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Are my pins and needles, congestion and heartburn related to my pernicious anaemia?
HI. I have been diagnosed with P.A. for 13 years. My only initial symptom was tiredness but as my father also had P.A. I was tested and found to have low B12 levels and antibodies to parietal cells and have since been on 3 monthly injections. I now also test positive for antibodies to intrinsic factor
HI. I have been diagnosed with P.A. for 13 years. My only initial symptom was tiredness but as my father also had P.A. I was tested and found to have low B12 levels and antibodies to parietal cells and have since been on 3 monthly injections. I now also test positive for antibodies to intrinsic factor
suesue65
in
Pernicious Anaemia Society
6 years ago
Waiting to see a rheumatologist
Hello, Thank you to anyone who takes the time to read this and i apologise in advance for what i know already is going to be a long post. 7 My name is Tom and I am a 32 year old male. I started having RA symptoms about 10 weeks ago following a strenuous walk. It started as pain in my feet which i
Hello, Thank you to anyone who takes the time to read this and i apologise in advance for what i know already is going to be a long post. 7 My name is Tom and I am a 32 year old male. I started having RA symptoms about 10 weeks ago following a strenuous walk. It started as pain in my feet which i
tom180711
in
NRAS
6 years ago
Gluten intolerance?
Hi all, I am a 27 year old male who recently went travelling in south east Asia. After 3 months I had to return home after being sure I was dying out there. Having seen my GP I have had all the blood tests done for the relevant diseases as well as normal blood counts but nothing seems to be showing
Hi all, I am a 27 year old male who recently went travelling in south east Asia. After 3 months I had to return home after being sure I was dying out there. Having seen my GP I have had all the blood tests done for the relevant diseases as well as normal blood counts but nothing seems to be showing
Curtis90
in
Gluten Free Guerrillas
6 years ago
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Hospital Blues
I came into hospital on Wednesday to have my chylothorax drained on the right side of my chest. They have drained off about 1.1 litre and I have had to be on a low fat diet whilst I am in to try and help dry it out. It’s not a very inspiring menu choice. Only 4 items and I have all of them now. Just
I came into hospital on Wednesday to have my chylothorax drained on the right side of my chest. They have drained off about 1.1 litre and I have had to be on a low fat diet whilst I am in to try and help dry it out. It’s not a very inspiring menu choice. Only 4 items and I have all of them now. Just
ScardyCat40
in
My Ovacome
6 years ago
Symptoms and next steps with testing
Hi Can anyone help with advice on symptoms and testing please? I found my way here after checking on symptoms and have been lurking trying to learn about thyroid issues, trying to figure if this is my problem. I did my own basic thyroid check through Medichecks and got these results: TSH 1.98 (0.27
Hi Can anyone help with advice on symptoms and testing please? I found my way here after checking on symptoms and have been lurking trying to learn about thyroid issues, trying to figure if this is my problem. I did my own basic thyroid check through Medichecks and got these results: TSH 1.98 (0.27
Om289
in
Thyroid UK
6 years ago
Chest infection recovery
Hi. I'm 16 years old and for around 5 weeks I have had a tight chest and breathing difficulties, so bad that we once called the ambulance however, I was re assured I wasn't having a heart attack so we decided that I should ride it out. I have visited the doctors many times, because it hadn't improved
Hi. I'm 16 years old and for around 5 weeks I have had a tight chest and breathing difficulties, so bad that we once called the ambulance however, I was re assured I wasn't having a heart attack so we decided that I should ride it out. I have visited the doctors many times, because it hadn't improved
Hidden
in
Lung Conditions Community Forum
6 years ago
sharing a small positive
Disclaimer: I haven't been diagnosed yet, but endo is suspected. Just wanted to share some hope. I am on my period at the moment. The first day was the usual awful start; woke up at 1.45am by the pain, feeling like I'd been shot in the pelvis, stumbling around for painkillers and sitting in a hot bath
Disclaimer: I haven't been diagnosed yet, but endo is suspected. Just wanted to share some hope. I am on my period at the moment. The first day was the usual awful start; woke up at 1.45am by the pain, feeling like I'd been shot in the pelvis, stumbling around for painkillers and sitting in a hot bath
foursimplewords
in
Endometriosis UK
6 years ago
Hyperinflated lung question
Back in October when I got a cold then horrendous bronchitis lasted for 5 weeks 3 weeks of abs very breathless really awful. I went for a chest x Ray and was then referred and saw specialist the x Ray said that the left lung was hyoerinflated. I had the CT scan 2 weeks later and that showed on hyperinflation
Back in October when I got a cold then horrendous bronchitis lasted for 5 weeks 3 weeks of abs very breathless really awful. I went for a chest x Ray and was then referred and saw specialist the x Ray said that the left lung was hyoerinflated. I had the CT scan 2 weeks later and that showed on hyperinflation
Shancock
in
Lung Conditions Community Forum
6 years ago
Encephalopathy and Driving Licence
Hi there I have been reading on this site for about 3/4 weeks now and have learned a great deal in the meantime. My husband was diagnosed with Cirrhosis of the liver in Mid January this year, following about 2 years of ‘not feeling quite well’. He had previously been diagnosed with Constructive pericarditis
Hi there I have been reading on this site for about 3/4 weeks now and have learned a great deal in the meantime. My husband was diagnosed with Cirrhosis of the liver in Mid January this year, following about 2 years of ‘not feeling quite well’. He had previously been diagnosed with Constructive pericarditis
Jackinthebox
in
British Liver Trust
6 years ago
Intrinsic factor antibody test result
Hi all those who can understand results and what they mean. My Intrinsic factor antibody blood test result was 0.99 U/ml which was described as Normal - No Action The reference given was <1.20U/ml also a note saying method and reference change as of 05/03/15 At the time of the test I had been taking
Hi all those who can understand results and what they mean. My Intrinsic factor antibody blood test result was 0.99 U/ml which was described as Normal - No Action The reference given was <1.20U/ml also a note saying method and reference change as of 05/03/15 At the time of the test I had been taking
jointpain
in
Pernicious Anaemia Society
6 years ago
Positive intrinsic factor result
Hi,I I posted a few weeks ago due to having low b12 and involuntary twitching, Since having the loading doses my moods have improved significantly the twitching still happens each day but not as often but has improved... I have had another blood test to test for ferratin/ folate and for intrinsic factor
Hi,I I posted a few weeks ago due to having low b12 and involuntary twitching, Since having the loading doses my moods have improved significantly the twitching still happens each day but not as often but has improved... I have had another blood test to test for ferratin/ folate and for intrinsic factor
Natalie99999
in
Pernicious Anaemia Society
6 years ago
Folate & Vitamin B12; SAMe & Methyl.
This is prompted by a post from BBruce: "Stay away from Vitamin B12" I reviewed the folate-PCa literature 2 years ago. B12 is covered in that post. What seemed lacking in the new thread was context, IMO. A number of the B vitamins feed into 'one-carbon metabolism' (a term that is usually found in PCa
This is prompted by a post from BBruce: "Stay away from Vitamin B12" I reviewed the folate-PCa literature 2 years ago. B12 is covered in that post. What seemed lacking in the new thread was context, IMO. A number of the B vitamins feed into 'one-carbon metabolism' (a term that is usually found in PCa
pjoshea13
in
Advanced Prostate Cancer
6 years ago
caster oil packs - best way to use?
My partner has ordered me some castor oil as I've read castor oil packs can help with period pains (mine don't respond to traditional heat pads/hot water bottles). Has anyone found the best way to use these, and with the least mess?!
My partner has ordered me some castor oil as I've read castor oil packs can help with period pains (mine don't respond to traditional heat pads/hot water bottles). Has anyone found the best way to use these, and with the least mess?!
foursimplewords
in
Endometriosis UK
6 years ago
Daily b12 dosage?
Hi, I had intrinsic factor antibodies test that was negative, but a lot of b12 deficiency symptoms - Gp treated me with loading doses for 2 weeks. I was wondering what dose I should take on a daily basis? I think My problem is low stomach acid due to hypothyroidism so not pernicious anaemia. I’ve
Hi, I had intrinsic factor antibodies test that was negative, but a lot of b12 deficiency symptoms - Gp treated me with loading doses for 2 weeks. I was wondering what dose I should take on a daily basis? I think My problem is low stomach acid due to hypothyroidism so not pernicious anaemia. I’ve
Saya85
in
Pernicious Anaemia Society
6 years ago
“Fitness for Surgery” OR Pre-Op
Various soothsayers have been telling me that if your surgery does not occur within a couple of months of your “Fitness for Surgery” you have to go through it all again. Different tests stay in date for different periods. Typically, an angiogram in valid for 12 months, an echocardiogram for six months
Various soothsayers have been telling me that if your surgery does not occur within a couple of months of your “Fitness for Surgery” you have to go through it all again. Different tests stay in date for different periods. Typically, an angiogram in valid for 12 months, an echocardiogram for six months
MichaelJH
Heart Star
in
British Heart Foundation
6 years ago
Intrinsic Factor Positive
Hi All, after I was diagnosed with Hashimotos last year, I thought my quality of life would improve once prescribed 100mcg T4 daily but unfortunately it has not been the case. I have been supplementing with Vitamin D and K which has improved my Vat D results. I am still exhausted, have dry scalp, hair
Hi All, after I was diagnosed with Hashimotos last year, I thought my quality of life would improve once prescribed 100mcg T4 daily but unfortunately it has not been the case. I have been supplementing with Vitamin D and K which has improved my Vat D results. I am still exhausted, have dry scalp, hair
Tanzanite55
in
Pernicious Anaemia Society
6 years ago
Is Macula-ped near the fovea relates to Macular degeneration ?
My brother been diagnosed left eye Macula-ped near the fovea. Does this mean he has Macular degeneration. We are shocked to hear this message as he is in 38. Ophthalmologist suggested Intravitreal injection ( L ) - Anti-vegf under gvp. Really we did not understand this terms. Can some one help us
My brother been diagnosed left eye Macula-ped near the fovea. Does this mean he has Macular degeneration. We are shocked to hear this message as he is in 38. Ophthalmologist suggested Intravitreal injection ( L ) - Anti-vegf under gvp. Really we did not understand this terms. Can some one help us
Dsrb
in
Macular Society
6 years ago
Urgent
I was having fever for a week so I took azethromycin and paracetamol for week twice a day. Later I had my LFT ast was 102 alt was 145 and lacacate dehydrogenase 445 rest was normal and after a chest x Ray I was having throat infection too so my doctor gave medicine for throat and ursodiol for liver and
I was having fever for a week so I took azethromycin and paracetamol for week twice a day. Later I had my LFT ast was 102 alt was 145 and lacacate dehydrogenase 445 rest was normal and after a chest x Ray I was having throat infection too so my doctor gave medicine for throat and ursodiol for liver and
Harsh893
in
British Liver Trust
6 years ago
Hello from someone new to all this PMRGCA stuff
Hello. I have ust been diagnosed with GCA three days ago on 21 Feb 2018. I'm 58 and male. Usually in good health. My apologies if this is a bit long and nerdy: I'm just finding it useful to write all down somewhere. My symptoms started on Christmas Day with very sensitive scalp and shooting pains
Hello. I have ust been diagnosed with GCA three days ago on 21 Feb 2018. I'm 58 and male. Usually in good health. My apologies if this is a bit long and nerdy: I'm just finding it useful to write all down somewhere. My symptoms started on Christmas Day with very sensitive scalp and shooting pains
Brizzleben
in
PMRGCAuk
6 years ago
my annoying cough
I've had an echo-ey cough for five months now , it won't go. it sounds a bit like croup but its not. I've had an asthma test and a chest x-ray and nothing is wrong there. but it will not go away. please help
I've had an echo-ey cough for five months now , it won't go. it sounds a bit like croup but its not. I've had an asthma test and a chest x-ray and nothing is wrong there. but it will not go away. please help
loukia01
in
Lung Conditions Community Forum
6 years ago
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