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Coats plus syndrome
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Does Anyone Have Expanded Bile Ducts?
According to my last several imaging tests I have an expanded bile duct. Is this normal for the disease? I am scheduled for an endoscopic ultrasound in a few weeks to take a better look at it. Does anyone have any experience with this? Is there any thing they can do for it? Or are we just spending
According to my last several imaging tests I have an expanded bile duct. Is this normal for the disease? I am scheduled for an endoscopic ultrasound in a few weeks to take a better look at it. Does anyone have any experience with this? Is there any thing they can do for it? Or are we just spending
4pjx__
in
PBC Foundation
5 years ago
Sjogrens and weather-related fatigue
For those diagnosed with Sjogrens, do anyone of you experience extreme fatigue before it rains; the barometer falls? And if so, how do you deal with it? In my part of Canada this year it is getting to be almost tropical at least rainwise (summer temps were OK too, but we are now into fall).
For those diagnosed with Sjogrens, do anyone of you experience extreme fatigue before it rains; the barometer falls? And if so, how do you deal with it? In my part of Canada this year it is getting to be almost tropical at least rainwise (summer temps were OK too, but we are now into fall).
SamTheTurtle
in
The Australian Sjögren's Syndrome Association
5 years ago
Knee Replacement Surgery and Prolia
Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.
Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.
Bernieisinthe
in
NRAS
5 years ago
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I took these supplements before I wandering if anybody in this community takes these.
I take 2250 of collagen because Predisone takes away collagen . I take 3 tablets of Omega 3's and I take magnesium 500 mgs various times during the day magnesium at night and turmeric in capsule form at night I find I can add 45 minutes on to my sleep. Anybody else do this. Will be asking doctor on
I take 2250 of collagen because Predisone takes away collagen . I take 3 tablets of Omega 3's and I take magnesium 500 mgs various times during the day magnesium at night and turmeric in capsule form at night I find I can add 45 minutes on to my sleep. Anybody else do this. Will be asking doctor on
susieq051
in
PMRGCAuk
5 years ago
Knee Replacement surgery while taking the drug Prolia?
Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.
Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.
Bernieisinthe
in
NRAS
5 years ago
Grrr...12+ years of RLS
Have changed pills many times, first rope, then pramipexole, then gabapentine, and now horizant. I can’t sleep...take my pills as used, go to bed, and either left or right gets its normal 30sec-a-go-go. Maybe, I can sleep 2-3am for 3/4 hours, but it’s horrible. Read many posts...maybe I need do try
Have changed pills many times, first rope, then pramipexole, then gabapentine, and now horizant. I can’t sleep...take my pills as used, go to bed, and either left or right gets its normal 30sec-a-go-go. Maybe, I can sleep 2-3am for 3/4 hours, but it’s horrible. Read many posts...maybe I need do try
Scott_alter
in
Restless Legs Syndrome
5 years ago
Pip update and dry eyes, mouth😵
Hello a while ago I posted about a PIP assessment.... Thank you any one who replied...sorry I didn't say 'thanks' back then. So I am waiting for them to decide whether I can still have PIP. Here's hoping🙄 On another note does any one have any thoughts on this - I am on the biologic tocilizumab. In recent
Hello a while ago I posted about a PIP assessment.... Thank you any one who replied...sorry I didn't say 'thanks' back then. So I am waiting for them to decide whether I can still have PIP. Here's hoping🙄 On another note does any one have any thoughts on this - I am on the biologic tocilizumab. In recent
Mouseling
in
NRAS
5 years ago
Neurology update
Good morning all. Yesterday I saw a very nice neurologist who gave me a full neurological exam (including sticking pins into me) . His conclusion was that a) I'm not a witch, and, b) I have no discernable neurological problems. He was somewhat surprised to hear that the rheum had diagnosed fibromyalgia
Good morning all. Yesterday I saw a very nice neurologist who gave me a full neurological exam (including sticking pins into me) . His conclusion was that a) I'm not a witch, and, b) I have no discernable neurological problems. He was somewhat surprised to hear that the rheum had diagnosed fibromyalgia
Linda3009
in
PMRGCAuk
5 years ago
Opiod withdrawal advice please
I'm currently rotating codeine and tramadol approximately every 4 or 5 months without any withdrawal symptoms. However I only ever use them for 5 days a week. I am considering using them every night but I'm concerned about possible withdrawal symptoms when I need to change drug.Has anyone experienced
I'm currently rotating codeine and tramadol approximately every 4 or 5 months without any withdrawal symptoms. However I only ever use them for 5 days a week. I am considering using them every night but I'm concerned about possible withdrawal symptoms when I need to change drug.Has anyone experienced
Jumpey
in
Restless Legs Syndrome
5 years ago
Advice needed please ... IVF drug protocol with low AMH
After six failed cycles of donor IUI my wife and I are moving on to IVF next month. We’ve had our drugs delivered to day and wow what a package ! My clinic have suggested 300IU fostimon then after so many days to start 150IU Meriofert with 150IU fostimon and use Testogel. My AMH is 2.1 age 35 and I’
After six failed cycles of donor IUI my wife and I are moving on to IVF next month. We’ve had our drugs delivered to day and wow what a package ! My clinic have suggested 300IU fostimon then after so many days to start 150IU Meriofert with 150IU fostimon and use Testogel. My AMH is 2.1 age 35 and I’
Amelia1984
in
Fertility Network UK
5 years ago
BETA HCG
Hi! I had a HCG blood test done and the reading came up as 0.4.... if I was pregnant I would have been very very early. What is considered a positive 5cg? Can you start of as negative HCG and raise to Positive
Hi! I had a HCG blood test done and the reading came up as 0.4.... if I was pregnant I would have been very very early. What is considered a positive 5cg? Can you start of as negative HCG and raise to Positive
Blublu99
in
Pregnancy and Parenting Support
5 years ago
Flare
PMR, FIBRO, GCA I went down from 2mg Rayos (Prednisone) to 1mg Rayos. Wow...burning pain in buttocks, painful stiff hips, mood swings, extreme fatigue. I went back up to 2mg Rayos. Everything has gotten better except for extreme fatigue. So frustrating...now I am back to chair yoga trying to improve
PMR, FIBRO, GCA I went down from 2mg Rayos (Prednisone) to 1mg Rayos. Wow...burning pain in buttocks, painful stiff hips, mood swings, extreme fatigue. I went back up to 2mg Rayos. Everything has gotten better except for extreme fatigue. So frustrating...now I am back to chair yoga trying to improve
Dream21
in
PMRGCAuk
5 years ago
Garlic and whole wheat bread are helpful
I noticed that my wife's spaghetti sauce seemed to help my RLS. After a few weeks I realized that it was the garlic in the sauce that seems to make a difference. Garlic alone will not get me safely through the night, but when combined with 24mg of codeine, 1.5mg of ropinirole, and 200mg of gapapentin
I noticed that my wife's spaghetti sauce seemed to help my RLS. After a few weeks I realized that it was the garlic in the sauce that seems to make a difference. Garlic alone will not get me safely through the night, but when combined with 24mg of codeine, 1.5mg of ropinirole, and 200mg of gapapentin
davidadill
in
Restless Legs Syndrome
5 years ago
Magnesium supplement for RLS
I have a couple of questions regarding the above: My functional doctor recommended Magnesium Malate at bedtime for RLS, however, I have seen a few comments on here saying that it shouldn't be taken within 2 hours of medications for RLS (I currently take ropinirole and gabapentin) and I take these between
I have a couple of questions regarding the above: My functional doctor recommended Magnesium Malate at bedtime for RLS, however, I have seen a few comments on here saying that it shouldn't be taken within 2 hours of medications for RLS (I currently take ropinirole and gabapentin) and I take these between
YodaDog
in
Restless Legs Syndrome
5 years ago
So many factors no answers
I started with symptoms of RLS when I was pregnant with my daughter, but thought it was due to being off work where I was on my feet 50-60 hours a week. It went away for years and slowly came back over the next few years. I was finally diagnosed in 2004 and put on ropinirole. Boy did that help. but then
I started with symptoms of RLS when I was pregnant with my daughter, but thought it was due to being off work where I was on my feet 50-60 hours a week. It went away for years and slowly came back over the next few years. I was finally diagnosed in 2004 and put on ropinirole. Boy did that help. but then
crazylegs1963
in
Restless Legs Syndrome
5 years ago
Mary from the UK describes her combination of problems including Sjögren’s Syndrome, Non-Hodgkins Lymphoma, Lupus, and Mixed Connective Tiss
Mary from the UK describes her combination of problems including Sjögren’s Syndrome, Non-Hodgkins Lymphoma, Lupus, and Mixed Connective Tissue Disease. She suffered over two years before being prescribed LDN (Low Dose Naltrexone). Her quality of life went from a 2 to 9.5 out of 10. Her latest scans
Mary from the UK describes her combination of problems including Sjögren’s Syndrome, Non-Hodgkins Lymphoma, Lupus, and Mixed Connective Tissue Disease. She suffered over two years before being prescribed LDN (Low Dose Naltrexone). Her quality of life went from a 2 to 9.5 out of 10. Her latest scans
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
Prolia medication or Similar and dental treatment
Prolia: I broke a tooth last week and my Dentist said the tooth needs to come out but he didn't want the responsability if the gum didn't heal due to me having prolia injections. I checked with my GP yesterday and she confirmed that they advise not to have any dental work. I have a referral to see an
Prolia: I broke a tooth last week and my Dentist said the tooth needs to come out but he didn't want the responsability if the gum didn't heal due to me having prolia injections. I checked with my GP yesterday and she confirmed that they advise not to have any dental work. I have a referral to see an
Angels-delight
in
NRAS
5 years ago
Homeopathic Treatment
Progress Report on my Homeopathic Treatment. I would like to tell you how I am doing now, even though on my first report two month ago I was 'booed' out of the arena by many. I have been on 20 mg Prednison since March of this year and had extreme difficulties reducing. I received lots of advise from
Progress Report on my Homeopathic Treatment. I would like to tell you how I am doing now, even though on my first report two month ago I was 'booed' out of the arena by many. I have been on 20 mg Prednison since March of this year and had extreme difficulties reducing. I received lots of advise from
km5yx7
in
PMRGCAuk
5 years ago
Just checking in my fellow IVF peeps
I am currently on day 4 of 50units of Buserelin at the start of the 1st FET cycle. Have to go in for a baseline scan on day 2 of cycle and then probably down to 20 units of Buserelin and patches and GOD knows what else...I haven't got that far....add into the mix, I have been to see a functional medicine
I am currently on day 4 of 50units of Buserelin at the start of the 1st FET cycle. Have to go in for a baseline scan on day 2 of cycle and then probably down to 20 units of Buserelin and patches and GOD knows what else...I haven't got that far....add into the mix, I have been to see a functional medicine
Yammie1973
in
Fertility Network UK
5 years ago
Alendronate Shows Promise as Maintenance Therapy for Osteoporosis
Rheumatology Network Editorial Staff September 24, 2019 The bisphosphonate alendronate (Binosto and Fosamax) can effectively maintain the gains in bone mineral density achieved with a year-long course of denosumab treatment in 91 percent of 126 patients who participated in a randomized clinical trial
Rheumatology Network Editorial Staff September 24, 2019 The bisphosphonate alendronate (Binosto and Fosamax) can effectively maintain the gains in bone mineral density achieved with a year-long course of denosumab treatment in 91 percent of 126 patients who participated in a randomized clinical trial
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
5 years ago
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