Search
Search
About
Log in
Join
Experiences with
Coagulation factor X
Posts
Communities
3,614 public posts
Filter results
PA in a child?
Does anybody have any experience of PA in children? My almost 6 year old daughter has been suffering with mouth ulcers for the past 6 months and I’m just wondering if she might have PA? I was diagnosed at 23 (now 40). My sister, brother and nephew (14) have recently tested positive for intrinsic factor
Does anybody have any experience of PA in children? My almost 6 year old daughter has been suffering with mouth ulcers for the past 6 months and I’m just wondering if she might have PA? I was diagnosed at 23 (now 40). My sister, brother and nephew (14) have recently tested positive for intrinsic factor
Murfie276
in
Pernicious Anaemia Society
1 year ago
Covid and the NHS
Late april this year I contracted Covid again (previous time was just before the first lockdown). I slept for 4 days feeling cold and exhausted with lack of appetite I lost a stone in weight in 4 weeks. It did not seem to effect my chest so much this time (I have emphysema) but here I am 6 weeks later
Late april this year I contracted Covid again (previous time was just before the first lockdown). I slept for 4 days feeling cold and exhausted with lack of appetite I lost a stone in weight in 4 weeks. It did not seem to effect my chest so much this time (I have emphysema) but here I am 6 weeks later
Daisytime
in
Lung Conditions Community Forum
1 year ago
fobbed off by Drs
ok, so wrote letter to practice manager quoting and linking the NICE protocol for B12…get a call from a dr saying “Your B12 is in range and take supplements not retesting you til october” I tried to explain my intrinsic factor was 2.2Au/l The reference for positive PA is 1.53 Au/l but not according
ok, so wrote letter to practice manager quoting and linking the NICE protocol for B12…get a call from a dr saying “Your B12 is in range and take supplements not retesting you til october” I tried to explain my intrinsic factor was 2.2Au/l The reference for positive PA is 1.53 Au/l but not according
Bumblebee02
in
Pernicious Anaemia Society
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Long Shot
morning all, so I know this is not the place to seek medical answers but I’m more after anyone who has experienced similar and what was the outcome. I’ll try to keep it brief, 40 year old fit and we’ll slightly overweight non smoker, social drinker. Mid April following bouts of chest pain taken to
morning all, so I know this is not the place to seek medical answers but I’m more after anyone who has experienced similar and what was the outcome. I’ll try to keep it brief, 40 year old fit and we’ll slightly overweight non smoker, social drinker. Mid April following bouts of chest pain taken to
Echo24uk
in
British Heart Foundation
1 year ago
PMR turns into 3 things, per my Rheumo
I had PMR and on Predisone for 1 1/2 years, and off of it for 5 months. I have bad pain in all joints/muscles and much stiffness. Inflammatory blood tests are OK - CRP and ESr fairly low, and all autoimmune blood tests OK including Rheumatoid Factor, etc. and temporal Ultrasound OK for GCA. Had
I had PMR and on Predisone for 1 1/2 years, and off of it for 5 months. I have bad pain in all joints/muscles and much stiffness. Inflammatory blood tests are OK - CRP and ESr fairly low, and all autoimmune blood tests OK including Rheumatoid Factor, etc. and temporal Ultrasound OK for GCA. Had
kp60
in
PMRGCAuk
1 year ago
MMA results - supplements or further test?
Can I ask for your advice please? I have Hashmito’s. Since learning that this can influence the absorption of nutrients, I have been to the doctor’s to request tests. Last B12 test: 229 ng/l (190-910) I used B12 symptoms checklist which suggests severe deficiency. Neither of this seemed to worry
Can I ask for your advice please? I have Hashmito’s. Since learning that this can influence the absorption of nutrients, I have been to the doctor’s to request tests. Last B12 test: 229 ng/l (190-910) I used B12 symptoms checklist which suggests severe deficiency. Neither of this seemed to worry
Dandelions
in
Pernicious Anaemia Society
1 year ago
Hello and thank you for having me!
Hello all, Thank you for having me on your forum and for sharing information. I appreciate that it's possible nobody will have the time to read or reply to this, but it will help me to share it anyhow. I hope that's OK. My name is Holly and I am 35. I am on somewhat of a journey in terms of seeking
Hello all, Thank you for having me on your forum and for sharing information. I appreciate that it's possible nobody will have the time to read or reply to this, but it will help me to share it anyhow. I hope that's OK. My name is Holly and I am 35. I am on somewhat of a journey in terms of seeking
Hollyinthewild
in
LUPUS UK
1 year ago
ANA Titre 1:80 with Raynauds and burning hands
Hi, looking for some help and advice from others... Male - Age 39 - slim - mostly fit and well - non smoker I have this year began to experience episodes of Raynauds that appear to be triggered by the cold (but not that cold) weather and also stress/anxiety - so fairly classic stuff. The GP initially
Hi, looking for some help and advice from others... Male - Age 39 - slim - mostly fit and well - non smoker I have this year began to experience episodes of Raynauds that appear to be triggered by the cold (but not that cold) weather and also stress/anxiety - so fairly classic stuff. The GP initially
Chester_1983
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Questions regarding my B12 case (IF, veganism, oral sublingual, and other blood results)
Hi all, My case seems to be a little murky. In 2018 I found out that I had very low B12. I was a vegetarian at that time and for the last 2 years have been vegan. Back in 2018, I began injections which brought my level very high very quickly. At that time I also took my first intrinsic factor test. It
Hi all, My case seems to be a little murky. In 2018 I found out that I had very low B12. I was a vegetarian at that time and for the last 2 years have been vegan. Back in 2018, I began injections which brought my level very high very quickly. At that time I also took my first intrinsic factor test. It
Greeneyecolor
in
Pernicious Anaemia Society
1 year ago
wuestion
would a chest X-ray show any sutures on lungs or heart?
would a chest X-ray show any sutures on lungs or heart?
AnxietyDriven
in
British Heart Foundation
1 year ago
Question
Will a Chest X-ray show any devices or surgery equipment left in the body when looked at?
Will a Chest X-ray show any devices or surgery equipment left in the body when looked at?
AnxietyDriven
in
British Heart Foundation
1 year ago
How to fight for treatment?
I felt awful last oct and blood test showed B12 was at 21.6pmol/l so was given 6 loading doses. I went back at their request and was told my B12 levels were in range (obviously) and that was that, no other appointments needed. My intrinsic factor they tested a few weeks later was 2Au which I believe
I felt awful last oct and blood test showed B12 was at 21.6pmol/l so was given 6 loading doses. I went back at their request and was told my B12 levels were in range (obviously) and that was that, no other appointments needed. My intrinsic factor they tested a few weeks later was 2Au which I believe
Bumblebee02
in
Pernicious Anaemia Society
1 year ago
Heat,long bowls match or GTN spray what caused 7 hours in A&E ?
Due to go back for my 3 months post ablation check a week tomorrow & have been feeling great so maybe testing the boundaries on exercise.I have been bowling 3 or 4 times a week but yesterday it was very warm & game went on for an hour.Struggled with it and had a familiar pain that I used to get often
Due to go back for my 3 months post ablation check a week tomorrow & have been feeling great so maybe testing the boundaries on exercise.I have been bowling 3 or 4 times a week but yesterday it was very warm & game went on for an hour.Struggled with it and had a familiar pain that I used to get often
kkatz
in
Atrial Fibrillation Support
1 year ago
Antibodies Negative
Hi, Im pretty new to this all. I was feeling extremely weak lethargic, pins and needles etc and my b12 came back pretty low (167) started injections but now the doctor tells me that the test for my antibodies came back negative which means I do not have PA and that they will not do an Intrinsic factor
Hi, Im pretty new to this all. I was feeling extremely weak lethargic, pins and needles etc and my b12 came back pretty low (167) started injections but now the doctor tells me that the test for my antibodies came back negative which means I do not have PA and that they will not do an Intrinsic factor
Stepp
in
Pernicious Anaemia Society
1 year ago
Bit shell shocked !!
it is thirteen years since I was diagnosed with gca. , and to be truthful I have never felt well but have been ok. I still take low dose pred. And methotrexate. I haven’t seen rheumi for two years due to covid etc. so, a few months ago decided after five bad years to get a grip.
it is thirteen years since I was diagnosed with gca. , and to be truthful I have never felt well but have been ok. I still take low dose pred. And methotrexate. I haven’t seen rheumi for two years due to covid etc. so, a few months ago decided after five bad years to get a grip.
5lupins
in
PMRGCAuk
1 year ago
3 years ago today was my first ever run at 63 years old, Today I started again ! 🙂🏃
Today I have restarted the program after time out following my heart attack on 27th February. I won't explain everything again here but here is a link to my post regarding the attack if anyone wants to read it . https://healthunlocked.com/couchto5k/posts/149308533/running-can-literally-save-your-life
Today I have restarted the program after time out following my heart attack on 27th February. I won't explain everything again here but here is a link to my post regarding the attack if anyone wants to read it . https://healthunlocked.com/couchto5k/posts/149308533/running-can-literally-save-your-life
Instructor57
Graduate
in
Couch to 5K
1 year ago
Bad chest x-ray and no dx in sight
Hi, I have just had a troubling chest x-ray after experiencing ongoing coughing and a nagging pain in the center of my chest for the past year. Doctor kept passing it off as allergies or mild asthma, but I persisted for a pulmonary consult. Now, no one will follow up with me for a minimum of 2 months
Hi, I have just had a troubling chest x-ray after experiencing ongoing coughing and a nagging pain in the center of my chest for the past year. Doctor kept passing it off as allergies or mild asthma, but I persisted for a pulmonary consult. Now, no one will follow up with me for a minimum of 2 months
SmogDweller
in
Lung Conditions Community Forum
1 year ago
Heart vs pain
I have lived with chronic spinal pain for well over 20 years and have now run out of options for keeping it under control. I recently saw a new, lovely pain consultant who said there were no more standard options but he would like to suggest I try CBD. However my heart is a problem. There hasn't
I have lived with chronic spinal pain for well over 20 years and have now run out of options for keeping it under control. I recently saw a new, lovely pain consultant who said there were no more standard options but he would like to suggest I try CBD. However my heart is a problem. There hasn't
Qualipop
in
British Heart Foundation
1 year ago
Docetaxel day 4 pain - is it normal? Possible fever?
Hi all, My dad has stage 4 metastatic prostate cancer, diagnosed March 2023. He's on zoladex, darolutamide and had his first injection of docetaxel this past Monday (May 15). He was feeling normal the first 3 days but mid day 3 (yesterday) he got really fatigued and felt extremely achy in majority
Hi all, My dad has stage 4 metastatic prostate cancer, diagnosed March 2023. He's on zoladex, darolutamide and had his first injection of docetaxel this past Monday (May 15). He was feeling normal the first 3 days but mid day 3 (yesterday) he got really fatigued and felt extremely achy in majority
Jdhanoa
in
Advanced Prostate Cancer
1 year ago
Persistent cough
Hi All, I don't know of anyone can assist me in this complex enquiry, I will give it a try and keep it brief. I have CLL and am seeing my Haematologist on Monday, regarding persistent cough, night and day sweats, and a viral infection I have had on and off for 6 months. I have had a Chest X Ray and
Hi All, I don't know of anyone can assist me in this complex enquiry, I will give it a try and keep it brief. I have CLL and am seeing my Haematologist on Monday, regarding persistent cough, night and day sweats, and a viral infection I have had on and off for 6 months. I have had a Chest X Ray and
Vindicatrix
in
Lung Conditions Community Forum
1 year ago
1
...
14
15
16
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
882 results
Lung Conditions Community Forum
432 results
Thyroid UK
353 results
View top 10 communities
Sort by
Most Relevant
Newest