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Experiences with
Collagenous colitis
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Cll and Ulcer Colitis
Hi everyone, I’m about to have my first treatment for cll. I also have ulcer colitis. Has anyone else had the same situation? Be good to hear feedback on any complications with having ulcer colitis and getting venetoclax medication. My doctor did say that one patient of hers had FCR treatment and it
Hi everyone, I’m about to have my first treatment for cll. I also have ulcer colitis. Has anyone else had the same situation? Be good to hear feedback on any complications with having ulcer colitis and getting venetoclax medication. My doctor did say that one patient of hers had FCR treatment and it
Driverps1
in
CLL Support
3 years ago
Salofalk granules
Hello, I’m recently diagnosed with Ulcerative colitis and started taking 3mg of salofalk daily. I’m on day three and I’m literally stuck on the loo with awful diarrhoea & tummy cramps. Is this common when starting this medication. I feel worse now than before I started them! Thank you
Hello, I’m recently diagnosed with Ulcerative colitis and started taking 3mg of salofalk daily. I’m on day three and I’m literally stuck on the loo with awful diarrhoea & tummy cramps. Is this common when starting this medication. I feel worse now than before I started them! Thank you
Scout
in
Crohn's and Colitis Support
3 years ago
IBD tracker app recommendations
Hello all I have recently been diagnosed with colitis. I would like to track my meds, symptoms, food etc. An app would be good rather than paper. I can see a few on the App Store but they don’t have a lot of reviews. Downloaded a couple but don’t seem that good. Any recommendations?? Thanks
Hello all I have recently been diagnosed with colitis. I would like to track my meds, symptoms, food etc. An app would be good rather than paper. I can see a few on the App Store but they don’t have a lot of reviews. Downloaded a couple but don’t seem that good. Any recommendations?? Thanks
Hephzi
in
Crohn's and Colitis Support
3 years ago
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Anyone with Calprotectin level higher that 6000?
My son (14) has been diagnosed with Crohn's 5 years ago. His initial Calprotectin levels were between 2000 and 3000. After a year and a half of Prednisone, Salazopyrin and Entocort his levels shot up to over 6000 (literally off the chart). The doctor ordered another test assuming that it was a false
My son (14) has been diagnosed with Crohn's 5 years ago. His initial Calprotectin levels were between 2000 and 3000. After a year and a half of Prednisone, Salazopyrin and Entocort his levels shot up to over 6000 (literally off the chart). The doctor ordered another test assuming that it was a false
BelindaSteyn
in
Crohn's and Colitis Support
3 years ago
Stopped: B. Longum BB536 (Morinaga) probiotic for gut related health issues (IBS) -> switched to b. infantis 35624 (Alflorex)
I'll no longer take Alflorex and will try another probiotic, Bacillus Coagulans. I also don't take bacillus coagulans anymore. These probiotics weren't beneficial for my health symptoms. **************************** Just started, the 11th of August, with a single strain probiotic, bifidobacterium longum
I'll no longer take Alflorex and will try another probiotic, Bacillus Coagulans. I also don't take bacillus coagulans anymore. These probiotics weren't beneficial for my health symptoms. **************************** Just started, the 11th of August, with a single strain probiotic, bifidobacterium longum
Meleber
in
IBS Network
3 years ago
Injection
Should I have my golimumab injection today if I have my shoulder surgery on the 28th july
Should I have my golimumab injection today if I have my shoulder surgery on the 28th july
Deejojo
in
NRAS
3 years ago
PMR & IBD connection
Curious to know if anyone has developed IBD after being diagnosed with PMR? I was diagnosed with PMR in January this year and have now been diagnosed with Colitis after having a horrendous 7 weeks and awaiting treatment. I was curious to know if the two are connected in any way. Thoughts greatly anticipated
Curious to know if anyone has developed IBD after being diagnosed with PMR? I was diagnosed with PMR in January this year and have now been diagnosed with Colitis after having a horrendous 7 weeks and awaiting treatment. I was curious to know if the two are connected in any way. Thoughts greatly anticipated
Yealink
in
PMRGCAuk
3 years ago
When people talk about having flares, what does that mean with PMR?
I also have ulcerative colitis and know what it means in that context. With PMR I’m still trying to figure out what my base line is, or even if this is PMR. I was started at 60 mg for possible GCA but they believe that is ruled out (no inflammation markers, negative biopsy). The prednisone totally unlocked
I also have ulcerative colitis and know what it means in that context. With PMR I’m still trying to figure out what my base line is, or even if this is PMR. I was started at 60 mg for possible GCA but they believe that is ruled out (no inflammation markers, negative biopsy). The prednisone totally unlocked
Here1am
in
PMRGCAuk
3 years ago
Colonoscopy procedure
Having a colonoscopy and been told to stop apixaban 48 hours before procedure. I am a little concerned, as I keep reading its dangerous to stop them , I had an ablation a year ago.
Having a colonoscopy and been told to stop apixaban 48 hours before procedure. I am a little concerned, as I keep reading its dangerous to stop them , I had an ablation a year ago.
Challis
in
Arrhythmia Alliance
3 years ago
Goodbye Simponi, going to try baricitinib
I have been taking Simponi, a once a month biologic injection, for 6 months now. The effect on my painful joints has been minimal, and it would only last 3 to 4 weeks each month. With the pain, stiffness, and exhaustion I have dealt with all these months, I can't wait to leave it behind. I will be
I have been taking Simponi, a once a month biologic injection, for 6 months now. The effect on my painful joints has been minimal, and it would only last 3 to 4 weeks each month. With the pain, stiffness, and exhaustion I have dealt with all these months, I can't wait to leave it behind. I will be
ElizabethW
in
NRAS
3 years ago
meningitis vaccine
Do CLL patients who have never had meningitis vaccine need two doses? I am asking about the meningitis vaccine for strains ACWY, such as Menactra, not the Hib/MenC vaccine. It looks like two doses are recommended based on google search but my Dr did not mention getting a second dose.
Do CLL patients who have never had meningitis vaccine need two doses? I am asking about the meningitis vaccine for strains ACWY, such as Menactra, not the Hib/MenC vaccine. It looks like two doses are recommended based on google search but my Dr did not mention getting a second dose.
pth123
in
CLL Support
3 years ago
Has anyone here tried SpoGest-IB probiotic?
Does it work for UC like what they advertised? I'm 46 now and have been living with Ulcerative Colitis for 12 years and experiencing bouts of diarrhea on and off for a long time. I'm currently on Octasa 800mg and want to know if this probiotic can be used alongside my current meds. Any recommendations
Does it work for UC like what they advertised? I'm 46 now and have been living with Ulcerative Colitis for 12 years and experiencing bouts of diarrhea on and off for a long time. I'm currently on Octasa 800mg and want to know if this probiotic can be used alongside my current meds. Any recommendations
Sam_Peter
in
Crohn's and Colitis Support
3 years ago
Buscopan and it's effectiveness
Have u had a colonoscopy to rule out the obvious! I find buscopan has little effect. Pain like that sounds like trapped gas. Perhaps check your diet. Good luck
Have u had a colonoscopy to rule out the obvious! I find buscopan has little effect. Pain like that sounds like trapped gas. Perhaps check your diet. Good luck
Hidden
in
IBS Network
3 years ago
Ani Lavator Rectal Spasms
Have been diagnosed with
Collagenous
Colitis
, Gerd, IBS, and others. The last year I started having rectal spasms and pain below my belly button. Went through dozens of test and finally was told it was Pelvic Floor dysfunction.
Have been diagnosed with
Collagenous
Colitis
, Gerd, IBS, and others. The last year I started having rectal spasms and pain below my belly button. Went through dozens of test and finally was told it was Pelvic Floor dysfunction.
3Chihuahuas
in
Pain Concern
4 years ago
Problems with Mesalazine
Hello. I was diagnosed with UC 5 years ago and put on 4000mg a day and 3 suppositories a week. I don’t feel well with water retention and ITI’s. My calprotectin test is 8. Could Pentasa cause my symptoms?
Hello. I was diagnosed with UC 5 years ago and put on 4000mg a day and 3 suppositories a week. I don’t feel well with water retention and ITI’s. My calprotectin test is 8. Could Pentasa cause my symptoms?
Idalmis
in
Crohn's and Colitis Support
3 years ago
Mesalazine intolerance
Hi Guys, I have been diagnosed Ulcerative Colitis a while back and just been to hospital after a recent flare-up. I'm now home and taking steriods, but I'm also taking mesalazine. My problem is that every time I start taking mezalazine my symptoms get so much worse in just a day or two (night time
Hi Guys, I have been diagnosed Ulcerative Colitis a while back and just been to hospital after a recent flare-up. I'm now home and taking steriods, but I'm also taking mesalazine. My problem is that every time I start taking mezalazine my symptoms get so much worse in just a day or two (night time
rg1987
in
Crohn's and Colitis Support
4 years ago
I am new here having finally been diagnosed with Crohn’s Colitis having previously told it was Ulcerated Colitis
A belated Merry Christmas everyone. I have finally had it confirmed that I have Crohn’s Colitis but am struggling with a very bad flare up which, so far, has lasted nine weeks. My GP doubled my medication to 4800 mg of Octasa (Mesalazine) a day but, after two weeks, it doesn’t seem to have had any
A belated Merry Christmas everyone. I have finally had it confirmed that I have Crohn’s Colitis but am struggling with a very bad flare up which, so far, has lasted nine weeks. My GP doubled my medication to 4800 mg of Octasa (Mesalazine) a day but, after two weeks, it doesn’t seem to have had any
gmm55
in
LUPUS UK
4 years ago
Inflammation after colitis flare
Hi following my last colitis flare up Iv been left with severe inflammation and pain i have proctitis and currently on mesalamine and suppository lidocaine for pain. Has anybody else had this after a flare up?
Hi following my last colitis flare up Iv been left with severe inflammation and pain i have proctitis and currently on mesalamine and suppository lidocaine for pain. Has anybody else had this after a flare up?
Bulldoguk
in
Crohn's and Colitis Support
4 years ago
Simponi
Well I had to stop my simponi injections what I originally thought was ibs it must have been the simponi giving me the stomach spasms not had my injection this month and they have stopped so what next:(
Well I had to stop my simponi injections what I originally thought was ibs it must have been the simponi giving me the stomach spasms not had my injection this month and they have stopped so what next:(
Deejojo
in
NRAS
4 years ago
Medication ibs
Hi I’m looking to see if anyone can advise or recommend whether it better too take buscopan or mebevrin instead it mainly for the cramp but bloating the doc did suggest buscopan but I take amatrytline and it does say that buscopan taken with this can cause side effects so I’m not sure how has anybody
Hi I’m looking to see if anyone can advise or recommend whether it better too take buscopan or mebevrin instead it mainly for the cramp but bloating the doc did suggest buscopan but I take amatrytline and it does say that buscopan taken with this can cause side effects so I’m not sure how has anybody
Bruce33
in
IBS Network
4 years ago
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