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Experiences with
Chronic kidney disease (CKD)
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Nearly there…
Morning all I am determined to come off the dreaded pred. and now down to 1mg, hurrah! Although I hurt sometimes, it is not as it was and I can live with it. Are there any tips for alternatives for inflammation? Someone said CBD oil so I bought some Cannery and not sure if it does anything, possibly
Morning all I am determined to come off the dreaded pred. and now down to 1mg, hurrah! Although I hurt sometimes, it is not as it was and I can live with it. Are there any tips for alternatives for inflammation? Someone said CBD oil so I bought some Cannery and not sure if it does anything, possibly
JAC1947
in
PMRGCAuk
4 months ago
Hyperparathyroidism, PTH intact
If so, what is your level and what stage
CKD
are you and what treatment are you taking? What, if anything did you doctor say about it. My PTH has been rising. One article says it is because of
CKD
and another says it causes
CKD
.
If so, what is your level and what stage
CKD
are you and what treatment are you taking? What, if anything did you doctor say about it. My PTH has been rising. One article says it is because of
CKD
and another says it causes
CKD
.
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
Just got my diagnosis 3aCKD
Does anyone have a good reference book on diets for
CKD
? Thanks. I feel scared and lost right now and have so many questions. Seems like one month ago I was completely healthy-or at least I thought I was. Thank you.
Does anyone have a good reference book on diets for
CKD
? Thanks. I feel scared and lost right now and have so many questions. Seems like one month ago I was completely healthy-or at least I thought I was. Thank you.
KajNybom
in
Kidney Disease
1 year ago
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Kidney Disease Clinical Trials: Are They Right for You?
Participating in a clinical trial could help you and future patients with
CKD
, but it is important to know possible risks and benefits involved. Learn more at: https://www.kidney.org/newsletter/kidney-disease-clinical-trials-are-they-right-you
Participating in a clinical trial could help you and future patients with
CKD
, but it is important to know possible risks and benefits involved. Learn more at: https://www.kidney.org/newsletter/kidney-disease-clinical-trials-are-they-right-you
JackieJ_NKF
Partner
in
Kidney Disease
1 year ago
Am I ok to use CBD and 100mcg of Levothyroxine together?
Hi guys! Im currently taking 100mcg of eltroxin and wanted to use start using CBD. I had done a quick google and it says that the two interact with each other and have gotten a little bit worried as ive been vaping cbd since yesterday. Does anyone know if it's safe to use the two together? I
Hi guys! Im currently taking 100mcg of eltroxin and wanted to use start using CBD. I had done a quick google and it says that the two interact with each other and have gotten a little bit worried as ive been vaping cbd since yesterday. Does anyone know if it's safe to use the two together? I
Msak94
in
Thyroid UK
4 months ago
Respite recommendations - North Hampshire, UK
Hi everyone, can anyone recommend a hospice or care home that can offer respite care for a CBD patient who is bed bound and requires 24hr care? I am struggling to find somewhere that can accommodate these high care needs for my mum on an ad hoc basis so my dad can have breaks. Respite of periods of a
Hi everyone, can anyone recommend a hospice or care home that can offer respite care for a CBD patient who is bed bound and requires 24hr care? I am struggling to find somewhere that can accommodate these high care needs for my mum on an ad hoc basis so my dad can have breaks. Respite of periods of a
bichonbear1
in
PSP Association
4 months ago
Struggling to put on weight
I have persistent AF, heart failure and
CKD
stage 3a. Whenever I ask my doctor why I cannot put on weight he keeps saying that people struggling from these diseases have the same problem. But I don’t believe this as the posts on this site show just the opposite.
I have persistent AF, heart failure and
CKD
stage 3a. Whenever I ask my doctor why I cannot put on weight he keeps saying that people struggling from these diseases have the same problem. But I don’t believe this as the posts on this site show just the opposite.
Csingicsong
in
Atrial Fibrillation Support
1 year ago
CKD at 64
Hi All,At 64 years,, my egfr was 60 last year According to scans, my right kidney is a pile of cysts with 33 percent function and left about 66 with one small cyst. Would like to learn more about my condition! Open to suggestions. Thanks Steve
Hi All,At 64 years,, my egfr was 60 last year According to scans, my right kidney is a pile of cysts with 33 percent function and left about 66 with one small cyst. Would like to learn more about my condition! Open to suggestions. Thanks Steve
Steve507
in
Early CKD Support
1 year ago
Just Stares
Good morning, everyone! My husband was diagnosed with CBD in 2018. Since then, as you all know, it has been a long downward slide. He is now bedridden and can barely speak. He is in hospice and has been for over two years. While he does choke, it is not yet out of control. He does have trouble drinking
Good morning, everyone! My husband was diagnosed with CBD in 2018. Since then, as you all know, it has been a long downward slide. He is now bedridden and can barely speak. He is in hospice and has been for over two years. While he does choke, it is not yet out of control. He does have trouble drinking
Indiana-Girl
in
PSP Association
5 months ago
essential thrombocytosis
Thank you for allowing me to join this group. I was diagnosed with JAK @ and essential thrombocytosis this past August. I have been taking Hydrea 500 mg on MWF I was having no problems with this dosage and my platelets were staying in a good range. This past month I started having trouble with
Thank you for allowing me to join this group. I was diagnosed with JAK @ and essential thrombocytosis this past August. I have been taking Hydrea 500 mg on MWF I was having no problems with this dosage and my platelets were staying in a good range. This past month I started having trouble with
Preacherswife
in
MPN Voice
5 months ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
5 months ago
I said the wrong word.
I said CBD symptoms, I meant COPD symptoms
I said CBD symptoms, I meant COPD symptoms
Rkdevo
in
Lung Conditions Community Forum
5 months ago
Low BP preventing transplantation
In November 2022 he progressed to Stage 5
CKD
and had to start dialysis. He has low BP and is medicated to keep it up. The transplant team reviewed his case and said they cannot transplant him until his blood pressure is "normal" without medication.
In November 2022 he progressed to Stage 5
CKD
and had to start dialysis. He has low BP and is medicated to keep it up. The transplant team reviewed his case and said they cannot transplant him until his blood pressure is "normal" without medication.
WifeofDialysisMan
in
Dialysis Support
1 year ago
type 1 diabetes and ckd
i just got out of the hospital two days ago.i found out i am type 1 and have chronic heart failure as well as ckd.im on metformin they took me off amlodipine because it causes swelling.tips to deal with
ckd
and type 1?
i just got out of the hospital two days ago.i found out i am type 1 and have chronic heart failure as well as ckd.im on metformin they took me off amlodipine because it causes swelling.tips to deal with
ckd
and type 1?
S_dillow
in
Kidney Disease
1 year ago
I have ataxia SCA-7 / 43 rept
2 things you should try, please report. 1 I'm 56, damn old, half dead one can say. I'm still mentally in a very good condition. Physically quite medium. I can walk with my legs slowly with human or sticks support. Anyway, CBD clearly helps me. I been taking various doses weekly for 5-6 years now
2 things you should try, please report. 1 I'm 56, damn old, half dead one can say. I'm still mentally in a very good condition. Physically quite medium. I can walk with my legs slowly with human or sticks support. Anyway, CBD clearly helps me. I been taking various doses weekly for 5-6 years now
Tommi_
in
Ataxia UK
5 months ago
A few questions for the diabetics here that are on insulin.
My
CKD
has progressed to where I had to stop the metformin. My doctor tried a few other meds but they didn't work. A couple of weeks ago I started on insulin. I'm finding this is a whole new world now. I started on fast acting insulin with 4 units, breakfast, lunch and dinner.
My
CKD
has progressed to where I had to stop the metformin. My doctor tried a few other meds but they didn't work. A couple of weeks ago I started on insulin. I'm finding this is a whole new world now. I started on fast acting insulin with 4 units, breakfast, lunch and dinner.
jodaer
in
Kidney Disease
1 year ago
Cannabis to aid sleep
I struggle to get to sleep at night. Not sure if its connected to my HF / HCM but I am always knackered. I have tried a good stiff malt, boring books and even self hypnosis but nothing has worked so far. Would [Removed] CBD Gummy Bears be a solution? [Removed] What do you think?
I struggle to get to sleep at night. Not sure if its connected to my HF / HCM but I am always knackered. I have tried a good stiff malt, boring books and even self hypnosis but nothing has worked so far. Would [Removed] CBD Gummy Bears be a solution? [Removed] What do you think?
Curryandchips
in
British Heart Foundation
5 months ago
CBD Oil (Cannabis Oil) usage in Parkinson's
Someone has suggested having CBD oil at night (2 drops under the tongue) for better sleep and less stiffness in Parkinson's. Has anyone used it? Please share your experience. Any side-effect in short/long term? Any interference with C/L? Thanks
Someone has suggested having CBD oil at night (2 drops under the tongue) for better sleep and less stiffness in Parkinson's. Has anyone used it? Please share your experience. Any side-effect in short/long term? Any interference with C/L? Thanks
sutensera
in
Cure Parkinson's
5 months ago
Restless legs
Hi im a 67 yr female and live in the uk . I was diagnosed in London privately over 30 yrs ago and since then have been on dopamine agonists , when things got bad I just changed Dop Ag . I was also under a rls specialist in Bath who when I had a problem just upped my dose! When I queried augmentation
Hi im a 67 yr female and live in the uk . I was diagnosed in London privately over 30 yrs ago and since then have been on dopamine agonists , when things got bad I just changed Dop Ag . I was also under a rls specialist in Bath who when I had a problem just upped my dose! When I queried augmentation
Huntingleroy
in
Restless Legs Syndrome
5 months ago
Trip to the Er/ED
Globulin and EGFR
CKD
-EPI both low Probably not associated with a flare, since both inflammatory markers were normal range. Sed rate 4 CRP <0.50 Of course I've been googling my little heart out. Wondering if PMRpro has any insight from her research expertise.
Globulin and EGFR
CKD
-EPI both low Probably not associated with a flare, since both inflammatory markers were normal range. Sed rate 4 CRP <0.50 Of course I've been googling my little heart out. Wondering if PMRpro has any insight from her research expertise.
Lenore58
in
PMRGCAuk
3 months ago
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