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No support for Dipipanone and Cyclizine withdrawal.
I have been through a lot of pain through the year's with multiple operation's and was put on Dipipanone and Cyclizine approx. 20 year's ago but they were stopped with no warning. I have had no positive help or support from the medical profession , was prescribed 60 mg Duloxetine and had 5 or 6 night's
I have been through a lot of pain through the year's with multiple operation's and was put on Dipipanone and Cyclizine approx. 20 year's ago but they were stopped with no warning. I have had no positive help or support from the medical profession , was prescribed 60 mg Duloxetine and had 5 or 6 night's
Danni54
in
Restless Legs Syndrome
1 year ago
Dipipanone and Cyclizine
Hi all. I was prescribed Dipipanone and Cyclizine when it was called Diconal. I had lung cancer and a Lobectomy 5 year's ago and because our hospital ignored an Xray of the tumour on my lung for 15 month's I have been left with multiple health problems which have left me with awful pain. 1 problem
Hi all. I was prescribed Dipipanone and Cyclizine when it was called Diconal. I had lung cancer and a Lobectomy 5 year's ago and because our hospital ignored an Xray of the tumour on my lung for 15 month's I have been left with multiple health problems which have left me with awful pain. 1 problem
Danni54
in
Pain Concern
1 year ago
Spiculated nodule found on right lung on post chemotherapy scan after lobectomy on left lung in December 2022.
Hello everyone, Has anyone undergone a lobectomy and four cycles of chemo to find that there is another suspicious nodule on the opposite lung. If so,what were the options?
Hello everyone, Has anyone undergone a lobectomy and four cycles of chemo to find that there is another suspicious nodule on the opposite lung. If so,what were the options?
K2471147
in
The Roy Castle Lung Cancer Foundation
1 year ago
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Never ending pain.
Hi all. I haven't written here before but I really feel the need for some help and support because I haven't had any from the medical profession. I have suffered off and on with anxiety and depression for year's but especially when somebody that I thought was a good friend stabbed me in the back and
Hi all. I haven't written here before but I really feel the need for some help and support because I haven't had any from the medical profession. I have suffered off and on with anxiety and depression for year's but especially when somebody that I thought was a good friend stabbed me in the back and
Danni54
in
Anxiety and Depression Support
1 year ago
PET SUV 5 years s/p resection
Has anyone had a PET scan (5 years s/p RL lobectomy, R UL wedge for stage 1 adenocarcinoma) light up near suture site upper lobe (SUV 2.0) and it NOT be a recurrence? Going to see MD to discuss results today :(. Sadly preparing for bad news
Has anyone had a PET scan (5 years s/p RL lobectomy, R UL wedge for stage 1 adenocarcinoma) light up near suture site upper lobe (SUV 2.0) and it NOT be a recurrence? Going to see MD to discuss results today :(. Sadly preparing for bad news
kri312
in
The Roy Castle Lung Cancer Foundation
1 year ago
PET Scan follow up
Results from test are in and unfortunatley don't see my MD until Tuesday - looks like they are suggesting recurrence :(. Just when I hit the magic 5 year mark too..... Study Result Impression Increased thickening and nodularity along the anteromedial aspect of the suture line since 2019 with heterogeneous
Results from test are in and unfortunatley don't see my MD until Tuesday - looks like they are suggesting recurrence :(. Just when I hit the magic 5 year mark too..... Study Result Impression Increased thickening and nodularity along the anteromedial aspect of the suture line since 2019 with heterogeneous
kri312
in
Lung Cancer Support
1 year ago
results - post op lobectomy
hi šš½ What does mean please? appear polytypic. AE1/AE3 is negative. The lymph node shows prominent sinus histiocytosis. Features are consistent with a reactive hilar lymph node. In summary, there is a prominent non-specific bronchial inflammatory infiltrate with no obvious evidence of lymphoid
hi šš½ What does mean please? appear polytypic. AE1/AE3 is negative. The lymph node shows prominent sinus histiocytosis. Features are consistent with a reactive hilar lymph node. In summary, there is a prominent non-specific bronchial inflammatory infiltrate with no obvious evidence of lymphoid
AnnaDora
in
The Roy Castle Lung Cancer Foundation
1 year ago
Follow up on RILP
Just wanted to share my situation dealing with consequences of an adverse reaction to some pallative radiation treatment I received. I posted a while back that I had been diagnosed with radiation induced lumbar sacral paraplexy that had affected my left leg to the point of no longer being able to walk
Just wanted to share my situation dealing with consequences of an adverse reaction to some pallative radiation treatment I received. I posted a while back that I had been diagnosed with radiation induced lumbar sacral paraplexy that had affected my left leg to the point of no longer being able to walk
Kentucky1
in
Advanced Prostate Cancer
1 year ago
PET scan ordered
Saw my Surgeon yesterday for a routine follow up and this was the CT scan. I have just hit my 5 year mark from R UL wedge and R LL lobectomy. He said he WAS NOT WORRIED. However, needed to do a PET Scan to rule anything out due to the radiologists report. He has never done this in the past. He said
Saw my Surgeon yesterday for a routine follow up and this was the CT scan. I have just hit my 5 year mark from R UL wedge and R LL lobectomy. He said he WAS NOT WORRIED. However, needed to do a PET Scan to rule anything out due to the radiologists report. He has never done this in the past. He said
kri312
in
Lung Cancer Support
1 year ago
Post lobectomy hoarse voice
hi my husband is two weeks post surgery (upper right lobectomy) and has intermittent hoarse voice. I am presuming this is nothing to be concerned about but does anyone have any suggestions to ease or improve the hoarseness?Thanks
hi my husband is two weeks post surgery (upper right lobectomy) and has intermittent hoarse voice. I am presuming this is nothing to be concerned about but does anyone have any suggestions to ease or improve the hoarseness?Thanks
Hopeful51
in
The Roy Castle Lung Cancer Foundation
1 year ago
Questions, question's ... problems 4 year's after Lobectomy !
Hi all. I haven't been here for quite a while but I wanted to ask for a bit of advice from those who had Adenocarcinoma of the lung and have had a Lobectomy. I won't go into what I have been through because it's in my profile but this site has been the only help I have had although I now have a new
Hi all. I haven't been here for quite a while but I wanted to ask for a bit of advice from those who had Adenocarcinoma of the lung and have had a Lobectomy. I won't go into what I have been through because it's in my profile but this site has been the only help I have had although I now have a new
Danni54
in
The Roy Castle Lung Cancer Foundation
1 year ago
Diagnosed 5 months post Operation with Fluid on the lung. Is this normal & will it clear up? Should I be concerned?
Hi everyone, I hope someone can help me understand my recent diagnosis. I'd a lower left lung lobectomy last November and recently had my follow up appointment which will be annually from now on. I was told by the registrar not the consultant that I'd fluid on my lung. I wasn't told anything more than
Hi everyone, I hope someone can help me understand my recent diagnosis. I'd a lower left lung lobectomy last November and recently had my follow up appointment which will be annually from now on. I was told by the registrar not the consultant that I'd fluid on my lung. I wasn't told anything more than
Eaglewings1
in
The Roy Castle Lung Cancer Foundation
1 year ago
post-surgery question
my husband just had lobectomy (upper right) for stage 1 lung cancer and is 2 days post-op. They have been unable to remove the drain so far as still a small leak. They are talking about ābaggingā this to send him home and say itās nothing to be concerned about and will just take a bit longer to heal
my husband just had lobectomy (upper right) for stage 1 lung cancer and is 2 days post-op. They have been unable to remove the drain so far as still a small leak. They are talking about ābaggingā this to send him home and say itās nothing to be concerned about and will just take a bit longer to heal
Hopeful51
in
The Roy Castle Lung Cancer Foundation
1 year ago
Treatment options
Hi all. I have very recently been diagnosed with a Stage One lump. I saw my Surgeon two days ago and was given to options. (1) Lobectomy (2) Radiotherapy. I do have some thoughts of my own, but I would appreciate any advice before I make my decision.
Hi all. I have very recently been diagnosed with a Stage One lump. I saw my Surgeon two days ago and was given to options. (1) Lobectomy (2) Radiotherapy. I do have some thoughts of my own, but I would appreciate any advice before I make my decision.
Rigger093
in
The Roy Castle Lung Cancer Foundation
1 year ago
Stoma refashion
I have a stoma since birth from hirshprungs that left me with a permenant colostomy. I have been told surgery for the stoma 23 years later as it had started retracting in 2014 but nobody would help. My skin has also seperated from the stoma also leaving a large wound. This will be my first surgery understanding
I have a stoma since birth from hirshprungs that left me with a permenant colostomy. I have been told surgery for the stoma 23 years later as it had started retracting in 2014 but nobody would help. My skin has also seperated from the stoma also leaving a large wound. This will be my first surgery understanding
Spicyramen
in
Living with a Stoma
1 year ago
What's on at Ovacome next week (week commencing 17 April 2023)?
Good afternoon everyone This is a post to let you all know about what's happening in Ovacome's Staying Connected programme next week - and to remind you all that you would be really welcome to join us. All these events are run online via Zoom. If anyone is unfamiliar with Zoom and would like support
Good afternoon everyone This is a post to let you all know about what's happening in Ovacome's Staying Connected programme next week - and to remind you all that you would be really welcome to join us. All these events are run online via Zoom. If anyone is unfamiliar with Zoom and would like support
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 year ago
another lump!
my partners only 8 weeks post op after lobectomy and 4 ribs removed.. 3A NSCC due to start chemo soon and has taken unwell. Heās now in hospital had a ct scan to show another lump to middle lobe.. same thing it looks like an abscess but thatās how the first presented. Iām so scared right now just when
my partners only 8 weeks post op after lobectomy and 4 ribs removed.. 3A NSCC due to start chemo soon and has taken unwell. Heās now in hospital had a ct scan to show another lump to middle lobe.. same thing it looks like an abscess but thatās how the first presented. Iām so scared right now just when
Clareoh
in
The Roy Castle Lung Cancer Foundation
1 year ago
pelvic and rectal pain
Iāve told my story before a few years ago and still having problems with my levator ani and internal sphincter after having a diverting colostomy which I thought would help my burning but it has made everything 200% worse!!!!! I have tried EVERYTHING that is out there and I do mean EVERYTHING!!! I
Iāve told my story before a few years ago and still having problems with my levator ani and internal sphincter after having a diverting colostomy which I thought would help my burning but it has made everything 200% worse!!!!! I have tried EVERYTHING that is out there and I do mean EVERYTHING!!! I
Karen1954
in
Pelvic Pain Support Network
1 year ago
latest bloods - thoughts please
Hello all History - partial lobectomy 2001 - no meds needed Remaining thyroid removed Sept 2021 - thyroxine 150mcg reduced to 125 and again to 100mcg June 2022. History of low ferritin- heavy bleeding every month due to a polyp that needs removing. I have no breakdowns of vitamins because theyāve
Hello all History - partial lobectomy 2001 - no meds needed Remaining thyroid removed Sept 2021 - thyroxine 150mcg reduced to 125 and again to 100mcg June 2022. History of low ferritin- heavy bleeding every month due to a polyp that needs removing. I have no breakdowns of vitamins because theyāve
Pow1977
in
Thyroid UK
1 year ago
weak voice
I had upper left lobectomy November 21 which went well and no further treatment required so feel very lucky. The cancer was discovered by chance following an X-ray for something else. Since November 22 I have suffered continuously with chest infections, one after another. Iām being treated for COPD
I had upper left lobectomy November 21 which went well and no further treatment required so feel very lucky. The cancer was discovered by chance following an X-ray for something else. Since November 22 I have suffered continuously with chest infections, one after another. Iām being treated for COPD
Brookbond
in
The Roy Castle Lung Cancer Foundation
1 year ago
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