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Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Brokedown_Palace
in
Advanced Prostate Cancer
9 months ago
Prostap injections and bleeding
hello everyone, I’m having a bit of a tough time at the moment, I started prostap injections last year in may without HRT until December, and up until present day having the injection every three months with my daily tibilone tablet. The thing is when I started everything was fine no pain, no bleeding
hello everyone, I’m having a bit of a tough time at the moment, I started prostap injections last year in may without HRT until December, and up until present day having the injection every three months with my daily tibilone tablet. The thing is when I started everything was fine no pain, no bleeding
Leenie0811
in
Endometriosis UK
9 months ago
Second Opinion
Guys, I live in the Greater Cincinnati area and am seeking a second opinion regarding my treatment plan for my Advanced Prostate Cancer. I have been on ADT for 18 months. I started Eligard injections and Xtandi. However, I had a number of cardiac events including a mild heart attack and went off
Guys, I live in the Greater Cincinnati area and am seeking a second opinion regarding my treatment plan for my Advanced Prostate Cancer. I have been on ADT for 18 months. I started Eligard injections and Xtandi. However, I had a number of cardiac events including a mild heart attack and went off
jcarey79
in
Advanced Prostate Cancer
9 months ago
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PSA drop after ADT
My PSA went from 14.9 ug/l in May to 5.9 ug/l in June to 0.24 ug/l when tested 2 days ago after Lupron injection 3 months ago. Naturally I'm very relieved over the drop.My oncologist has pretty much left the decision to me on the ADT duration. I had earlier voiced my reservation about ADT on account
My PSA went from 14.9 ug/l in May to 5.9 ug/l in June to 0.24 ug/l when tested 2 days ago after Lupron injection 3 months ago. Naturally I'm very relieved over the drop.My oncologist has pretty much left the decision to me on the ADT duration. I had earlier voiced my reservation about ADT on account
John347
in
Advanced Prostate Cancer
9 months ago
Et triple negative platlets gone up to 1560
Hi all, Just getting back on here about platlets increasing over 1500,My hematologist will want me on hydroxyurea as he said when I go over 1500 that is his way forward. The past 2 bloods I had done have come down from 1420 to 1402 to 1300 last time 6 weeks ago. I am just wondering if it has to be this
Hi all, Just getting back on here about platlets increasing over 1500,My hematologist will want me on hydroxyurea as he said when I go over 1500 that is his way forward. The past 2 bloods I had done have come down from 1420 to 1402 to 1300 last time 6 weeks ago. I am just wondering if it has to be this
Mike1974
in
MPN Voice
11 months ago
CBD and everyday tasks
Hi, My mum hasn’t received a formal diagnosis but the neurologist thinks it’s CBD. She struggled to put her bra on and became obsessed over it, practising and talking about it a lot and she relearnt how to do it and now 9 times out of 10 can put it on. Then it was her coat, same thing, obsessing and
Hi, My mum hasn’t received a formal diagnosis but the neurologist thinks it’s CBD. She struggled to put her bra on and became obsessed over it, practising and talking about it a lot and she relearnt how to do it and now 9 times out of 10 can put it on. Then it was her coat, same thing, obsessing and
Malteaser12
in
PSP Association
1 year ago
Help with results please :)
Hi and thanks for reading in advance. I’ve recently had bloods done after a small increase in Levo and I’m not understanding why they are more raised since the increase. I have had a few things all going on at the same time for the last 2.5 years, menopause, vit D deficiency(now in range), B12 deficient
Hi and thanks for reading in advance. I’ve recently had bloods done after a small increase in Levo and I’m not understanding why they are more raised since the increase. I have had a few things all going on at the same time for the last 2.5 years, menopause, vit D deficiency(now in range), B12 deficient
Thereadinglady
in
Thyroid UK
9 months ago
Thoughts on next steps
Hi all I’d appreciate thoughts/ input At 13 months of undetectable PSA from a multiple bone mets situation via 7 months of multi treatments I asked for a PSMA PET scan prior to considering an ADT holiday ( moving to Apalutamide as a monotherapy) I see my London onco on Monday but report in today has
Hi all I’d appreciate thoughts/ input At 13 months of undetectable PSA from a multiple bone mets situation via 7 months of multi treatments I asked for a PSMA PET scan prior to considering an ADT holiday ( moving to Apalutamide as a monotherapy) I see my London onco on Monday but report in today has
Brysonal
in
Fight Prostate Cancer
9 months ago
HIP XRAYS- Will they effect my recovery or effect my Prostate Cancer-I am now 7 months post IMRT Treatment and healing fine.
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
JWS13
in
Prostate Cancer Network
9 months ago
ADT and Headaches
To all, I may have mentioned it before, but I've had low-level but disruptive headaches since I started ADT along with low RBC/Hemoglobin/Hematocrit. Also as a diabetic, I've been on metformin for many years, thus depleting my B12 levels. I've talked to my doctors about this, and the only solution
To all, I may have mentioned it before, but I've had low-level but disruptive headaches since I started ADT along with low RBC/Hemoglobin/Hematocrit. Also as a diabetic, I've been on metformin for many years, thus depleting my B12 levels. I've talked to my doctors about this, and the only solution
fmh1
in
Advanced Prostate Cancer
9 months ago
Novel brain penetrant capsids for Parkinson’s disease gene therapy
https://www.youtube.com/watch?v=7f-TBoq0TLo
https://www.youtube.com/watch?v=7f-TBoq0TLo
Hidden
in
Cure Parkinson's
1 year ago
Exhausted
I'm feeling so exhausted and pain all over. I've done my temperature first thing in the morning twice and it is 35.8. I'm still recovering from total hysterectomy because of cancer and on treatment for a cuti I've had 4 years. Obviously hormones have crashed as i had to come of hrt I feel cold one minute
I'm feeling so exhausted and pain all over. I've done my temperature first thing in the morning twice and it is 35.8. I'm still recovering from total hysterectomy because of cancer and on treatment for a cuti I've had 4 years. Obviously hormones have crashed as i had to come of hrt I feel cold one minute
France92
in
Thyroid UK
9 months ago
intensive group therapy as outpatient
Any care to share if it was a positive or negative experience? I start Friday. It is victual for 3 hours , 3 days a week, up to 18 in the group. Never done it before. Feeling skeptical, frightened, and want to get something out of it.
Any care to share if it was a positive or negative experience? I start Friday. It is victual for 3 hours , 3 days a week, up to 18 in the group. Never done it before. Feeling skeptical, frightened, and want to get something out of it.
Lightswitch
in
Mental Health Support
1 year ago
Barcelona PC Docs
I am looking for a recommendation of a good prostate cancer doctor and facility in Barcelona. I am finishing up two years or ADT (Lupron and Xtandi) after RALP and radiation and want to spend some time there. Monitoring and maintenance mode. Any thoughts?
I am looking for a recommendation of a good prostate cancer doctor and facility in Barcelona. I am finishing up two years or ADT (Lupron and Xtandi) after RALP and radiation and want to spend some time there. Monitoring and maintenance mode. Any thoughts?
aloha_spaceman
in
Advanced Prostate Cancer
9 months ago
My thyroid seems worse with every dose increase.
I could not take levo/synthroid..It made me feel too bad. One time on synthroid I had good numbers still felt awful. I switched to armor. It seems the dose will make me feel good for about a month...then I start getting worse and worse..The next month they check my thyroid numbers and they are higher
I could not take levo/synthroid..It made me feel too bad. One time on synthroid I had good numbers still felt awful. I switched to armor. It seems the dose will make me feel good for about a month...then I start getting worse and worse..The next month they check my thyroid numbers and they are higher
tresa56
in
Thyroid UK
11 months ago
What level should CA125 be after total hysterectomy & bilateral salpingo-oophorectomy?
Hi everyone. I am very new to this forum and can see how vital forums such as this are for those of you who are bravely battling cancer as they provide such essential support, compassion, care and advice to so many and their respective families, partners and friends too. I only wish I had found this
Hi everyone. I am very new to this forum and can see how vital forums such as this are for those of you who are bravely battling cancer as they provide such essential support, compassion, care and advice to so many and their respective families, partners and friends too. I only wish I had found this
Salubrity
in
My Ovacome
9 months ago
Lu177 Long Term Survival
Does anyone have long term survival figures for Lu177 treatment? Is is a one time thing or can it be repeated? Is it easier on the body than ADT? Thanks everyone.
Does anyone have long term survival figures for Lu177 treatment? Is is a one time thing or can it be repeated? Is it easier on the body than ADT? Thanks everyone.
NDJIM
in
Advanced Prostate Cancer
9 months ago
Does kidney function get affected by this?
Hi all, Just got news for my dad that his Kidney is only 60% functioning.. super nervous and anxious to really research online what this means.. is this common after treatment.. is this a really bad sign.. I am super frantic right now and have no idea if this is releated to the prostate cancer, or
Hi all, Just got news for my dad that his Kidney is only 60% functioning.. super nervous and anxious to really research online what this means.. is this common after treatment.. is this a really bad sign.. I am super frantic right now and have no idea if this is releated to the prostate cancer, or
FormulaRob
in
Advanced Prostate Cancer
9 months ago
sweating and tired
I’m having masses of hot flashes and I’m really tired. I’ve lost 10kg over the last three months (deliberately through low carb diet) but I’m thinking that might mean I’m now over medicated because I am less kilos than before. The other possibility is that I’ve not used my hrt patch for a few weeks
I’m having masses of hot flashes and I’m really tired. I’ve lost 10kg over the last three months (deliberately through low carb diet) but I’m thinking that might mean I’m now over medicated because I am less kilos than before. The other possibility is that I’ve not used my hrt patch for a few weeks
Pearlteapot
in
Thyroid UK
9 months ago
CBD oil
Hi, does anyone have tried CBD ( cannabidol) oil or any information about it?
Hi, does anyone have tried CBD ( cannabidol) oil or any information about it?
Hael1407
in
Glioblastoma Support
1 year ago
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