Into the Great Unknown

[aloha_spaceman]

Well, I just wrapped up two years of ADT (Lupron and Xtandi) on top of 36 rounds of radiation, and a RARP. At 57 when diagnosed (PSA 5.2, Gleason 4+3, one affected pelvic lymph node per PSMA PET scan), our plan was to throw the kitchen sink at my PCa and see if we can’t knock it out. Here I am at 59, 15 lbs heavier but in pretty good shape, labs look good, tired most of the time, and shifting into monitoring mode.

After my journey so far, I’d say it’s amazing what you can get used to. Fatigue, ED, incontinence, anemia, People have told me I am strong. I think I am just doing what the doctors tell me that offers me the best shot at a cure. Only time will tell.

As much as I looked forward to finishing up treatment and getting my body back from the ADT gremlins, I now realize that I now face a new set of unknowns and anxieties. Thanks for all of your thoughts and information that have gotten me this far. I’d appreciate any perspective on this next leg of the journey.

[KocoPr]

I thought i was there after radiation but 18 months later the beast lived.

I would say stay vigilant and act like it could still come back. I don’t mean worry but live laugh and stay vigilant

[TylexGP]

I am also in the monitoring wait and see mode after stopping ADT earlier this year. M O says next pressure test will be when T goes above castrate level. I have follow ups every 3 months next one is on the 18th of January. I try to live my life but the last two weeks before each appointment I become preoccupied with my upcoming labs and visit to MSK.

[aloha_spaceman in reply to TylexGP]

Good luck to you.