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Right phrenic nerve paralysis
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
rfgh20
in
Advanced Prostate Cancer
4 months ago
Total thyroidectomy - anyone have a positive story ?
Hey everyone - I’m very nervous about having a total thyroidectomy in mid February. I have seen so many horror stories. Do any of you have an experience that didn’t turn sour ? Some have said they have levithyroxine issues … I’m not sure if this is the right decision but my heart rhythm is being seriously
Hey everyone - I’m very nervous about having a total thyroidectomy in mid February. I have seen so many horror stories. Do any of you have an experience that didn’t turn sour ? Some have said they have levithyroxine issues … I’m not sure if this is the right decision but my heart rhythm is being seriously
JiggyGillo
in
Thyroid UK
4 months ago
Prostate cancer treatment and sexual mutilation
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Yokohama2023
in
Advanced Prostate Cancer
4 months ago
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options after Docetaxel
Hi- I have posted before concerning my brother’s prostate treatment. To give a brief overview- my brother was diagnosed in March 2021. He responded well to Abiraterone for 18 months. Once his PSA starting trending upwards he was put on several sessions of Docetaxel. Unfortunately at this time, he
Hi- I have posted before concerning my brother’s prostate treatment. To give a brief overview- my brother was diagnosed in March 2021. He responded well to Abiraterone for 18 months. Once his PSA starting trending upwards he was put on several sessions of Docetaxel. Unfortunately at this time, he
TerryR123
in
Advanced Prostate Cancer
4 months ago
My MO suspects that I am non-metastatic, castration resistant but will not approve any treatment until metastases develop.
Gleason 9 at diagnosis, BRACA 2 germline and somatic. RP five years ago but cancer escaped the capsule; PSA of around 2.5 after surgery. Had radiation to pelvic area a few months later along with Eligard injection. Renewed Eligard after 3 months and PSA went down to undetectable. T was close to zero
Gleason 9 at diagnosis, BRACA 2 germline and somatic. RP five years ago but cancer escaped the capsule; PSA of around 2.5 after surgery. Had radiation to pelvic area a few months later along with Eligard injection. Renewed Eligard after 3 months and PSA went down to undetectable. T was close to zero
Balsam01
in
Advanced Prostate Cancer
4 months ago
What's on at Ovacome next week (week commencing 22 January 2024)
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week.
Monday 22 January
- Hereford ovarian cancer support group, currently taking place online between 11:00am – 12:30pm: https://www.ovacome.org.uk
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week.
Monday 22 January
- Hereford ovarian cancer support group, currently taking place online between 11:00am – 12:30pm: https://www.ovacome.org.uk
OvacomeSupport
My Ovacome Team
in
My Ovacome
4 months ago
Starting Chemo again, Cabazitaxel Has anybody experienced any side effects that have been unusually bad?
After having been NED for the past six years I now have to go back on Chemo treatments. The first round of Chemo was with Taxotere and now My Cancer has become castrate resistant. PSA is now no longer a good indicator for disease progression. I'm not looking forward to doing this but it's what has to
After having been NED for the past six years I now have to go back on Chemo treatments. The first round of Chemo was with Taxotere and now My Cancer has become castrate resistant. PSA is now no longer a good indicator for disease progression. I'm not looking forward to doing this but it's what has to
redbank
in
Advanced Prostate Cancer
4 months ago
Early detection: POSLUMA is the first FDA-approved radio-hybrid drug for PET imaging of prostate cancers.
Imaging tool can detect PCa even with very low PSA levels https://www.news4jax.com/health/2024/01/16/new-imaging-tool-is-lighting-up-prostate-cancer/
Imaging tool can detect PCa even with very low PSA levels https://www.news4jax.com/health/2024/01/16/new-imaging-tool-is-lighting-up-prostate-cancer/
Maxone73
in
Advanced Prostate Cancer
4 months ago
News about phase 1 trial for mCRPC: BMS-986365
Plenty of hopefully good news at ASCO 2024 on the 25th of Jan "First disclosure of clinical outcomes from Phase 1 trial with BMS-986365 (CC-94676), the company’s first androgen receptor ligand-directed degrader in solid tumors from its targeted protein degradation platform, in metastatic castration-resistant
Plenty of hopefully good news at ASCO 2024 on the 25th of Jan "First disclosure of clinical outcomes from Phase 1 trial with BMS-986365 (CC-94676), the company’s first androgen receptor ligand-directed degrader in solid tumors from its targeted protein degradation platform, in metastatic castration-resistant
Maxone73
in
Advanced Prostate Cancer
4 months ago
Rise in Testosterone but not PSA?
My dad has stage 4 prostate cancer, diagnosed in August of 2022. Gleason 4+3 Stage 4 because it went to 1 lymph node in the abdomen. After 44 rounds of radiation, receiving Eligard injections every 3 months, and 10 months on Apalutamide, his scans show no evidence of disease. ( As of Oct 2023) His
My dad has stage 4 prostate cancer, diagnosed in August of 2022. Gleason 4+3 Stage 4 because it went to 1 lymph node in the abdomen. After 44 rounds of radiation, receiving Eligard injections every 3 months, and 10 months on Apalutamide, his scans show no evidence of disease. ( As of Oct 2023) His
ThisIsForMyMom
in
Advanced Prostate Cancer
4 months ago
Orgyvx + alternative treatment
On Dec 1 I took two Orgyvx and dropped my PSA from 70 to 27.8 on Dec 15. I took one more Orgyvx Dec 15 and it dropped to 14.8 on Jan15. At this level I believe the alternative, clioquinol + zinc + ivermectine, will kill more cancer cells than my body produces new ones. On Feb 13, I meet my oncologist
On Dec 1 I took two Orgyvx and dropped my PSA from 70 to 27.8 on Dec 15. I took one more Orgyvx Dec 15 and it dropped to 14.8 on Jan15. At this level I believe the alternative, clioquinol + zinc + ivermectine, will kill more cancer cells than my body produces new ones. On Feb 13, I meet my oncologist
agnut
in
Fight Prostate Cancer
4 months ago
post prostatectomy psa
hello. I Had surgery June 13 2023 biopsy showed Gleason 8. Psa 13 perineal invasion seminal vesicle invasion post surgery pathology Gleason 7. First two ultra sensitive psa came back with less than symbol 0.02. Then my last ultra sensitive psa came back 0.02 without the less than symbol. Is this something
hello. I Had surgery June 13 2023 biopsy showed Gleason 8. Psa 13 perineal invasion seminal vesicle invasion post surgery pathology Gleason 7. First two ultra sensitive psa came back with less than symbol 0.02. Then my last ultra sensitive psa came back 0.02 without the less than symbol. Is this something
Elkguide
in
Advanced Prostate Cancer
4 months ago
1600 to 100 and counting
Hi All In the summer of 2023 I was diagnosed with Stage 4 prostate cancer. My PSA test came in at 1634. I was told it was in my bones had three years to live and put on Zolodex. Since then my PSA in December 2023 is at 109 and my CT scan shows no bone or organ problems. Each test gets lower and I
Hi All In the summer of 2023 I was diagnosed with Stage 4 prostate cancer. My PSA test came in at 1634. I was told it was in my bones had three years to live and put on Zolodex. Since then my PSA in December 2023 is at 109 and my CT scan shows no bone or organ problems. Each test gets lower and I
Whiskeyriver
in
Advanced Prostate Cancer
4 months ago
Orgovyx + Abiaterone?
I have very high risk prostate cancer (Gleason 9, negative PSMA for spread, MRI suggests possible spread to seminal vessel, PSA in 7s before treatment). Due to cardiac history (stroke and heart attack) MO is being cautious and has started dosing Eligard at 1 Month intervals to make sure I am doing ok
I have very high risk prostate cancer (Gleason 9, negative PSMA for spread, MRI suggests possible spread to seminal vessel, PSA in 7s before treatment). Due to cardiac history (stroke and heart attack) MO is being cautious and has started dosing Eligard at 1 Month intervals to make sure I am doing ok
Hope49823
in
Advanced Prostate Cancer
4 months ago
Diet and Prostate Cancer
Many of us like myself know much about what is good or not good when it pertains to our diet. That said, I listened to this podcast from Dr. Geo . Figured I would share it. For me it was a good reminder and reinforcing to my diet practices. Hope you all find it helpfull. https://
Many of us like myself know much about what is good or not good when it pertains to our diet. That said, I listened to this podcast from Dr. Geo . Figured I would share it. For me it was a good reminder and reinforcing to my diet practices. Hope you all find it helpfull. https://
85745
in
Advanced Prostate Cancer
4 months ago
Luteolin, ellagic acid and punicic acid and prostate cancer metastasis
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
85745
in
Advanced Prostate Cancer
4 months ago
Advice
Hello I have high grade serious carcidoma ovarian cancer stage 4 6 sessions chemo 18months ago recently spread on ovary and spleen madbe bowel they thinking of surgery 1 am 76 having pain with chemo just asking if I have surgery has it been good for any brave ladys and will it give me some quality
Hello I have high grade serious carcidoma ovarian cancer stage 4 6 sessions chemo 18months ago recently spread on ovary and spleen madbe bowel they thinking of surgery 1 am 76 having pain with chemo just asking if I have surgery has it been good for any brave ladys and will it give me some quality
PaumicB123
in
My Ovacome
4 months ago
Maybe because of "careful" patient selection, but still great: PSA Undetectable in First Patient Cu-67 SAR-bisPSMA
Positive results for mCRPC, very positive. Sorry if I have already posted this (my mind is not so sharp lately...was it ever??). "The first patient with prostate cancer dosed with 2 cycles of 8GBq of 67Cu-SAR-bisPSMA has reached undetectable prostate specific antigen (PSA) levels using PET" https:/
Positive results for mCRPC, very positive. Sorry if I have already posted this (my mind is not so sharp lately...was it ever??). "The first patient with prostate cancer dosed with 2 cycles of 8GBq of 67Cu-SAR-bisPSMA has reached undetectable prostate specific antigen (PSA) levels using PET" https:/
Maxone73
in
Advanced Prostate Cancer
4 months ago
Shoud I be concerned with my PSA rising from .79 to 1.01 in about 10 months?
Diagnosed with prostate cancer in August'18 with PSA of 7.84, Greason score of 7 (4+3) before being treated with SBRT without ADT at UCLA in October'18. Reached nadir at .79 after 4.5 years after SBRT treatment. My latest PSA number as of 01/12/24 is 1.01 as compared to 0.93 (10/16/23), 0.93 (07
Diagnosed with prostate cancer in August'18 with PSA of 7.84, Greason score of 7 (4+3) before being treated with SBRT without ADT at UCLA in October'18. Reached nadir at .79 after 4.5 years after SBRT treatment. My latest PSA number as of 01/12/24 is 1.01 as compared to 0.93 (10/16/23), 0.93 (07
mike2344
in
Prostate Cancer Network
4 months ago
urinary bother duration
after SBRT and now in my final months of lupron, i still have frequency of urination at night. I had spaceOAR inserted before SBRT. Now at eight months, i was hoping the frequency at night 3-4 times would have abated. Have treat oxybutinin. Nothing. Have tried Gemtesa and it practically closed down
after SBRT and now in my final months of lupron, i still have frequency of urination at night. I had spaceOAR inserted before SBRT. Now at eight months, i was hoping the frequency at night 3-4 times would have abated. Have treat oxybutinin. Nothing. Have tried Gemtesa and it practically closed down
Photographerhere
in
Prostate Cancer Network
4 months ago
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