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Cinchocaine / Prednisolone hexanoate
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Moving on to Provenge/Sipuleucel-t
We met with my husband's onc yesterday to discuss the next move since the 3 years of Abiraraterone/prednisone has run its course. His psa numbers are now around 2.0 (up from a low of .04) and psma scan indicates that bone met volume is quite low. A recent lab biopsy didn't reveal much... The good doc
We met with my husband's onc yesterday to discuss the next move since the 3 years of Abiraraterone/prednisone has run its course. His psa numbers are now around 2.0 (up from a low of .04) and psma scan indicates that bone met volume is quite low. A recent lab biopsy didn't reveal much... The good doc
Lavender22
in
Advanced Prostate Cancer
2 months ago
Nearing the end.......maybe.
I've spent the last 17 weeks extremely slowly reducing my prednisone dose from .5 mg to zero. I'm so close after 8 years, but am always mindful of PMRpro's mantra, "the lowest EFFECTIVE dose". Filling my pill box for next week I realized that there's only one more .5 mg dose for the next 2 weeks and
I've spent the last 17 weeks extremely slowly reducing my prednisone dose from .5 mg to zero. I'm so close after 8 years, but am always mindful of PMRpro's mantra, "the lowest EFFECTIVE dose". Filling my pill box for next week I realized that there's only one more .5 mg dose for the next 2 weeks and
Raven1955
in
PMRGCAuk
2 months ago
Pred again
Hi I have been diagnosed with PMR again and put back on prednisone I really did not want to go back on the steroids I had a awful time 2 years ago when I was put on them, I gained 3 stone I just could not stop eating!!! We talked through everything with my consultant and I agreed to go on 10mg and
Hi I have been diagnosed with PMR again and put back on prednisone I really did not want to go back on the steroids I had a awful time 2 years ago when I was put on them, I gained 3 stone I just could not stop eating!!! We talked through everything with my consultant and I agreed to go on 10mg and
24paula
in
PMRGCAuk
2 months ago
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Hello
Hello everyone I am newly diagnosed with PMR and trying to get used to the idea that I have it Would welcome any tips on managing Prednisone side effects š
Hello everyone I am newly diagnosed with PMR and trying to get used to the idea that I have it Would welcome any tips on managing Prednisone side effects š
Sussexsindydoll
in
PMRGCAuk
2 months ago
Appropriate Treatment
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
154Eleventh
in
Advanced Prostate Cancer
2 months ago
Much Better
Despite no inflammatory markers my GP believed I did indeed have PMR. I have never felt so well after 3 weeks on 15 mgs of prednisone. I'm beginning my tapering. My situation is a bit complicated as I have both MS and CMT so I thought my problems might have been neurological. I didn't know I felt so
Despite no inflammatory markers my GP believed I did indeed have PMR. I have never felt so well after 3 weeks on 15 mgs of prednisone. I'm beginning my tapering. My situation is a bit complicated as I have both MS and CMT so I thought my problems might have been neurological. I didn't know I felt so
FreeWolf
in
PMRGCAuk
2 months ago
Please help us decide on next treatment
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dadās PSA started going up. He had a PSMA Pet scan and it
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dadās PSA started going up. He had a PSMA Pet scan and it
Simonapo
in
Advanced Prostate Cancer
2 months ago
Noraltavet
I have been using UMARY as a pain suppresent in conjunction with Methotrexate to get off prednisone for my PMR. Has anyone else been using UMARY?
I have been using UMARY as a pain suppresent in conjunction with Methotrexate to get off prednisone for my PMR. Has anyone else been using UMARY?
Veteranvet
in
PMRGCAuk
2 months ago
GCA question
I am happy to report I am feeling pretty good and down to 5 1/2 mg if prednisone. My question is, does anyone else with GCA get a pain like feeling in their head and a feeling that something is wrong or going to happen. The feeling only lasts several seconds but it is unnerving. I think about a stroke
I am happy to report I am feeling pretty good and down to 5 1/2 mg if prednisone. My question is, does anyone else with GCA get a pain like feeling in their head and a feeling that something is wrong or going to happen. The feeling only lasts several seconds but it is unnerving. I think about a stroke
Plains
in
PMRGCAuk
2 months ago
PMR & GCA: A Survival Guide
Book arrived yesterday afternoon - thank you to all who referenced it in your posts to me - it's read and about to be re-read! It's the first engaging piece of literature that I've been able to concentrate on for months! (for some reason I can't access the website www.polywotsit.com - does it still exist
Book arrived yesterday afternoon - thank you to all who referenced it in your posts to me - it's read and about to be re-read! It's the first engaging piece of literature that I've been able to concentrate on for months! (for some reason I can't access the website www.polywotsit.com - does it still exist
Hopeful66
in
PMRGCAuk
7 months ago
Taper
Hi everyone ā¦I'm feeling ok but my weight gain is just crazy Iāve managed to go down 1/2mg of prednisone at a time to now 7-1/2 mg have been on that 6 weeks but Iām wondering with all this weight should I try and decrease another 1/2mg or should I work on diet firstā¦.appreciate any advice thanks
Hi everyone ā¦I'm feeling ok but my weight gain is just crazy Iāve managed to go down 1/2mg of prednisone at a time to now 7-1/2 mg have been on that 6 weeks but Iām wondering with all this weight should I try and decrease another 1/2mg or should I work on diet firstā¦.appreciate any advice thanks
Januzzi
in
PMRGCAuk
2 months ago
Tapered to 2 mg
I have now been on 2 mg for a week and was expecting the usual fatigue when I start at a new lower level but instead this time I feel better than I have in months, much more energy. I hope it lasts! Does this typically happen when not so much prednisone going into the body?
I have now been on 2 mg for a week and was expecting the usual fatigue when I start at a new lower level but instead this time I feel better than I have in months, much more energy. I hope it lasts! Does this typically happen when not so much prednisone going into the body?
Paulagcl
in
PMRGCAuk
2 months ago
Jaw locking while tapering for GCA
I am in the process of tapering from 65 mg of Prednisone for GCA. Tonight the right side of my jaw temporarily locked while brushing my teeth. If I am honest, my scalp is becoming a bit tender again, and my tinnitus has increased a notch. I was on the high doses of Prednisone for six weeks, and began
I am in the process of tapering from 65 mg of Prednisone for GCA. Tonight the right side of my jaw temporarily locked while brushing my teeth. If I am honest, my scalp is becoming a bit tender again, and my tinnitus has increased a notch. I was on the high doses of Prednisone for six weeks, and began
Bummed24
in
PMRGCAuk
2 months ago
GCA diagnosed last February. Biopsy tested positive. No typical symptoms of GCA,2021 just jaw pain at night but I have had PMR since 2021
GCA diagnosed last February. Put on 60mg Prednisone/day for a month. CRP was 67.7 before 60 mg and came down to 12.6 after the treatment. ESR was not an issue.Because CRP is 12.6 should i continue taking 60 mg/day prednisone? My Rheumy is away for 10 days Your advise would be greatly appreciated
GCA diagnosed last February. Put on 60mg Prednisone/day for a month. CRP was 67.7 before 60 mg and came down to 12.6 after the treatment. ESR was not an issue.Because CRP is 12.6 should i continue taking 60 mg/day prednisone? My Rheumy is away for 10 days Your advise would be greatly appreciated
Vikinga
in
PMRGCAuk
2 months ago
Do I have symptoms of PMR
good morning all, I was diagnosed 2/1/24 withGCA after having serious sight issues in left eye. I had sensitive scalp, loss of weight and energy and left sided headaches for a month or so before but didnāt link these. Started on 50mgm but symptoms started again when I dropped to 40 so increased to 60mg
good morning all, I was diagnosed 2/1/24 withGCA after having serious sight issues in left eye. I had sensitive scalp, loss of weight and energy and left sided headaches for a month or so before but didnāt link these. Started on 50mgm but symptoms started again when I dropped to 40 so increased to 60mg
NinnyB
in
PMRGCAuk
2 months ago
Addison's disease
I stopped taking Abiraterone three months ago to have a vacation. Was on it for six years. I tapered of the prednisone. I became very fatigued. Could hardly do anything in the morning and then limited things in the afternoon. then I thought of my low cortisol level (due to the abi) a couple years ago
I stopped taking Abiraterone three months ago to have a vacation. Was on it for six years. I tapered of the prednisone. I became very fatigued. Could hardly do anything in the morning and then limited things in the afternoon. then I thought of my low cortisol level (due to the abi) a couple years ago
gsun
in
Advanced Prostate Cancer
2 months ago
constant itching
Has anyone experienced severe itching out of no where with RA? Iāve had it a few years and been on the same medication for a year without issue a bout three weeks ago I started itching like crazy. Iāll be fine and get these explosions of itching all over my body and it doesnāt stop. My Rheumatologist
Has anyone experienced severe itching out of no where with RA? Iāve had it a few years and been on the same medication for a year without issue a bout three weeks ago I started itching like crazy. Iāll be fine and get these explosions of itching all over my body and it doesnāt stop. My Rheumatologist
Bobbobby
in
NRAS
3 months ago
how quickly did you feel relief by taking prednisolone?
posted before about potential PMR. Painful bilateral shoulders, upper and lower back pain, neck pain, sacroiliac, thigh pain etc. raised. Inflammation markers so prescribed 15mg prednisolone with repeat bloods after 2 weeks. Just wondering if this is PMR, how soon can I possibly find some relief?
posted before about potential PMR. Painful bilateral shoulders, upper and lower back pain, neck pain, sacroiliac, thigh pain etc. raised. Inflammation markers so prescribed 15mg prednisolone with repeat bloods after 2 weeks. Just wondering if this is PMR, how soon can I possibly find some relief?
Hephzi
in
PMRGCAuk
7 months ago
Six hour time change
Going from US to EU for an 8-day river cruise. Should I take my prednisone at the same UTC time, or make a temporary adjustment to the new time zone?
Going from US to EU for an 8-day river cruise. Should I take my prednisone at the same UTC time, or make a temporary adjustment to the new time zone?
papadapadoo
in
PMRGCAuk
3 months ago
Seizures
Helloā¦ I have had seven seizures now and have been told different information about them. All seven I had the following: 1) Increased heart rate 2) twitching lip 3) feeling like I canāt take a deep breath 4) dizziness and muscle weakness 5) shaking and bronchospasm (oxygen levels are fine I have
Helloā¦ I have had seven seizures now and have been told different information about them. All seven I had the following: 1) Increased heart rate 2) twitching lip 3) feeling like I canāt take a deep breath 4) dizziness and muscle weakness 5) shaking and bronchospasm (oxygen levels are fine I have
Schnoodlelover
in
Neuro Support
3 months ago
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