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Confused after conflicting tests, diagnoses, etc.?
I've posted on here a few other times and have honestly felt like the advice I've received here has been more helpful than many of my doctors' appointments! Quick summary: Went to a new GP in a new city in July with immense fatigue, joint pain, difficulty concentrating, etc. As I am a vegetarian, I
I've posted on here a few other times and have honestly felt like the advice I've received here has been more helpful than many of my doctors' appointments! Quick summary: Went to a new GP in a new city in July with immense fatigue, joint pain, difficulty concentrating, etc. As I am a vegetarian, I
hummingbird88
in
Pernicious Anaemia Society
6 years ago
IF high values
Hi. I have been diagnosed with pernicious anaemia in February 2018. I receive injection every 3 months, although i feel i need them monthly. Just tested my Intrinsic Factor and the results are 38.5 , and normal is <6 can't seem to find anything online about what these results, so if anyone knows anything
Hi. I have been diagnosed with pernicious anaemia in February 2018. I receive injection every 3 months, although i feel i need them monthly. Just tested my Intrinsic Factor and the results are 38.5 , and normal is <6 can't seem to find anything online about what these results, so if anyone knows anything
Gumball77
in
Pernicious Anaemia Society
6 years ago
Cough post FCR
Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty
Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty
Eebie1234
in
CLL Support
6 years ago
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Prednisolone
Hi Went back to GP as still having joint pain. My rheumatologist thought it was OA but when I went for ultrasound nothing was found. My GP has now put me on prednisolone 6 a day for 3 days to see if this helps. I'm still awaiting a diagnosis. My inflammatory markers were normal last time apart from the
Hi Went back to GP as still having joint pain. My rheumatologist thought it was OA but when I went for ultrasound nothing was found. My GP has now put me on prednisolone 6 a day for 3 days to see if this helps. I'm still awaiting a diagnosis. My inflammatory markers were normal last time apart from the
Nomoney2018
in
NRAS
6 years ago
Back again after a couple months
Hi again, I posted a couple months ago after being to A&E with chest pains amd being put down to anxiety/depression. I haven't had any more panic attacks but still get some weird pains (weird as in they are not excruciating, achey etc), around my left breast and round my left side ribs/hip aswell as
Hi again, I posted a couple months ago after being to A&E with chest pains amd being put down to anxiety/depression. I haven't had any more panic attacks but still get some weird pains (weird as in they are not excruciating, achey etc), around my left breast and round my left side ribs/hip aswell as
Turtle90
in
Anxiety Support
6 years ago
PLEASE HELP WITH SUSPECTED B12 FUNCTIONAL DEFICIENCY
I have been very ill with all the signs of B12 deficiency and not getting any help from doctors as my B12 level is 1,100mg although prior to testing i had NEVER taken a B12 supplement, not even a multi vitamin. Four months ago I began taking large doses of sublingual B12, 5,000 mg tablets, 8 a day, and
I have been very ill with all the signs of B12 deficiency and not getting any help from doctors as my B12 level is 1,100mg although prior to testing i had NEVER taken a B12 supplement, not even a multi vitamin. Four months ago I began taking large doses of sublingual B12, 5,000 mg tablets, 8 a day, and
jarlethblue
in
Pernicious Anaemia Society
6 years ago
My doctor is listening!
hello everyone, you might remember that I've been suffering from serious digestive problems (probably due to my PA) with no improvement on probiotics or medication. I've also developed problems with shortness of breath, extreme fatigue and depression. I was convinced that my serum blood reading of 790
hello everyone, you might remember that I've been suffering from serious digestive problems (probably due to my PA) with no improvement on probiotics or medication. I've also developed problems with shortness of breath, extreme fatigue and depression. I was convinced that my serum blood reading of 790
expatkerry
in
Pernicious Anaemia Society
6 years ago
Just been diagnosed with COPD and im scared to death
As the title suggests, ive just been diagnosed with COPD, im scared out of my wits, I was diagnosed by my doctor last Thursday 25th, and have a chest X-Ray and blood tests on Tuesday 6th. I joined this site a couple of days ago and read through some stories to see how others are coping, im 46 now and
As the title suggests, ive just been diagnosed with COPD, im scared out of my wits, I was diagnosed by my doctor last Thursday 25th, and have a chest X-Ray and blood tests on Tuesday 6th. I joined this site a couple of days ago and read through some stories to see how others are coping, im 46 now and
Seani
in
Lung Conditions Community Forum
6 years ago
Feeling rubbish after ablation
Hi all. I had my second ablation for AF last Wed 24th. Left 25th only to be readmitted later that night. I was monitored for the day and dis barged later that night. A few days later ended up in A& E feeling like I was having a heart attack. Having has a ecg and bloods taken all was good. Told to go
Hi all. I had my second ablation for AF last Wed 24th. Left 25th only to be readmitted later that night. I was monitored for the day and dis barged later that night. A few days later ended up in A& E feeling like I was having a heart attack. Having has a ecg and bloods taken all was good. Told to go
Canariesfan
in
AF Association
6 years ago
Tests after Biotin stopped
SlowDragon suggested I put up a post of my own, so here goes. I have been bugging my PCP for nearly two years about my lingering symptoms of hypothyroidism, despite being on 175 mcg / day of Synthroid. Specifically, going bald, fragile nails, cold intolerance, dry gritty eyes, difficulty losing weight
SlowDragon suggested I put up a post of my own, so here goes. I have been bugging my PCP for nearly two years about my lingering symptoms of hypothyroidism, despite being on 175 mcg / day of Synthroid. Specifically, going bald, fragile nails, cold intolerance, dry gritty eyes, difficulty losing weight
vocalEK
in
Thyroid UK
6 years ago
"Likely peripheral spondyloarthropathy"
Hi all - hope you're having one of the better days today. Just wondering if anyone else has been diagnosed with the above like me, according to the rheumatologist's clinical letters which he's been writing to GP/others for the past two years? I don't really understand what it actually means and googling
Hi all - hope you're having one of the better days today. Just wondering if anyone else has been diagnosed with the above like me, according to the rheumatologist's clinical letters which he's been writing to GP/others for the past two years? I don't really understand what it actually means and googling
nanapat61
in
NRAS
6 years ago
Another update - 8 weeks and counting
After obeying the GP who told me the cough was pharygeal and to take a cough suppressant and reduce the QVar (brown) inhaler, and that I did not have asthma, unsurprisingly things became worse. I then developed an ear infection but no surgery appointments available so saw out of hours GP - who told me
After obeying the GP who told me the cough was pharygeal and to take a cough suppressant and reduce the QVar (brown) inhaler, and that I did not have asthma, unsurprisingly things became worse. I then developed an ear infection but no surgery appointments available so saw out of hours GP - who told me
Tabitha58
in
Asthma Community Forum
6 years ago
Adalimumab
Having had little success with methotrexate, followed by SSZ and HCQ, my lovely rheumatologist has suggested I start on Adalimumab (Humira), at the end of November, bloods and chest x ray permitting. Do any of you helpful lot take it on it's own, as my consultant indicated that, due to my poor results
Having had little success with methotrexate, followed by SSZ and HCQ, my lovely rheumatologist has suggested I start on Adalimumab (Humira), at the end of November, bloods and chest x ray permitting. Do any of you helpful lot take it on it's own, as my consultant indicated that, due to my poor results
miss-otis
in
NRAS
6 years ago
Newly diagnosed, extremely high PSA
Hello everyone, I'm new here and looking to share and learn. Here is my story: I'm 58. I had symptoms of BPH for a few years but never had a PSA test until this October. No other symptoms or health issues. Initial PSA 290 on Oct-3; test requested by regular doctor. Oct-5 initial urological consult;
Hello everyone, I'm new here and looking to share and learn. Here is my story: I'm 58. I had symptoms of BPH for a few years but never had a PSA test until this October. No other symptoms or health issues. Initial PSA 290 on Oct-3; test requested by regular doctor. Oct-5 initial urological consult;
bezen
in
Advanced Prostate Cancer
6 years ago
What else can go wrong with me?
Well just found out that my consultant has gone on maternity leave (I wish her well) my new consultant is on annual leave (hope he has a lovely time) but I have been waiting since blood tests in July to find out if I have celiac desease. Last week complained to gp. about being constantly out of breath
Well just found out that my consultant has gone on maternity leave (I wish her well) my new consultant is on annual leave (hope he has a lovely time) but I have been waiting since blood tests in July to find out if I have celiac desease. Last week complained to gp. about being constantly out of breath
123PAT
in
PBC Foundation
6 years ago
Congenital Deficiency of Intrinsic Factor and Pernicious Anemia
Hello!, New on this site. Is Pernicious Anemia and Congenital Deficiency of Intrinsic Factor the same illness? Thank you in advance for any information provided. Dona Gray
Hello!, New on this site. Is Pernicious Anemia and Congenital Deficiency of Intrinsic Factor the same illness? Thank you in advance for any information provided. Dona Gray
dgnvb21144
in
Pernicious Anaemia Society
6 years ago
Awaiting RA diagnosis
Is rheumatoid factor 30 bad? Also is pain constant or only when you have a flare? Can you have weeks months years without pain
Is rheumatoid factor 30 bad? Also is pain constant or only when you have a flare? Can you have weeks months years without pain
twinks1954
in
NRAS
6 years ago
Recent PA diagnosis, serum levels high from oral cyanocobalamin, symptoms persist
Hi folks, 47-year-old female writing from the US; so glad I found this forum. After 10+ years of trying to get help with what I now realize were B12 deficient symptoms (mainly neurological; brain fog, clumsy, fatigue, low energy, grouchiness, sleep problems, etc.), my GP ordered a B12 test. 7/23:
Hi folks, 47-year-old female writing from the US; so glad I found this forum. After 10+ years of trying to get help with what I now realize were B12 deficient symptoms (mainly neurological; brain fog, clumsy, fatigue, low energy, grouchiness, sleep problems, etc.), my GP ordered a B12 test. 7/23:
Greena51
in
Pernicious Anaemia Society
6 years ago
Loose sternum wire
Good morning. I am new to this site and am looking for some advice and support. My husband had a triple bypass in August and has been making good progress. He had a chest x-ray on the advice of the cardio rehab team since he was getting some "popping" in his chest. This has shown that one of the
Good morning. I am new to this site and am looking for some advice and support. My husband had a triple bypass in August and has been making good progress. He had a chest x-ray on the advice of the cardio rehab team since he was getting some "popping" in his chest. This has shown that one of the
Heartwife
in
British Heart Foundation
6 years ago
Ibrance / Letrozole and Bloating anyone?
Hi Everyone! I am finishing up week 2 of my first cycle on the Ibrance 125mg / Letrozole combo. The further I get in to this the more I have been experiencing extreme bloating (to the point where my stomach is so extended I look about 4-6 mos preggers). Granted I am not a small woman but I have dropped
Hi Everyone! I am finishing up week 2 of my first cycle on the Ibrance 125mg / Letrozole combo. The further I get in to this the more I have been experiencing extreme bloating (to the point where my stomach is so extended I look about 4-6 mos preggers). Granted I am not a small woman but I have dropped
lindak220
in
SHARE Metastatic Breast Cancer
6 years ago
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