Search
Search
About
Log in
Join
Experiences with
Colchicine / Probenecid
Posts
Communities
375 public posts
Filter results
I just want to be normal! I hate this...
I have had Behcet's since I was about 3 and I was only diagnosed 12 months ago. I am in my mid 30's. I am soooo fed up. I only found out what it is like to feel normal when on prednisolone Steriods. If I am not on sterioids I smoke cigarettes to stop my mouth ulcers. I am so fed up with hurting, headaches
I have had Behcet's since I was about 3 and I was only diagnosed 12 months ago. I am in my mid 30's. I am soooo fed up. I only found out what it is like to feel normal when on prednisolone Steriods. If I am not on sterioids I smoke cigarettes to stop my mouth ulcers. I am so fed up with hurting, headaches
stormie
in
Behçet's UK
11 years ago
I've had high LFT readings for a while now...worried not going down !
I've had high LFT readings for a while now .. My last one was 150 ALT ... Getting quite worried as its not going lower after I stopped Aza & colchicine .. Any one else had high LFT's ?
I've had high LFT readings for a while now .. My last one was 150 ALT ... Getting quite worried as its not going lower after I stopped Aza & colchicine .. Any one else had high LFT's ?
SignalBoxer
in
Behçet's UK
11 years ago
No mouth ulceration but sore gums
Havn't had mouth ulcers since starting colchicine but I have really sore, inflamed gums. They feel supersized but don't look as if I have gingivitis. This is a new thing for me....I will follow the advice I found about using kiddies toothpaste etc and am using corsodyl mouthwash. Just wondered if this
Havn't had mouth ulcers since starting colchicine but I have really sore, inflamed gums. They feel supersized but don't look as if I have gingivitis. This is a new thing for me....I will follow the advice I found about using kiddies toothpaste etc and am using corsodyl mouthwash. Just wondered if this
goodlife
in
Behçet's UK
11 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Colchicine making me sick
Ive been getting cramps on and off since i started these tablets along with the worst burps in the world ,, the last two day's ive been stuck in bed with cramps from hell along with the most horrible burps that make me want to be sick ,, anyone else get these?
Ive been getting cramps on and off since i started these tablets along with the worst burps in the world ,, the last two day's ive been stuck in bed with cramps from hell along with the most horrible burps that make me want to be sick ,, anyone else get these?
samhawks
in
Behçet's UK
11 years ago
Does stress trigger more Behcets symptoms?
I was diagnosed with Behcets in 1997 after having ulcers every few months.. they gave me colchicine for a few years and everything seemed mostly under control for a long time. I had another flare up in 2007, but other than that, from time to time I'd feel a little nausea and fatigue, but it would never
I was diagnosed with Behcets in 1997 after having ulcers every few months.. they gave me colchicine for a few years and everything seemed mostly under control for a long time. I had another flare up in 2007, but other than that, from time to time I'd feel a little nausea and fatigue, but it would never
Hidden
in
ABDA
11 years ago
Diagnosed with Behcets in 1997 and now I have unexplained symptoms... getting very frustrating. Dr doesn't think it's Behcets..
I was diagnosed with Behcets in 1997 after having ulcers every few months.. they gave me colchicine for a few years and everything seemed mostly under control for a long time. Now though, I'm at a stressful job living away from home and have been unhappy with where I'm at for a while.... I'm curious
I was diagnosed with Behcets in 1997 after having ulcers every few months.. they gave me colchicine for a few years and everything seemed mostly under control for a long time. Now though, I'm at a stressful job living away from home and have been unhappy with where I'm at for a while.... I'm curious
Hidden
in
Behçet's UK
11 years ago
Probable Behcets - treatment to start
Hi, Was told by my Dermatologist that I probably have Behcet's so have to start colchicine tomorrow. I will be taking 1 per day for the first week, 2 in the second and 3 in the third in the hope that the 3 will not cause me any problems as there seems to be a number of side-effects with this medication
Hi, Was told by my Dermatologist that I probably have Behcet's so have to start colchicine tomorrow. I will be taking 1 per day for the first week, 2 in the second and 3 in the third in the hope that the 3 will not cause me any problems as there seems to be a number of side-effects with this medication
moflo
in
Behçet's UK
11 years ago
colchicine
has anyone been given these colchicine to stop flare up ??
has anyone been given these colchicine to stop flare up ??
samhawks
in
Behçet's UK
11 years ago
colchicine
has anyone been given these colchicine to stop flare up ??
has anyone been given these colchicine to stop flare up ??
samhawks
in
Behçet's UK
11 years ago
Other treatments for Behcet's
I don't see many people here mention that they've been on Trental (pentoxifylline) for Behcet's ulcerations, arthritis, and fatigue. It's inexpensive and has mild anti-TNFa properties like the biologics (Enbrel, Remicade, Humira, etc.), with fewer side effects and little risk. Low-dose nicotine patches
I don't see many people here mention that they've been on Trental (pentoxifylline) for Behcet's ulcerations, arthritis, and fatigue. It's inexpensive and has mild anti-TNFa properties like the biologics (Enbrel, Remicade, Humira, etc.), with fewer side effects and little risk. Low-dose nicotine patches
amietamant
in
Behçet's UK
11 years ago
SHARING GOOD NEWS - III
THE LINK BELOW STATES PEDIATRICS BUT CONTENTS APPLY TO ADULT PATIENTS: http://pediatrics.med.nyu.edu/conditions-we-treat/conditions/vitamin-b12-deficiency Diagnosis Your doctor will ask about your symptoms and medical history, and perform a physical exam. Tests may include the following:
THE LINK BELOW STATES PEDIATRICS BUT CONTENTS APPLY TO ADULT PATIENTS: http://pediatrics.med.nyu.edu/conditions-we-treat/conditions/vitamin-b12-deficiency Diagnosis Your doctor will ask about your symptoms and medical history, and perform a physical exam. Tests may include the following:
Hidden
in
Pernicious Anaemia Society
11 years ago
Constantly feeling unwell from Behcet's
Hi everyone, I probably already know what most of your answers will be, but I'm going to ask anyways. I have been in a bad flare now for the past 4 years, was just diagnosed last year, but I've actually been unwell since I was 16 (I'm now 25). Basically for the past 4 yrs I have felt sickly all the
Hi everyone, I probably already know what most of your answers will be, but I'm going to ask anyways. I have been in a bad flare now for the past 4 years, was just diagnosed last year, but I've actually been unwell since I was 16 (I'm now 25). Basically for the past 4 yrs I have felt sickly all the
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
To go sick or not to go sick ...that is the question ?
Hi everybody , well here goes - I will try not to moan ... Too much :-). I'm currently under prof Moots in Liverpool at the university hospital in Aintree for treatment with Behcets , I've had to stop the Azathioprine 3 to 4 weeks ago due to getting 3 high liver function tests ( LFT ) ... So im
Hi everybody , well here goes - I will try not to moan ... Too much :-). I'm currently under prof Moots in Liverpool at the university hospital in Aintree for treatment with Behcets , I've had to stop the Azathioprine 3 to 4 weeks ago due to getting 3 high liver function tests ( LFT ) ... So im
SignalBoxer
in
Behçet's UK
11 years ago
My Story So Far
I was recently asked what my behcets story was.... and it got me thinking it could be helpful to share it with others.... hmmm. I dnt really know where to begin with this one tbh. I have had a lot of symptoms since birth, however they would come and go, prob lasting no more than two weeks, with
I was recently asked what my behcets story was.... and it got me thinking it could be helpful to share it with others.... hmmm. I dnt really know where to begin with this one tbh. I have had a lot of symptoms since birth, however they would come and go, prob lasting no more than two weeks, with
lizzykarma
in
Behçet's UK
11 years ago
Tummy problems?
My daughter is struggling with tummy problems and is going to be referred to a specialist. Her main problem is constant tummy pain, swelling, diarrhoea and lack of appetite. She currently takes mebeverine which does nothing, she also takes 2 colchicine a day which may have to be increased in Feb. Is
My daughter is struggling with tummy problems and is going to be referred to a specialist. Her main problem is constant tummy pain, swelling, diarrhoea and lack of appetite. She currently takes mebeverine which does nothing, she also takes 2 colchicine a day which may have to be increased in Feb. Is
elaineyoung15
in
Behçet's UK
11 years ago
Azathioprine and pancreasitis
I have been on Aza for at least 6 months where it has been increased slowly upto 150mg a day. Have been getting a lot of nasty chest infections while on it but got very ill over Xmas with pancreasitis caused by Aza. Just wondered if this has happened to anyone else. Feel slightly fed up because I was
I have been on Aza for at least 6 months where it has been increased slowly upto 150mg a day. Have been getting a lot of nasty chest infections while on it but got very ill over Xmas with pancreasitis caused by Aza. Just wondered if this has happened to anyone else. Feel slightly fed up because I was
Wellington
in
Behçet's UK
11 years ago
Side affects of Azathioprine
Ive had BD on/off for about two years now and im under the Liverpool University Hospital for treatment with various symptoms ie... re -occuring mouth and genital ulcers and the aches / pains that come with it , including recently severe joint pain in fingers /knuckles /wrists and elbow joints. Im on
Ive had BD on/off for about two years now and im under the Liverpool University Hospital for treatment with various symptoms ie... re -occuring mouth and genital ulcers and the aches / pains that come with it , including recently severe joint pain in fingers /knuckles /wrists and elbow joints. Im on
SignalBoxer
in
Behçet's UK
12 years ago
Going mad with pain
Cor Blimey I really am going nuts with pain in my joints, the colchicine, dicalfenac, and co-codomaol are just not hitting it at all. I am finding it so flippin hard to function. The heated underblanket is helping a bit in the mornings and am still doing the swimming 3 times a week. Any advice? My GP
Cor Blimey I really am going nuts with pain in my joints, the colchicine, dicalfenac, and co-codomaol are just not hitting it at all. I am finding it so flippin hard to function. The heated underblanket is helping a bit in the mornings and am still doing the swimming 3 times a week. Any advice? My GP
goodlife
in
Behçet's UK
12 years ago
Any Help Appreciated AZATHIOPRINE (New Kid on The Block)
I have lurking on here reading a few posts, I have been told for the last few years that I had Behcets but didnt want to accept it and had a run of emergency eye admissions with Uveitis, always in the same eye (right eye). symptoms were mouth ulcers, extreme exhaustion, which really hacked me off as
I have lurking on here reading a few posts, I have been told for the last few years that I had Behcets but didnt want to accept it and had a run of emergency eye admissions with Uveitis, always in the same eye (right eye). symptoms were mouth ulcers, extreme exhaustion, which really hacked me off as
fleagle
in
Behçet's UK
12 years ago
Piercing Joint pain
The weather has definitely warmed up the last couple of days which is great and I have felt the benefit in my joints and dropped the colchicine back down. I can be standing still and I get a sharp piercing pain in a joint enough to make me squeal....am I going potty?
The weather has definitely warmed up the last couple of days which is great and I have felt the benefit in my joints and dropped the colchicine back down. I can be standing still and I get a sharp piercing pain in a joint enough to make me squeal....am I going potty?
goodlife
in
Behçet's UK
12 years ago
1
...
17
18
19
Next page
10
Filter results
Clear filters
Posted in
All communities
Behçet's UK
155 results
British Heart Foundation
89 results
Atrial Fibrillation Support
28 results
View top 10 communities
Sort by
Most Relevant
Newest