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Cinchocaine / Prednisolone hexanoate
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Where do I go from here?
I've many years history of Rheumatoid Arthritis and Polymyalgia (PMR). I developed vasculitis in August, possibly triggered by apixaban.That had been started after an episode of dramatically low sodium had caused Atrial Fibrillation. I'm now on 25mg prednisolone, azathioprine 125mg daily. This is stops
I've many years history of Rheumatoid Arthritis and Polymyalgia (PMR). I developed vasculitis in August, possibly triggered by apixaban.That had been started after an episode of dramatically low sodium had caused Atrial Fibrillation. I'm now on 25mg prednisolone, azathioprine 125mg daily. This is stops
oldtimer2
in
Vasculitis UK
6 months ago
Introduction and Thanks
First of all I would like to introduce myself. My name is Roy and I am 78 and although I am English I now live in Adelaide, Australia.. Up until the last year or two I have had a good health run ( I realise how lucky I am ) until the dreaded PMR struck. After diagnosing myself, thanks to Dr Google, and
First of all I would like to introduce myself. My name is Roy and I am 78 and although I am English I now live in Adelaide, Australia.. Up until the last year or two I have had a good health run ( I realise how lucky I am ) until the dreaded PMR struck. After diagnosing myself, thanks to Dr Google, and
Willpower1945
in
PMRGCAuk
7 months ago
11dp5dt bfp but spotting
Hi looking for reassurance or anyone with a similar story. I’m currently 11dp5dt and have had positive tests since day 5 which I’m very happy about. However today I noticed a bit of light brown discharge and then half an hour later wiped away dark red blood. There was loads of it but enough to make me
Hi looking for reassurance or anyone with a similar story. I’m currently 11dp5dt and have had positive tests since day 5 which I’m very happy about. However today I noticed a bit of light brown discharge and then half an hour later wiped away dark red blood. There was loads of it but enough to make me
Victoria27
in
Fertility Network UK
7 months ago
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Long Haul Flight and Pred
Morning, I’m looking for some advice please about taking my prednisolone after a long haul flight as we will be away for two months. I usually take my prednisolone about 8am, we are flying to Australia for our granddaughter’s wedding in a couple of weeks so I can take my prednisolone at the normal
Morning, I’m looking for some advice please about taking my prednisolone after a long haul flight as we will be away for two months. I usually take my prednisolone about 8am, we are flying to Australia for our granddaughter’s wedding in a couple of weeks so I can take my prednisolone at the normal
GreatGranny4
in
PMRGCAuk
7 months ago
Side effect of prednisolone
The end of last Nov/Dec last year I had to take a long course of prednisolone over 2 weeks. Then a reducing dose back down to zero. Nine days ago I had a blood test to check my blood sugar. It came back a little raised. This I was told wasn't too concerning as I had been on steriods. This test will
The end of last Nov/Dec last year I had to take a long course of prednisolone over 2 weeks. Then a reducing dose back down to zero. Nine days ago I had a blood test to check my blood sugar. It came back a little raised. This I was told wasn't too concerning as I had been on steriods. This test will
elanaoali
in
Asthma Community Forum
7 months ago
which diuretic with prednisolone?
I posted a while ago about diuretics - thanks for the responses. Mum was put on furosemide which worked for the odema, but within a week had diarrhoea which meant it was stopped and we ended up with a bad uti with haemorrhage due to the diarrhoea…… It may have been the furosemide causing the diarrhoea
I posted a while ago about diuretics - thanks for the responses. Mum was put on furosemide which worked for the odema, but within a week had diarrhoea which meant it was stopped and we ended up with a bad uti with haemorrhage due to the diarrhoea…… It may have been the furosemide causing the diarrhoea
RT18
in
PMRGCAuk
7 months ago
Experience and honest opinions of EMMA, ERA and ALICE tests and karyotype please
Hi, after multiple IVF failures the latest two with PGTA tested euploid embryos, I had another hysteroscopy, curettage and culture and sensitivity procedure yesterday. The consultant said everything looked healthy and normal but I have to wait a week or two for the biopsy report. My tubes were both
Hi, after multiple IVF failures the latest two with PGTA tested euploid embryos, I had another hysteroscopy, curettage and culture and sensitivity procedure yesterday. The consultant said everything looked healthy and normal but I have to wait a week or two for the biopsy report. My tubes were both
Crie1983
in
Fertility Network UK
7 months ago
Can PMR effect hip, pelvic area
Hello everyone, I have been on prednisolone for just over three weeks, pain in neck, shoulders & arms have improved . I thought my low back had gone into spasm at the weekend however I am wondering if it could be PMR . The pain in hips and pelvic area is excruciating first thing in the morning easing
Hello everyone, I have been on prednisolone for just over three weeks, pain in neck, shoulders & arms have improved . I thought my low back had gone into spasm at the weekend however I am wondering if it could be PMR . The pain in hips and pelvic area is excruciating first thing in the morning easing
Mistyfied
in
PMRGCAuk
7 months ago
Bitter Taste In Mouth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
LizMitchell
in
PMRGCAuk
7 months ago
Aching joints after stopping prednisolone
Hi could I ask if it is normal to suffer aching joints & muscles after stopping prednisolone?In mid Nov I managed finally to taper off prednisolone after 3 yrs treatment for PMR. I felt ok and very pleased with myself. I then caught covid ( badly) in early Dec which left me fatigued. I went off to
Hi could I ask if it is normal to suffer aching joints & muscles after stopping prednisolone?In mid Nov I managed finally to taper off prednisolone after 3 yrs treatment for PMR. I felt ok and very pleased with myself. I then caught covid ( badly) in early Dec which left me fatigued. I went off to
lilydunn
in
PMRGCAuk
7 months ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
7 months ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
7 months ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
7 months ago
Med alert wording
I’m just starting a slow taper to 5.5mg prednisolone and aware my adrenals should be waking up but might not. I’m considering getting a medical alert bracelet but would appreciate advice on what wording I should have on it.
I’m just starting a slow taper to 5.5mg prednisolone and aware my adrenals should be waking up but might not. I’m considering getting a medical alert bracelet but would appreciate advice on what wording I should have on it.
Mfaepink1973
in
PMRGCAuk
7 months ago
Lupus and Sjogrens issue
Has anybody ever had issues with lupus/sjogrens in their ears? I caught a cold and mucus has settled in my Eustachian tubes or something and they have been blocked now for over 15 months. I have so much fullness and pressure in both ears and I have lost a lot of my hearing. Prednisone hasn't helped
Has anybody ever had issues with lupus/sjogrens in their ears? I caught a cold and mucus has settled in my Eustachian tubes or something and they have been blocked now for over 15 months. I have so much fullness and pressure in both ears and I have lost a lot of my hearing. Prednisone hasn't helped
Nanosaint
in
LUPUS UK
9 hours ago
Update
Hi everyone, I’m on a steroid taper of 10/5 daily so will be on 5 mg when I start Mycophenolate on 20th of this month, I’m starting on a low dose gradually increasing. Hopefully this will take away the inflammation and remove bilateral pleural effusion’s and pericardial effusion caused by Serositis as
Hi everyone, I’m on a steroid taper of 10/5 daily so will be on 5 mg when I start Mycophenolate on 20th of this month, I’m starting on a low dose gradually increasing. Hopefully this will take away the inflammation and remove bilateral pleural effusion’s and pericardial effusion caused by Serositis as
Numptybrain
in
PMRGCAuk
18 hours ago
Looking for typical Prednisone reduction schedule new on Actemra
Haven't been around much lately. This has probably been the worst, six months of my seven years with pmr and final recent eye surgery for double vision 7.8 Have spent the last six months deciding on starting Actemra at the urging of my rheumatologist. Round and round with insurance (U.S.) appeal, re-submission
Haven't been around much lately. This has probably been the worst, six months of my seven years with pmr and final recent eye surgery for double vision 7.8 Have spent the last six months deciding on starting Actemra at the urging of my rheumatologist. Round and round with insurance (U.S.) appeal, re-submission
JanetGarrettN
in
PMRGCAuk
2 days ago
DSNS protocol
I am on 2.5 mg prednisone going to 2 mg. Twice in the last 6 months I have flared at 2 mg. I am on week three of the 5 week DSNS plan. Once I get to a full week of only 2 mg can I then start the program again going from 2 to 1.5 mg if no stiffness or should I hold at 2 mg for awhile before reducing
I am on 2.5 mg prednisone going to 2 mg. Twice in the last 6 months I have flared at 2 mg. I am on week three of the 5 week DSNS plan. Once I get to a full week of only 2 mg can I then start the program again going from 2 to 1.5 mg if no stiffness or should I hold at 2 mg for awhile before reducing
Skier321
in
PMRGCAuk
3 days ago
GCA Flare~~ status and explanations💞
You are ALL just an awesome army of encouragement and support. My state of mind is rather unusual for me. As a child, if I had an upset stomach, my mother would put ginger ale in a glass and stir it with a spoon until all the bubbles and carbonation were gone. I feel like flat ginger ale. Yesterday
You are ALL just an awesome army of encouragement and support. My state of mind is rather unusual for me. As a child, if I had an upset stomach, my mother would put ginger ale in a glass and stir it with a spoon until all the bubbles and carbonation were gone. I feel like flat ginger ale. Yesterday
Grammy80
in
PMRGCAuk
3 days ago
ADVICE PLEASE
I'm asking here rather than my doctor because I'm embarrassed about what I've done and how ignorant I have been. Not only that but my rheumatologist gives me the utmost Trust in allowing me to determine the best prednisone dose for me. So after about a week of unrelenting horrible pain that I had been
I'm asking here rather than my doctor because I'm embarrassed about what I've done and how ignorant I have been. Not only that but my rheumatologist gives me the utmost Trust in allowing me to determine the best prednisone dose for me. So after about a week of unrelenting horrible pain that I had been
Amkoffee
in
PMRGCAuk
4 days ago
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