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Join us as distinguished experts gather to shed light on pivotal healthcare topics that touch the lives of many! 🌟 Spotlight on Dr. Sarah C. Bauer: A leading developmental and behavioral pediatrician with a personal connection to our cause. Her father's journey with type 2 diabetes and a brief battle
Join us as distinguished experts gather to shed light on pivotal healthcare topics that touch the lives of many! 🌟 Spotlight on Dr. Sarah C. Bauer: A leading developmental and behavioral pediatrician with a personal connection to our cause. Her father's journey with type 2 diabetes and a brief battle
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
10 months ago
Tim Brown's 3rd PSP Chronicles Beyond ..
I was going to mail Tim privately but have decided to post openly to 'daddyt' as what I want to say is relevant to us all. I bought Tim's 3rd book in Kindle format but have now ordered it in paperback format too, as I was missing being able to highlight so many of the text that Tim uses, as I did in
I was going to mail Tim privately but have decided to post openly to 'daddyt' as what I want to say is relevant to us all. I bought Tim's 3rd book in Kindle format but have now ordered it in paperback format too, as I was missing being able to highlight so many of the text that Tim uses, as I did in
AliBee1
in
PSP Association
1 month ago
cannabidioids in treatment
Good morning, I read about a case report of a patient diagnosed with PSP who had considerable improvement after using cannabidiol, is anyone using cannabidioids in the treatment?
Good morning, I read about a case report of a patient diagnosed with PSP who had considerable improvement after using cannabidiol, is anyone using cannabidioids in the treatment?
FeemDeus
in
PSP Association
1 month ago
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CBD for IBS?
Anyone tried taking CBD for IBS pain. Currently experiencing a flare including pain in both flanks.
Anyone tried taking CBD for IBS pain. Currently experiencing a flare including pain in both flanks.
Prance
in
IBS Network
1 month ago
liver biopsy
just had results from my liver trans jugular liver biopsy and they say the liver damage has been caused by a tablet called azathioprine which I was on for my Crohn’s disease they’ve upped my beta blocker because of the portal hypertension scared to take any tablets
just had results from my liver trans jugular liver biopsy and they say the liver damage has been caused by a tablet called azathioprine which I was on for my Crohn’s disease they’ve upped my beta blocker because of the portal hypertension scared to take any tablets
GTGJ
in
British Liver Trust
10 months ago
Late stage cbd information
My mum Stella is 82 and has CBD I think she is in the later stages of the disease. But I’m not really sure what late stages are! She was finally diagnosed in 2021 and now lives in a care home (who are brilliant with her. And look after her needs very well) My dad cared for her at home for a few
My mum Stella is 82 and has CBD I think she is in the later stages of the disease. But I’m not really sure what late stages are! She was finally diagnosed in 2021 and now lives in a care home (who are brilliant with her. And look after her needs very well) My dad cared for her at home for a few
Jiggyjo
in
PSP Association
1 month ago
Intrinsic factor
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
Allywales8663
in
Pernicious Anaemia Society
1 month ago
Super Confused
In January 2011 I was told I was AMA+ and I had PBC. In December 2011 I had a lap band removed and while they we in there I requested a liver biopsy. The results showed I had PBC. I refused any medication for PBC because I was not taking medicine that "may" help slow dow the progression of PBC. Last
In January 2011 I was told I was AMA+ and I had PBC. In December 2011 I had a lap band removed and while they we in there I requested a liver biopsy. The results showed I had PBC. I refused any medication for PBC because I was not taking medicine that "may" help slow dow the progression of PBC. Last
kosy2
in
PBC Foundation
10 months ago
Parkinson's Arm Pain Mystery Solved: Overuse Injury Due to Tremor. Update - What is Helping
I've suffered increasing tremor over the last few months and along with that, increasing arm pain. I could find no medical references for Parkinson’s and arm pain, and the diagnostic materials on arm pain did not contain anything that fit. Be all that as it may, this matter is not hard to understand
I've suffered increasing tremor over the last few months and along with that, increasing arm pain. I could find no medical references for Parkinson’s and arm pain, and the diagnostic materials on arm pain did not contain anything that fit. Be all that as it may, this matter is not hard to understand
park_bear
in
Cure Parkinson's
2 months ago
contradiction in the diagnosis of liver cirrhosis
images & Fibroscan shows that i have cirrhosis since more than 12 years. biopsy & Blood test before three years showed fibrosis between F2 to F3 but no cirrhosis , in your opinion which tools is more reliable and do you have such experience of contradiction's during the course of your disease
images & Fibroscan shows that i have cirrhosis since more than 12 years. biopsy & Blood test before three years showed fibrosis between F2 to F3 but no cirrhosis , in your opinion which tools is more reliable and do you have such experience of contradiction's during the course of your disease
Alan21
in
British Liver Trust
10 months ago
CBD & using them to get off gabapentin
I am so tired of Gabapentin side effects. I was wondering if anyone out there has used CBD to taper down or off Gabapentin.I have tapered down to 100mg of gaapentin and as many of you may know that is the hardest, Any thoughts or ideas will be appreciated
I am so tired of Gabapentin side effects. I was wondering if anyone out there has used CBD to taper down or off Gabapentin.I have tapered down to 100mg of gaapentin and as many of you may know that is the hardest, Any thoughts or ideas will be appreciated
brodytexas
in
Anxiety Support
2 months ago
Anxiety
Im taking ashwagandha for my anxiety and it works,and CBD gummies works well also
Im taking ashwagandha for my anxiety and it works,and CBD gummies works well also
jamaycacat
in
Anxiety and Depression Support
2 months ago
RLS and CBD
As I have mentioned previously, I have been on gabapentin for many years. I am now taking 1800 mg a day as well as 4 mg of requip. I am almost through weaning off requip because of augmentation. But, on the advice of a neurologist that I no longer see, I started CBD gummies and CBD oil. So, I am wondering
As I have mentioned previously, I have been on gabapentin for many years. I am now taking 1800 mg a day as well as 4 mg of requip. I am almost through weaning off requip because of augmentation. But, on the advice of a neurologist that I no longer see, I started CBD gummies and CBD oil. So, I am wondering
Littlegran
in
Restless Legs Syndrome
2 months ago
Ascites Long Term
Hello All, I've had Ascites now for eighteen months. At first I confused the symptoms with a hernia that I had which has since been repaired. After a visit to my GP, he told me I had IBS and gave me some pills to alleviate that. Two weeks later I was back at the GP's. This time he examined me and said
Hello All, I've had Ascites now for eighteen months. At first I confused the symptoms with a hernia that I had which has since been repaired. After a visit to my GP, he told me I had IBS and gave me some pills to alleviate that. Two weeks later I was back at the GP's. This time he examined me and said
redlion1954
in
British Liver Trust
10 months ago
CBD - do sufferers always end up needing wheelchairs?
I posted a while ago re whether we convert my parents’ house into having a downstairs bedroom and shower room for my mum, who has CBD. Thank you so much for the helpful responses. I’m thinking ahead to what other adaptations might be needed, in order to enable wheelchair access in and out of all areas
I posted a while ago re whether we convert my parents’ house into having a downstairs bedroom and shower room for my mum, who has CBD. Thank you so much for the helpful responses. I’m thinking ahead to what other adaptations might be needed, in order to enable wheelchair access in and out of all areas
PeterPanandLostBoys
in
PSP Association
2 months ago
Blue Badge
Hoping this might help others I have recently being diagnosed AIH F2 I have days lacking energy and struggle walking etc a friend suggested I apply for a blue badge for parking didn’t think I could however I found the process very quick and simple I had to have assessment as not in receipt of anything
Hoping this might help others I have recently being diagnosed AIH F2 I have days lacking energy and struggle walking etc a friend suggested I apply for a blue badge for parking didn’t think I could however I found the process very quick and simple I had to have assessment as not in receipt of anything
DebbyJ1
in
British Liver Trust
10 months ago
Liver Beef Glandular pills for iron?
Hi. Has anyone tried Liver Beef Glandular pills to increase iron rather than iron pills directly? My naturopathic doctor prefers this for RLS, because he says that iron pills are oxidizing. My Ferritin is ~80. And, I'm new here -- super helpful community. Now that I understand RLS, as I look back,
Hi. Has anyone tried Liver Beef Glandular pills to increase iron rather than iron pills directly? My naturopathic doctor prefers this for RLS, because he says that iron pills are oxidizing. My Ferritin is ~80. And, I'm new here -- super helpful community. Now that I understand RLS, as I look back,
JaggySr
in
Restless Legs Syndrome
2 months ago
CBD (thc free) for pain relief
I’ve had a Triple Heart Bypass and Mitral Valve Repair. Before that I had a Lumber Spinal Laminectomy (which only worked for about 4 months). I’ve since also been diagnosed with Heart Failure so pain relief is very difficult. The Spinal Stenosis is now severe all down the Lumbar Region. I was given
I’ve had a Triple Heart Bypass and Mitral Valve Repair. Before that I had a Lumber Spinal Laminectomy (which only worked for about 4 months). I’ve since also been diagnosed with Heart Failure so pain relief is very difficult. The Spinal Stenosis is now severe all down the Lumbar Region. I was given
Davewm
in
Pain Concern
2 months ago
update
hi to those of you that follow me on here and those who don’t just wanted to do a quick update. So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised
hi to those of you that follow me on here and those who don’t just wanted to do a quick update. So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised
Harriet-sarah
in
British Liver Trust
10 months ago
2024 PSP & CBD Ice Cream Challenge
My bad friends. I've been extremely busy with this year's Ice Cream Challenge and getting the fourth book ready for publication, that I forgot to post this year's photos. We are on Day 20 of the PSP & CBD Ice Cream Challenge. Unfortunately, I can only put up one photo, per post. I thought about a collage
My bad friends. I've been extremely busy with this year's Ice Cream Challenge and getting the fourth book ready for publication, that I forgot to post this year's photos. We are on Day 20 of the PSP & CBD Ice Cream Challenge. Unfortunately, I can only put up one photo, per post. I thought about a collage
pspchronicles
in
PSP Association
2 months ago
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