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Coagulation factor IX
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New neurologist?
Looking for advice on getting s new neurologist. For a history: 47 yo female meat eater 2 years of “mild anemia” bloodwork with nothing specific to note. Recurrent mouth infections and vaginal infections that nothing seemed to help. Mild recurrent tingling in feet/hands. Incresing lack of energy, crankiness
Looking for advice on getting s new neurologist. For a history: 47 yo female meat eater 2 years of “mild anemia” bloodwork with nothing specific to note. Recurrent mouth infections and vaginal infections that nothing seemed to help. Mild recurrent tingling in feet/hands. Incresing lack of energy, crankiness
BethCam
in
Pernicious Anaemia Society
5 years ago
Inducing labor
Hi I'm 40 weeks +1 day pregnant and I'm really exhausted wanna give birth already -can't wait to meet my nana So it is safe that i induce labor naturally at home by castor oil Or what can i use
Hi I'm 40 weeks +1 day pregnant and I'm really exhausted wanna give birth already -can't wait to meet my nana So it is safe that i induce labor naturally at home by castor oil Or what can i use
ThomasT45
in
Pregnancy and Parenting Support
5 years ago
New to the site and navigating confusing symptoms from teh USA
I’m new to this site, 37 and living in the USA. Probably like many of you, I’ve found this site from hours of research on my bizarre symptoms. I’ve been diagnosed with "suspected PA", not because I lack intrinsic factor, but because I tested positive for partial cell IGG antibodies. Starting in January
I’m new to this site, 37 and living in the USA. Probably like many of you, I’ve found this site from hours of research on my bizarre symptoms. I’ve been diagnosed with "suspected PA", not because I lack intrinsic factor, but because I tested positive for partial cell IGG antibodies. Starting in January
Hidden
in
Pernicious Anaemia Society
5 years ago
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Has anyone tried using castor oil packs?
I seem to be having way less pain since using castor oil packs. In the hope of reducing the size of/ eliminating fibroids and endometriosis. My stomach is always flatter immediately after using them. And the more that I use them the less painful my periods are. Just a thought to share with you all.
I seem to be having way less pain since using castor oil packs. In the hope of reducing the size of/ eliminating fibroids and endometriosis. My stomach is always flatter immediately after using them. And the more that I use them the less painful my periods are. Just a thought to share with you all.
UnderAngelWings
in
Endometriosis UK
5 years ago
Research evidence needed
If any one can help guide me ? I hAve been. Asked by my daughters gp to leave in evidence based research re b12 deficiency and pa in children in particular as he is unwilling to give daughter injection earlier than three monthly . What exactly will he go by as I’m trying very hard to get through to him
If any one can help guide me ? I hAve been. Asked by my daughters gp to leave in evidence based research re b12 deficiency and pa in children in particular as he is unwilling to give daughter injection earlier than three monthly . What exactly will he go by as I’m trying very hard to get through to him
Andypandy30
in
Pernicious Anaemia Society
5 years ago
Newly Diagnosed RA
Hi All, I had my first rheumy appointment yesterday. I was officially diagnosed with RA and have been given options on which meds to take. Rheumatoid factor was positive, CCP positive as well, but my inflammation levels, CRP and ESR, are normal. It was first thought I had lupus so RA has thrown me for
Hi All, I had my first rheumy appointment yesterday. I was officially diagnosed with RA and have been given options on which meds to take. Rheumatoid factor was positive, CCP positive as well, but my inflammation levels, CRP and ESR, are normal. It was first thought I had lupus so RA has thrown me for
rue04
in
NRAS
5 years ago
Newly diagnosed
Hi can anyone clarify? After 6 years of a diagnosis of chronic fatigue syndrome becoming extremely unwell, recent blood tests, ferritin 380, cholesterol 7.8,, when I eat extremely healthy, liver showing problems, done by private gp and a very detailed chat about my symptoms which are all of them on the
Hi can anyone clarify? After 6 years of a diagnosis of chronic fatigue syndrome becoming extremely unwell, recent blood tests, ferritin 380, cholesterol 7.8,, when I eat extremely healthy, liver showing problems, done by private gp and a very detailed chat about my symptoms which are all of them on the
Thor63
in
Thyroid UK
5 years ago
Help please awaiting diagnosis and feeling awful
Was recently rushed into hospital with chest pain further investigation showed bilateral pneumonia. Spent 6 weeks in hospital and only thing abnormal in all tests (bloods, ecg, X-ray, ct etc..) was intrinsic factor even B12 ok. Although better than I was still have chest pain and headaches/joint pain
Was recently rushed into hospital with chest pain further investigation showed bilateral pneumonia. Spent 6 weeks in hospital and only thing abnormal in all tests (bloods, ecg, X-ray, ct etc..) was intrinsic factor even B12 ok. Although better than I was still have chest pain and headaches/joint pain
wendyvw
in
Pernicious Anaemia Society
5 years ago
Still waiting for results!
I had a blood test 4 weeks ago. My GP wanted a full blood count and also Intrinsic Factor test ( which I had to request) as my B12 levels have been steadily dropping over the last 12 months, despite a diet rich in B12. The FBC results were back within a week but I'm still waiting for the IF test results
I had a blood test 4 weeks ago. My GP wanted a full blood count and also Intrinsic Factor test ( which I had to request) as my B12 levels have been steadily dropping over the last 12 months, despite a diet rich in B12. The FBC results were back within a week but I'm still waiting for the IF test results
Fox123
in
Pernicious Anaemia Society
5 years ago
Injection frequency for Vitamin B12
I have been diagnosed with severe deficiency of B12 a month ago. My B12 level was 95 pmol/l (which is 42.27 ng/ml) and Active B12 level was 18 pmol/l (8.01 ng/ml) . I presented my GP and Neurologist with slow movements of right arm, right hand fingers and leg. I have sort of little burning sensation
I have been diagnosed with severe deficiency of B12 a month ago. My B12 level was 95 pmol/l (which is 42.27 ng/ml) and Active B12 level was 18 pmol/l (8.01 ng/ml) . I presented my GP and Neurologist with slow movements of right arm, right hand fingers and leg. I have sort of little burning sensation
lucldh
in
Pernicious Anaemia Society
5 years ago
Just got diagnosis, what else should I be taking
Hi All I have coleliac's disease and had always believed that my low b12 was due to this. I was a little casual about getting my 3 monthly b12 shot as I've been super-busy setting up a new business for the last couple of years. My last blood test showed b12 of 112 and I'm now having 6 shots every other
Hi All I have coleliac's disease and had always believed that my low b12 was due to this. I was a little casual about getting my 3 monthly b12 shot as I've been super-busy setting up a new business for the last couple of years. My last blood test showed b12 of 112 and I'm now having 6 shots every other
TFH1
in
Pernicious Anaemia Society
5 years ago
B12 Deficient Newby
Hi All. Having recently been diagnosed with B12 deficiency I have been reading the posts here with interest. I am learning quickly but still have a few questions that my doc can't/won't answer. I have yet to be diagnosed with PA or the reason for my deficiency. It isn't to do with diet as I eat all
Hi All. Having recently been diagnosed with B12 deficiency I have been reading the posts here with interest. I am learning quickly but still have a few questions that my doc can't/won't answer. I have yet to be diagnosed with PA or the reason for my deficiency. It isn't to do with diet as I eat all
Wolf79
in
Pernicious Anaemia Society
5 years ago
Secondary Sjögren’s Syndrome in Lupus Increases with Age
Secondary Sjögren’s Syndrome in Lupus Increases with Age Katie Robinson October 7, 2019 Lupus, Sjögren's Syndrome Sjögren’s syndrome secondary to systemic lupus erythematosus (SLE) rises in frequency with age, affects around one-quarter of all people with systemic lupus, and, despite less internal
Secondary Sjögren’s Syndrome in Lupus Increases with Age Katie Robinson October 7, 2019 Lupus, Sjögren's Syndrome Sjögren’s syndrome secondary to systemic lupus erythematosus (SLE) rises in frequency with age, affects around one-quarter of all people with systemic lupus, and, despite less internal
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Intrinsic factor blood test results...
Hi All, After testing below range for vitamin B12 I have just received the results of the intrinsic factor blood test and it states intrinsic factor ABS negative. Does this mean I can supplement with b12 now? And folate? At what dose? I know I’m low in b12 but the only symptom I have is hairloss! I
Hi All, After testing below range for vitamin B12 I have just received the results of the intrinsic factor blood test and it states intrinsic factor ABS negative. Does this mean I can supplement with b12 now? And folate? At what dose? I know I’m low in b12 but the only symptom I have is hairloss! I
Sarahlouise1980
in
Pernicious Anaemia Society
5 years ago
Intrinsic factor blood test results...
Hi All, After testing below range for vitamin B12 I have just received the results of the intrinsic factor blood test and it states intrinsic factor ABS negative. Does this mean I can supplement with b12 now? And folate? At what dose? I know I’m low in b12 but the only symptom I have is hairloss! I would
Hi All, After testing below range for vitamin B12 I have just received the results of the intrinsic factor blood test and it states intrinsic factor ABS negative. Does this mean I can supplement with b12 now? And folate? At what dose? I know I’m low in b12 but the only symptom I have is hairloss! I would
Sarahlouise1980
in
Thyroid UK
5 years ago
Parietal cell antibody test
I know I'm repeating myself but want to be clear. Is it correct that if you test negative for this it's reliable? I've not had the intrinsic factor test. I'm asking as I'm getting the vibe as one year in now the surgery want to decrease my B12 injections. B12 was put on my latest blood form after
I know I'm repeating myself but want to be clear. Is it correct that if you test negative for this it's reliable? I've not had the intrinsic factor test. I'm asking as I'm getting the vibe as one year in now the surgery want to decrease my B12 injections. B12 was put on my latest blood form after
Nackapan
in
Pernicious Anaemia Society
5 years ago
Very low B12 Levels...
Hi All, I’ve been found to have very low levels of vitamin B12 & folate. I’m having a blood test to check the intrinsic factor tomorrow. If that comes back negative can I supplement myself to get my levels up or do I have to have injections?? My only symptom is hairloss! I’m on loading doses of vitamin
Hi All, I’ve been found to have very low levels of vitamin B12 & folate. I’m having a blood test to check the intrinsic factor tomorrow. If that comes back negative can I supplement myself to get my levels up or do I have to have injections?? My only symptom is hairloss! I’m on loading doses of vitamin
Sarahlouise1980
in
Thyroid UK
5 years ago
New on here and seeking advice
Hi everyone. Until last week, I knew nothing about PBC and I have found out a lot from this forum and from the pbc foundation website. So thank you. I am going to see my GP this week, and I am looking for some advice. First a brief background. Until 4 months ago I was well ... then I started getting
Hi everyone. Until last week, I knew nothing about PBC and I have found out a lot from this forum and from the pbc foundation website. So thank you. I am going to see my GP this week, and I am looking for some advice. First a brief background. Until 4 months ago I was well ... then I started getting
Pootleflump
in
PBC Foundation
5 years ago
Diet during treatment
I'm in the middle of my b12 injection treatment, having completed 7 daily injections and two injections once a week. I'm positive for intrinsic factor blocking antibody, and we're confirming whether I have PA with an endoscopy in the next weeks. My question: What should my diet be at this point? Balanced
I'm in the middle of my b12 injection treatment, having completed 7 daily injections and two injections once a week. I'm positive for intrinsic factor blocking antibody, and we're confirming whether I have PA with an endoscopy in the next weeks. My question: What should my diet be at this point? Balanced
CocoSimon
in
Pernicious Anaemia Society
5 years ago
Success — Short-lived
Drs appointment today following 2 weeks of every other day injections... said he’s stopping them due to neuro symptoms and won’t have another for 2 months!! I explained that in the BNF book states until no further improvement... did not listen at all !! I said I felt really worried and anxious about
Drs appointment today following 2 weeks of every other day injections... said he’s stopping them due to neuro symptoms and won’t have another for 2 months!! I explained that in the BNF book states until no further improvement... did not listen at all !! I said I felt really worried and anxious about
SMXX
in
Pernicious Anaemia Society
5 years ago
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