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MRD Results
My hubby's CLL Dr called today and gave us the good news. My hubby's blood has zero CLL, and his bone marrow dropped 25% to .12%. His Dr wants him to keep taking his venetoclax and acalabrutinib so that his bone marrow gets CLL lower or totally out. To date, my hubby will be on this treatment 1 year
My hubby's CLL Dr called today and gave us the good news. My hubby's blood has zero CLL, and his bone marrow dropped 25% to .12%. His Dr wants him to keep taking his venetoclax and acalabrutinib so that his bone marrow gets CLL lower or totally out. To date, my hubby will be on this treatment 1 year
spi3
in
CLL Support
4 months ago
Yellowish skin,
Hi,i have yellows.skin for 3 years.now but my liver test come back normal,i had a really high.consume alcohol,i look yellowish but with.normal bilirubin test,i have take.billirubin test seven times now,all normal,albumin normal,inr,normal,alt normal,what can it be?
Hi,i have yellows.skin for 3 years.now but my liver test come back normal,i had a really high.consume alcohol,i look yellowish but with.normal bilirubin test,i have take.billirubin test seven times now,all normal,albumin normal,inr,normal,alt normal,what can it be?
Okki49
in
British Liver Trust
6 months ago
Support: Anxiety about having a baby
Hello everyone, I've been suffering from
chronic
pain
for about fifteen years now (half of my life) and it's really taken its toll.
Hello everyone, I've been suffering from
chronic
pain
for about fifteen years now (half of my life) and it's really taken its toll.
Resqc
in
Pain Concern
9 months ago
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Venetoclax
Hi all Well we finally got to see a specialist. They did a bone marrow biopsy which showed 50% CLL infiltration on top of the pancytopenia. They have suggested treatment with Venetoclax only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever
Hi all Well we finally got to see a specialist. They did a bone marrow biopsy which showed 50% CLL infiltration on top of the pancytopenia. They have suggested treatment with Venetoclax only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever
JoeMcDote
in
CLL Support
5 months ago
Focusing on 1 thing physically hurts
And years of bad case of ADHD + very heavy multitasking as i couldn't do anything 8 years
chronic
pain
... When i try to focus on breath e.g. when trying to fall asleep, it gets physically painful in 10 seconds. Like visceral pain in my head and on chest!
And years of bad case of ADHD + very heavy multitasking as i couldn't do anything 8 years
chronic
pain
... When i try to focus on breath e.g. when trying to fall asleep, it gets physically painful in 10 seconds. Like visceral pain in my head and on chest!
empleat
in
CHADD's Adult ADHD Support
8 months ago
Dipipanone and Cyclizine
Thank you.Best wishes to all of you who are in
chronic
pain
. I sympathise so much.
Thank you.Best wishes to all of you who are in
chronic
pain
. I sympathise so much.
Danni54
in
Pain Concern
1 year ago
Is it ok to smoke marijuana or to take edibles with cll?
It gives me relief from general anxiety and unsettling feeling of going to a medical facility. Has anyone had any experience with using this for the two reasons mentioned above? Thank you.
It gives me relief from general anxiety and unsettling feeling of going to a medical facility. Has anyone had any experience with using this for the two reasons mentioned above? Thank you.
Jessielab
in
CLL Support
5 months ago
Back pain plus angina
I am looking for help in distinguished
chronic
back
pain
and an angina episode.I would be most grateful for anyone's input regarding this issue. It may not seem a big problem & I am grateful that I have a gtn spray to use, but don't want to use it when its not necessary.
I am looking for help in distinguished
chronic
back
pain
and an angina episode.I would be most grateful for anyone's input regarding this issue. It may not seem a big problem & I am grateful that I have a gtn spray to use, but don't want to use it when its not necessary.
Etblue
in
Care Community
6 months ago
LDN for Chronic Pain
· An LDN 2023 Conference Presentation Promo by Lynn Gufeld, AGACNP on LDN for
Chronic
Pain
in Hypermobility Spectrum Disorder / Ehlers-Danlos Syndrome
· An LDN 2023 Conference Presentation Promo by Lynn Gufeld, AGACNP on LDN for
Chronic
Pain
in Hypermobility Spectrum Disorder / Ehlers-Danlos Syndrome
Shewulf
Administrator
in
LDN Research Trust
1 year ago
Headaches 2 weeks still after falls - should I be worried
Son suffers from
Chronic
pain
and FND, described his head pain like his brain is loose in his skull and moving quickly side to side hitting walls of skull (concussion symptoms I believe).
Son suffers from
Chronic
pain
and FND, described his head pain like his brain is loose in his skull and moving quickly side to side hitting walls of skull (concussion symptoms I believe).
Lady4
in
Functional Neurological Disorder - FND Hope
8 months ago
gobsmacked
I can't believe they won't prescribe Subutex to a suffering
chronic
pain
sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me.
I can't believe they won't prescribe Subutex to a suffering
chronic
pain
sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me.
Hidden
in
Restless Legs Syndrome
9 months ago
Chronic pain affecting marriage
I've been suffering from
chronic
pain
for 15 years now. My wife whom I care for immensely tells me that I'm too critical of people in social situations and I'm not any good at them anymore. And I don't really know what to do. People cannot understand my pain.
I've been suffering from
chronic
pain
for 15 years now. My wife whom I care for immensely tells me that I'm too critical of people in social situations and I'm not any good at them anymore. And I don't really know what to do. People cannot understand my pain.
Resqc
in
Pain Concern
1 year ago
Help with test results
Hi all. I've been having tests as my doctor believes I may have occupational asthma (I work with flour and other flour based ingredients). My blood results have come back as normal but my chest x-ray state the following which I don't understand... "Heart size and mediastinal contours are within normal
Hi all. I've been having tests as my doctor believes I may have occupational asthma (I work with flour and other flour based ingredients). My blood results have come back as normal but my chest x-ray state the following which I don't understand... "Heart size and mediastinal contours are within normal
EMJAY1401
in
Asthma Community Forum
7 months ago
Chronic pain post navicular fracture surgery
This really seems like a pity post but I’m just hoping somebody out there may have a positive experience of handling
chronic
pain
or something similar.
This really seems like a pity post but I’m just hoping somebody out there may have a positive experience of handling
chronic
pain
or something similar.
Rosamond19
in
Pain Concern
1 year ago
NICE are looking for your help
NICE are inviting the following people to help shape it: -
people with personal experience of facing decisions about their
primary
pain
, or who are supporting or have supported a friend or relative facing those decisions.
NICE are inviting the following people to help shape it: -
people with personal experience of facing decisions about their
primary
pain
, or who are supporting or have supported a friend or relative facing those decisions.
PainConcernHelpline
Pain Concern
in
Pain Concern
9 months ago
Does this sound like endo?
I have had
chronic
pelvic/ lower back
pain
for the past 12 years, it flares up to the point where I can't do anything, but lay in bed and then after a few days to weeks it calms down to just the "usual pain/ache" and the cycle continues.
I have had
chronic
pelvic/ lower back
pain
for the past 12 years, it flares up to the point where I can't do anything, but lay in bed and then after a few days to weeks it calms down to just the "usual pain/ache" and the cycle continues.
Shellbell2023
in
Endometriosis UK
7 months ago
Pain and hypnotherapy
Hello - I'm a podcast producer and I'm looking for someone who has successfully managed their
chronic
pain
with hypnosis/hypnotherapy to be interviewed for an upcoming podcast series.
Hello - I'm a podcast producer and I'm looking for someone who has successfully managed their
chronic
pain
with hypnosis/hypnotherapy to be interviewed for an upcoming podcast series.
podproducer
in
Pain Concern
11 months ago
Should I be worried?
Hi All, my Haemo Lady, just called me with my Bone Marrow Biopsy results, She, said they were heavily infiltrated with CLL. A recent body scan also showed a large lump in my stomach, she is not sure if it is related to my CLL, or perhaps an aggressive lymphoma. She has ordered a needle biopsy of this
Hi All, my Haemo Lady, just called me with my Bone Marrow Biopsy results, She, said they were heavily infiltrated with CLL. A recent body scan also showed a large lump in my stomach, she is not sure if it is related to my CLL, or perhaps an aggressive lymphoma. She has ordered a needle biopsy of this
Vindicatrix
in
CLL Support
5 months ago
venetoclax and obinutuzumab treatment for cll
Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?
Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?
dellkota
in
CLL Support
5 months ago
First six-month blood test, and my lymphocytes have gone down!
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
Jazzandblues
in
CLL Support
5 months ago
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