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My husband started with pain and swelling in his hands, awful fatigue and nausea about 2 months ago. GP did bloods and x ray, said no rheumatoid factor or inflammatory markers but referred him to rheumatology as an urgent referral as it’s having such an impact on his life and work. (And mine as I’m having
My husband started with pain and swelling in his hands, awful fatigue and nausea about 2 months ago. GP did bloods and x ray, said no rheumatoid factor or inflammatory markers but referred him to rheumatology as an urgent referral as it’s having such an impact on his life and work. (And mine as I’m having
Nuthatch
in
NRAS
3 years ago
Assistance with Potential misdiagnosis.
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
smileysammi
in
Pernicious Anaemia Society
3 years ago
IFab or MMA
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Sparklyjenson
in
Pernicious Anaemia Society
3 years ago
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Questions re B12 injections and long term use of prescribed folic acid
Have been advised by members in the thyroid community to ask this question of yourselves. I have been fighting for years with GP's re my Hashimoto's and my pernicious anaemia. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at
Have been advised by members in the thyroid community to ask this question of yourselves. I have been fighting for years with GP's re my Hashimoto's and my pernicious anaemia. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at
mill44
in
Pernicious Anaemia Society
3 years ago
Is Inflammatory Arthritis RA?
Stupid question, been diagnosed for six years since 20 but it’s always been written as: Seronegative inflammatory arthritis. It was once written as RA and once as Oligoarthritis. Is there any difference. I am negative rheumatoid factor, anti-CCP and HLA B27. Three years ago my DSA28 score equates to
Stupid question, been diagnosed for six years since 20 but it’s always been written as: Seronegative inflammatory arthritis. It was once written as RA and once as Oligoarthritis. Is there any difference. I am negative rheumatoid factor, anti-CCP and HLA B27. Three years ago my DSA28 score equates to
gr95
in
NRAS
3 years ago
Castor oil for loss of sense of smell (anosmia, hyposmia)
Had never heard of this use for castor oil before: https://www.healthline.com/health/how-to-regain-sense-of-smell-naturally#methods-to-try Came across this when reading up on castor oil which I have been using successfully to treat eyelid inflammation (blepharitis). I'm also going to try using it as
Had never heard of this use for castor oil before: https://www.healthline.com/health/how-to-regain-sense-of-smell-naturally#methods-to-try Came across this when reading up on castor oil which I have been using successfully to treat eyelid inflammation (blepharitis). I'm also going to try using it as
Rhyothemis
in
Cure Parkinson's
3 years ago
Non-gut related symptoms - could it still be CD?
Hi All New here and just looking for some opinions on my situation. As some background, I’ve been struggling with joint pain since December last year. I went to the GP who did: – nerve test for Carpel Tunnel (normal) -referred to physio in case it’s tendonitis (it was mostly wrists and elbows at
Hi All New here and just looking for some opinions on my situation. As some background, I’ve been struggling with joint pain since December last year. I went to the GP who did: – nerve test for Carpel Tunnel (normal) -referred to physio in case it’s tendonitis (it was mostly wrists and elbows at
AtemiM
in
Gluten Free Guerrillas
3 years ago
Help with Blood Test Results Please
Hi there I was hoping to see if anyone could help me with my latest blood test results please: Active Vitamin B12 67 pmol/L (Range 25-108) Homocysteine 14.0 (range 3.7-13.9 umol/L) Methylmalonic acid 0.14 (Range 0.29 umol/L) Intrinsic Factor 0 (Range 0-6 U/mL) Vitamin D 37 (Range 76-250 nmol/L) Serum
Hi there I was hoping to see if anyone could help me with my latest blood test results please: Active Vitamin B12 67 pmol/L (Range 25-108) Homocysteine 14.0 (range 3.7-13.9 umol/L) Methylmalonic acid 0.14 (Range 0.29 umol/L) Intrinsic Factor 0 (Range 0-6 U/mL) Vitamin D 37 (Range 76-250 nmol/L) Serum
Mrss25
in
Pernicious Anaemia Society
3 years ago
Prognosis
Hello, I had pernicious anemia about two years ago and it was corrected with injections. Intrinsic factor test was negative. However, with the time I needed injections again. I read in the internet that pernicious anemia is caused by autoimmune gastritis and that this gastritis may lead to cancer. I
Hello, I had pernicious anemia about two years ago and it was corrected with injections. Intrinsic factor test was negative. However, with the time I needed injections again. I read in the internet that pernicious anemia is caused by autoimmune gastritis and that this gastritis may lead to cancer. I
LarissaGishar
in
Pernicious Anaemia Society
3 years ago
Rheumatoid factor labs
Hello. Im trying to understand whats going on. My drs have been running tons of test because my joint and muscles ache so bad and some of my knuckles are swollen in my hand. So one day i tested positive for rheumatoid factor IGG and rheumatoid factor IGM but IGA was negative. A week later they did a
Hello. Im trying to understand whats going on. My drs have been running tons of test because my joint and muscles ache so bad and some of my knuckles are swollen in my hand. So one day i tested positive for rheumatoid factor IGG and rheumatoid factor IGM but IGA was negative. A week later they did a
jcarlton76
in
Thyroid UK
3 years ago
Repeating intrinsic factor antibody blood test
Hello Does anybody have any references to show a consultant that wants to repeat an ifab blood test? I have gastric parietal cells and am ifab positive with reading of 8 (range 0-5). He says I'm only weekly positive for ifab so wants to repeat the test. I had one down in June that was negative, then
Hello Does anybody have any references to show a consultant that wants to repeat an ifab blood test? I have gastric parietal cells and am ifab positive with reading of 8 (range 0-5). He says I'm only weekly positive for ifab so wants to repeat the test. I had one down in June that was negative, then
Aumshantii
in
Pernicious Anaemia Society
3 years ago
Hypersensitivity post circumcision
Hi, I am on my 8th week at the moment, have had partial circum followed by frenuloplasty. Healing and all is going well and the hypersensitivity of glans is much reduced upto an extent that it won’t pain or discomfort in under garments or a slight tap. But any sort of sudden rubbing by hand or tissue
Hi, I am on my 8th week at the moment, have had partial circum followed by frenuloplasty. Healing and all is going well and the hypersensitivity of glans is much reduced upto an extent that it won’t pain or discomfort in under garments or a slight tap. But any sort of sudden rubbing by hand or tissue
phantomblack
in
Men's Health Forum (Penis Health)
3 years ago
Test result help
I've had intrinsic factor levels checked and the results were 1.0 U/MI what dies this mean....my b12 was 814 and haematocrit lower than usual, I've been getting reoccurring anemia for 2 years now and having a lot of symptoms of b12 deficiency despite having a higher level. But intrinsic factor has me
I've had intrinsic factor levels checked and the results were 1.0 U/MI what dies this mean....my b12 was 814 and haematocrit lower than usual, I've been getting reoccurring anemia for 2 years now and having a lot of symptoms of b12 deficiency despite having a higher level. But intrinsic factor has me
Jaye75
in
Pernicious Anaemia Society
3 years ago
7th week post partial circumcision - Experience so far !!
Hi, I am on my 7th week post partial circum, I would like to share some of my experience just in case anyone here looking to go for Partial Circumcision. To start with I had severe phimosis and a mild Balanitis (haven't seen the glans in 35 years), so my surgeon suggested two options - full circum or
Hi, I am on my 7th week post partial circum, I would like to share some of my experience just in case anyone here looking to go for Partial Circumcision. To start with I had severe phimosis and a mild Balanitis (haven't seen the glans in 35 years), so my surgeon suggested two options - full circum or
phantomblack
in
Men's Health Forum (Penis Health)
3 years ago
I started almost a year ago with this diagnosis, unfortunately. I had biopsies in February to confirm cirrhosis.
Since then I dropped 40 pounds, changed to low carb, walk a lot, drink coffee, take asparagus extract, milk thistle, vitamin e. Collagen, and Actos. Was hoping for lower number, but progress is progress! Down to NASH 3 and 33% of my liver. Not sure what the numbers on the right mean?? I weigh 125
Since then I dropped 40 pounds, changed to low carb, walk a lot, drink coffee, take asparagus extract, milk thistle, vitamin e. Collagen, and Actos. Was hoping for lower number, but progress is progress! Down to NASH 3 and 33% of my liver. Not sure what the numbers on the right mean?? I weigh 125
Newdeck
in
Living with Fatty Liver and NASH
3 years ago
Struggling to get any doctors to listen to me.
I’m having an extremely difficult time getting any doctors to listen to me. I have been struggling with my joints now for around 6-7 years. I have been seeing GPs and the like for all of this time and the answers have always been the same, there’s a potential I have arthritis but because my Rheumatoid
I’m having an extremely difficult time getting any doctors to listen to me. I have been struggling with my joints now for around 6-7 years. I have been seeing GPs and the like for all of this time and the answers have always been the same, there’s a potential I have arthritis but because my Rheumatoid
SadGirlRaceClub
in
LUPUS UK
3 years ago
What monitoring is required after treatment for vitamin B12 deficiency has started?
The NICE Guidelines are as follows: "What monitoring is required after treatment for vitamin B12 deficiency has started? Perform a full blood count and reticulocyte count: Within 7–10 days of starting treatment. A rise in the haemoglobin level and an increase in the reticulocyte count to above the
The NICE Guidelines are as follows: "What monitoring is required after treatment for vitamin B12 deficiency has started? Perform a full blood count and reticulocyte count: Within 7–10 days of starting treatment. A rise in the haemoglobin level and an increase in the reticulocyte count to above the
Springblossom13
in
Pernicious Anaemia Society
3 years ago
Natural remedies and food supplements
This is mainly a personal view of the usefulness of these for RLS, but is based on some reading. I hope it is a balanced view. Hopefully it offers some guidance for when you're choosing remedies. The 3 main things you should find out about when choosing a remedy. 1) EFFECTIVENESS : does it actually
This is mainly a personal view of the usefulness of these for RLS, but is based on some reading. I hope it is a balanced view. Hopefully it offers some guidance for when you're choosing remedies. The 3 main things you should find out about when choosing a remedy. 1) EFFECTIVENESS : does it actually
Elffindoe
in
Restless Legs Syndrome
3 years ago
Interesting summary of PA on nhs website
I read the following paragraph to a nutritionist and I think they didnt believe it. I have PA but also suspected chronic pancreatitis in spite of healthy pancreas in scans, no pain, bloating or weight change. I want to supplement with acid in a healthy way with their advice. They've said - do not take
I read the following paragraph to a nutritionist and I think they didnt believe it. I have PA but also suspected chronic pancreatitis in spite of healthy pancreas in scans, no pain, bloating or weight change. I want to supplement with acid in a healthy way with their advice. They've said - do not take
Luac
in
Pernicious Anaemia Society
3 years ago
Updates/Questions
Just had my 6 month check- anxious for scan in a few weeks! I have taken a low dose Actos for the last 6 months and am anxious to see if my Nash score comes down. My doctor mentioned a new diabetic drug that is out that is supposed to work better on fatty liver than the Actos, but I can’t remember
Just had my 6 month check- anxious for scan in a few weeks! I have taken a low dose Actos for the last 6 months and am anxious to see if my Nash score comes down. My doctor mentioned a new diabetic drug that is out that is supposed to work better on fatty liver than the Actos, but I can’t remember
Newdeck
in
Living with Fatty Liver and NASH
3 years ago
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