Experiences with

Colomycin

Hi Sorry for the yucky detail but I’d be interested to hear from anyone on inhaled colomycin. I was on it for 3 months earlier in the year then stopped, cultured Pseudo again, took a course of Cipro and now back on inhaled Colomycin.

Hi all I’m a asthma,Bronchiestasis sufferer and I’m going on a nebulised Colomycin trial soon. Had anyone who uses this had an any great success with it and is there any side effects taking this ? Many thanks 😊

Please Someone has posted about the ineb hand held that you use with Promix ( aka another form of colomycin ) which sounds great! but can't find out how to get hold of one . Is that in much use in England?? Also anyone tried the Nebulafix?? Thanks!

This is the first time fling since bronchiectasis diagnosis in 2020 I have a large amount of meds to take and want to take them in hand luggage on the risk of my suitcase going missing The meds include Colomycin bd with saline to dilute and also hypertonic saline As this includes liquids , will this

I am on azithromycin 3 times a week and colomycin nebuliser twice a day. I'm unable to produce even a pin head of sputum so I'm a bit worried about what's going on. I am quite wheezy.

Recent flare up managed to tolerate the Cipro by taking PPI at same time ....consultant recently suggested I start nebulized colomycin.... In part because I am a carer for husband with advanced Parkinsons, and need to stay well / out of Hospital.

Hi ... Have bronchiectasis with pseudomonas ... Been actively treating it with ACBT / AD.. And azithromycin for 1 year now. Had 2 flare ups( not sure whether first one of them was for sure) First flare up had to stop Ciprofloxscin after 10 days because of awful heartburn. Recent flare up managed to

Hi, Does anyone using nebulised Colomycin for Pseudomonas also use Salbutomol before the nebulised Colomycin. I was given this at the hospital but I am getting a horrible panic type jittery and shaky reaction from it. I have tried the Colomycin without it and feel much better.

Hi, I just wondered how long you’re usually prescribed nebulised Colomycin for? I had 3 month course last year, then it was stopped, but due to repeated infections I was prescribed another course but for 6 months this time (or until my next review)?

Hi, I’ve been using inhaled Colomycin for a week now after a tricky start! I’m experienced increased mucus production (I don’t usually produce much) and I feel slightly more breathless.

Was puzzled why had it, rummaged through rubbish bag of wipes etc left by nurses, and found leaflet that had come with COLOMYCIN. Possible side effects include dizziness and loss of balance. I regret that the nurses had not given me the leaflets, and I had not asked for them.

Hi, I have severe asthma and pseudomonas infection for which I’ve been put back on Colomycin nebs following an infection that wouldn’t resolve, but did after I asked my GP if we could try a course of cipro (they didn’t try that first as sputum sample didn’t show pseudomonas).

since 12yrs old and always been controlled since mid twentys .Have changed back to an.old inhaler which did control it only get it on movement .Has anyone experienced this with colomycin?

I'm taking colomycin nebuliser twice a day, azithromycin 5 times a week at the moment, reducing to usual 3 times from the middle of February, saline nebuliser, Carbocisteine 2 tablets 3 times a day. Any suggestions would be welcome! Hope everyone is safe and well, take care!

Hi - I posted recently about having had a pseudomonas infection which I was treated with nebulised colomycin. Since stopping I’ve developed a cough again with sputum and had temperature spikes similar to before.

I had ciprofloxin first, then my respiratory consultant prescribed 3 months of colomycin nebs - I’m due a review next week and just wondering what to expect? Thanks

My normal other one is Colomycin for pseudomonas. Thank you 🌺🌸

I am on twice daily nebulised Colomycin that's all. Unless I get an infection when I am prescribed Ciprofloxacin which has horrid side effects (for me) and just been told that this disease is resistant to 99% of antibiotics. What do fellow sufferers take, any help much appreciated. ps not in UK

I originally had pseudomonas and was treated with colomycin which supposedly has eradicated them. 7 My recent sputum sample showed two new pathogens in my lungs which my respiratory nurse said were difficult to treat.

I’m on inhaled Colomycin and it’s never ending and I’m so fed up! I’m asthmatic as well so inhale on a nebuliser for this. Staph seems to be fairly colonised as does pseudomonas. So any advice or cheery word is welcome xx