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Gel nails and lupus/raynauds
Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate due to lupus and raynauds? Ive had gel polish before, but I found the removal of the gel painful with the scraping technique the nail technician
Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate due to lupus and raynauds? Ive had gel polish before, but I found the removal of the gel painful with the scraping technique the nail technician
Shann07
in
LUPUS UK
8 days ago
Inflammatory arthritis & pulmonary embolisms?
After years of x-rays on multiple joints (looking for osteoarthritis) & countless blood tests (looking for rheumatoid factor) - all of which returned negative results - I was finally diagnosed with Seronegative Inflammatory Arthritis in January. My Rheumatologist first tried methotrexate and then leflunomide
After years of x-rays on multiple joints (looking for osteoarthritis) & countless blood tests (looking for rheumatoid factor) - all of which returned negative results - I was finally diagnosed with Seronegative Inflammatory Arthritis in January. My Rheumatologist first tried methotrexate and then leflunomide
YorkieBard
in
NRAS
9 days ago
REMINDER! Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!
Don't forget, if you live in Northern Ireland and are interested in volunteering, there is a great opportunity to learn about how you can get involved! The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until
Don't forget, if you live in Northern Ireland and are interested in volunteering, there is a great opportunity to learn about how you can get involved! The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until
michaellasmith
Administrator
in
LUPUS UK
10 days ago
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PAIN PATH studies
Many people with rheumatoid arthritis suffer from pain every day. NRAS are working with researchers at Keele University to undertake two new studies to improve how pain is treated in people with rheumatoid arthritis and other types of inflammatory arthritis. The first study involves people with inflammatory
Many people with rheumatoid arthritis suffer from pain every day. NRAS are working with researchers at Keele University to undertake two new studies to improve how pain is treated in people with rheumatoid arthritis and other types of inflammatory arthritis. The first study involves people with inflammatory
Aribah-NRAS
NRAS
in
NRAS
10 days ago
Accept nothing question everything...with the proviso that you are well informed
Everything that I have been complaining about for 8 years has now been seen on MRI. The private MRI that I paid for last week. Some of the best money I have ever spent. Not only do I have 'florid' synovitis in my hands, I have widespread enhanced bone erosions in both hands and feet. I also have
Everything that I have been complaining about for 8 years has now been seen on MRI. The private MRI that I paid for last week. Some of the best money I have ever spent. Not only do I have 'florid' synovitis in my hands, I have widespread enhanced bone erosions in both hands and feet. I also have
Mmrr
in
NRAS
11 days ago
Low red cell count but eat lots of red meat!
Hello again, just wanted to check this out with people as I do get quite tired in the afternoon and need to rest. Is this anaemia and so do I supplement with iron? Is there a good one for people with hashimotos?I have been told I have weak digestion and I feel I don't absorb things like iron very well
Hello again, just wanted to check this out with people as I do get quite tired in the afternoon and need to rest. Is this anaemia and so do I supplement with iron? Is there a good one for people with hashimotos?I have been told I have weak digestion and I feel I don't absorb things like iron very well
Pinkpetite
in
Thyroid UK
11 days ago
Loss of taste re dental bridge
I had a dental bridge fitted in July - after four months of temporary bridges and suffering those felt the final one would be tons better. Since having it fitted - I have lost my taste - cannot taste anything and I find that I still cannot eat properly - still sticking to a softish diet and fish as
I had a dental bridge fitted in July - after four months of temporary bridges and suffering those felt the final one would be tons better. Since having it fitted - I have lost my taste - cannot taste anything and I find that I still cannot eat properly - still sticking to a softish diet and fish as
janetmtt
in
Dentistry Health Support
7 months ago
people with parents of lupus
hey!! im a teen living with a mum struggling with lupus + bipolar and i would love to learn more about lupus and what it affects so i can easily help my mum better !! if anyone could help and give tips thats so so appreciated :)
hey!! im a teen living with a mum struggling with lupus + bipolar and i would love to learn more about lupus and what it affects so i can easily help my mum better !! if anyone could help and give tips thats so so appreciated :)
b99lover
in
LUPUS UK
12 days ago
Gulten free diet with lupus
Hi just been researching gulten free diet for lupus to help with inflamation. Is anyone doing this or tried it and found any benefit. Id be really interested to hear peoples experiences. Thank you
Hi just been researching gulten free diet for lupus to help with inflamation. Is anyone doing this or tried it and found any benefit. Id be really interested to hear peoples experiences. Thank you
Flows
in
LUPUS UK
12 days ago
New lupus treatment trial recruiting now
This post has been sponsored by Bristol Myers Squibb. A new trial is assessing whether a type of immunosuppressant is safe and effective for people with SLE (systemic lupus erythematosus). This trial is recruiting now. You can find out more information about the trial in our article here: https://lupusuk.org.uk
This post has been sponsored by Bristol Myers Squibb. A new trial is assessing whether a type of immunosuppressant is safe and effective for people with SLE (systemic lupus erythematosus). This trial is recruiting now. You can find out more information about the trial in our article here: https://lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
12 days ago
Thyroid Scan
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis I’m curious to know what would show up on the scan to indicate autoimmune thyroid disease as opposed to it being caused by subacute thyroiditis.
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis I’m curious to know what would show up on the scan to indicate autoimmune thyroid disease as opposed to it being caused by subacute thyroiditis.
Dizzy444
in
Thyroid UK
12 days ago
I made another MS video….
Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy! MULTIPLE SCLEROSIS ALL STARS on YT that you can trust! https://youtu.be/ocsFgWVw9rA
Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy! MULTIPLE SCLEROSIS ALL STARS on YT that you can trust! https://youtu.be/ocsFgWVw9rA
irhunter
in
My MSAA Community
13 days ago
Arthritis and P.A
Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid arthritis. I told him I have pain every day and it's bad. I also have pain in my hip, elbow and hands. He said to have more blood tests and see the physio
Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid arthritis. I told him I have pain every day and it's bad. I also have pain in my hip, elbow and hands. He said to have more blood tests and see the physio
Suesue246
in
Pernicious Anaemia Society
13 days ago
Too much b12?
As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wks of loading doses and one every 3 mths with doctor. I pay for an injection in the other months and take Clean b12 tablets daily. As I thought your body can’t overdose I’ve been taking two b12 at night instead of one, and
As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wks of loading doses and one every 3 mths with doctor. I pay for an injection in the other months and take Clean b12 tablets daily. As I thought your body can’t overdose I’ve been taking two b12 at night instead of one, and
Palum
in
Pernicious Anaemia Society
13 days ago
Seronegative arthritis
Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?
Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?
PurpleDuckie
in
PMRGCAuk
14 days ago
Sleep issues and melatonin
Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain autoimmune issues, although it doesn't mention PA or Hashimoto's specifically. Any advice would be helpful as my sleep or should I say lack of
Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain autoimmune issues, although it doesn't mention PA or Hashimoto's specifically. Any advice would be helpful as my sleep or should I say lack of
Helliborous
in
Pernicious Anaemia Society
16 days ago
Naproxen
morning!I have Rheumatoid Arthritis and I’m on 500 Naproxen twice daily I have been on this dose for nearly two years because my RA isn’t yet under control is anyone else on this dose and have been on it at long?I have regular blood monitoring and my consultant know Im on it. Any feedback would be greatly
morning!I have Rheumatoid Arthritis and I’m on 500 Naproxen twice daily I have been on this dose for nearly two years because my RA isn’t yet under control is anyone else on this dose and have been on it at long?I have regular blood monitoring and my consultant know Im on it. Any feedback would be greatly
Mybirthday1975
in
NRAS
16 days ago
Inflammatory arthritis & worse circulation
Hi, was diagnosed with seronegative inflammatory arthritis in April. I have noticed that my fingers and toes are permanently cold and can turn white.Many years ago so was told I had Raynauds . But other than in very cold conditions it has been quite settled. Does Raynauds flare up more with arthritis
Hi, was diagnosed with seronegative inflammatory arthritis in April. I have noticed that my fingers and toes are permanently cold and can turn white.Many years ago so was told I had Raynauds . But other than in very cold conditions it has been quite settled. Does Raynauds flare up more with arthritis
hazelcats
in
NRAS
17 days ago
Take part in the PLAN-HERACLES survey
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Aribah-NRAS
NRAS
in
NRAS
17 days ago
The Wren Project
If you are feeling distressed and have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support with a volunteer at The Wren Project, a charity supporting people living with autoimmune disease. For more information and to
If you are feeling distressed and have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support with a volunteer at The Wren Project, a charity supporting people living with autoimmune disease. For more information and to
TUKOffice
Thyroid UK
in
Thyroid UK
17 days ago
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