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Chronic leukaemia
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Very feint BFP on OTD 11P5DT - any success stories, others experiences?
Sorry lovelies I've been asking for your help quite a bit recently. So today is my OTD after a FET of a 5 day embryo (well 2 actually). I've tested using First Response early result and there is a second line but it's very feint. I made sure only to look at it within the 10 minutes window so I'm pretty
Sorry lovelies I've been asking for your help quite a bit recently. So today is my OTD after a FET of a 5 day embryo (well 2 actually). I've tested using First Response early result and there is a second line but it's very feint. I made sure only to look at it within the 10 minutes window so I'm pretty
IVFat40
in
Fertility Network UK
4 years ago
Question for those living with MF
I was diagnosed in August and have been on Ruxolitinib for almost seven weeks. My blood counts have been really encouraging generally and my red cells are being topped up with transfusions. Last week's Hb before the transfusion was 91, today's was 87. Platelets last week were 117, but today this had
I was diagnosed in August and have been on Ruxolitinib for almost seven weeks. My blood counts have been really encouraging generally and my red cells are being topped up with transfusions. Last week's Hb before the transfusion was 91, today's was 87. Platelets last week were 117, but today this had
Otterfield
in
MPN Voice
4 years ago
Hcg level low 6dp5dt
Hi ladies, I had 3bb blasto transfer on the 5th dec and on 11th dec i had blood test done is beta is just 30. Is there any hope before the other blood test. Anyone in similar situation?
Hi ladies, I had 3bb blasto transfer on the 5th dec and on 11th dec i had blood test done is beta is just 30. Is there any hope before the other blood test. Anyone in similar situation?
Mkab
in
Fertility Network UK
4 years ago
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Anyone tried Claritin for pain?
A week or so ago I posted about knee and wrist pain with MF. The pain in my knees has got worse and often now sort of radiates to my thighs and shins. I did some googling (though I never google the scary stuff about MF!) and found some suggestion that Claritin (the antihistamine Loratadine) might be
A week or so ago I posted about knee and wrist pain with MF. The pain in my knees has got worse and often now sort of radiates to my thighs and shins. I did some googling (though I never google the scary stuff about MF!) and found some suggestion that Claritin (the antihistamine Loratadine) might be
Otterfield
in
MPN Voice
4 years ago
MDS and AML
Despite feeling lethargic and tired for over two years and going to the doctors on a regular basis and having over a dozen blood tests abd no referrals earlier we have had the awful news this week that my partner has both MDS and AML and goes into hospital today for 4/5 weeks of chemo with view to stem
Despite feeling lethargic and tired for over two years and going to the doctors on a regular basis and having over a dozen blood tests abd no referrals earlier we have had the awful news this week that my partner has both MDS and AML and goes into hospital today for 4/5 weeks of chemo with view to stem
sportydad
in
Leukaemia Support
4 years ago
(Imbruvica), Ibrutinib, To live or to die
Hi, I have a 50-years old friend who has had CLL since 2013. He had a relapse in early 2020. When he was close to death, he was hospitalized to a private hospital in Turkey and was prescribed Imbruvica from Janssen company. Since he does not have insurance, he bought the medicine himself and spent almost
Hi, I have a 50-years old friend who has had CLL since 2013. He had a relapse in early 2020. When he was close to death, he was hospitalized to a private hospital in Turkey and was prescribed Imbruvica from Janssen company. Since he does not have insurance, he bought the medicine himself and spent almost
Green202
in
CLL Support
4 years ago
Aussies, please consider enrolling in this study into the personal impact of CLL and help our world wide CLL/SLL community
Australians diagnosed with
chronic
lymphocytic
leukaemia
/small lymphocytic lymphoma (CLL/SLL), whether in watch and wait or in treatment:- [i]- Are you ready to have your say on the support, care & information patients need? - Are you ready for your experience to help others in the future?
Australians diagnosed with
chronic
lymphocytic
leukaemia
/small lymphocytic lymphoma (CLL/SLL), whether in watch and wait or in treatment:- [i]- Are you ready to have your say on the support, care & information patients need? - Are you ready for your experience to help others in the future?
AussieNeil
Partner
in
CLL Support
4 years ago
Can you see it??
Hey guys hope ur all doing well xx quick question am. I seeing things. I had my frozen 5 day blastocyst transferred on the 1st of December. So I'm 6days past I've not used any hcg hormones. So I know I can't be fake. Did take 2 test the last 2 days and was nothing. And just did this one today and I
Hey guys hope ur all doing well xx quick question am. I seeing things. I had my frozen 5 day blastocyst transferred on the 1st of December. So I'm 6days past I've not used any hcg hormones. So I know I can't be fake. Did take 2 test the last 2 days and was nothing. And just did this one today and I
Judda4982
in
Fertility Network UK
4 years ago
Disease Flare During Temporary Interruption of Ibrutinib Therapy in Patients with Chronic Lymphocytic Leukemia ( CLL ) - Pseudo Richters
Several of us have reported our CLL symptoms have come roaring back after discontinuing Ibrutinib/imbruvica with even a few cases of what's been termed pseudo-Richters, where some patients appear to have even undergone unnecessary R-CHOP chemoimmunotherapy as our member Priss69 has reported:
Several of us have reported our CLL symptoms have come roaring back after discontinuing Ibrutinib/imbruvica with even a few cases of what's been termed pseudo-Richters, where some patients appear to have even undergone unnecessary R-CHOP chemoimmunotherapy as our member Priss69 has reported:
AussieNeil
Partner
in
CLL Support
4 years ago
HCG level of 5
Hi everyone Is there any chance one could still be pregnant with the hcg level of less than 5?
Hi everyone Is there any chance one could still be pregnant with the hcg level of less than 5?
Lovgee
in
Fertility Network UK
4 years ago
Resistance to Ibrutinib
Hi everyone this is my first post. I'm looking for some advice, reassurance please. I'm tp53 mutated and have been on ibrutinib 7 months, which is not working.I saw my consultant on Thursday and the plan is to continue for another 3 months to see if it starts working. My lymphocytes remain at 300. Has
Hi everyone this is my first post. I'm looking for some advice, reassurance please. I'm tp53 mutated and have been on ibrutinib 7 months, which is not working.I saw my consultant on Thursday and the plan is to continue for another 3 months to see if it starts working. My lymphocytes remain at 300. Has
Reddg
in
CLL Support
4 years ago
CLL Treatments Today: What Should I Know? October 3, 2020 at 9:00 AM Pacific Time / 12:00 PM Eastern Time
https://mailchi.mp/patientpower.info/your-patient-powered-cll-news-1299504?e=8acc3ddacd Saturday, October 3, 2020 at 9:00 AM Pacific Time / 12:00 PM Eastern Time This 3-hour program will take you through a CLL 101, 201 and 301 class hosted by CLL patient advocates and experts from Cleveland Clinic and
https://mailchi.mp/patientpower.info/your-patient-powered-cll-news-1299504?e=8acc3ddacd Saturday, October 3, 2020 at 9:00 AM Pacific Time / 12:00 PM Eastern Time This 3-hour program will take you through a CLL 101, 201 and 301 class hosted by CLL patient advocates and experts from Cleveland Clinic and
lankisterguy
Volunteer
in
CLL Support
4 years ago
BFP after previous MMC - how to cope
Got a BFP earlier this week after fresh transfer. Hcg was 102 10dp5dt. Was totally delighted but it hasn't lasted for long. Previously had a MMC at 7.5 weeks (after seeing heartbeat at 7 weeks) and now panicking I don't feel sick and it's going to happen again. Any tips for how to cope? I have PCOS
Got a BFP earlier this week after fresh transfer. Hcg was 102 10dp5dt. Was totally delighted but it hasn't lasted for long. Previously had a MMC at 7.5 weeks (after seeing heartbeat at 7 weeks) and now panicking I don't feel sick and it's going to happen again. Any tips for how to cope? I have PCOS
Kit84
in
Fertility Network UK
4 years ago
Today is World Leukemia Day
Dear friends Today, patients, patient groups, clinical groups and organisations across the world are uniting to raise awareness of leukaemia. By publicising the signs and symptoms we are working together to help leukaemia patients get diagnosed and provide better outcomes for them. You can make
Dear friends Today, patients, patient groups, clinical groups and organisations across the world are uniting to raise awareness of leukaemia. By publicising the signs and symptoms we are working together to help leukaemia patients get diagnosed and provide better outcomes for them. You can make
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
Help - BFN to BFP?
I need your opinion please friends! I tested on Thursday, my official test date, and had blood test done on Wednesday) and BFN. My clinics protocol is to test two days later before stopping meds. I did a urine test today and I think I can see a very very faint line. What’s happening??? Can you see a
I need your opinion please friends! I tested on Thursday, my official test date, and had blood test done on Wednesday) and BFN. My clinics protocol is to test two days later before stopping meds. I did a urine test today and I think I can see a very very faint line. What’s happening??? Can you see a
Patches86
in
Fertility Network UK
4 years ago
Been taking Exjade to my detriment
Chose to try Exjade after being told I had large iron levels due to transfusions. Was offered a choice of wait and see, think about it or just start. I am taking a trial drug MANIFEST-CPI0601 as well as rux so decided to give it a go. My mistake. This drug crashed my platelets from around 70 to 11 with
Chose to try Exjade after being told I had large iron levels due to transfusions. Was offered a choice of wait and see, think about it or just start. I am taking a trial drug MANIFEST-CPI0601 as well as rux so decided to give it a go. My mistake. This drug crashed my platelets from around 70 to 11 with
skodaguy
in
MPN Voice
4 years ago
HCG bloods at 5 weeks - am I counting the weeks right & should it double?
Hi all, I received my HCG blood result today, which I had done privately through Medichecks, as my NHS clinic don't do. I posted the bloods on Monday - which I think is week 5??? Is that right, I get so confused by the dates?! week 0 - 26th Oct (date of 1st day of period) week 1 - 2nd Nov week 2 - 9th
Hi all, I received my HCG blood result today, which I had done privately through Medichecks, as my NHS clinic don't do. I posted the bloods on Monday - which I think is week 5??? Is that right, I get so confused by the dates?! week 0 - 26th Oct (date of 1st day of period) week 1 - 2nd Nov week 2 - 9th
Orangeflowers
in
Fertility Network UK
4 years ago
Red spotting 6weeks 4 days.
Me again, I seem to ask a lot of questions so I’m sorry. So I started having a bit of red spotting on Monday (just when I wiped) I phoned clinic and nurses asked me to come up on Tuesday and I had bloods taken to check hcg. My levels were pretty high - 75,312 So I’ve to go for a scan on from day (I
Me again, I seem to ask a lot of questions so I’m sorry. So I started having a bit of red spotting on Monday (just when I wiped) I phoned clinic and nurses asked me to come up on Tuesday and I had bloods taken to check hcg. My levels were pretty high - 75,312 So I’ve to go for a scan on from day (I
Nessie3
in
Fertility Network UK
4 years ago
*Sensitive* Anxious about line progression with frer! IVF fresh cycle
Hi all, I took an early pregnancy test on Sunday at 8dp5dt and got a strong pregnancy line and took a second test immediately after, photo attached. On Monday, I took a test in the morning, the line was lighter and hasn't changed much since other than a slightly darker line today, Wednesday, 11dp5dt
Hi all, I took an early pregnancy test on Sunday at 8dp5dt and got a strong pregnancy line and took a second test immediately after, photo attached. On Monday, I took a test in the morning, the line was lighter and hasn't changed much since other than a slightly darker line today, Wednesday, 11dp5dt
Werr
in
Fertility Network UK
4 years ago
Home test all positive but 14dp5dt hcg bloods only 14
So upset this morning. Local gp called with my hCG results... They are only 14... .she booked me for another test tomo just to check if any improvement but when I advised the clinic in Prague they have pretty much wrote it off and told me to expect lower results tomorrow and that they were sorry and
So upset this morning. Local gp called with my hCG results... They are only 14... .she booked me for another test tomo just to check if any improvement but when I advised the clinic in Prague they have pretty much wrote it off and told me to expect lower results tomorrow and that they were sorry and
AnnieMac123
in
Fertility Network UK
4 years ago
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