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Xofigo question
Hello everyone,Does anyone have experience with ending Xofigo infusions early and possible consequences? I have completed three infusions with fourth scheduled next week blood test (today) permitting. Since beginning Xofigo I am experiencing increased pain, at times significant. Zero pain prior to Xofigo
Hello everyone,Does anyone have experience with ending Xofigo infusions early and possible consequences? I have completed three infusions with fourth scheduled next week blood test (today) permitting. Since beginning Xofigo I am experiencing increased pain, at times significant. Zero pain prior to Xofigo
VisorF9
in
Advanced Prostate Cancer
1 month ago
Niclosamide and Enzalutamide in Treating Patients with Castration-Resistant, Metastatic Prostate Cancer
Anybody heard or been perscibed this treatment ? Niclosamide and Enzalutamide in Treating Patients with Castration-Resistant, Metastatic Prostate Cancer
Anybody heard or been perscibed this treatment ? Niclosamide and Enzalutamide in Treating Patients with Castration-Resistant, Metastatic Prostate Cancer
85745
in
Advanced Prostate Cancer
1 month ago
ten years!
diagnosis was ten years ago this week. Mastectomy and clearance of lymph nodes, radiation, chemo, herceptin, eight years of hormonal,therapy. Well and happy!
diagnosis was ten years ago this week. Mastectomy and clearance of lymph nodes, radiation, chemo, herceptin, eight years of hormonal,therapy. Well and happy!
Happyrosie
in
My Breast Cancer Community
1 month ago
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Orgovyx /Degarelix, Time Risk - & Jail
"Compliance" with meds taking and timing is a big issue, as we all know. And research shows that especially with the elderly, compliance to meds regimes and timings by day and by week is difficult to follow. And the consequences are not good. When one is on doublet therapy (whether or not one had also
"Compliance" with meds taking and timing is a big issue, as we all know. And research shows that especially with the elderly, compliance to meds regimes and timings by day and by week is difficult to follow. And the consequences are not good. When one is on doublet therapy (whether or not one had also
JohnInTheMiddle
in
Advanced Prostate Cancer
1 month ago
DCIS, Lumpectomy and Rheumatoid Arthritis
I had a lumpectomy just under three months ago following a diagnosis of DCIS after a routine mammogram. It was barely detectable so although I don't feel particularly lucky, I know I was lucky to have it discovered early. The surgery was successful in removing the cancer with a clear margin. Because
I had a lumpectomy just under three months ago following a diagnosis of DCIS after a routine mammogram. It was barely detectable so although I don't feel particularly lucky, I know I was lucky to have it discovered early. The surgery was successful in removing the cancer with a clear margin. Because
SingingJay
in
SHARE Breast Cancer Support
1 month ago
Rick Steeves has prostate cancer
https://www.nytimes.com/2024/08/22/travel/rick-steves-prostate-cancer.html?unlocked_article_code=1.FU4.JkFa.UjxjiNlEWYTo&smid=nytcore-ios-share&referringSource=articleShare The upside is that he seems to be upfront and frank about it, which is probably good for visibility. Always enjoyed his shows and
https://www.nytimes.com/2024/08/22/travel/rick-steves-prostate-cancer.html?unlocked_article_code=1.FU4.JkFa.UjxjiNlEWYTo&smid=nytcore-ios-share&referringSource=articleShare The upside is that he seems to be upfront and frank about it, which is probably good for visibility. Always enjoyed his shows and
Jpburns
in
Advanced Prostate Cancer
1 month ago
First dose Lutetium and adding enzalutamide
Hi all My Dad was unfortunately unable to join the DB-1311 trial because he developed extreme pneumonitis from Keytruda that landed him in the ICU for 2 weeks about 2 years ago, so he is no longer able to use any immunotherapy treatments moving forward. We have exhausted most options now but have lutetium
Hi all My Dad was unfortunately unable to join the DB-1311 trial because he developed extreme pneumonitis from Keytruda that landed him in the ICU for 2 weeks about 2 years ago, so he is no longer able to use any immunotherapy treatments moving forward. We have exhausted most options now but have lutetium
Stefciaa
in
Advanced Prostate Cancer
1 month ago
Neuropathy help?
Diagnosed June 2023, Started Lupron July, Zytiga and prednisone August, IMRT 28x 70gy, including distant oligometastatic retroperitoneal lymph nodes November. Everything going fine only minor side effects and I feel good. Then, May 1st 2024 I have sudden onset of peripheral neuropathy. Wow, what a buzzkill
Diagnosed June 2023, Started Lupron July, Zytiga and prednisone August, IMRT 28x 70gy, including distant oligometastatic retroperitoneal lymph nodes November. Everything going fine only minor side effects and I feel good. Then, May 1st 2024 I have sudden onset of peripheral neuropathy. Wow, what a buzzkill
pj1121
in
Advanced Prostate Cancer
1 month ago
Bloomberg News wants to talk with you
Malecare has had excellent experience with patient advocacy articles written by Bloomberg News reporters Please consider contributing your thoughts to Fiona Rutherford’s story, described below Be sure to mention that you are a member of this Malecare online support community !!! “We're working on
Malecare has had excellent experience with patient advocacy articles written by Bloomberg News reporters Please consider contributing your thoughts to Fiona Rutherford’s story, described below Be sure to mention that you are a member of this Malecare online support community !!! “We're working on
Darryl
Partner
in
Advanced Prostate Cancer
1 month ago
update
While I read everyday, I haven’t updated for almost 2 years Life is still good, my husband is now on his 6th year of enzalutamide and Zolodex Bone scan shows very little change, bit of skull uptake but the rib uptake shown on the scan 6 months ago has gone PSA has bounced between 1 and 5 in the
While I read everyday, I haven’t updated for almost 2 years Life is still good, my husband is now on his 6th year of enzalutamide and Zolodex Bone scan shows very little change, bit of skull uptake but the rib uptake shown on the scan 6 months ago has gone PSA has bounced between 1 and 5 in the
LB100
in
Advanced Prostate Cancer
1 month ago
Curious what you think?
Background: I have to take my wife for all her appointments - doctors, hair, etc. Her MO who treats her blood cancer seemed like a good doctor but I know nothing about blood cancer. So I went to her with my records for a consult with the idea it would be easier and less hassle if we could get appointments
Background: I have to take my wife for all her appointments - doctors, hair, etc. Her MO who treats her blood cancer seemed like a good doctor but I know nothing about blood cancer. So I went to her with my records for a consult with the idea it would be easier and less hassle if we could get appointments
Mgtd
in
Advanced Prostate Cancer
1 month ago
PSA rising
Two months ago, husband’s PSA was .23, last month .20, yesterday .27. MO wants to watch and see what it is next month. Husband diagnosed 9/23, finished 6 rounds chemo on 2/21, is on Zytiga and Orgovyx currently. Concerned about the rise in PSA, would like input. Thank you.
Two months ago, husband’s PSA was .23, last month .20, yesterday .27. MO wants to watch and see what it is next month. Husband diagnosed 9/23, finished 6 rounds chemo on 2/21, is on Zytiga and Orgovyx currently. Concerned about the rise in PSA, would like input. Thank you.
Lindajda
in
Advanced Prostate Cancer
1 month ago
Rise in PSA and extra Eligard Injection
My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no ‘hotspots’. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed
My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no ‘hotspots’. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed
Brightman
in
Advanced Prostate Cancer
1 month ago
ARPIs May Improve Survival in Some With Prostate Cancer
"In patients with metastatic castration-resistant prostate cancer, researchers have found that androgen receptor pathway inhibitors (ARPIs) outperformed the standard of care, which improved responses to treatment and overall survival (OS; time a patient lives, regardless of disease status)." We are
"In patients with metastatic castration-resistant prostate cancer, researchers have found that androgen receptor pathway inhibitors (ARPIs) outperformed the standard of care, which improved responses to treatment and overall survival (OS; time a patient lives, regardless of disease status)." We are
Maxone73
in
Advanced Prostate Cancer
1 month ago
Mammograms Use of cloth coverings for glass plates.
Does anyone know of a Mammogram center that uses Bella Blankets or any cloth covering on the mammogram glass plates ? I had a yeast infection under my breasts after the last test. I also have tears from the glass plate. The cloth coverings are supposed to remedy that. I am in the Dallas, Fort Worth area
Does anyone know of a Mammogram center that uses Bella Blankets or any cloth covering on the mammogram glass plates ? I had a yeast infection under my breasts after the last test. I also have tears from the glass plate. The cloth coverings are supposed to remedy that. I am in the Dallas, Fort Worth area
3Van4Ruth
in
SHARE Metastatic Breast Cancer
1 month ago
Can psa fluctuate while on adt?
My husband has been on Eligard and Xtandi since 2021. He’d been undetectable until this past November when his psa rose to 0.004, detectable. But then he became undetectable once more until yesterday’s psa test when it became detectable again. His oncologist switched his Xtandi to another similar med
My husband has been on Eligard and Xtandi since 2021. He’d been undetectable until this past November when his psa rose to 0.004, detectable. But then he became undetectable once more until yesterday’s psa test when it became detectable again. His oncologist switched his Xtandi to another similar med
artmus
in
Advanced Prostate Cancer
1 month ago
CA125 and HPV
Hi I’m a 49 year old mum to 4 kids 19 and under. I have suffered from stomach pains for years and recently it’s been getting a lot worse especially the bloating. There is days i feel so bloated i could burst and have a hot water bottle permanently attached to me. Anyway, after much nagging from my
Hi I’m a 49 year old mum to 4 kids 19 and under. I have suffered from stomach pains for years and recently it’s been getting a lot worse especially the bloating. There is days i feel so bloated i could burst and have a hot water bottle permanently attached to me. Anyway, after much nagging from my
lilysocks
in
My Ovacome
1 month ago
Enzalutamide before Abiraterone
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2822420 A recent study concludes that Enzalutamide is slightly more beneficial if used before Abiraterone. This is contrary to other studies which some of you have posted recently. “Findings In this cohort study of 5779 patients with mCRPC
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2822420 A recent study concludes that Enzalutamide is slightly more beneficial if used before Abiraterone. This is contrary to other studies which some of you have posted recently. “Findings In this cohort study of 5779 patients with mCRPC
Ausi
in
Advanced Prostate Cancer
1 month ago
What's next?
Surgery, pelvic and prostate bed radiation. 2 years zytiga/lupron. PSA <0.04 for 2 years. Radiation oncologist agrees with 2 MO no scans till PSA rises. 2 MO say no more treatment unless PSA rises.What is best next treatment if needed? Nervous not being proactive.Both MOs agreed only 2 years lupron.
Surgery, pelvic and prostate bed radiation. 2 years zytiga/lupron. PSA <0.04 for 2 years. Radiation oncologist agrees with 2 MO no scans till PSA rises. 2 MO say no more treatment unless PSA rises.What is best next treatment if needed? Nervous not being proactive.Both MOs agreed only 2 years lupron.
rfgh20
in
Advanced Prostate Cancer
1 month ago
PSA and Testosterone update
My PSA increased after 6 weeks to 0.04 but my T dropped to 8.87 not sure how to think of this. I had no expectation, so it is what it is. Plan is my MO will give me a PSMA scan if a I get to 2.0 PSA. These numbers are so small that I know that they are meaningless at this point but I would still
My PSA increased after 6 weeks to 0.04 but my T dropped to 8.87 not sure how to think of this. I had no expectation, so it is what it is. Plan is my MO will give me a PSMA scan if a I get to 2.0 PSA. These numbers are so small that I know that they are meaningless at this point but I would still
Scout4answers
in
Advanced Prostate Cancer
1 month ago
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