weird night time vomiting events. Always seemed to be woken between 2 and 3am with a heavy pressure in my stomach/gut, not feeling nauseas
Susanc241
in
Oesophageal & Gastric Cancer
6 months ago
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Biopsy Results
I have had the results of my recent endosendoscopy today. I went privately to see a gastroenterologist as the previous one I had done on NHS stated that I did not need a follow-up even though they found Atrophic Gastritis and Hyperplasia. I had something called The Sydney Protocol, this involved taking
I have had the results of my recent endosendoscopy today. I went privately to see a gastroenterologist as the previous one I had done on NHS stated that I did not need a follow-up even though they found Atrophic Gastritis and Hyperplasia. I had something called The Sydney Protocol, this involved taking
Helliborous
in
Pernicious Anaemia Society
8 months ago
How long does a coeliacs blood test take to come back?
Exactly that! I had bloods done on Friday lunch time, including a FBC, B12, folate, and ferritin. Also Coeliac screen (TTG). All the others are back but not the coeliac screen yet. Is that usual?
Exactly that! I had bloods done on Friday lunch time, including a FBC, B12, folate, and ferritin. Also Coeliac screen (TTG). All the others are back but not the coeliac screen yet. Is that usual?
WitchingHour2point0
in
Thyroid UK
1 month ago
Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!
Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until 9pm. This is a brilliant opportunity to learn about the charity and the many
Do you live in Northern Ireland and want to get involved in volunteering? The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until 9pm. This is a brilliant opportunity to learn about the charity and the many
michaellasmith
Administrator
in
LUPUS UK
1 month ago
Abdomen pain - IBS
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
Wobbies
in
IBS Network
6 months ago
Investigational MS Med Nearly Eliminates Disease Activity on MRI
NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high degree, new trial data suggested.
https://www.mdedge.com/neurology/article/269463/multiple-sclerosis/investigational-ms-med-nearly-eliminates-disease
NASHVILLE, TENNESSEE — A second-generation anti-CD40L monoclonal antibody suppresses multiple sclerosis (MS) disease activity on MRI to an uncommonly high degree, new trial data suggested.
https://www.mdedge.com/neurology/article/269463/multiple-sclerosis/investigational-ms-med-nearly-eliminates-disease
BettysMom
in
My MSAA Community
1 month ago
can someone help me?
I’ve had chronic pain for the past 10 years. The headaches are manageable now but the stomach pain is really bad. Recently it’s gotten worse. Constant burning pain, acid reflux, chronic gastritis. I try to eat simple things like chicken, potatoes, soups, but I’m still in pain and I get tired of eating
I’ve had chronic pain for the past 10 years. The headaches are manageable now but the stomach pain is really bad. Recently it’s gotten worse. Constant burning pain, acid reflux, chronic gastritis. I try to eat simple things like chicken, potatoes, soups, but I’m still in pain and I get tired of eating
Newguest
in
Pain Concern
8 months ago
Ibs and diverticula advice
hi at the minute I’m having a problem with Ibs and diverticula does anyone on here get pain underneath there ribs back pain and wind from bottom ,also one day I will be constipated next it’s just the opposite any advice would be helpful thanks
hi at the minute I’m having a problem with Ibs and diverticula does anyone on here get pain underneath there ribs back pain and wind from bottom ,also one day I will be constipated next it’s just the opposite any advice would be helpful thanks
Calabona2952
in
IBS Network
8 months ago
Indapamide & Potassium
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
Hi guys, i had a blood test on Monday as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure also underactive thyroid Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74
yewotc23
in
Thyroid UK
1 month ago
still anxious about pancreatic cancer
hey, so I've been told I have Gilbert syndrome as although my bloods have shown elevated bilirubin (23 u/mol and then 2nd blood test 32 u/mol) my liver function is fine, I have also had a clear ultrasound. have been having middle to upper back ache on and off for months and I'm now worried again that
hey, so I've been told I have Gilbert syndrome as although my bloods have shown elevated bilirubin (23 u/mol and then 2nd blood test 32 u/mol) my liver function is fine, I have also had a clear ultrasound. have been having middle to upper back ache on and off for months and I'm now worried again that
Megaaalee
in
British Liver Trust
1 month ago
self-inject intramuscular vitamin B12
Hi all,I often read these posts but not very often write in. I was diagnosed with PA in 2000 using the schillings test. I have been having IM injections every 3 months ever since. However since COVID I have been self injecting. My surgery does not really support that, so I just buy supplies from Germany
Hi all,I often read these posts but not very often write in. I was diagnosed with PA in 2000 using the schillings test. I have been having IM injections every 3 months ever since. However since COVID I have been self injecting. My surgery does not really support that, so I just buy supplies from Germany
Tonyworks
in
Pernicious Anaemia Society
1 month ago
B12 deficiency and night sweats query
Hi - I don't have a diagnosis but I hope you don't mind if I pick your expert brains 🙏 I (Female, 45) have fairly regular blood tests due to medication I take for inflammatory arthritis. My MCV has been a little bit high for years (up to 102). Early on doctors would question it and because of a family
Hi - I don't have a diagnosis but I hope you don't mind if I pick your expert brains 🙏 I (Female, 45) have fairly regular blood tests due to medication I take for inflammatory arthritis. My MCV has been a little bit high for years (up to 102). Early on doctors would question it and because of a family
rmros
in
Pernicious Anaemia Society
1 month ago
IVF - After a Miscarriage
Hi All I’ve had SLE since 2014, and I had a miscarriage in my first trimester in Jan 24. Since, I’ve been referred for IVF and in parallel I am trying to get a referral to a Lupus In Pregnancy clinic so both the fertility and lupus clinic that specialises in pregnancy can help build a plan for me.
Hi All I’ve had SLE since 2014, and I had a miscarriage in my first trimester in Jan 24. Since, I’ve been referred for IVF and in parallel I am trying to get a referral to a Lupus In Pregnancy clinic so both the fertility and lupus clinic that specialises in pregnancy can help build a plan for me.
Heal-
in
LUPUS UK
1 month ago
autoimmune left or right bias?
Adult Onset Stills Disease is categorised as autoimmune /auto inflammatory. Over the years I’ve developed several other AI conditions such as Interstitial Cystitis and Lichen Sclerous. I have fungal nail disease on my left foot, gout in left toe, finger warts on my left hand, over growth of soft gum
Adult Onset Stills Disease is categorised as autoimmune /auto inflammatory. Over the years I’ve developed several other AI conditions such as Interstitial Cystitis and Lichen Sclerous. I have fungal nail disease on my left foot, gout in left toe, finger warts on my left hand, over growth of soft gum
Stills
in
PMRGCAuk
1 month ago
Bile Acid Diarrhoea
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
Whitesugar
in
IBS Network
5 months ago
My big discovery. Sjogren’s UCTD Fibro…
in my constant quest for understanding so I can help myself I have made a big discovery. About 5 years ago I was diagnosed with Sjogren’s and I understood to be Raynauds, and dry eyes, mouth and vagina. This never sat comfortably with me, it didn’t cover my symptoms. I’m still struggling a lot with
in my constant quest for understanding so I can help myself I have made a big discovery. About 5 years ago I was diagnosed with Sjogren’s and I understood to be Raynauds, and dry eyes, mouth and vagina. This never sat comfortably with me, it didn’t cover my symptoms. I’m still struggling a lot with
IsleofWight1
in
LUPUS UK
1 month ago
MCTD diagnosis, finally!
Hi everyone. If you've been following my posts, you probably know I've been very frustrated with the NHS. I decided to go to India and get all my tests done and see a doctor as well. I'm in the clear for Hashimoto's, Coeliac disease, RA and lupus. I have mixed connective tissue disease. The increasing
Hi everyone. If you've been following my posts, you probably know I've been very frustrated with the NHS. I decided to go to India and get all my tests done and see a doctor as well. I'm in the clear for Hashimoto's, Coeliac disease, RA and lupus. I have mixed connective tissue disease. The increasing
MauveMouse
in
Thyroid UK
1 month ago
JUNE NEWSLETTER
our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society https://pernicious-anaemia-society.org/member/ so you don't miss out! If you are a member and are not getting your newsletter make sure to check in Spam/Junk or check that we
our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society https://pernicious-anaemia-society.org/member/ so you don't miss out! If you are a member and are not getting your newsletter make sure to check in Spam/Junk or check that we
PAScomms
in
Pernicious Anaemia Society
1 month ago
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