Colomycin

[PAP48]

I have just had my nebulised Colomycin increased from 1 million to 2 million. Has anyone had any side effects from the 2 million dosage? Many thanks.

[Swizzy]

The increased amount should just be more affective against the bacteria. There is an outside chance of broncho spasm if your lungs don't like it. You will know if this happens because you will become breathless. I can't nebulise any of the abs now because of broncho spasm.

[PAP48 in reply to Swizzy]

Thank you Swizzy. The reason I asked is that I’m feeling a bit unwell at the moment and trying to distinguish between effects of higher dose Colomycin and an exacerbation. Keep well.

[Swizzy in reply to PAP48]

Remembering that I am not a doctor and speak from personal experience - I presume that you have been given the higher dose because you have an exacerbation that is not responding to the lower dose. You not feeling well is likely to be the exacerbation which will also be giving the usual symptoms of one - feeling poorly, darker mucus, more mucus.. Colomycin in a higher dose is not going to give you those symptoms but may make you wheezy if your lungs are not happy with the extra going in there, which is also very unlikely if you have been tolerating the lower dose.

[PAP48 in reply to Swizzy]

I have also been given a rescue pack of Cipro which I may have to resort to if I don’t feel better soon. Thank you for replying. Typical feeling like this when there’s so much to do for the big day!

[Swizzy in reply to PAP48]

If it was me, with all the xmas work coming up, I would take the ciproNebulised antibiotic is really meant to keep the bacteria numbers down but is not quickly effective if they have been having a party and got out of hand.

[PAP48 in reply to Swizzy]

Thank you Swizzy, that’s my plan now so hopefully Cipro will start working in a few days.

[janedivney]

The only time I’ve taken 2million is with a flare-up of pseudomonas, so only for 2 weeks at a time, but I didn’t notice any side effects. I do hope you feel better soon. Is 2million going to be a permanent dose for you? X

[PAP48 in reply to janedivney]

Thank you janedivney. No it’s not permanent, advised to take the stronger dose until the middle of January. Keep well.

[Kiwib]

Hi - I have been (still am) on 2million Colomycin 2x daily for 2+ years - I have noticed no problems (I think..) during that period - it can only fight the infections - best wishes

[PAP48 in reply to Kiwib]

Thank you Kiwib, I’m sure my unwell feeling is due to an exacerbation of Pseudomonas, I’ve also been given a course of Cipro so may have to resort to that too. Keep well.

[Mooka]

I’ve been on 2 million for over six years. I had some chest tightness when I first started it so had salbutamol added in. I’ve not had any other side effects. I was told when I first started this it’s to keep the numbers down after antibiotic treatment. In my case two weeks of double iv antibiotics. I hope you feel better soon.

[PAP48 in reply to Mooka]

Thank you Mooka. I’ve been given Cipro as an emergency pack but I think I’ll need to use it in the hopes I feel better for Christmas. Keep well.

[Mooka]

sounds like a good idea.

[Germantara]

Sorry I'm unable to help some one on forum might be able to share an experience

[PAP48 in reply to Germantara]

Thank you Germantara, I think I have a plan now in an effort to feel better by Xmas Day. Keep well.