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Vitamin Deficiency/ Pernicious Anaemia : How Common Are They With EDS and What's The Best Treatment for Us ? Please Tell Me Your Experience
I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty
I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty
Blearyeyed
in
Ehlers-Danlos Support UK
2 years ago
? To denerve or not to denerve?!
I’ve had preliminary local anaesthetic jabs, one side, (no steroid) in lower facet joints via pain management clinic. This is to try to identify whether it would be valuable to try denervation. Really hard for me to isolate the pain and to know how effective they were over approx. a 24 hour period.
I’ve had preliminary local anaesthetic jabs, one side, (no steroid) in lower facet joints via pain management clinic. This is to try to identify whether it would be valuable to try denervation. Really hard for me to isolate the pain and to know how effective they were over approx. a 24 hour period.
Gillyflower70
in
NRAS
2 years ago
Pramipexole, restless legs and tummy ache
I am cutting down on pramipexole. And I really appreciate the advice and help him by members of this group. Does anybody else find that when their legs are particularly restless they also have tummy ache?
I am cutting down on pramipexole. And I really appreciate the advice and help him by members of this group. Does anybody else find that when their legs are particularly restless they also have tummy ache?
RestlessMe
in
Restless Legs Syndrome
2 years ago
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Ropinirole as needed?
Hello everyone. I have taken low dose Ropinirole on occasion (.25mg) and alternate it with Gabapentin (300 mg) for medium RLS symptoms and to help with sleep. I do this for fear of Augmentation on Ropinirole and loss of efficacy with Gabapentin over time. Has anyone here have had experience with this
Hello everyone. I have taken low dose Ropinirole on occasion (.25mg) and alternate it with Gabapentin (300 mg) for medium RLS symptoms and to help with sleep. I do this for fear of Augmentation on Ropinirole and loss of efficacy with Gabapentin over time. Has anyone here have had experience with this
zeusop
in
Restless Legs Syndrome
2 years ago
Yellow Card Scheme Reporting
If any UK members have suffered augmentation of RLS symptoms on Ropinirole. Pramipexole, the Neupro patch or other dopamine agonists, PLEASE REPORT it via https://yellowcard.mhra.gov.uk/ Unless and until the authorities and medical profession see the scale of suffering, these drugs will keep being prescribed
If any UK members have suffered augmentation of RLS symptoms on Ropinirole. Pramipexole, the Neupro patch or other dopamine agonists, PLEASE REPORT it via https://yellowcard.mhra.gov.uk/ Unless and until the authorities and medical profession see the scale of suffering, these drugs will keep being prescribed
Joolsg
in
Restless Legs Syndrome
2 years ago
RLS SPECIALISTS
I am making this article just to vent a little bit. I’m 34 years old with severe RLS chronic in my legs in arms , I don’t have augmentation I never used DAs. I have tried every drug I know there is no cure little no treatment and the side effects from opiates are horrible. I really have no life anymore
I am making this article just to vent a little bit. I’m 34 years old with severe RLS chronic in my legs in arms , I don’t have augmentation I never used DAs. I have tried every drug I know there is no cure little no treatment and the side effects from opiates are horrible. I really have no life anymore
RC723
in
Restless Legs Syndrome
2 years ago
Stuck with requip feeling hopeless
I am 58. I have been on Requip for 7 years. I had been on 1 mg and for the past two years have been on 0.5mg. I have not been able to reduce from 0.5 for any length of time. I also take gabapentin 600 2-3x day and tramadol 50 2x day though my scripts are for 3x day. My ferritin level is 160 with
I am 58. I have been on Requip for 7 years. I had been on 1 mg and for the past two years have been on 0.5mg. I have not been able to reduce from 0.5 for any length of time. I also take gabapentin 600 2-3x day and tramadol 50 2x day though my scripts are for 3x day. My ferritin level is 160 with
Asquiva
in
Restless Legs Syndrome
2 years ago
Sertraline
I have been taking sertraline for several years. Since my restless legs got worse and I have been reading about it, I am cutting back. Does anyone else think that the antidepressant made the restless legs worse? And has anyone come off the antidepressants and coped? I’m coming off from slowly so far
I have been taking sertraline for several years. Since my restless legs got worse and I have been reading about it, I am cutting back. Does anyone else think that the antidepressant made the restless legs worse? And has anyone come off the antidepressants and coped? I’m coming off from slowly so far
RestlessMe
in
Restless Legs Syndrome
2 years ago
Ropinirole
Hello. I am a new member of this community. I have had RLS since I was a child, but it has just been at the level of an occasional nuisance. However, at the age of 85, it has suddenly become a problem, mainly because I have started having violent leg movements in my sleep, which for some reason my
Hello. I am a new member of this community. I have had RLS since I was a child, but it has just been at the level of an occasional nuisance. However, at the age of 85, it has suddenly become a problem, mainly because I have started having violent leg movements in my sleep, which for some reason my
Shakespeare1564
in
Restless Legs Syndrome
2 years ago
Tissue Salts
So, given that I was in Covent Garden on Monday, and quite literally walking past the end of their road, it felt plain rude not to call into Helios Homeopathy. Following a chat with the homeopath I decided to get a remedy called Combination 12 Tissue Salts. I need to take that for a minimum of three
So, given that I was in Covent Garden on Monday, and quite literally walking past the end of their road, it felt plain rude not to call into Helios Homeopathy. Following a chat with the homeopath I decided to get a remedy called Combination 12 Tissue Salts. I need to take that for a minimum of three
rogergee
in
Pernicious Anaemia Society
2 years ago
Desogestrel back and leg pain
Hi Everyone, I've started taking desogestrel as treatment for endometriomas and fibroids. I've only been taking it for a couple of weeks but I'm getting terrible back and leg pain every morning. It wears off a bit during the day but comes back in the evening. Also I'm having to get up every night
Hi Everyone, I've started taking desogestrel as treatment for endometriomas and fibroids. I've only been taking it for a couple of weeks but I'm getting terrible back and leg pain every morning. It wears off a bit during the day but comes back in the evening. Also I'm having to get up every night
Sheep2
in
Endometriosis UK
2 years ago
New diagnosis
I have posted on this site before in regards to my daughter and her restless legs syndrome. She was on a very high dose of morphine as a last resort which of course caused augmentation and misery. She ended up in a Health Care Center and did manage to lower her dose to a manageable level with the goal
I have posted on this site before in regards to my daughter and her restless legs syndrome. She was on a very high dose of morphine as a last resort which of course caused augmentation and misery. She ended up in a Health Care Center and did manage to lower her dose to a manageable level with the goal
Skifam
in
Restless Legs Syndrome
2 years ago
Nothing works
I'm taking 300mgs pregabalin. I've tried even more but it doesn't work. Even with tramadol 50mgs it does nothing.I can be walking around until 3.30 to 5.30. I've taken tonight my 300 pregabalin and 2 OTC ibobrufen and codeine. I've just taken 15 mgs codeine and a teaspoon of Kratom. I'm still rubbing
I'm taking 300mgs pregabalin. I've tried even more but it doesn't work. Even with tramadol 50mgs it does nothing.I can be walking around until 3.30 to 5.30. I've taken tonight my 300 pregabalin and 2 OTC ibobrufen and codeine. I've just taken 15 mgs codeine and a teaspoon of Kratom. I'm still rubbing
Memmy
in
Restless Legs Syndrome
2 years ago
Good Planning Can Work.
Yesterday (Saturday) I had one of the loveliest and most memorable days that I've had for some time......I went into London to meet my DIL-to-be, to see her in the wedding dress she'd shortlisted as, 'the one'! The date had been agreed and on the calendar for a few months but I was becoming increasingly
Yesterday (Saturday) I had one of the loveliest and most memorable days that I've had for some time......I went into London to meet my DIL-to-be, to see her in the wedding dress she'd shortlisted as, 'the one'! The date had been agreed and on the calendar for a few months but I was becoming increasingly
Kendrew
in
PMRGCAuk
2 years ago
Ropinirole to gabapentin
I am in the process of moving from ropinirole to gabapentin. I'm now at 900mg of gabapentin and heading for 1200, and down to 3mg from 4mg of ropinirole. No obvious side effects so far. Any advice on staggering gabapentin across the day? I would have thought the aim is to eliminate RLS both during the
I am in the process of moving from ropinirole to gabapentin. I'm now at 900mg of gabapentin and heading for 1200, and down to 3mg from 4mg of ropinirole. No obvious side effects so far. Any advice on staggering gabapentin across the day? I would have thought the aim is to eliminate RLS both during the
danamias
in
Restless Legs Syndrome
2 years ago
Trying to be hopeful?
Hi all you beauties! I’m needing some love right now. I’m currently 5wks3days. I’ve been having some minor brown discharge that has slowly increased in amount over the past week. Today I went to the bathroom and expecting brown I saw bright red blood. I’ve heard so many people say spotting is normal
Hi all you beauties! I’m needing some love right now. I’m currently 5wks3days. I’ve been having some minor brown discharge that has slowly increased in amount over the past week. Today I went to the bathroom and expecting brown I saw bright red blood. I’ve heard so many people say spotting is normal
Hopingforbaby_
in
Fertility Network UK
2 years ago
Sjögren’s syndrome
I am suffering with bad Sjogren’s syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my body. Does any one have this experience and what have you used to get rid of it. I have used preservative free eye drops as advised by the doctor
I am suffering with bad Sjogren’s syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my body. Does any one have this experience and what have you used to get rid of it. I have used preservative free eye drops as advised by the doctor
favour6
in
LUPUS UK
2 years ago
Weaning off ropinirol
Hi! I have been told before but can’t remember how to wean myself off ropinirol, I’m currently down to 0.50mg at night but if I go lower than that I don’t sleep at all! Which isn’t helpful when I work full time, I’m in the uk so my doc won’t prescribe opioids, I’m already taking Gabapentin and that’s
Hi! I have been told before but can’t remember how to wean myself off ropinirol, I’m currently down to 0.50mg at night but if I go lower than that I don’t sleep at all! Which isn’t helpful when I work full time, I’m in the uk so my doc won’t prescribe opioids, I’m already taking Gabapentin and that’s
jaime77
in
Restless Legs Syndrome
2 years ago
Hip Replacement OP
I've been blessed and offered a cancellation for the hip op. Very last moment, but grabbed it as I've been reduced to a cripple. Had it last Saturday and I'm back home now learning how to walk again and get my knickers on without bending! Just to say the anaesthetist was great. Gave me methadoxatone
I've been blessed and offered a cancellation for the hip op. Very last moment, but grabbed it as I've been reduced to a cripple. Had it last Saturday and I'm back home now learning how to walk again and get my knickers on without bending! Just to say the anaesthetist was great. Gave me methadoxatone
oscarandchloe
in
PMRGCAuk
2 years ago
Am I entitled to IVF on the NHS
Hi all, after years of tests with my gynaecologist he has finally referred me to an IVF clinic and we had our first appointment today. The Doctor there has said she needs to do some research but she thinks because the Gynaecologist prescribed me Clomiphene that I may now not be entitled to IVF on the
Hi all, after years of tests with my gynaecologist he has finally referred me to an IVF clinic and we had our first appointment today. The Doctor there has said she needs to do some research but she thinks because the Gynaecologist prescribed me Clomiphene that I may now not be entitled to IVF on the
LillyZL
in
Fertility Network UK
2 years ago
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