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Cinchocaine / Prednisolone hexanoate
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Neutrophils Crash
I have been on 25mg Mtx with 5mg Prednisolone and folic acid daily - largely successfully for a couple of years. 10mg Leflunomide was added and since then I’ve had several issues. Most recently over a couple of months my WBC and neutrophils has crashed (0.8 for latter) resulting in bad mouth ulcers
I have been on 25mg Mtx with 5mg Prednisolone and folic acid daily - largely successfully for a couple of years. 10mg Leflunomide was added and since then I’ve had several issues. Most recently over a couple of months my WBC and neutrophils has crashed (0.8 for latter) resulting in bad mouth ulcers
Fiona0664
in
NRAS
11 months ago
What next? Is my man a candidate for Pluvicto?
I am the wife of my 14 year warrior, details in his bio. Finally after 3 PSMA scans, cancer has shown up in a few lymph nodes and in the original area of reattachment of urethra to bladder from his prostatectomy, and on the bladder wall. He has now been on Abi & Prednisone for 2 weeks, although after
I am the wife of my 14 year warrior, details in his bio. Finally after 3 PSMA scans, cancer has shown up in a few lymph nodes and in the original area of reattachment of urethra to bladder from his prostatectomy, and on the bladder wall. He has now been on Abi & Prednisone for 2 weeks, although after
TahoeJ
in
Advanced Prostate Cancer
9 months ago
Prednisolone
Hi all, I have yet again been prescribed a new medication, (Above) this time for 'Bells Palsy' . 12 pills per day for 5 days, then 10,8,6,4,2 daily thereafter. In all a 10 day course. I note that a side effect is being susceptible to infections as it weakens the' Immune System' Given that CLL'ers
Hi all, I have yet again been prescribed a new medication, (Above) this time for 'Bells Palsy' . 12 pills per day for 5 days, then 10,8,6,4,2 daily thereafter. In all a 10 day course. I note that a side effect is being susceptible to infections as it weakens the' Immune System' Given that CLL'ers
Vindicatrix
in
CLL Support
11 months ago
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steroid injection
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
bakingD
in
NRAS
11 months ago
painful thighs and buttocks
My initial symptoms and PMR pain were all in my shoulders, neck, hands, and wrists. I was diagnosed in Dec 2019. Tapered off prednisone too fast (now I know) in 14 months; and it came back one month later after my second COVID (Moderna) vaccine. Just shoulders and arms, but made them very painful
My initial symptoms and PMR pain were all in my shoulders, neck, hands, and wrists. I was diagnosed in Dec 2019. Tapered off prednisone too fast (now I know) in 14 months; and it came back one month later after my second COVID (Moderna) vaccine. Just shoulders and arms, but made them very painful
PUMC
in
PMRGCAuk
9 months ago
severe leg pain with leg buckling
I recently had a lovely holiday in Devon, where I probably pushed myself too much, and ended up with my ankylosing spondylitis flaring. 12 days ago, I started getting moderate pain n my thigh and knee, and the thigh would suddenly feel like jelly and buckle under me. This resulted in me falling in the
I recently had a lovely holiday in Devon, where I probably pushed myself too much, and ended up with my ankylosing spondylitis flaring. 12 days ago, I started getting moderate pain n my thigh and knee, and the thigh would suddenly feel like jelly and buckle under me. This resulted in me falling in the
Runrig01
in
NRAS
11 months ago
PMR 15 Years On
Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of Prednisolone over 18 months and arrived at zero two months ago. Have osteoarthritis of hip and one knee and scheduled for hip procedure. The hip pain
Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of Prednisolone over 18 months and arrived at zero two months ago. Have osteoarthritis of hip and one knee and scheduled for hip procedure. The hip pain
Pred5
in
PMRGCAuk
11 months ago
Update on 8/4 post from alperk
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated, 35 grays in 5 fractions. PSA crept back up to 4.2 on 9/6 and scan showed again only one active site in nearly the same location
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated, 35 grays in 5 fractions. PSA crept back up to 4.2 on 9/6 and scan showed again only one active site in nearly the same location
alperk
in
Advanced Prostate Cancer
9 months ago
Has Anyone had a CGA CHROMOGRANIN A, EIA Test ? It’s tumor marker test.
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Fatigue
Since being diagnosed with an inflammatory disorder three years ago I have suffered with various symptoms most of which are now well controlled and stable. The severe pain in my joints and other parts of my body and the excruciatingly painful headaches thankfully seem to be kept at bay by medication
Since being diagnosed with an inflammatory disorder three years ago I have suffered with various symptoms most of which are now well controlled and stable. The severe pain in my joints and other parts of my body and the excruciatingly painful headaches thankfully seem to be kept at bay by medication
Hightower62
in
NRAS
11 months ago
overheating and PMR
I have had polymyalgia for 18 months, and at the beginning, there was a thought that I was developing GCA. However, the rheumy discounted this and after starting on steroids at 60 mg I quickly reduced to 10. I stayed on this for sometime because of stressful family issues. However, over the last six
I have had polymyalgia for 18 months, and at the beginning, there was a thought that I was developing GCA. However, the rheumy discounted this and after starting on steroids at 60 mg I quickly reduced to 10. I stayed on this for sometime because of stressful family issues. However, over the last six
Stargiver
in
PMRGCAuk
11 months ago
Methotrexate Confusion
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
LizMitchell
in
PMRGCAuk
9 months ago
Could this be the start of neuropathy?
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
CrocodileShoes
in
Advanced Prostate Cancer
9 months ago
prolia and Actemra.
Hi everyone. I recently had an X-ray on my hip as I am having hip pain which causes my leg to give way when I transfer from my wheelchair. I have MS and GCA. The result of the X-ray was Osteoarthritis and “probable demineralization.” So when I saw my rheumatologist today I asked if I should have a DEXA
Hi everyone. I recently had an X-ray on my hip as I am having hip pain which causes my leg to give way when I transfer from my wheelchair. I have MS and GCA. The result of the X-ray was Osteoarthritis and “probable demineralization.” So when I saw my rheumatologist today I asked if I should have a DEXA
Charkha
in
PMRGCAuk
9 months ago
low Immunoglobulins
Hello Everyone, My CLL is actually under control with normal labs, except low immunoglobulins. IGA and IGM basically nothing, IGG 401. Taken off Zanubrutinib when I got Covid in July 2022, been off since then. Continually tired, some days exhausted. With lower extremity pain, feels like inflammation
Hello Everyone, My CLL is actually under control with normal labs, except low immunoglobulins. IGA and IGM basically nothing, IGG 401. Taken off Zanubrutinib when I got Covid in July 2022, been off since then. Continually tired, some days exhausted. With lower extremity pain, feels like inflammation
Davidcara
in
CLL Support
9 months ago
moving pain
I am on my 3rd day of prednisolone, 20 mg after being diagnosed with pmr. Although I am experiencing less pain and stiffness than before the pain seems to vary where to attack. Yesterday it was only my shoulders and upper arms and today it’s only my left hip and thigh. Is this a thing??
I am on my 3rd day of prednisolone, 20 mg after being diagnosed with pmr. Although I am experiencing less pain and stiffness than before the pain seems to vary where to attack. Yesterday it was only my shoulders and upper arms and today it’s only my left hip and thigh. Is this a thing??
Nanatoo
in
PMRGCAuk
11 months ago
73, RP 2021, BCR peaked PSA 2.2 2023, scrambling
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
jackwfrench
in
Advanced Prostate Cancer
9 months ago
Struggling to accept/deal with pain and decreased range of movement
Hi, I was encouraged by medics to wean off and stop prednisone after 2 yrs on them due to osteopenia and inflammatory markers "normal". I did so in July 23 I am trying to continue to work as a nurse and occasionally take one dose of 400 mg ibuprofen a day/night which works well. I have pain in outer
Hi, I was encouraged by medics to wean off and stop prednisone after 2 yrs on them due to osteopenia and inflammatory markers "normal". I did so in July 23 I am trying to continue to work as a nurse and occasionally take one dose of 400 mg ibuprofen a day/night which works well. I have pain in outer
wakinguptolife
in
PMRGCAuk
9 months ago
Is this PMR?
Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm not entirely convinced as I don't fit the symptoms of aches and stiffness in the shoulders and hips. This all started in March 23 where I woke
Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm not entirely convinced as I don't fit the symptoms of aches and stiffness in the shoulders and hips. This all started in March 23 where I woke
Evie1977
in
PMRGCAuk
11 months ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
9 months ago
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