Search
Search
About
Log in
Join
Experiences with
Clexane
Posts
Communities
749 public posts
Filter results
Opinions Required - APS screening - please read
And it will also help with pregnancies - as women will know before they start trying for a family if they require aspirin/
clexane
during their pregnancies. What's everyone's opinions on this? And who do I approach to make this point - is it my local MP?? Thank you x
And it will also help with pregnancies - as women will know before they start trying for a family if they require aspirin/
clexane
during their pregnancies. What's everyone's opinions on this? And who do I approach to make this point - is it my local MP?? Thank you x
Louise_Davies
in
Hughes Syndrome APS Forum
10 years ago
I was prescribed wrong dose of clexane for use when inr 2.5 or below for over ten yrs dose prescribed not enough could this have been
Dangerous to my health, also anyone out there had their feet and ankles go bright red and hot as if burned very painful?
Dangerous to my health, also anyone out there had their feet and ankles go bright red and hot as if burned very painful?
Rocki
in
Hughes Syndrome APS Forum
11 years ago
My CAPS experience
In the hospital I started to use
Clexane
and I also changed doctor after a short visit to just drop on his desk the report from the Spanish hospital. They recommend me to fix the
Clexane
on my legs but, due my work I couldn't so I was doing on my belly.
In the hospital I started to use
Clexane
and I also changed doctor after a short visit to just drop on his desk the report from the Spanish hospital. They recommend me to fix the
Clexane
on my legs but, due my work I couldn't so I was doing on my belly.
Tidux
in
Hughes Syndrome APS Forum
11 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
How often or what blood test are done when you are on clexane injections everyday?
I don't think the
clexane
is thing my blood enough. My dr. Here in the U.S. has not done any blood test on me in the last 5 months. Designer16
I don't think the
clexane
is thing my blood enough. My dr. Here in the U.S. has not done any blood test on me in the last 5 months. Designer16
designer16
in
Hughes Syndrome APS Forum
11 years ago
Has anyone went to the Food Hospital in the UK?
I started to get better when I started taking the
clexane
, but now it seems like my body is use to it. Designer16
I started to get better when I started taking the
clexane
, but now it seems like my body is use to it. Designer16
designer16
in
Hughes Syndrome APS Forum
11 years ago
Pain management while on blood thinners
This time i'm on
clexane
injections so can't take the ibuprofen therefore can't get the pain under control long enough for the muscles to relax. I've had the diazepam and co codamol, even tramadol but nothing I would usually do is working.
This time i'm on
clexane
injections so can't take the ibuprofen therefore can't get the pain under control long enough for the muscles to relax. I've had the diazepam and co codamol, even tramadol but nothing I would usually do is working.
bennifer
in
Pain Concern
11 years ago
Clotting on Clexane
This time I want to ask whether it is possible to have a clot whilst on
Clexane
. I have just been told in no uncertain terms i might add by a consultant at my local hospital that it is absolutely impossible to clot on
Clexane
. My GP says different, who is right . Thanks
This time I want to ask whether it is possible to have a clot whilst on
Clexane
. I have just been told in no uncertain terms i might add by a consultant at my local hospital that it is absolutely impossible to clot on
Clexane
. My GP says different, who is right . Thanks
margaretjo
in
Hughes Syndrome APS Forum
11 years ago
Have I got Lupus or not???? ...anyone able to listen or advise???
I was told that I have multiple blood clots in my lungs... so started taking 10mg wharfarin as advised and
Clexane
injections for the first week of treatment. I've had blood test after blood test, including lupus... all came back negative...
I was told that I have multiple blood clots in my lungs... so started taking 10mg wharfarin as advised and
Clexane
injections for the first week of treatment. I've had blood test after blood test, including lupus... all came back negative...
Paul_Heanor
in
LUPUS UK
11 years ago
Pregnancy and aps
After several scans with perfect heartbeat and baby and
clexane
and aspirin my baby died over the weekend at some point :( . Now waiting for miscarriage to complete with no sign yet. This is the worst thing ive ever had to do sit and wait knowing my baby is still in my tummy but not alive :(
After several scans with perfect heartbeat and baby and
clexane
and aspirin my baby died over the weekend at some point :( . Now waiting for miscarriage to complete with no sign yet. This is the worst thing ive ever had to do sit and wait knowing my baby is still in my tummy but not alive :(
sarahlou1801
in
Hughes Syndrome APS Forum
11 years ago
Clexane and lumps
This is for anyone on
Clexane
. I inject twice a day and am sometimes left with large painful lumps that usually bruise. I do apply arnica cream which does help but they can be very painful.
This is for anyone on
Clexane
. I inject twice a day and am sometimes left with large painful lumps that usually bruise. I do apply arnica cream which does help but they can be very painful.
margaretjo
in
Hughes Syndrome APS Forum
11 years ago
Coming off Clexane/Finding a good doctor
So after much MUCH to-ing, fro-ing and indecision over very high positive APL blood test results (interspersed with normal results) I was finally put on a
Clexane
trial.
So after much MUCH to-ing, fro-ing and indecision over very high positive APL blood test results (interspersed with normal results) I was finally put on a
Clexane
trial.
Fairypies
in
Hughes Syndrome APS Forum
11 years ago
clexane
Then if I go below 3
clexane
jabs. My INR is fairly erratic. They also are suggesting plaquenil for the pain and for its mild anticogualant effects and also for the lupus type symptoms I have (they are retesting for lupus as I am a weak positive). Still new to all this.
Then if I go below 3
clexane
jabs. My INR is fairly erratic. They also are suggesting plaquenil for the pain and for its mild anticogualant effects and also for the lupus type symptoms I have (they are retesting for lupus as I am a weak positive). Still new to all this.
stillwaiting
in
Hughes Syndrome APS Forum
11 years ago
New to Hughes, but not really.
I have recently started on warfarin after years on
Clexane
and I have to admit its a struggle. Its so hard to be normal when I don't know what normal feels like anymore. Fatigue, aches and pains, feeling like I cant get enough oxygen all the time, its a struggle daily.
I have recently started on warfarin after years on
Clexane
and I have to admit its a struggle. Its so hard to be normal when I don't know what normal feels like anymore. Fatigue, aches and pains, feeling like I cant get enough oxygen all the time, its a struggle daily.
VBAustralia
in
Hughes Syndrome APS Forum
11 years ago
I am 28+4 weeks and have two large blood clots on my lungs have been there since i was 9 weeks pregnant. I have to inject my tummy twice a
Day with
clexane
a blood thinner to stop any more clots.i still am very breathless and cant speak when i reach the top of the stairsand get very breathless doing the smallest of things ie getting dressed.does anyone else have a pe like me and if so are you still suffering with the above and getting stabbing
Day with
clexane
a blood thinner to stop any more clots.i still am very breathless and cant speak when i reach the top of the stairsand get very breathless doing the smallest of things ie getting dressed.does anyone else have a pe like me and if so are you still suffering with the above and getting stabbing
sarahmark
in
Pregnancy and Parenting Support
11 years ago
Confusing S-APS/SLE diagnosis/symptoms? Spasmodic dysphonia part of APS/SLE?
I'm on
clexane
injections which have helped a lot along with nifedipine and lyrica. My specialist (St.T's) seems to beleive it's seronegative APS then wrote 'SLE' on my most recent pharmacy note. I'm now vitD deficient and my ANA is usually weak-positive.
I'm on
clexane
injections which have helped a lot along with nifedipine and lyrica. My specialist (St.T's) seems to beleive it's seronegative APS then wrote 'SLE' on my most recent pharmacy note. I'm now vitD deficient and my ANA is usually weak-positive.
medsoph
in
Hughes Syndrome APS Forum
11 years ago
Clexane/heparin
Even though all the antibody tests are not yet in, I have had a copy of a really helpful letter from the dr I saw at St T's. One of the many things she suggests is that I lower my target INR range from 3-4 as I have no actual evidence of TIA. This makes sense to me as I know at a high range I am at high
Even though all the antibody tests are not yet in, I have had a copy of a really helpful letter from the dr I saw at St T's. One of the many things she suggests is that I lower my target INR range from 3-4 as I have no actual evidence of TIA. This makes sense to me as I know at a high range I am at high
stillwaiting
in
Hughes Syndrome APS Forum
11 years ago
flight,
Clexane
40mgs in case INR below 3, Doctors letter saying I was taking injections on the plane several boxes of pills, coagucheck check machine,that's probably the weight limit gone So far we have managed to loose the passports, now found and it wasn't my fault at last I was able to say if you put things
Clexane
40mgs in case INR below 3, Doctors letter saying I was taking injections on the plane several boxes of pills, coagucheck check machine,that's probably the weight limit gone So far we have managed to loose the passports, now found and it wasn't my fault at last I was able to say if you put things
daisyd
in
Hughes Syndrome APS Forum
11 years ago
Costs of clexane/heparin
Just wondering what the costs are in various parts of the world for
clexane
/heparin? Here in Australia I'm paying just over $36 for 10 syringes of 80mg
clexane
and I'm taking two shots a day. On the pack it says the full cost is $91
Just wondering what the costs are in various parts of the world for
clexane
/heparin? Here in Australia I'm paying just over $36 for 10 syringes of 80mg
clexane
and I'm taking two shots a day. On the pack it says the full cost is $91
tassie
in
Hughes Syndrome APS Forum
11 years ago
Self help
do with some advice please, I have had PMR for 10 months now, am on all the usual meds, am down to 15 mg of steroids, and still trying to reduce slowly, in the last few weeks I have developed a DVT in my right leg, I have two blood clots, and now am on warfarin and have recently stopped having daily
clexane
do with some advice please, I have had PMR for 10 months now, am on all the usual meds, am down to 15 mg of steroids, and still trying to reduce slowly, in the last few weeks I have developed a DVT in my right leg, I have two blood clots, and now am on warfarin and have recently stopped having daily
clexane
Hidden
in
PMRGCAuk
11 years ago
DVT
I have only just been told after a scan two days ago I have DVT, have taken warfarin for two days after daily blood tests, the hospital scared me rigid with all the info about what might happen, I am also having daily injections of
clexane
100mg not sure why, because I was overloaded with information
I have only just been told after a scan two days ago I have DVT, have taken warfarin for two days after daily blood tests, the hospital scared me rigid with all the info about what might happen, I am also having daily injections of
clexane
100mg not sure why, because I was overloaded with information
Hidden
in
Anticoagulation Support
11 years ago
1
...
30
31
32
...
38
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
307 results
Hughes Syndrome APS Forum
268 results
Anticoagulation Support
33 results
View top 10 communities
Sort by
Most Relevant
Newest