I have a rhuemy appointment tomorrow and im hoping I get some medication which will help...been hoping for past year though!
Just wondering am I been naive in thinking its possible to be totally symptom free?
I was given Colchicine to try at the beginning of April when I finally got a diagnosis of 'possible' behcets and I havent noticed any difference in my symptoms if not they are getting worse. Im still getting mouth ulcers/uclers down below, admittedly they are not last as long so the Colchicine must be doing something. However I have noticed no difference with the joint pain and fatigue. Im now suffering with really bad muscle ache in the tops of my arms and legs. Pushing a hoover round/washing my hair is agony feels like I have been working out in the gym for weeks on end. Im 27 so I really should be able to push a hoover round and do other activities without having such severe muscle aches.
My joints in my hands and especially my knees and hips are driving me crazy with constant throbbing. My hip feels like a nerve is trapped as every time I take a step I get a shooting pain up and down my leg.Its become too painful to sleep on. I take Amitriptyline on a night but even this is not helping like it did.
Also a few weeks ago I started with like flu like symptoms then came out covered all over my arms,chest and face with a red pimply rash...I took pictures to show rhuemy. It only lasted just over a week and then went wasnt painful or itchy just looked strange. Has anyone had this?
I have taken steroids in the past and they havent helped....my brother has crohns and is steroid resistant too so must be a family thing?
Just wondered if it is possible to totally get rid of symptoms and if anyone has achieved this? Are some drugs better for treating Behcets then others?