update: While I read everyday, I haven... - Advanced Prostate...

Advanced Prostate Cancer

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update

LB100 profile image
19 Replies

While I read everyday, I haven’t updated for almost 2 years

Life is still good, my husband is now on his 6th year of enzalutamide and Zolodex

Bone scan shows very little change, bit of skull uptake but the rib uptake shown on the scan 6 months ago has gone

PSA has bounced between 1 and 5 in the last two years but no pain, still walking 3 or 4 miles with the dog everyday. A little fatigue but nothing that disrupts life

Sending love

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LB100 profile image
LB100
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19 Replies
Tall_Allen profile image
Tall_Allen

Thanks for the update which all sounds good.

Don717 profile image
Don717

Glad to hear it!!

Mike1971 profile image
Mike1971

Nice!

monte1111 profile image
monte1111

Great news. 7 years with Xtandi now.

dockam profile image
dockam

Sweet 💙🤙

Tinkudi profile image
Tinkudi

How often do you take the vitamin c infusions.

Tinkudi profile image
Tinkudi

can you share what his initial diagnosis and Gleason score were. Is he taking 160 mg xtandi

LB100 profile image
LB100 in reply toTinkudi

He was diagnosed almost 10 years ago, PSA 700, widespread bone mets, never given a Gleason score

Yes, he takes 160mg Xtandi

Tinkudi profile image
Tinkudi in reply toLB100

Thank you. I pray you’ll will have many more years 🙏🏻

Did he do any chemo or radiation too ?

LB100 profile image
LB100 in reply toTinkudi

No, just hormone treatment so far

Nusch profile image
Nusch

Very glad to hear and thx for update. All the best for the future!

hopeful1956 profile image
hopeful1956

That's great news to hear. May he have many more years ahead. My husband is in his 3rd year and is still doing relatively well. No chemo or radiation yet. Just Abi, Prednisone, Zoladex and possibly Niraparib (he's in a study so not 100% sure if it's the parb or placebo).

BillyVolt profile image
BillyVolt

encouraging news. Keep it going. 💪

StaceyMac profile image
StaceyMac

I'm new here as my dad is currently undergoing a diagnosis in the UK and reading your posts has really reassured me. Do you mind if I ask if your husband had any symptoms when first diagnosed? I'm really pleased to hear he is doing well :)

LB100 profile image
LB100 in reply toStaceyMac

Some weight loss and urinary problems

Chipichape1 profile image
Chipichape1

how old is he? When was he diagnosed?

LB100 profile image
LB100 in reply toChipichape1

64

Mgtd profile image
Mgtd

Good news. Wishing continued success in the future.

j-o-h-n profile image
j-o-h-n

Give the dog a rest........... Great news btw...

Good Luck, Good Health and Good Humor.

j-o-h-n

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