update

[LB100]

While I read everyday, I haven’t updated for almost 2 years

Life is still good, my husband is now on his 6th year of enzalutamide and Zolodex

Bone scan shows very little change, bit of skull uptake but the rib uptake shown on the scan 6 months ago has gone

PSA has bounced between 1 and 5 in the last two years but no pain, still walking 3 or 4 miles with the dog everyday. A little fatigue but nothing that disrupts life

Sending love

[Tall_Allen]

Thanks for the update which all sounds good.

[Don717]

Glad to hear it!!

[Mike1971]

Nice!

[monte1111]

Great news. 7 years with Xtandi now.

[dockam]

Sweet 💙🤙

[RichieZ]

That's great I'm going on my 5th year. Just stopped Xtandi. I do take high dose Vitamin C IV's (75gm) and it really help with bone pain. You may want to look into that. I have a functional medicine doctor that prescribed it and administers it, I feel like it really helped me.

[Tinkudi in reply to RichieZ]

How often do you take the vitamin c infusions.

[Tinkudi]

can you share what his initial diagnosis and Gleason score were. Is he taking 160 mg xtandi

[LB100 in reply to Tinkudi]

He was diagnosed almost 10 years ago, PSA 700, widespread bone mets, never given a Gleason score

Yes, he takes 160mg Xtandi

[Tinkudi in reply to LB100]

Thank you. I pray you’ll will have many more years 🙏🏻

Did he do any chemo or radiation too ?

[LB100 in reply to Tinkudi]

No, just hormone treatment so far

[Nusch]

Very glad to hear and thx for update. All the best for the future!

[hopeful1956]

That's great news to hear. May he have many more years ahead. My husband is in his 3rd year and is still doing relatively well. No chemo or radiation yet. Just Abi, Prednisone, Zoladex and possibly Niraparib (he's in a study so not 100% sure if it's the parb or placebo).

[BillyVolt]

encouraging news. Keep it going. 💪

[StaceyMac]

I'm new here as my dad is currently undergoing a diagnosis in the UK and reading your posts has really reassured me. Do you mind if I ask if your husband had any symptoms when first diagnosed? I'm really pleased to hear he is doing well

[LB100 in reply to StaceyMac]

Some weight loss and urinary problems

[Chipichape1]

how old is he? When was he diagnosed?

[LB100 in reply to Chipichape1]

64

[Mgtd]

Good news. Wishing continued success in the future.

[j-o-h-n]

Give the dog a rest........... Great news btw...

Good Luck, Good Health and Good Humor.

j-o-h-n