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Colchicine / Probenecid
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NEURO BECHET'S
Hi everyone, I would really appreciate hearing from anyone on here who has neuro bechet's. I went to see my rheumy today, who specialises in bechet's. She is a lovely person but because I don't really get many ulcers if any she wasn't very concerned. I saw a neurologist last year, he said my symptoms
Hi everyone, I would really appreciate hearing from anyone on here who has neuro bechet's. I went to see my rheumy today, who specialises in bechet's. She is a lovely person but because I don't really get many ulcers if any she wasn't very concerned. I saw a neurologist last year, he said my symptoms
pheobe67
in
Behçet's UK
11 years ago
My experience with Colchisine
I have been diagnosed with BD 3 months ago after 7 months of search. I started taking colchicine and together with a balanced diet and moderate excercise BD is almost gone ,only if I push it with my training a mild version appears for a couple of days, nothing like what I had before where I enjoyed a
I have been diagnosed with BD 3 months ago after 7 months of search. I started taking colchicine and together with a balanced diet and moderate excercise BD is almost gone ,only if I push it with my training a mild version appears for a couple of days, nothing like what I had before where I enjoyed a
sharkie78
in
Behçet's UK
11 years ago
I.V. steroid injections? Anyone?
Hello everyone, I am in desperate need of finding a new treatment plan that may give me a chance at having decreased swelling and pain. I'm not even counting on full remission anymore, as I just don't see it happening for me because it's been 4 years that I've been so sick that I've had to give up
Hello everyone, I am in desperate need of finding a new treatment plan that may give me a chance at having decreased swelling and pain. I'm not even counting on full remission anymore, as I just don't see it happening for me because it's been 4 years that I've been so sick that I've had to give up
behcetshurtsbeyondwords
in
Behçet's UK
11 years ago
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Bit random but does this happen to anybody else?
I was diagnosed about 2 years ago after 10 years of suffering ulcers headache joint pain Tia. I just had a baby and I'm flaring badly joints are agony but they say my bloods are fine also ulcers up & down my hand are dry and bleeding with what they say is ezema also get it somethimes on my feet also
I was diagnosed about 2 years ago after 10 years of suffering ulcers headache joint pain Tia. I just had a baby and I'm flaring badly joints are agony but they say my bloods are fine also ulcers up & down my hand are dry and bleeding with what they say is ezema also get it somethimes on my feet also
poshcat
in
Behçet's UK
11 years ago
Small red nodules/round lumps on fingers and possibly scalp ?
Does anyone get these small red lumps on fingers? I have them on scalp too but can't see those ones/ I have temporarily stopped my colchicine due to a tummy upset
Does anyone get these small red lumps on fingers? I have them on scalp too but can't see those ones/ I have temporarily stopped my colchicine due to a tummy upset
goodlife
in
Behçet's UK
11 years ago
Remicade, Imuran, Colchicine
I will start Remicade soon and my doctor plans to stop my Imuran and colchicine about the same time. However, I have heard that some Behcet's patients have remained on their immunosuppresants while using the Remicade. Is this a subjective decision by my doctor or is he just not following protocol (
I will start Remicade soon and my doctor plans to stop my Imuran and colchicine about the same time. However, I have heard that some Behcet's patients have remained on their immunosuppresants while using the Remicade. Is this a subjective decision by my doctor or is he just not following protocol (
Bobsbetty
in
Behçet's UK
11 years ago
STILL GOT CHEST INFECTION
Hi all, I posted on here bout a week ago. Had a chest infection, finding it difficult to breathe. Thanks for all the kind replys. Had an xray and all clear which is grear news. However I have acute bronchitis and am now on my third dose of antibiotics, mire steroids, and a nebulizer. What I don't understand
Hi all, I posted on here bout a week ago. Had a chest infection, finding it difficult to breathe. Thanks for all the kind replys. Had an xray and all clear which is grear news. However I have acute bronchitis and am now on my third dose of antibiotics, mire steroids, and a nebulizer. What I don't understand
pheobe67
in
Behçet's UK
11 years ago
Drs. Hasan & Yusuf Yazici @ colchicine (Colcrys)
A few months ago, rheumatologists Dr. Hasan Yazici (in Turkey, considered the world's expert in Behcet's) and his son Dr. Yusuf Yazici (runs the Behcet's Disease Clinic in New York City) taped an interview between themselves discussing Behcet's Disease and its current treatment. The YouTube tape
A few months ago, rheumatologists Dr. Hasan Yazici (in Turkey, considered the world's expert in Behcet's) and his son Dr. Yusuf Yazici (runs the Behcet's Disease Clinic in New York City) taped an interview between themselves discussing Behcet's Disease and its current treatment. The YouTube tape
amietamant
in
Behçet's UK
11 years ago
I just want to be normal! I hate this...
I have had Behcet's since I was about 3 and I was only diagnosed 12 months ago. I am in my mid 30's. I am soooo fed up. I only found out what it is like to feel normal when on prednisolone Steriods. If I am not on sterioids I smoke cigarettes to stop my mouth ulcers. I am so fed up with hurting, headaches
I have had Behcet's since I was about 3 and I was only diagnosed 12 months ago. I am in my mid 30's. I am soooo fed up. I only found out what it is like to feel normal when on prednisolone Steriods. If I am not on sterioids I smoke cigarettes to stop my mouth ulcers. I am so fed up with hurting, headaches
stormie
in
Behçet's UK
11 years ago
I've had high LFT readings for a while now...worried not going down !
I've had high LFT readings for a while now .. My last one was 150 ALT ... Getting quite worried as its not going lower after I stopped Aza & colchicine .. Any one else had high LFT's ?
I've had high LFT readings for a while now .. My last one was 150 ALT ... Getting quite worried as its not going lower after I stopped Aza & colchicine .. Any one else had high LFT's ?
SignalBoxer
in
Behçet's UK
11 years ago
No mouth ulceration but sore gums
Havn't had mouth ulcers since starting colchicine but I have really sore, inflamed gums. They feel supersized but don't look as if I have gingivitis. This is a new thing for me....I will follow the advice I found about using kiddies toothpaste etc and am using corsodyl mouthwash. Just wondered if this
Havn't had mouth ulcers since starting colchicine but I have really sore, inflamed gums. They feel supersized but don't look as if I have gingivitis. This is a new thing for me....I will follow the advice I found about using kiddies toothpaste etc and am using corsodyl mouthwash. Just wondered if this
goodlife
in
Behçet's UK
11 years ago
Colchicine making me sick
Ive been getting cramps on and off since i started these tablets along with the worst burps in the world ,, the last two day's ive been stuck in bed with cramps from hell along with the most horrible burps that make me want to be sick ,, anyone else get these?
Ive been getting cramps on and off since i started these tablets along with the worst burps in the world ,, the last two day's ive been stuck in bed with cramps from hell along with the most horrible burps that make me want to be sick ,, anyone else get these?
samhawks
in
Behçet's UK
11 years ago
Does stress trigger more Behcets symptoms?
I was diagnosed with Behcets in 1997 after having ulcers every few months.. they gave me colchicine for a few years and everything seemed mostly under control for a long time. I had another flare up in 2007, but other than that, from time to time I'd feel a little nausea and fatigue, but it would never
I was diagnosed with Behcets in 1997 after having ulcers every few months.. they gave me colchicine for a few years and everything seemed mostly under control for a long time. I had another flare up in 2007, but other than that, from time to time I'd feel a little nausea and fatigue, but it would never
Hidden
in
ABDA
12 years ago
Diagnosed with Behcets in 1997 and now I have unexplained symptoms... getting very frustrating. Dr doesn't think it's Behcets..
I was diagnosed with Behcets in 1997 after having ulcers every few months.. they gave me colchicine for a few years and everything seemed mostly under control for a long time. Now though, I'm at a stressful job living away from home and have been unhappy with where I'm at for a while.... I'm curious
I was diagnosed with Behcets in 1997 after having ulcers every few months.. they gave me colchicine for a few years and everything seemed mostly under control for a long time. Now though, I'm at a stressful job living away from home and have been unhappy with where I'm at for a while.... I'm curious
Hidden
in
Behçet's UK
12 years ago
Probable Behcets - treatment to start
Hi, Was told by my Dermatologist that I probably have Behcet's so have to start colchicine tomorrow. I will be taking 1 per day for the first week, 2 in the second and 3 in the third in the hope that the 3 will not cause me any problems as there seems to be a number of side-effects with this medication
Hi, Was told by my Dermatologist that I probably have Behcet's so have to start colchicine tomorrow. I will be taking 1 per day for the first week, 2 in the second and 3 in the third in the hope that the 3 will not cause me any problems as there seems to be a number of side-effects with this medication
moflo
in
Behçet's UK
12 years ago
colchicine
has anyone been given these colchicine to stop flare up ??
has anyone been given these colchicine to stop flare up ??
samhawks
in
Behçet's UK
12 years ago
colchicine
has anyone been given these colchicine to stop flare up ??
has anyone been given these colchicine to stop flare up ??
samhawks
in
Behçet's UK
12 years ago
Other treatments for Behcet's
I don't see many people here mention that they've been on Trental (pentoxifylline) for Behcet's ulcerations, arthritis, and fatigue. It's inexpensive and has mild anti-TNFa properties like the biologics (Enbrel, Remicade, Humira, etc.), with fewer side effects and little risk. Low-dose nicotine patches
I don't see many people here mention that they've been on Trental (pentoxifylline) for Behcet's ulcerations, arthritis, and fatigue. It's inexpensive and has mild anti-TNFa properties like the biologics (Enbrel, Remicade, Humira, etc.), with fewer side effects and little risk. Low-dose nicotine patches
amietamant
in
Behçet's UK
12 years ago
SHARING GOOD NEWS - III
THE LINK BELOW STATES PEDIATRICS BUT CONTENTS APPLY TO ADULT PATIENTS: http://pediatrics.med.nyu.edu/conditions-we-treat/conditions/vitamin-b12-deficiency Diagnosis Your doctor will ask about your symptoms and medical history, and perform a physical exam. Tests may include the following:
THE LINK BELOW STATES PEDIATRICS BUT CONTENTS APPLY TO ADULT PATIENTS: http://pediatrics.med.nyu.edu/conditions-we-treat/conditions/vitamin-b12-deficiency Diagnosis Your doctor will ask about your symptoms and medical history, and perform a physical exam. Tests may include the following:
Hidden
in
Pernicious Anaemia Society
12 years ago
Constantly feeling unwell from Behcet's
Hi everyone, I probably already know what most of your answers will be, but I'm going to ask anyways. I have been in a bad flare now for the past 4 years, was just diagnosed last year, but I've actually been unwell since I was 16 (I'm now 25). Basically for the past 4 yrs I have felt sickly all the
Hi everyone, I probably already know what most of your answers will be, but I'm going to ask anyways. I have been in a bad flare now for the past 4 years, was just diagnosed last year, but I've actually been unwell since I was 16 (I'm now 25). Basically for the past 4 yrs I have felt sickly all the
behcetshurtsbeyondwords
in
Behçet's UK
12 years ago
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