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Seeking reassurance on fatigue and recovery
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
chonkytonk
in
Pernicious Anaemia Society
3 months ago
Echo results.
Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret
Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret
Lupaal
in
Atrial Fibrillation Support
1 month ago
Finally...🥳
Hi I hope everyone is doing well and if not hang on in there and reach out as there is misch support on here! I've had the toughest few months since last November the worse flare since being diagnosed in 2013, shadow on lung picked on a routine Chest X Ray at screening for new meds, so couldn't start
Hi I hope everyone is doing well and if not hang on in there and reach out as there is misch support on here! I've had the toughest few months since last November the worse flare since being diagnosed in 2013, shadow on lung picked on a routine Chest X Ray at screening for new meds, so couldn't start
3LittleBirds2
in
NRAS
2 months ago
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Sometimes the solution is simple !
Getting through the winter isn’t isn’t easy, is it friends ? This one was a long one and once the spring is on its way my energy levels, enthusiasm and motivation get going and life opens up again. It didn’t happen this year though. Asthma COPD for 21 years….was it all getting to the body ? No energy
Getting through the winter isn’t isn’t easy, is it friends ? This one was a long one and once the spring is on its way my energy levels, enthusiasm and motivation get going and life opens up again. It didn’t happen this year though. Asthma COPD for 21 years….was it all getting to the body ? No energy
PaulineHM
in
Lung Conditions Community Forum
2 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
4 months ago
Ibrance side effects
I am on Ibrance 125 mg and letrozole and I have bloody nose constantly and bleeding gums. I have a cold and slight cough. Not bacterial because I had recent chest x-ray and blood tests. I have mets to lungs. But no infection on my lungs. I see my oncologist next week. I am thinking a dose reduction
I am on Ibrance 125 mg and letrozole and I have bloody nose constantly and bleeding gums. I have a cold and slight cough. Not bacterial because I had recent chest x-ray and blood tests. I have mets to lungs. But no infection on my lungs. I see my oncologist next week. I am thinking a dose reduction
monkeygirl62
in
SHARE Metastatic Breast Cancer
2 months ago
your help needed in research about chest x-ray experiences
For those in the UK who've had a chest x-ray referred via their GP, please would you consider completing a research survey, seeking opinions from those affected ? (patients or relatives/caregivers) Whether it turned out to nothing more than a virus, infection or was followed up with other investigations
For those in the UK who've had a chest x-ray referred via their GP, please would you consider completing a research survey, seeking opinions from those affected ? (patients or relatives/caregivers) Whether it turned out to nothing more than a virus, infection or was followed up with other investigations
JanetteR57
in
The Roy Castle Lung Cancer Foundation
2 months ago
Skipped beats
Iv posted a lot recently about my story since joing in February I am very grateful for everyone who's shared there stories and experiences and advise it's been nice to know I'm not alone in all of this. I wanted to put together where I am from the start to see if anybody else experienced similar situation
Iv posted a lot recently about my story since joing in February I am very grateful for everyone who's shared there stories and experiences and advise it's been nice to know I'm not alone in all of this. I wanted to put together where I am from the start to see if anybody else experienced similar situation
AWhittaker
in
Heart Rhythm Disorders Support
2 months ago
child with dyslexia
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
Murfie276
in
Pernicious Anaemia Society
4 months ago
Blood Work
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2 weeks ago and have been having a hard time mentally . My family Dr this past Friday sends me the blood tests results and says they cannot comment
Canadian77
in
Pernicious Anaemia Society
4 months ago
HRT and B12
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
Oneash
in
Pernicious Anaemia Society
4 months ago
Subclinical hypothyroidism advice for next appointment
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
bluepenguin
in
Thyroid UK
4 months ago
Anyone have rales/crackles in their lungs with no other symptoms ???
Good morning to everyone .. it is so nice to have the beautiful spring flowers everywhere and the warm sunshine .. I am doing well on my O&V treatment but I have experienced an unsettling problem .. 3 weeks after I started my 13 month on V ,,,, I developed rales/crackles in my left lung ... it occurs
Good morning to everyone .. it is so nice to have the beautiful spring flowers everywhere and the warm sunshine .. I am doing well on my O&V treatment but I have experienced an unsettling problem .. 3 weeks after I started my 13 month on V ,,,, I developed rales/crackles in my left lung ... it occurs
craterlake
in
CLL Support
2 months ago
Cough, chest pressure, GCA
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
Moaningxcat
in
PMRGCAuk
3 months ago
Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
4 months ago
Felt like Giving Up - Update
Hi I posted about 6 weeks ago as I was really at rock bottom and just didn't know where to turn and felt like giving up, I just wanted to say a belated thanks to everyone who reached out to me with advice, support and positive wishes, it was so much appreciated. After a complaint to PALS I had a call
Hi I posted about 6 weeks ago as I was really at rock bottom and just didn't know where to turn and felt like giving up, I just wanted to say a belated thanks to everyone who reached out to me with advice, support and positive wishes, it was so much appreciated. After a complaint to PALS I had a call
3LittleBirds2
in
NRAS
3 months ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
4 months ago
Newbie and confused. Functional B12 deficiency?
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
grumpyold
in
Pernicious Anaemia Society
4 months ago
Treatment changes - Rituximab?
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
whitedog
in
NRAS
3 months ago
inhalation symbicort 200
iam a smoker for 55yrs about 6-8 a day worked as plumber with constant welding soldering on construction in uk, never had breathing problems until I might have coughed a lot on morning wake up, as you might expect, but after having injections for anti covid 3 times no booster, last chirstmas 2023, I
iam a smoker for 55yrs about 6-8 a day worked as plumber with constant welding soldering on construction in uk, never had breathing problems until I might have coughed a lot on morning wake up, as you might expect, but after having injections for anti covid 3 times no booster, last chirstmas 2023, I
RABS1957
in
Asthma Community Forum
3 months ago
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