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Neck pain
Hi everyone, my wife has had MSA for a while now, she also uses a CPAP machine at assist her at night. She is experiencing extreme neck pain and her head has somewhat dropped forward. So my question, has anyone experienced this nasty neck pain, could it be the CPAP machine or more likely, is it part
Hi everyone, my wife has had MSA for a while now, she also uses a CPAP machine at assist her at night. She is experiencing extreme neck pain and her head has somewhat dropped forward. So my question, has anyone experienced this nasty neck pain, could it be the CPAP machine or more likely, is it part
Oliverwindsor
in
Multiple System Atrophy Trust
3 years ago
Getting a bit concerned
I’m feeling slightly fraudulent posting on here as I haven’t been diagnosed with a heart complaint but I wondered if my symptoms/experience resonated with anyone. I had 3 attacks of acute stridor (upper airway blockage) one week in November. I attended hospital for the first two and they were put down
I’m feeling slightly fraudulent posting on here as I haven’t been diagnosed with a heart complaint but I wondered if my symptoms/experience resonated with anyone. I had 3 attacks of acute stridor (upper airway blockage) one week in November. I attended hospital for the first two and they were put down
Repunzel1972
in
British Heart Foundation
3 years ago
Why my Dr is reducing my pain medication which is effecting my quality of life
I am 45 I got diagnosed with a degenerative disease of my lumbar spine in July 2011. I also have lymphoedema. To cut a long story short I have been through hell and high water to get put on a medication plan to help with my conditions. I am still taking my medication but I am in chronic pain. The problems
I am 45 I got diagnosed with a degenerative disease of my lumbar spine in July 2011. I also have lymphoedema. To cut a long story short I have been through hell and high water to get put on a medication plan to help with my conditions. I am still taking my medication but I am in chronic pain. The problems
Daz75
in
Pain Concern
3 years ago
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Why my Dr is reducing my medication which is effecting my quality of life
I am 45 I got diagnosed with a degenerative disease of my lumbar spine in July 2011. I also have lymphoedema. To cut a long story short I have been through hell and high water to get put on a medication plan to help with my conditions. I am still taking my medication but I am in chronic pain. The problems
I am 45 I got diagnosed with a degenerative disease of my lumbar spine in July 2011. I also have lymphoedema. To cut a long story short I have been through hell and high water to get put on a medication plan to help with my conditions. I am still taking my medication but I am in chronic pain. The problems
Daz75
in
Action on Pain
3 years ago
Scared
Coming off pramipexole. Not sure why just after midnight is my worst time. I’m coming off pramipexole but having some weird symptoms. I’ve got this weird pain my side. Sometimes it’s in my tummy. Sometimes under my ribs. It’s worse when I move. I took 3 gabapentin today. No pramipexole. Not good
Coming off pramipexole. Not sure why just after midnight is my worst time. I’m coming off pramipexole but having some weird symptoms. I’ve got this weird pain my side. Sometimes it’s in my tummy. Sometimes under my ribs. It’s worse when I move. I took 3 gabapentin today. No pramipexole. Not good
Repunzel1972
in
Restless Legs Syndrome
3 years ago
B12 & OSA
Hi all Anybody else have sleep apnoea as well as PA/B12 def.? I can’t work out what is causing the fatigue. Injections help a bit (SI approx once/month) but don’t give the boost I would like. Sleep is rubbish with excessive dreaming and interrupted sleep although use CPAP. I feel like I need some help
Hi all Anybody else have sleep apnoea as well as PA/B12 def.? I can’t work out what is causing the fatigue. Injections help a bit (SI approx once/month) but don’t give the boost I would like. Sleep is rubbish with excessive dreaming and interrupted sleep although use CPAP. I feel like I need some help
Csl1
in
Pernicious Anaemia Society
3 years ago
Another Question! Is it PMR or GCA Symptom's!
Back again with another question, After my GCA/Shingles scare last month I'm still feeling pain in my left jaw by my ear. Went to dentist before the GCA scare and said he couldn't find anything wrong. Also, have pain, stiffness in my left shoulder at the back, going up my neck behind my ear area.
Back again with another question, After my GCA/Shingles scare last month I'm still feeling pain in my left jaw by my ear. Went to dentist before the GCA scare and said he couldn't find anything wrong. Also, have pain, stiffness in my left shoulder at the back, going up my neck behind my ear area.
SARose
in
PMRGCAuk
3 years ago
Sleep Apnea
Hi. Any CLL peeps out there with swollen tonsils have to do the CPAP machine or mouth gear for apnea? I am feeling out options and both seem to stink to me. CLL is enough. I decided tonsils are staying in throat for now!
Hi. Any CLL peeps out there with swollen tonsils have to do the CPAP machine or mouth gear for apnea? I am feeling out options and both seem to stink to me. CLL is enough. I decided tonsils are staying in throat for now!
Gardengirl44
in
CLL Support
3 years ago
Day 14 post cardiac arrest and global anoxic injury. So confused and overwhelmed.
Hi all, thank you for the replies i received to my first post. There was a lot of helpful suggestions and it helped to hear from others who had been through similar things. Today is 2 weeks to the day my daughter had a cardiac arrest and had to be resuscitated. They estimated the time she was down to
Hi all, thank you for the replies i received to my first post. There was a lot of helpful suggestions and it helped to hear from others who had been through similar things. Today is 2 weeks to the day my daughter had a cardiac arrest and had to be resuscitated. They estimated the time she was down to
Parapp
in
Headway
3 years ago
Finally covid negative
I do try and put a little humour into my postings but today there will be a lack of it .Brain fog ,residual pain, irritability, discomfort ,stress, not sleeping ,still shaking, weak and still very breathless at the slightest exertion but I'm finally home .Home is such a short word that doesn't really
I do try and put a little humour into my postings but today there will be a lack of it .Brain fog ,residual pain, irritability, discomfort ,stress, not sleeping ,still shaking, weak and still very breathless at the slightest exertion but I'm finally home .Home is such a short word that doesn't really
soulboy118
in
Lung Conditions Community Forum
3 years ago
Recall of some Philips Respironics PPE equipment
This is to alert people to the fact that in Canada and US (possibly also EU) some units from Philips Respironics PPE equipment are being recalled due to possible health concerns related to disintegration of the sound abatement foam (polyester-based polyurethane (PE-PUR)) used inside the units to dampen
This is to alert people to the fact that in Canada and US (possibly also EU) some units from Philips Respironics PPE equipment are being recalled due to possible health concerns related to disintegration of the sound abatement foam (polyester-based polyurethane (PE-PUR)) used inside the units to dampen
Exbury1905
in
Lung Conditions Community Forum
3 years ago
ADVICE ON CPAP MACHINE RESULTS
Hi Folks, During a recent staycation of 11 nights in hospital for atrial fibrillation, hypertension, shortness of breath on exertion and very swollen legs and feet, I underwent an overnight sleep study . The outcome that I had an AHI of 41 was somewhat surprising to a guy who's never had a problem sleeping
Hi Folks, During a recent staycation of 11 nights in hospital for atrial fibrillation, hypertension, shortness of breath on exertion and very swollen legs and feet, I underwent an overnight sleep study . The outcome that I had an AHI of 41 was somewhat surprising to a guy who's never had a problem sleeping
Benos123
in
Cure Parkinson's
3 years ago
What are your thoughts on Pain Control
A quick note about me: Dx at age 52 Jan 2020 with PSA at 170. Eventually got started on ADT in April 2020 with PSA at 300. Gleason 7 3+4. Extensive bone mets all over my skeleton , as well as a few Lymph nodes. I had minimal pain, mainly back ache, which I thought at the time was due to a back injury
A quick note about me: Dx at age 52 Jan 2020 with PSA at 170. Eventually got started on ADT in April 2020 with PSA at 300. Gleason 7 3+4. Extensive bone mets all over my skeleton , as well as a few Lymph nodes. I had minimal pain, mainly back ache, which I thought at the time was due to a back injury
CSHobie
in
Advanced Prostate Cancer
3 years ago
WARNING: Your Philips CPAP machine may be seriously harming your lungs and more
Philips issues recall for numerous models with same dangerous defect. I was alerted by friend, called Philips. Got no answers, was mistreated and misled. Expect lengthy holds, ear-splitting pseudo-music on holds. Here's link to Philips self-serving "explanation" and "advice." https://www.usa.philips.com
Philips issues recall for numerous models with same dangerous defect. I was alerted by friend, called Philips. Got no answers, was mistreated and misled. Expect lengthy holds, ear-splitting pseudo-music on holds. Here's link to Philips self-serving "explanation" and "advice." https://www.usa.philips.com
JoelEagleRock
in
Cure Parkinson's
3 years ago
Treating sleep apnea with CPAP therapy is associated with lower risk of heart problems
Findings from a recent study show that patients with untreated, moderate to severe obstructive sleep apnea had a higher risk of experiencing a cardiovascular event, but the risk of incident heart problems was decreased in those who used CPAP therapy. Results show that people with moderate to severe
Findings from a recent study show that patients with untreated, moderate to severe obstructive sleep apnea had a higher risk of experiencing a cardiovascular event, but the risk of incident heart problems was decreased in those who used CPAP therapy. Results show that people with moderate to severe
2greys
in
Lung Conditions Community Forum
3 years ago
Dont work out after JaB, heres my story
Well, I am in Pulmonary rehab 2 days a week and Physical therapy 2 days aweek. I was scheduled for my 2nd jab on a friday, and I also do pulmonary rehab on fridays. I have progressed to 20 minutes on stationary bike, able to walk 120 feet with roller walker, and 20 minutes on upper arm machine, and many
Well, I am in Pulmonary rehab 2 days a week and Physical therapy 2 days aweek. I was scheduled for my 2nd jab on a friday, and I also do pulmonary rehab on fridays. I have progressed to 20 minutes on stationary bike, able to walk 120 feet with roller walker, and 20 minutes on upper arm machine, and many
weatherman69
in
PMRGCAuk
3 years ago
Sleep Apnea and ET/Jak2+
Does anyone else suffer with Sleep Apnea that has ET/Jak+? I have been diagnosed with sleep apnea and been prescribed a CPAP machine and I am resisting using it but wonder now if it is necessary. I have been experiencing great fatigue lately and wonder if the sleep apnea could be the culprit:/
Does anyone else suffer with Sleep Apnea that has ET/Jak+? I have been diagnosed with sleep apnea and been prescribed a CPAP machine and I am resisting using it but wonder now if it is necessary. I have been experiencing great fatigue lately and wonder if the sleep apnea could be the culprit:/
MiltonBradley
in
MPN Voice
3 years ago
Hashimotos, in range. Should I take 25mcg Levoxyl?
I was self- trying t4t3 slow release 20cmg/4mcg for about 7 weeks due to no help available Dec/Jan. First day or two did well, after that got jitters, dry eyes, tingling, some things felt okay, but my cortisol tests level was normal a.m. and pm. In middle-range. I tried 5mcg slow realease t3 only, got
I was self- trying t4t3 slow release 20cmg/4mcg for about 7 weeks due to no help available Dec/Jan. First day or two did well, after that got jitters, dry eyes, tingling, some things felt okay, but my cortisol tests level was normal a.m. and pm. In middle-range. I tried 5mcg slow realease t3 only, got
Allie323
in
Thyroid UK
3 years ago
Help with my full CPAP mask please.
Sorry this is a long 1st post. Sleep Apnoea I have been using a CPAP Resmed AirSense 10 Series machine for 3 + years, started on a nose mask . Took to it like a duck to water and was so pleased to finally be sleeping well. It has always been a positive thing for me. About 2 years ago I began to
Sorry this is a long 1st post. Sleep Apnoea I have been using a CPAP Resmed AirSense 10 Series machine for 3 + years, started on a nose mask . Took to it like a duck to water and was so pleased to finally be sleeping well. It has always been a positive thing for me. About 2 years ago I began to
IdasMum
in
Sleep Matters
3 years ago
Never give up hope
So after 8weeks on a ventilator my amazing dad has been on a step down ward for the past 5 days . It all happened so fast. I was allowed to visit last week on ICU for the first time since he was admitted. It was emotional and exciting he had lost lots of weight. He came off the cpap and a day later they
So after 8weeks on a ventilator my amazing dad has been on a step down ward for the past 5 days . It all happened so fast. I was allowed to visit last week on ICU for the first time since he was admitted. It was emotional and exciting he had lost lots of weight. He came off the cpap and a day later they
Hidden
in
ICUsteps
3 years ago
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